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BK virus and Low WBC
Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However
Hi - my dad received a kidney transplant about 4 months ago and at first everything looked great. But recently it showed he had the BK virus. First they lowered his CellCept dose and two weeks later the virus had increased. So they removed CellCept completely and his virus levels were coming down. However
Nyc147
in
Kidney Transplant
3 years ago
Long term antibiotic treatment with Amoxicillin-Clav ( a form of augmentin. Taking a large does every day 500mg twice a day. Cause rls?
Let me explain. I was on dialysis for 5 and 1/2 year’s when I received a kidney transplant. For about 3 months after surgery it seemed my rls had almost gone. Then because I have a neurogenic bladder I started getting uti that required hospitalization and even got sepsis so the last time the infectious
Let me explain. I was on dialysis for 5 and 1/2 year’s when I received a kidney transplant. For about 3 months after surgery it seemed my rls had almost gone. Then because I have a neurogenic bladder I started getting uti that required hospitalization and even got sepsis so the last time the infectious
ESRDRLS
in
Restless Legs Syndrome
3 years ago
Negative FIT test - but totally paranoid.
Has anyone on here experienced a negative fit test and still had bowel cancer? I have been bleeding from my bowel on about 2 days of each month during my period only, for about the last 18months. I have only had 2 episodes outside of my period (which were the following Monday when I finished on the Saturday
Has anyone on here experienced a negative fit test and still had bowel cancer? I have been bleeding from my bowel on about 2 days of each month during my period only, for about the last 18months. I have only had 2 episodes outside of my period (which were the following Monday when I finished on the Saturday
Chrissie36
in
Colon Cancer Connected
3 years ago
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Covid -19, still a big risk for some.
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Richard-Allen
in
British Liver Trust
3 years ago
Kidney transplant 17 yrs. survived Covid 3/2020 and still have antibodies. Unvaccinated wondering if others concerned with immune response.
Unsure if I should get the vaccine as I have antibodies.
Unsure if I should get the vaccine as I have antibodies.
homerontherange
in
Kidney Transplant
3 years ago
It's back
Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted
Hi this is my first post on this forum I had bad psoriasis until I got a heart transplant last year and it cleared up totally it was brilliant and I really thought because of the immusupprestants it would stay away, how wrong I was after stopping the steroids it's back with a vengeance totally gutted
Thanksnhs
in
Beyond Psoriasis
3 years ago
Recurrence of endometrial cancer in pelvic and para ortic lymph nodes
Hello lovely ladies Hope you you all safe and well xx I just wanted to ask a quick question please… my mums had treatment for a recurrence of endometrial cancer in her pelvic lymph nodes and a para ortic lymph node. Last week she received her post chemo results which show that her affected tumours
Hello lovely ladies Hope you you all safe and well xx I just wanted to ask a quick question please… my mums had treatment for a recurrence of endometrial cancer in her pelvic lymph nodes and a para ortic lymph node. Last week she received her post chemo results which show that her affected tumours
PPSCENE
in
My Ovacome
3 years ago
Fluid retention / edema
Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not
Hi -- I'm 5 years post kidney transplant and over the past year I've developed swelling (pitting edema) in my lower legs. My eyes are also extemely puffy in the morning as the fluid pools there overnight. I'm curiuos if others have taken diuretics (lasix) to address this, or why they have chosen not
SoCal1
in
Kidney Transplant
3 years ago
Oldest Heart Transplant Patient Turns 90
Britain's oldest heart transplant patient, Ted Warner, recently turned 90. Ted had his transplant 31 years ago but many have survived far longer. https://www.bbc.co.uk/news/uk-england-cambridgeshire-58361917
Britain's oldest heart transplant patient, Ted Warner, recently turned 90. Ted had his transplant 31 years ago but many have survived far longer. https://www.bbc.co.uk/news/uk-england-cambridgeshire-58361917
MichaelJH
Heart Star
in
British Heart Foundation
3 years ago
Hope for us hearties
UK's oldest living heart transplant patient marks 90th birthday. What brilliant news, only expected a few more years to live after transplant (BBC news)Transplant op in August 1990. Never give in! Take care all
UK's oldest living heart transplant patient marks 90th birthday. What brilliant news, only expected a few more years to live after transplant (BBC news)Transplant op in August 1990. Never give in! Take care all
sherwood123
in
British Heart Foundation
3 years ago
INF+ ATO Study, "A knockout combination for MPN stem cells"
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
EPguy
in
MPN Voice
3 years ago
Alex TLC Digital Community Weekend
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
Hidden
Partner
in
Leukodystrophy Support
3 years ago
Understanding Dexa scan results
Hi. I've had some results of my latest Dexa scan today. I'm due to speak to the consultant next week so I thought I'd jump the gun and ask some questions so I could prepare for the conversation. This is a summary: " Dexa scan shows an unreliable score at the lumbar spine due to the presence of vertebral
Hi. I've had some results of my latest Dexa scan today. I'm due to speak to the consultant next week so I thought I'd jump the gun and ask some questions so I could prepare for the conversation. This is a summary: " Dexa scan shows an unreliable score at the lumbar spine due to the presence of vertebral
Flowergirl24
in
Bone Health and Osteoporosis UK
3 years ago
Pancreatic issues, post liver transplant
Hi, has anyone had issues with their pancreas, post liver transplant. I had my transplant 16months ago, and due to ongoing pain and bowel issues, they conducted an MRCP, which showed, I have an Atrophic pancreas, any info would be great. Thank you
Hi, has anyone had issues with their pancreas, post liver transplant. I had my transplant 16months ago, and due to ongoing pain and bowel issues, they conducted an MRCP, which showed, I have an Atrophic pancreas, any info would be great. Thank you
TBSW
in
British Liver Trust
3 years ago
Blood in stool?
Apologies for the gross image.. I have had blood in my stool for the last few days, almost a week now. I used to get hemorrhoids but dont seem to have one. No itching, pain or any blood on the toilet paper. I checked in a mirror and have no visible hemorrhoid or fissures externally. Haven't eaten anything
Apologies for the gross image.. I have had blood in my stool for the last few days, almost a week now. I used to get hemorrhoids but dont seem to have one. No itching, pain or any blood on the toilet paper. I checked in a mirror and have no visible hemorrhoid or fissures externally. Haven't eaten anything
foxy1717
in
Colon Cancer Connected
3 years ago
3rd dose of COVID vaccine….
I am trying to schedule an appointment for the 3rd dose of COVID vaccine done at the hospital I had my kidney transplant. However, this particular hospital only offers Pfizer. I am very uncomfortable getting a different brand as CDC recommended the same brand for all three. https://www.cdc.gov/coronavirus
I am trying to schedule an appointment for the 3rd dose of COVID vaccine done at the hospital I had my kidney transplant. However, this particular hospital only offers Pfizer. I am very uncomfortable getting a different brand as CDC recommended the same brand for all three. https://www.cdc.gov/coronavirus
Warrior1211
in
Kidney Transplant
3 years ago
Liver Rejection
Hi everyone hope you’re all well, some may have seen my posts before So had liver transplant about two and half years ago now and haven’t had any issues apart from slight markers in my kidneys, so my first consultation since covid was three weeks ago and gave blood as usual. Then this weekend received
Hi everyone hope you’re all well, some may have seen my posts before So had liver transplant about two and half years ago now and haven’t had any issues apart from slight markers in my kidneys, so my first consultation since covid was three weeks ago and gave blood as usual. Then this weekend received
Rockefeller20
in
British Liver Trust
3 years ago
Complications from Immunosuppressants
I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs
I am almost 6 months post kidney transplant. I developed a 24 hr fever on July 30, along with headaches and very large painful mouth sores. I could barely eat or talk. My white blood cell count was low but creatinine was normal. The docs tested for everything including CMV, Epstein Barr, and did swabs
Tallyn
in
Kidney Transplant
3 years ago
Caring for mam Post Liver Transplant
So nervous! My mam is in the operating theatre finally getting her #livertransplant It's been a rough few years (including dealing with the alcoholism). I can't believe it's actually happening. Anyone been a carer for liver failure then transplant? Just wondering how long should I expect to continue
So nervous! My mam is in the operating theatre finally getting her #livertransplant It's been a rough few years (including dealing with the alcoholism). I can't believe it's actually happening. Anyone been a carer for liver failure then transplant? Just wondering how long should I expect to continue
Ra1nb0wgirl
in
British Liver Trust
3 years ago
Colonoscopy
My husband is 8 years post liver transplant has CKD, insulin diabetic, bp, had TIA. At the mom thing good. Needs colonoscopy, I'm so worried daycase but no covid immunity. So worried about affect on liver kid,diabetes. Anyone had colonoscopy after transplant would a scan mri etc not be easier. New to
My husband is 8 years post liver transplant has CKD, insulin diabetic, bp, had TIA. At the mom thing good. Needs colonoscopy, I'm so worried daycase but no covid immunity. So worried about affect on liver kid,diabetes. Anyone had colonoscopy after transplant would a scan mri etc not be easier. New to
Katielou14
in
British Liver Trust
3 years ago
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