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Experiences with
Small lymphocytic lymphoma (SLL)
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can non hodgkins lymphoma be diagnosed with blood tests and scans (ct,mri, or ultra sound scan)?
I have had all these scans, awaiting the outcome of the last one. I have swellings on my kneck, upper chest and the inside of my right knee. My mother died from hodgkins disease when she was 58yrs, I would be grateful for any feedback. many thanks
I have had all these scans, awaiting the outcome of the last one. I have swellings on my kneck, upper chest and the inside of my right knee. My mother died from hodgkins disease when she was 58yrs, I would be grateful for any feedback. many thanks
mabaker
in
Lymphoma Canada
11 years ago
Bone Marrow Biopsy for the Initial Staging of Patients With Lymphoma: Too Soon to Toss the Trephine
Those of us that would prefer avoiding Bone Marrow Biopsies (BMBs) and the pain associated with having the trephine (the surgical instrument used to cut out a bone sample) shoved into our hip, will not be encouraged by what's been reported on the Cancer Networks site. While CLL (which is both a Leukaemia
Those of us that would prefer avoiding Bone Marrow Biopsies (BMBs) and the pain associated with having the trephine (the surgical instrument used to cut out a bone sample) shoved into our hip, will not be encouraged by what's been reported on the Cancer Networks site. While CLL (which is both a Leukaemia
AussieNeil
Partner
in
CLL Support
11 years ago
Does anyone have first hand experience concerning non-hodgkinson's lymphoma?
I have been diagnosed with Scleroderma and have an appointment with my Rheumatologist next week. As a prelude, I have been reading over the last report he sent to my GP. In the letter he mentions IV Cylophosamide and says this should be considered. Of course, its all Serbo-Croat to me, I find it strange
I have been diagnosed with Scleroderma and have an appointment with my Rheumatologist next week. As a prelude, I have been reading over the last report he sent to my GP. In the letter he mentions IV Cylophosamide and says this should be considered. Of course, its all Serbo-Croat to me, I find it strange
titanicus
in
Scleroderma & Raynaud's UK (SRUK)
11 years ago
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Don't get Fazed by Phases
With the information from the current American Society of Hematology (ASH) 2013 beginning to flood out, we'll be reading of findings in different trial phases. Your decision on whether to join a treatment trial may well be influenced by the phase of the trial, so it is well worth understanding what
With the information from the current American Society of Hematology (ASH) 2013 beginning to flood out, we'll be reading of findings in different trial phases. Your decision on whether to join a treatment trial may well be influenced by the phase of the trial, so it is well worth understanding what
AussieNeil
Partner
in
CLL Support
11 years ago
Dr Sharman explains how treatment options for the two main subtypes of the aggressive Diffuse Large B Cell Lymphoma are changing
Diffuse Large B Cell Lymphomas are aggressive lymphomas that those of us with CLL face a chance of developing in what is termed Richter's Transformation. Given the risk increases the longer we live with CLL and at between 5 and 15% is not insignificant, if you notice any bumps quickly growing, get them
Diffuse Large B Cell Lymphomas are aggressive lymphomas that those of us with CLL face a chance of developing in what is termed Richter's Transformation. Given the risk increases the longer we live with CLL and at between 5 and 15% is not insignificant, if you notice any bumps quickly growing, get them
AussieNeil
Partner
in
CLL Support
11 years ago
my wife can't concentrate, watch tv or read after Chemo therapy. Is this the chemotherapy or the cancer.
My wife has stage four Pancreatic cancer. The oncologist said we can't stop the cancer but we might slow it down. The dose was strong but after two and a half sessions the Dr decided to stop the treatment due to all the bad effects from the chemo, it knocked the hell out of her. The doctor said it was
My wife has stage four Pancreatic cancer. The oncologist said we can't stop the cancer but we might slow it down. The dose was strong but after two and a half sessions the Dr decided to stop the treatment due to all the bad effects from the chemo, it knocked the hell out of her. The doctor said it was
Libertyedition
in
Breast Cancer India
11 years ago
Has anyone been diagnosed with mantle cell lymphoma?
I was diagnosed with Stage Three A mantle cell lyphoma . I have had two rounds of chemo so far so good.
I was diagnosed with Stage Three A mantle cell lyphoma . I have had two rounds of chemo so far so good.
islander33
in
Lymphoma Canada
11 years ago
Ibrutinib Slow but steady foreward movement.
Slowly things move forwards… New Marketing Authorisation Application Submitted to EMA for Ibrutinib for the Treatment of Two Forms of Blood Cancer The submission is for chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL) and mantle cell lymphoma (MCL).
Slowly things move forwards… New Marketing Authorisation Application Submitted to EMA for Ibrutinib for the Treatment of Two Forms of Blood Cancer The submission is for chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL) and mantle cell lymphoma (MCL).
Kwenda
in
CLL Support
11 years ago
Could Existing Immunotherapy Drugs Also Fight CLL? (Patient Power video with Dr John Gribben)
Andrew Schorr interviews Dr John Gribben of London's Barts Cancer Institute on the promise of drugs for PD1 and PDL1 that could train the immune system to kill cancer cells. http://www.patientpower.info/video/could-existing-immunotherapy-drugs-also-fight-cll I found this video particularly interesting
Andrew Schorr interviews Dr John Gribben of London's Barts Cancer Institute on the promise of drugs for PD1 and PDL1 that could train the immune system to kill cancer cells. http://www.patientpower.info/video/could-existing-immunotherapy-drugs-also-fight-cll I found this video particularly interesting
AussieNeil
Partner
in
CLL Support
11 years ago
Update on Novel B-Cell Receptor Signaling Inhibitors from NCCN 8th Annual Congress on Hematologic Malignancies
The article below from OncLive, provides a high level overview of trials experience of the new drugs Ibrutinib, Idelalisib and IPI-145 by Jeffrey Jones, MD, from The Ohio State University to the NCCN 8th Annual Congress on Hematologic Malignancies. Brief mention is also made of the benefits observed
The article below from OncLive, provides a high level overview of trials experience of the new drugs Ibrutinib, Idelalisib and IPI-145 by Jeffrey Jones, MD, from The Ohio State University to the NCCN 8th Annual Congress on Hematologic Malignancies. Brief mention is also made of the benefits observed
AussieNeil
Partner
in
CLL Support
11 years ago
How to get on to ESA support group after passing tribunal and being put on WRG. We were late reapplying so have to start new application.
My husband has M.E severe anxiety,is recovering from chemo for Large B cell Lymphoma and also has an alcohol problem which has been exacerbated by losing his benefit which is means tested and takes my money and earnings into account. We have savings which I rely on to boost our joint income to £10000
My husband has M.E severe anxiety,is recovering from chemo for Large B cell Lymphoma and also has an alcohol problem which has been exacerbated by losing his benefit which is means tested and takes my money and earnings into account. We have savings which I rely on to boost our joint income to £10000
Dreamer49
in
PBC Foundation
11 years ago
Angels and bolters: a field guide to the wildlife of cancer (when your diagnosis shows you what kind of friends you have)
This doesn't include those of us with
Small
Lymphocytic
Lymphoma
(coded 83.0) and that dual disease nature really upset the coding system. Read the below for more if you are interested: http://training.seer.cancer.gov/icdo3/new/lymphomas-leukemias.html
This doesn't include those of us with
Small
Lymphocytic
Lymphoma
(coded 83.0) and that dual disease nature really upset the coding system. Read the below for more if you are interested: http://training.seer.cancer.gov/icdo3/new/lymphomas-leukemias.html
AussieNeil
Partner
in
CLL Support
11 years ago
Volunteers required for CLL research interviews of relapsed and refractory UK members.
Are you able to take part in a study on Chronic Lymphocytic Leukaemia (CLL) and Mantle Cell Lymphoma (MCL). Thanks to your help the research company have reached their quota for 'watchful waiting' patients (not currently on treatment). The researchers are now looking to schedule patients whose condition
Are you able to take part in a study on Chronic Lymphocytic Leukaemia (CLL) and Mantle Cell Lymphoma (MCL). Thanks to your help the research company have reached their quota for 'watchful waiting' patients (not currently on treatment). The researchers are now looking to schedule patients whose condition
HAIRBEAR_UK
Administrator
in
CLL Support
11 years ago
Any relation with having APS and high creatinine levels?
Hi all, I've got APS and had two blood tests in the past month that have come back with high creatinine levels. No history of kidney disease in my family. I keep well hydrated, I'm active etc. I take warfarin and beta blockers. Anybody know if there is any link with APS that could cause high creatinine
Hi all, I've got APS and had two blood tests in the past month that have come back with high creatinine levels. No history of kidney disease in my family. I keep well hydrated, I'm active etc. I take warfarin and beta blockers. Anybody know if there is any link with APS that could cause high creatinine
Louise_Davies
in
Hughes Syndrome APS Forum
11 years ago
October - Clinical trial mini-update - B + R and Idelalisib - CAL 101
Hey All, After my third (uneventful.) B + R treatment late September i have been in to see my Consultant (today -9th October.) WBC 118 / LC 115 - My doctor continues to remark about my body's excellent response to three rounds of chemo treatment and CAL 101 / Placebo. We also reviewed two CT Scans
Hey All, After my third (uneventful.) B + R treatment late September i have been in to see my Consultant (today -9th October.) WBC 118 / LC 115 - My doctor continues to remark about my body's excellent response to three rounds of chemo treatment and CAL 101 / Placebo. We also reviewed two CT Scans
MartyR
in
CLL Support
11 years ago
New Drug Application Filing for Ibrutinib Accepted in Two B-cell Malignancies by the U.S. FDA
This is NOT an approval,
it is the beginning of the approval process but only for two uses or indications... previously treated mantle cell
lymphoma
(MCL) and previously treated chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL).
This is NOT an approval,
it is the beginning of the approval process but only for two uses or indications... previously treated mantle cell
lymphoma
(MCL) and previously treated chronic
lymphocytic
leukemia (CLL)/
small
lymphocytic
lymphoma
(SLL).
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
New to group
Apparently, I believe I actually have
small
lymphocytic
lymphoma
(SLL) which made the whole diagnosis more confusing as the doctors I've seen do not call it SLL. I have never been given a stage and they all relate my bloodwork results to a CLL diagnosis and say I'm in the "middle group".
Apparently, I believe I actually have
small
lymphocytic
lymphoma
(SLL) which made the whole diagnosis more confusing as the doctors I've seen do not call it SLL. I have never been given a stage and they all relate my bloodwork results to a CLL diagnosis and say I'm in the "middle group".
Jomary8505
in
CLL Support
11 years ago
Has any one been mistakenly diagnosed with Lymphoma? Or had swollen lymph nodes which were suspected could be Lymphoma?
I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I spent 6 weeks thinking l had cancer & preparing for chemo. I was then told my diagnosis was wrong. I have not been diagnosed with lupus but do have a number of the symptoms & my hematologist says that there's some sort of
I was recently diagnosed with Lymphoma after a biopsy of a swollen lymph node. I spent 6 weeks thinking l had cancer & preparing for chemo. I was then told my diagnosis was wrong. I have not been diagnosed with lupus but do have a number of the symptoms & my hematologist says that there's some sort of
timmysmom
in
LUPUS UK
11 years ago
Phase 3 trial of IPI-145
announced that, in the fourth quarter of 2013, it expects to initiate a Phase 3 trial of IPI-145, its potent, oral inhibitor of phosphoinositide-3-kinase (PI3K)-delta and PI3K-gamma, in patients with chronic
lymphocytic
leukemia (CLL) and
small
lymphocytic
lymphoma
(SLL).
announced that, in the fourth quarter of 2013, it expects to initiate a Phase 3 trial of IPI-145, its potent, oral inhibitor of phosphoinositide-3-kinase (PI3K)-delta and PI3K-gamma, in patients with chronic
lymphocytic
leukemia (CLL) and
small
lymphocytic
lymphoma
(SLL).
Cllcanada
Top Poster CURE Hero
in
CLL Support
11 years ago
How to edit your Profile (or just your profile/avatar picture)
The majority of us would have B-cell chronic
lymphocytic
leukemia and some of us
Small
cell
lymphocytic
lymphoma
. You will need to type in sufficient letters to match the condition you are searching for.
The majority of us would have B-cell chronic
lymphocytic
leukemia and some of us
Small
cell
lymphocytic
lymphoma
. You will need to type in sufficient letters to match the condition you are searching for.
AussieNeil
Partner
in
CLL Support
11 years ago
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