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hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
hello, My mum sent me this information with the hopes that I can find support and information as I’m starting out my journey. I had been having irregular periods and lower back pain for a few months. I would take medication and just push on. In December, I had such severe pain I called my husband
Trixie-boo
in
My Ovacome
3 months ago
Scan shows spreading despite chemo but surgery going ahead..confused 🤔
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Hello alI I have stage 4 clear cell carcinoma, had a scan this week and got the results today. My gynae nurse said she could only tell me what was written on a scrap bit of paper which left me with more questions than answers (not impressed with this). I will call again next week but meantime wondered
Kazzh
in
My Ovacome
3 months ago
confused
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Hi ladies So….. I had my scan results from 23rd December yesterday . I was told by Onc nurse that the cancer was stable ( it is inoperable) My CA125 at diagnosis back in March 23 was 9000 but during chemo treatment there was a steady decline and prior to the scan it stood at 2000. I don’t understand
Beaver54
in
My Ovacome
3 months ago
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Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
11 months ago
Estrodiol and PC
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
My husband has been rediagnosed with NMPC he is on ADT which is holding the Testosterone very low but psa shot upto 82. New MO is starting Enzalutimide plus continuing ADT. Not looking forward to the side effects, but will perservere until psa drops. We have been discussing using Estradiol to help
Knittingque
in
Advanced Prostate Cancer
7 months ago
Any insight into # platinum chemo cycles?
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
So I'm about to start cisplatinum + etoposide chemo cycles on wed. next week for NECP/SCCP. The first irritant I have of which I'm sure will not be the only one is: I have no idea what the treatment plan is, I don't know how many cycles I'm scheduled for and what the treatment goal is. Researching
skiingfiend
in
Advanced Prostate Cancer
3 months ago
Sacituzumab govitecan
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
I recently had more scans and unfortunately my cancer has spread to my lungs and more in my liver.My bone mets are not to bad but two active ones in my T2 and Right hip even though I had recently had radiotherapy on them again for palliative pain relief. I have been on four lines of treatment in 17 months
Cherry38
in
SHARE Metastatic Breast Cancer
3 months ago
Xeloda Anxiety
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
I was supposed to begin Xeloda today. For some reason, I am paranoid. First, I'm thinking my dose is too high. I weigh 168 pounds, 5’4” and my team has me scheduled to take 2000 mg twice a day. I think that’s a lot. Anyone else similar in size to me taking this high of a dose? Am I just paranoid. I
CTGirl1962
in
SHARE Metastatic Breast Cancer
3 months ago
Lower Right Abdominal Pain
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
Hi Everyone, I am 24 years old, and been having stomach problems since last September (6 months), I have pain in the lower right side of the abdomen and sometimes I see drops of bright or streaks of red blood in my stool, and after poo*** my anus burns and itches, I noticed that blood only appears
bianco9685
in
IBS Network
3 months ago
Radiation therapy or Turp first?
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
Guys, I posted last week on this issue but looking for additional feedback. Appears my cancer is spreading after 5 years but also experiencing urination issues at same time. I met with urologist and he suggests Turp procedure. I meet with radiation oncologist next week. My question is has anyone experienced
3putt
in
Advanced Prostate Cancer
5 months ago
NOT SURE
Hey all, I am new to this forum. I have had a lot of health issues over the last 4 years with my heart. During a PET scan of the heart the tests showed a "hot spot" on my ovary. The SUV is 3.9, the mass is on a 3.5cm ovarian cyst and is 1.5 cm soft tissue. I also had a CT back in 2020 that revealed
Hey all, I am new to this forum. I have had a lot of health issues over the last 4 years with my heart. During a PET scan of the heart the tests showed a "hot spot" on my ovary. The SUV is 3.9, the mass is on a 3.5cm ovarian cyst and is 1.5 cm soft tissue. I also had a CT back in 2020 that revealed
Gigioffour
in
My Ovacome
3 months ago
Mother Diagnosed with Stage 4 OC, recurrence, now liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only
akhilsalwan
in
My Ovacome
3 months ago
Mother Diagnosed with Stage 4 OC - Recurrence, now Liver traces
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
Hi everyone, looking for advice/suggestions: My Mother currently fighting stage 4 Ovarian Cancer recurrence (high grade Serous Carcinoma) first diagnosed in January 2022. Started Chemo in Feb, 2022, got a Full Hysterectomy surgery and received Hipec chemotherapy, was free of cancer by August only to
akhilsalwan
in
OvaCare
3 months ago
Masofaniten +Enzalutamide This could be a game changer...Science is coming to our aid
This is a company that I was turned on to by Nalkrantz before he was removed from this board. He told me that he was in touch with a doctor that was involved with this drug. Reportedly the early testing on a single patient had been phenomenal. These are pretty amazing #s NEWS PROVIDED BY ESSA
This is a company that I was turned on to by Nalkrantz before he was removed from this board. He told me that he was in touch with a doctor that was involved with this drug. Reportedly the early testing on a single patient had been phenomenal. These are pretty amazing #s NEWS PROVIDED BY ESSA
Scout4answers
in
Advanced Prostate Cancer
7 months ago
ADT Checklist (Before, During, After)
Here's a checklist that our UsToo Prostate Cancer support group in Colorado put together. Use it when talking with your doctors. It addresses the questions of what you should do before, during and after you receive ADT treatments such as Lupron, Firmagon etc. https://docs.google.com/document/d/1NGdwZtBRzbop3UExdIIGJUM4tDtcFxyQ
Here's a checklist that our UsToo Prostate Cancer support group in Colorado put together. Use it when talking with your doctors. It addresses the questions of what you should do before, during and after you receive ADT treatments such as Lupron, Firmagon etc. https://docs.google.com/document/d/1NGdwZtBRzbop3UExdIIGJUM4tDtcFxyQ
billd50
in
Advanced Prostate Cancer
7 months ago
Working while receiving Docetaxel
Does anyone have experience in working while receiving Docetaxel? Also, what was your experience with hair loss, fatigue etc.? Any long term survivors after doing this treatment? Thanks, trying to get some answers because pretty anxious at this point when chemo may be my next best option.
Does anyone have experience in working while receiving Docetaxel? Also, what was your experience with hair loss, fatigue etc.? Any long term survivors after doing this treatment? Thanks, trying to get some answers because pretty anxious at this point when chemo may be my next best option.
NDJIM
in
Advanced Prostate Cancer
7 months ago
Prostate MRI results - Advice appreciated
Hello Everyone, I would like to provide update and seek advice since I got a Prostate MRI at Johns Hopkins a week ago. I have included links to my past post for reference: https://healthunlocked.com/prostate-cancer-community/posts/149682755/sadly-ive-joined-the-pca-club-... https://healthunlocked.com
Hello Everyone, I would like to provide update and seek advice since I got a Prostate MRI at Johns Hopkins a week ago. I have included links to my past post for reference: https://healthunlocked.com/prostate-cancer-community/posts/149682755/sadly-ive-joined-the-pca-club-... https://healthunlocked.com
nvidia-ati
in
Prostate Cancer Network
3 months ago
On treating micro-metastatic disease
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
I watched a video posted by PCRI recently on YouTube. In the video entitled "Treating micro-metastatic disease", Dr Mark Scholz mentioned that undergoing one year of ADT is sufficient post radiation. Thereafter just monitor the PSA for any rise, and use PSMA PET scan to locate any cancer and to radiate
John347
in
Advanced Prostate Cancer
3 months ago
pet scan result ?? Meaning?
There is tracer uptake within both lobes of the thyroid, left significantly more than the right. The high-grade tracer uptake within the left lobe of thyroid corresponds to a 19 mm nodule. Physiological brown fat within bilateral neck, supraclavicular fossa and mediastinum. Physiological tracer uptake
There is tracer uptake within both lobes of the thyroid, left significantly more than the right. The high-grade tracer uptake within the left lobe of thyroid corresponds to a 19 mm nodule. Physiological brown fat within bilateral neck, supraclavicular fossa and mediastinum. Physiological tracer uptake
Jo-boo64
in
Thyroid UK
3 months ago
deflated
Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer. We went to her results and biopsy results yesterday. We were all extremely shocked to
Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was removed which at the time, they assumed it was cancer. We went to her results and biopsy results yesterday. We were all extremely shocked to
Kerri1402
in
My Ovacome
7 months ago
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