Experiences with

Small lymphocytic lymphoma (SLL)

A recent article. 27 Dec 2024 Somewhat surprising findings, but the trend in SLL inclusion in CLL clinical trials is improving. I suspect some of this is driven by the need to have active disease in the peripheral blood at adequate levels for trial participation. https://onlinelibrary.wiley.com/doi

Financial Assistance for Patients with Chronic Lymphocytic Leukemia (CLL) & Small Lymphocytic Lymphoma (SLL) https://www.lls.org/support-resources/financial-support/co-pay-assistance-program If you are diagnosed with CLL or SLL, you may qualify for The Leukemia & Lymphoma Society's Co-Pay Assistance

In an interesting turn of events, my Mom (75f) just had preliminary cytology results come back indicating B cell related lymphoma or leukemia. They are leaning towards chronic lymphocytic leukemia (CLL)/ small lymphocytic lymphoma but she will need a BMB/additional diagnostics to be sure.

Approvals of multiple covalent Bruton's tyrosine kinas inhibitors (cBTKis) as well as the B-cell lymphoma-2 inhibitor (BCL2i) venetoclax targeting these pathways have revolutionized the treatment of CLL and small lymphocytic lymphoma (SLL).

leukemia/small lymphocytic lymphoma (A-CLL/SLL) is a histologically aggressive subtype of CLL/SLL that lies in between conventional CLL/SLL (C-CLL/SLL) and Richter transformation (RT) on the biological spectrum.

To be eligible, you should: have a confirmed diagnosis of CLL (or small lymphocytic lymphoma) be over the age of 18 years be able to walk on a treadmill or cycle on an ergometer be competent in spoken and written English. What is required from you?

hi it has been quite a few months since I posted so thought I would get in touch as you have all supported me from the beginning . in the end I decided not to have the stem cell transplant maybe physically I could have got through it even though would have been hard but mentally I wasn’t in a good place

A long time between posts. I’m going to brief when it should be long. After reporting on good bone marrow and blood results from 100-180 days out, GI issues continued to be an issue. Colonoscopies, tests and scans finally revealed low grade GvHD and a virus CMV. Unfortunately, some of the scans gave

I was just reviewing a post about a P cell lymphoma that someone had in there neck or upper lower jaw. I've had about six or seven lumps under the skin on my chest and abdomen for several years and wondered if they could harbor any B cell lymphoma or residual CLL They did not shrink after 18 months

Hi all, just an update on the clinical trial that I started in December 2024 after rapid lymph node enlargement post Stem Cell Transplant. (Allogenic) The trial is a combination of Zanubrutinib and BGB-16673 (BTK degrader). I had a CT scan last week and my Haematologist was over the moon with the result

I was diagnosed with CLL in April 2024. I began experiencing symptoms in October 2024. I am not getting immunotherapy treatments along with taking Venclextra. Lately (since probably a few months ago) it has felt like I am constantly shedding. I do have very thick hair (and long), so I guess it's

After 3 prior therapies (Acalabrutinib, Venetoclax and Pirtobrutinib/Obinutuzumab), my CLL/ Marginal Zone Lymphoma has transformed to DLBCL. Has anyone on here been treated with Car-T for DLBCL? Thank you.

Hav been reading this great forum for years, now I have an opportunity to 'give back'. For my CLL I recently started using Ibrutinib + Allopurinol (Zyloric) to deal with the consequent excess uric acid. After 12 days of use, with no symptoms, on day 13 I developed a fever with a body rash. I was admitted

I got this (webinar below) from the Leukemia & Lymphoma Society (LLS) news updates email. With possible changes coming down the pike, this could enlighten to what those (positive) changes might be that would affect cancer/cll folks. For anyone interested. https://triagecancer.org/webinarreg-post-election-advocacy

I have question- I just had CT scan and all my lymph nodes have decreased in size the scan reader said I was responding to treat well ( I’m not currently in treatment) good thing? But my white count has gone from 80k to 130k in 3 months my other markers are no loss of the 11 or 17 or loss of p53 is that

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic leukaemia harbouring complex karyotype[/i] written by a team from Padua, Italy. The article summary explains its aims: [i]"Chronic lymphocytic leukaemia

Hi All An update to what I would have described as a failed Stem Cell Transplant has actually been a part success- I don’t seem to have any sign of CLL but instead I am back to SLL status which is what I was initially diagnosed with 10 years ago. The scans post transplant show enlarged nodes but bloods

Happy Holidays to Everyone! CLL Dx July 2022 when I was 78. W&W, Living an active and normal life except some swollen lymph nodes on necks and under chin (diameter of largest is about one inch). A month ago my Hemo/Oncologist ordered a FISH Test and Flow Cytometry. Results are as follows FISH FINAL

Recently diagnosed with Stage 3 CLL. Currently on Brukinsa and will be soon be starting Zometa (bone resorption infusion). Apparently, it is quite rare to have CLL that also presents with bone damage. In my case, I had a walnut sized tumor in my T12 vertebrae that had to be radiated. I also have