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Small lymphocytic lymphoma (SLL)
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Road to a BMT... oops just got there (Day +101)
Yesterday was another huge milestone on our BMT road, Day 100 - when we stared back in Nov.2017 this day seemed like a life time away. I’m so pleased to share with you that Mark has continued to progress very well and blood counts are normal and steady. The results of his bone marrow biopsy at Day 60
Yesterday was another huge milestone on our BMT road, Day 100 - when we stared back in Nov.2017 this day seemed like a life time away. I’m so pleased to share with you that Mark has continued to progress very well and blood counts are normal and steady. The results of his bone marrow biopsy at Day 60
NMMP
in
CLL Support
6 years ago
Metoject prescription being stopped - help!
I have had a call from my lupus nurse to say my gp has written to them to say the ccg have stopped them prescribing metoject and that I will now have to get it from the hospital. All fine except the hospital don’t do the metoject pens and only do pre filled methotrexate syringes which I didn’t get on
I have had a call from my lupus nurse to say my gp has written to them to say the ccg have stopped them prescribing metoject and that I will now have to get it from the hospital. All fine except the hospital don’t do the metoject pens and only do pre filled methotrexate syringes which I didn’t get on
Mifford
in
LUPUS UK
6 years ago
Bendamustine
Has anyone who took Bendamustine have their lymphocytes rise at first cycle instead of begin dropping? Also it is a little red at the vein they used to infuse me.
Has anyone who took Bendamustine have their lymphocytes rise at first cycle instead of begin dropping? Also it is a little red at the vein they used to infuse me.
greygirl
in
CLL Support
6 years ago
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This trial is going to reopen- Called CAPTIVATE. Ibrutinib plus venetoclax study sponsored by Pharmacyclics - Study Number PCYC-1142 .
Title: Phase 2 Study of the Combination of Ibrutinib Plus Venetoclax in Subjects With Treatment-naïve Chronic
Lymphocytic
Leukemia/
Small
Lymphocytic
Lymphoma
Be well, Hoffy
Title: Phase 2 Study of the Combination of Ibrutinib Plus Venetoclax in Subjects With Treatment-naïve Chronic
Lymphocytic
Leukemia/
Small
Lymphocytic
Lymphoma
Be well, Hoffy
Hoffy
in
CLL Support
6 years ago
Relapse treatment
Current treatment for relapsed Hodgkin's lymphoma - nodular sclerosing 2a - I am 67and have previously rec'd ABVD 4 cycling es
Current treatment for relapsed Hodgkin's lymphoma - nodular sclerosing 2a - I am 67and have previously rec'd ABVD 4 cycling es
Nanato6
in
Lymphoma Canada
6 years ago
Relapse or something else?
I was diagnosed with nhl in 2011, low grade follicular with evidence of high grade found in bone marrow. Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years rituximab maintenance I have lived well until now. I am now experiencing regular night sweats and
I was diagnosed with nhl in 2011, low grade follicular with evidence of high grade found in bone marrow. Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years rituximab maintenance I have lived well until now. I am now experiencing regular night sweats and
pmurdo
in
Non Hodgkin's Lymphoma Friends
6 years ago
Follicular non Hodgkin lymphoma
In 2016 I was diagnosed with non Hodgkin lymphoma stage 3. I went on watch and wait and 7 months later everything went crazy. In sept 2016 i on chemo which shrunk the one lymph node. Great, but I still feel like crap. Now I am doing maintenance for 2 years. The thing is I see people on here and
In 2016 I was diagnosed with non Hodgkin lymphoma stage 3. I went on watch and wait and 7 months later everything went crazy. In sept 2016 i on chemo which shrunk the one lymph node. Great, but I still feel like crap. Now I am doing maintenance for 2 years. The thing is I see people on here and
deburr3375
in
Non Hodgkin's Lymphoma Friends
6 years ago
Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
lankisterguy
Volunteer
in
CLL Support
6 years ago
CAR-T Clinical Trial for CLL
My wife (who has aggressive follicular lymphoma) received an NIH CAR-T infusion (NCT02659943) on March 2, 2016 - she has been in complete remission since the infusion. NCT02659943 is accepting new B-cell lymphoma and CLL patients.
My wife (who has aggressive follicular lymphoma) received an NIH CAR-T infusion (NCT02659943) on March 2, 2016 - she has been in complete remission since the infusion. NCT02659943 is accepting new B-cell lymphoma and CLL patients.
wmay13241
in
Non Hodgkin's Lymphoma Friends
6 years ago
My Mom has just been diagnosed with Lymphoma.... what should I expect?
I am new here. My mother has just been diagnosed with Lymphoma. Our first specialist appointment is Friday and just wondering what to expect. I am a bit overwhelmed right now and trying to be strong for her and inform my self so I know what I should ask when we go. Any help would be awesome.....
I am new here. My mother has just been diagnosed with Lymphoma. Our first specialist appointment is Friday and just wondering what to expect. I am a bit overwhelmed right now and trying to be strong for her and inform my self so I know what I should ask when we go. Any help would be awesome.....
My-Mom-Lymphoma
in
Lymphoma Canada
6 years ago
11q, 17p deletion and Trisomy 12
Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12 and it made me a little nervous. Also, doctor said better to be mutated than unmutated. I told her I'm CD38 positive and zap-70 positive. She
Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12 and it made me a little nervous. Also, doctor said better to be mutated than unmutated. I told her I'm CD38 positive and zap-70 positive. She
Ladydi49
in
CLL Support
6 years ago
Do I have leukemia?
Hi, I got my blood work done last week and below are the reports. I am worried that I might have leukemia (I am a 23 year old male). Complete Blood Count Hemoglobin - 16.30 (14.0 - 17.50 g/dL) Total Leucocytes (pWBC) count - 9,800 (4000-10000/μL) Platelet count - 192,000 (150000 - 450000 /μL) Red blood
Hi, I got my blood work done last week and below are the reports. I am worried that I might have leukemia (I am a 23 year old male). Complete Blood Count Hemoglobin - 16.30 (14.0 - 17.50 g/dL) Total Leucocytes (pWBC) count - 9,800 (4000-10000/μL) Platelet count - 192,000 (150000 - 450000 /μL) Red blood
root55AA
in
CLL Support
6 years ago
Dark Urine with Imbruvica ?
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
emarine
in
CLL Support
6 years ago
Diet during chemotherapy for BC
hello doctors/experts, my mother is expected to start chemo process from late next week. Its stage two triple negative BC. lymph node positive.. just preparing for diet plan to follow during chemotherapy.. i read in internet (US cancer authorized websites) that say to restrict raw nuts and raw fruits
hello doctors/experts, my mother is expected to start chemo process from late next week. Its stage two triple negative BC. lymph node positive.. just preparing for diet plan to follow during chemotherapy.. i read in internet (US cancer authorized websites) that say to restrict raw nuts and raw fruits
jaiganesh156
in
Breast Cancer India
6 years ago
CLL/Lymphoma in second remission
Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into remission for 5 years. I had a recurrence in 7/17 and received only Rituxin for 4 weeks, 1 day/week. I had another great response to Rituxan and
Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into remission for 5 years. I had a recurrence in 7/17 and received only Rituxin for 4 weeks, 1 day/week. I had another great response to Rituxan and
BarbLorraine
in
CLL Support
6 years ago
Looking for answers.
Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do another blood test for full kidney function. I had a message left today to say satisfactory bloods and no further tests. However when I rang
Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do another blood test for full kidney function. I had a message left today to say satisfactory bloods and no further tests. However when I rang
Hidden
in
Hughes Syndrome APS Forum
6 years ago
Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Korstiaan
in
CLL Support
6 years ago
Christmas
To all who have used Health Unlocked in 2017, Robert Louis Stevenson was the author of Treasure Island. He also wrote the following: O God, our loving Father, help us Rightly to remember the birth of Jesus, That we may share in the song of the Angels, the gladness of the shepherds And the worship
To all who have used Health Unlocked in 2017, Robert Louis Stevenson was the author of Treasure Island. He also wrote the following: O God, our loving Father, help us Rightly to remember the birth of Jesus, That we may share in the song of the Angels, the gladness of the shepherds And the worship
Kevin53
in
LUPUS UK
6 years ago
Research survey on CLL/SLL
The purpose of the survey is to help us better understand how CLL/SLL (chronic
lymphocytic
leukemia/
small
lymphocytic
lymphoma
) and the treatments you receive have affected your life and the lives of those around you.
The purpose of the survey is to help us better understand how CLL/SLL (chronic
lymphocytic
leukemia/
small
lymphocytic
lymphoma
) and the treatments you receive have affected your life and the lives of those around you.
bkoffman
CLL CURE Hero
in
CLL Support
7 years ago
Value of bone marrow biopsies in Follicular Lymphoma
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
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