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Can I have a moan please????
Hi all on the lung site , I have had two more messages from the respiratory team about my lung cancer diagnosis and me and my family are getting upset with this way laying tactics., so we are all a bit fed up with it. They have now changed the agreement again in respect of radiation treatment, and
Hi all on the lung site , I have had two more messages from the respiratory team about my lung cancer diagnosis and me and my family are getting upset with this way laying tactics., so we are all a bit fed up with it. They have now changed the agreement again in respect of radiation treatment, and
katieoxo60
in
Lung Conditions Community Forum
3 months ago
Rising PSA
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
What are the most Accurate scans for detecting hot spots of cancer? Husband has had several PSMA scans and CT with contrast yet nothing shows up. He had one lymph show up in 2017 on an Auxium scan and it was radiated. 7 years later PSA rising… up to 14. Yet scans show nothing definitive. CT with
JolleySprings
in
Advanced Prostate Cancer
7 months ago
strange drop in PSA
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
My PSA dropped from 1.03 in July 2023 to 0.248 in February 2024. It's never been anywhere near this low, since I began getting tested in my 50s, even before I was diagnosed in 2008 (Gleason 7). I'm 77. I'm not on ADT, don't have metastatic disease. Since HIFU in 2015, which was a hemi-ablation but left
kapakahi
in
Prostate Cancer Network
7 months ago
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x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
x Summer of 2020.59 yr old. Spent 2021 on AS eventually psa went from 6.5 to 10 day of RALP. 2/14/22 GL 7a T3aN0M0 post psa at 3 months .04. Stayed until at one year .08 . At 18 months .1 now 2 years out .22 I had a neg psma scan but psa is low so false neg is very real. I have continually asked
Elbers123
in
Advanced Prostate Cancer
7 months ago
Testosterone
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
39 sessions of SBRT ended Jan 2020. HDT ended Feb 2021 Labs Feb 2024: PSA - undetectable Testosterone 283 Would like to supplement testosterone for better QOL. Urologist not helping but primary Dr will help/monitor. Would like to hear opinions or suggestions both pro & con
BadNews4me
in
Prostate Cancer Network
7 months ago
PSA uptick
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
Quick background, my dad was diagnosed with metastatic PCa in 2018. Initially treated with docetaxel + ADT. His PSA has been at/near undetected (<0.01-0.02) for several years, but recently there has been an uptick to 0.08 (similar on a recheck, so not lab error). Obviously still low-level, but concerning
mediocra
in
Advanced Prostate Cancer
7 months ago
PatRuk
Hi all, I've not posted for a while. Diagnosed with breast cancer June 23. Has anyone with bc, on Herceptin had more AF and ectopics . Thankyou
Hi all, I've not posted for a while. Diagnosed with breast cancer June 23. Has anyone with bc, on Herceptin had more AF and ectopics . Thankyou
ruskin10
in
Atrial Fibrillation Support
7 months ago
Has anyone done the proton therapy?
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
Just curious if anyone had their MO suggest doing the proton therapy? When I have my discussion with my new MO, I want to ask if proton therapy would be a fit for myself. I have to deal with the prostate cancer and the met pelvic lymph nodes as well as the met bone issue.
PARKER3237
in
Advanced Prostate Cancer
3 months ago
Recent Chest CT scan to check for SLL progression, June 7, 2024 (part 2 of 2 posts)
IMPRESSION- Compared to May 30, 2024 The following is the chest CT scan. I'd appreciate your words of wisdom, encouragement, and advise. Treatment, it seems, is warranted. I have a scheduled appt with hem/onc on June 20, 2024. I'm a little nervous. Again, thank you for listening. Pat Interval
IMPRESSION- Compared to May 30, 2024 The following is the chest CT scan. I'd appreciate your words of wisdom, encouragement, and advise. Treatment, it seems, is warranted. I have a scheduled appt with hem/onc on June 20, 2024. I'm a little nervous. Again, thank you for listening. Pat Interval
bagelstreet225
in
CLL Support
3 months ago
Recent CT abdomen and pelvis scan to check for SLL progression, June 7, 2024 (part 1 of 2 posts)
I was diagnosed on May 25, 2023, and classified as watch and wait. Treatment, I believe, is warranted. I'll see the hem/onc on June 20, 2024. I'd greatly appreciate your feedback, words of advice, and encouragement. I'm a little nervous. As always, thank you for listening. Pat Comparison: CT abdomen
I was diagnosed on May 25, 2023, and classified as watch and wait. Treatment, I believe, is warranted. I'll see the hem/onc on June 20, 2024. I'd greatly appreciate your feedback, words of advice, and encouragement. I'm a little nervous. As always, thank you for listening. Pat Comparison: CT abdomen
bagelstreet225
in
CLL Support
3 months ago
Good sats - so why so breathless?
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
THAT is indeed the question. Why, with my peripheral O2 levels at 94/5 %even 96% am I still fighting to breath? It goes like this. I wake short of breath. I rise and take my Oximeter (I have several; they all show the same) . My level is, say 92%. I do controlled breathing using a computer monitor
Timberman
in
Lung Conditions Community Forum
7 months ago
Starting Xeloda
Hello beautiful people! I’m hoping everyone is doing well and looking forward to summer. My Mom will be starting a new treatment. She was on a trial in Canada and was on fulvestrant injections monthly with daily trial pill for a year. Her labs including her liver function have been excellent along
Hello beautiful people! I’m hoping everyone is doing well and looking forward to summer. My Mom will be starting a new treatment. She was on a trial in Canada and was on fulvestrant injections monthly with daily trial pill for a year. Her labs including her liver function have been excellent along
Pups2Cute
in
SHARE Metastatic Breast Cancer
3 months ago
PSMA results
Here is the summary impression: IMPRESSION: * Prostate: PSMA (+) disease in the anterior mid- zone and apex of the prostate, consistent with primary malignancy. * Nodes: No tracer- avid pelvic, retroperitoneal, or mesenteric adenopathy * Distant metastases: No visceral or osseous metastatic
Here is the summary impression: IMPRESSION: * Prostate: PSMA (+) disease in the anterior mid- zone and apex of the prostate, consistent with primary malignancy. * Nodes: No tracer- avid pelvic, retroperitoneal, or mesenteric adenopathy * Distant metastases: No visceral or osseous metastatic
hwrjr
in
Prostate Cancer Network
7 months ago
Letrozole alone after a year of chemo
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Hi everyone, my mom is currently being treated with only letrozole after a year of chemo which didn't work very well (she is 100% Er and Pr). She took it for 5 months after taxol and it worked much better, now she has a follow-up Pet scan after another 5 months. I wanted to know if any of you have successfully
Shumawy
in
SHARE Metastatic Breast Cancer
3 months ago
Large lesion on liver - 10cm x 5cm
I am after a bit of advice from anyone that may have been in a similar position to me. I had blood tests done towards the end of last year due to on going acid reflux symptoms. In the last 6 months I have been on the cancer pathway for investigations for throat and stomach, all biopsies came back clear
I am after a bit of advice from anyone that may have been in a similar position to me. I had blood tests done towards the end of last year due to on going acid reflux symptoms. In the last 6 months I have been on the cancer pathway for investigations for throat and stomach, all biopsies came back clear
purplecatlady1
in
British Liver Trust
3 months ago
6 months after MRI Guided SBRT at MSK
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
After a year and a half of Active Surveillance, my cancer progressed to GL 4+3 and I decided to have MRI Guided SBRT in August at Memorial Sloan Kettering in NYC under the care of Dr. Sean McBride. I had 5 sessions over 10 days and each lasted about an hour. The entire team at MSK was wonderful and
rosenjpj
in
Advanced Prostate Cancer
7 months ago
Radiation PSA, Orgovyx, Bone density Update 2/18/24
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
Rouge clone radiation on 10/31/23 has PSA from 4.83 on 11/20/23 to 0.85 on 12/18. HOWEVER, PSA up to 1.48 on 1/29/24 then 2.48 on 2/15/24. Waiting MO response but anticipate PET scan, radiation and/or switch to Xtandi. Was hoping to ride the Zytiga therapy as long as possible but I may be there now.
alperk
in
Advanced Prostate Cancer
7 months ago
Terbium-161 - As a follow-up to Alicia Morgan's comments in the PeterMac GUcast interview posted earlier by marnie46.
I meant to include this article, a 24 Nov 2023 news release on Terbium-161, in a followup reply to Marnie's post of the Dr. Morgan interview by the excellent PeterMac team several days back. [i]
Three big challenges in metastatic prostate cancer | Dr Alicia Morgans
[/i] [i]
https://healthunlocked.com
I meant to include this article, a 24 Nov 2023 news release on Terbium-161, in a followup reply to Marnie's post of the Dr. Morgan interview by the excellent PeterMac team several days back. [i]
Three big challenges in metastatic prostate cancer | Dr Alicia Morgans
[/i] [i]
https://healthunlocked.com
cujoe
in
Fight Prostate Cancer
3 months ago
Some good advancements today too: Advances in Engineered Macrophages - A New Frontier in Cancer Immunotherapy
"These cells act synergistically in tumour progression, invasion, metastasis, and response to immunotherapies. Consequently, cancer treatment has transitioned from a model centred solely on the cancer itself to one focused on the
tumour microenvironment
, and cancer immunotherapy has consequently
"These cells act synergistically in tumour progression, invasion, metastasis, and response to immunotherapies. Consequently, cancer treatment has transitioned from a model centred solely on the cancer itself to one focused on the
tumour microenvironment
, and cancer immunotherapy has consequently
Maxone73
in
Advanced Prostate Cancer
6 months ago
Father’s CRPCa Failed chemo (Cabazitaxel,Docetaxel) and Failed LU177
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Father’s current Age: 78 At age 70, Diagnosed with Pca in 2015 after seeing initial PSA as ~ 270. 2015 - 2019 - BICALUTAMIDE - Failed 2019 - 2020 - Radiation- Ineffective 2020 Oct - 2021 October - Zytiga (Aberiterone) - Failed - PSA 98 2021 Dec - 2022 Apr - Docetaxel- Ineffective - PSA 120 2022
Vishwa1890
in
Advanced Prostate Cancer
7 months ago
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