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Experiences with
Small lymphocytic lymphoma (SLL)
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Ibrutinib/Imbruvica brings hope to stem cell transplant patients with chronic graft-versus-host-disease
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
[i]'FDA granted a fourth Breakthrough Therapy Designation (BTD) for ibrutinib (IMBRUVICA®) as a potential treatment of chronic graft-versus-host-disease (cGVHD) after failure of one or more lines of systemic therapy. The FDA also granted the therapy Orphan Drug Designation for the condition. cGVHD is
AussieNeil
Partner
in
CLL Support
8 years ago
Chemo done..scans tonight
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
I finished BR in May and the doctors at both OSU and Cleveland Clinic say I did "spectacular". My numbers are perfect. I'm having a full body scan today at Cleveland Clinic to see if there is anything still enlarged inside. The dr says that sometimes people can have great numbers but still have issues
momof12
in
CLL Support
8 years ago
Sex, maggots, castration and politicians lead to this year's Golden Goose Award - for a technique that could prevent Zika's spread
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
[i]"Sometimes offbeat, quirky-sounding science is the best science, paving the way for discoveries years down the road which can revolutionize medicine, physics, biology, technology and how we view the world," said US Republican Representative Randy Hultgren from Illinois.[/i] [i]:[/i] About 80 years
AussieNeil
Partner
in
CLL Support
8 years ago
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Something New
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Well this is new to me. I know my lymphoma is active, but I just started having chills and jerking my shoulders, and now my calf muscles are aching. My voice is weak and the lymph nodes in my groin are aching. Is this normal?
Shortcake2
in
CLL Support
8 years ago
Interview with Dr. Kipps
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series.
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
What to do?
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at age 65 (though I suspect it really started around 2009 when I had a slightly elevated absolute lymphocyte count and a swollen lymph node in
SandiC
in
CLL Support
8 years ago
Dr. Mato on what really happens when we must stop our ibrutinib or idelalisib
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series. You can find out more information and register here.
In June, they include: June 16th at 6 PM in Salt Lake City, UT: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series. You can find out more information and register here.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Failed Bone Marrow Biopsy
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab, talked me through the whole thing...lots of tugging pulling etc... she then told me..after 20 mins.. that she was really struggling to get a
Bethan49
in
CLL Support
8 years ago
What about Duvelisib and CLL?
[http://cllsociety.org/2016/05/ipi-145-duvelisib-cll/] In other news, the FDA expanded the Imbruvica® (ibrutinib) label to include overall survival data in previously untreated CLL and added a new indication for
small
lymphocytic
lymphoma
(SLL) patients.
[http://cllsociety.org/2016/05/ipi-145-duvelisib-cll/] In other news, the FDA expanded the Imbruvica® (ibrutinib) label to include overall survival data in previously untreated CLL and added a new indication for
small
lymphocytic
lymphoma
(SLL) patients.
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Physical activity may lower risk of some cancers
[i]'Being physically active during leisure time may lower a person’s risk of certain cancers, according to a new study. A high level of physical activity was associated with a 20% lower risk of myeloid leukemia, a 17% lower risk of myeloma, a 9% lower risk of non-Hodgkin lymphoma, and a 7% lower risk
[i]'Being physically active during leisure time may lower a person’s risk of certain cancers, according to a new study. A high level of physical activity was associated with a 20% lower risk of myeloid leukemia, a 17% lower risk of myeloma, a 9% lower risk of non-Hodgkin lymphoma, and a 7% lower risk
AussieNeil
Partner
in
CLL Support
8 years ago
WHO?
The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a number of changes particularly to MBL, which is now considered a precursor to CLL, in virtually all cases... but is subdivided in to high and low
The 2016 revision of the World Health Organization (WHO) classification of lymphoid neoplasms is coming soon... and CLL/SLL is still a lymphoma. There are a number of changes particularly to MBL, which is now considered a precursor to CLL, in virtually all cases... but is subdivided in to high and low
Cllcanada
Top Poster CURE Hero
in
CLL Support
8 years ago
Do Mobile/Cell phones cause brain cancer?
With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of developing secondary cancers. This article by Simon Chapman, Emeritus Professor in Public Health, University of Sydney may prove reassuring to anyone
With a CLL diagnosis, our increased risk secondary cancers becomes a concern. So understandably, many of us look at what we can do to reduce our risk of developing secondary cancers. This article by Simon Chapman, Emeritus Professor in Public Health, University of Sydney may prove reassuring to anyone
AussieNeil
Partner
in
CLL Support
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
Stick or Twist...Not Really.
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
Hi, PaulaS suggested that I write and let people who know me on here know how I'm doing. She suggested it quite a long time ago, but I didn't know how I was doing until today. I have just had the consultation post chemotherapy and have been told that I have achieved full remission, which is good news
zentangle
in
CLL Support
8 years ago
The placebo and the nocebo effect and the ethics of pacebo use.
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
[i]'What are placebos?[/i]
[i]It’s important to distinguish between pure and impure placebos. A pure placebo is a straightforwardly fake treatment – a saline injection or a sugar pill, for instance, that is represented as a drug.[/i] [i]An impure placebo is a substance or treatment that does
AussieNeil
Partner
in
CLL Support
8 years ago
Scleroderma and Non-Hodgkins Lymphoma
My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment
My mum was diagnosed with scleroderma 18 months ago - it's confined to her (very tight) skin and her symptoms are very cold hands and feet and lack of energy/can't walk far. Just before Christmas she was diagnosed with non-Hodgkins lymphoma in her neck for which she's nearly completed chemotherapy treatment
TraceyK55
in
Scleroderma & Raynaud's UK (SRUK)
8 years ago
Did You Hear? 6 Idelalisib Combination Trials Have Been Halted!
The trials were investigating use of the drug in chronic
lymphocytic
leukemia (CLL),
small
lymphocytic
lymphoma
(SLL), and indolent non-Hodgkin lymphomas (NHL). Leading expert Dr. Jeff Sharman joins Patient Power to explain what happened and what it could mean for patients.
The trials were investigating use of the drug in chronic
lymphocytic
leukemia (CLL),
small
lymphocytic
lymphoma
(SLL), and indolent non-Hodgkin lymphomas (NHL). Leading expert Dr. Jeff Sharman joins Patient Power to explain what happened and what it could mean for patients.
tclementi
in
CLL America Support
9 years ago
Dr. Stilgenbauer: Resistance to ibrutinib in relapsed and refractory patients with 17p deletion and News about CLL Meeting across the USA
March 17th at 6 PM in Chicago, IL: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series. You can find out more information and register here. [http://www.lymphoma.org/site/pp.asp?
March 17th at 6 PM in Chicago, IL: The
Lymphoma
Research Foundation will be hosting Updates on Chronic
Lymphocytic
Leukemia /
Small
Lymphocytic
Lymphoma
as part of their Ask the Doctor series. You can find out more information and register here. [http://www.lymphoma.org/site/pp.asp?
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
I was dx 4 years ago with Cll at 48 and had a quadruple bypass last year. Blood thinners?
A quick question. As I am taking blood thinners, could this affect me going on a clinical trial in the future?
A quick question. As I am taking blood thinners, could this affect me going on a clinical trial in the future?
Pinno
in
CLL Support
8 years ago
Waldenstrom’s Macroglobulinemia Patient & Caregiver Surveys
If you have Waldenstrom’s Macroglobulinemia (Lymphoplasmacytic Lymphoma), we need your help. Lymphoma Canada, in partnership with the Canadian Organization for Rare Disorders (CORD) is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with
If you have Waldenstrom’s Macroglobulinemia (Lymphoplasmacytic Lymphoma), we need your help. Lymphoma Canada, in partnership with the Canadian Organization for Rare Disorders (CORD) is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Ibrutinib (Imbruvica) for patients with
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
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