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Post Transplant Issues
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
I had a kidney transplant on 2/11/21 and at the same time I was diagnosed with Parkinsons. Is there anyone out there who is on both anti-rejection drugs and carbidopa/levodopa. I have been struggling to feel better for 17+ months. I get so agitated and my quality of life just isn’t there.
Mesabi
in
Kidney Transplant
2 years ago
Rapamycin
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
I have friends using low doses of this drug and I have an appointment with a doctor that prescribes it. When I asked my Hematologist at Mayo about it they said this drug may be get approved sooner than later for MPN’s. Has anyone researched this or used it. It is a drug used for organ transplants but
MDI55
in
MPN Voice
2 years ago
pregnancy post transplant
I am currently taking tacrolimus and mycophenolate, are these drugs healthy for a baby? What have other experienced with pregnancy after a kidney transplant?
I am currently taking tacrolimus and mycophenolate, are these drugs healthy for a baby? What have other experienced with pregnancy after a kidney transplant?
Yolie_85
in
Kidney Transplant
2 years ago
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Read this before you get your spleen removed
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
https://www.pdsa.org/products-a-publications/e-news/2018-enews/item/1613-pdsa-enews-032818.html Rapamycin is being tested as a longevity drug.. It is not "approved" as an IPT drug, but it is available by prescription. I have heard of people ordering it from off shore sources. It is a generic drug
SurferDude
in
ITP Support Association
2 years ago
Kidney Transplant
😊On Friday, I received a call call from my transplant nurse that I was identified for a kidney coming available the next morning. I accepted and my husband drove me to the hospital 2 hours away. Next day I had the 4 - 6 hour surgery and the new kidney began to work right away. I am less than 48
😊On Friday, I received a call call from my transplant nurse that I was identified for a kidney coming available the next morning. I accepted and my husband drove me to the hospital 2 hours away. Next day I had the 4 - 6 hour surgery and the new kidney began to work right away. I am less than 48
Hidden
in
Kidney Dialysis
2 years ago
Kidney Transplant
Has anyone else here had more than one transplant?
Has anyone else here had more than one transplant?
Leekee
in
Kidney Transplant
2 years ago
Joining the Group
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
tleachhsv
in
CLL America Support
2 years ago
People of HealthUnlocked - COPD: Preparing for a Double Lung Transplant
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
COVID-19 disproportionately impacted some more than others. Although we were all thrust into uncertainty when the pandemic hit, arguably, those with lung conditions were at the forefront of concern. Today, Bernadette tells us about her story of living with chronic obstructive pulmonary disease (COPD)
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Terrified of cancer not being taken seriously!
So I’ve struggled with what I thought was haemorrhoids for over a year now, with occasional blood in the toilet. As I had no other symptoms I wasn’t worried, and just used creams etc for the haemorrhoids. However, I am aware more recently I have been straining to go to the toilet but sometimes my stools
So I’ve struggled with what I thought was haemorrhoids for over a year now, with occasional blood in the toilet. As I had no other symptoms I wasn’t worried, and just used creams etc for the haemorrhoids. However, I am aware more recently I have been straining to go to the toilet but sometimes my stools
lyla32
in
Colon Cancer Connected
2 years ago
How to become an advocate for kidney health
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
NKF advocates have won a number of policy campaigns both in Congress and state capitals across the country - but we're not done yet. We discussed some recent wins and upcoming challenges for the kidney advocate community with Jeff Currey, a Connecticut State Representative and kidney transplant recipient
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
I am terrified of colonoscopy results. Please help
Hello, I have been so anxious and worried the past couple of weeks. I just turned 26 and I have been having blood in my stool and on the TP for about 5 months now, usually bright red blood. I went to a GI doctor late May who did blood work (complete blood count, inflammatory markers, etc) which all
Hello, I have been so anxious and worried the past couple of weeks. I just turned 26 and I have been having blood in my stool and on the TP for about 5 months now, usually bright red blood. I went to a GI doctor late May who did blood work (complete blood count, inflammatory markers, etc) which all
Turbo56
in
Colon Cancer Connected
2 years ago
Possible brain lymphoma
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Hi, my husband is waiting for a biopsy to check a lesion in his brain. His neurosurgeon told us it seems like lymphoma from MRI scan image, which is common among people on immunosuppressant after organ transplant. I have been feeling completely broken since he had emergency MRI two weeks ago. Our
Springbunny
in
British Liver Trust
2 years ago
ATG treatment /Rabbit antigens
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Platelets2022
in
Leukaemia Support
2 years ago
double lungs transplant
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
I was diagnosed with pulmonary sarcoidosis in 2020. My condition has worsened over the years to were I now have to been on oxygen all the time m ..I've recently been put on the list for a double lungs transplant after undergoing different test at Birmingham queens hospital .. After reading there
Purpal
in
Lung Conditions Community Forum
2 years ago
blood test bingo!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
Scaredy_cat
in
MPN Voice
2 years ago
My wife has a Bilirubin of 43 which has increased from 16 in February.
My wife is suffering from none alcoholic cirrhosis (PSC). Her consultant is carrying out all the right procedures to determine the level of scaring/damage to her liver (Blood tests, CT scan, MRI etc.,). These tests are carried out 6 monthly, and my wife, who is 75, has been advised that she would
My wife is suffering from none alcoholic cirrhosis (PSC). Her consultant is carrying out all the right procedures to determine the level of scaring/damage to her liver (Blood tests, CT scan, MRI etc.,). These tests are carried out 6 monthly, and my wife, who is 75, has been advised that she would
Ron111
in
British Liver Trust
2 years ago
after kidney transplants
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
I am 8 months post on 8/14 it has been almost too easy and I am so thankful but my numbers have always been low for a living donor. My doctors tell me everybody is different and no to get caught up in my numbers. I feel great so I suppose if my team is not concerned I should not be either. They have
Porter20
in
Kidney Transplant
2 years ago
Brain tumor from liver?
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
Springbunny
in
British Liver Trust
2 years ago
waiting for diagnosis, so scared…
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures.It went away after 2 weeks, then he started suffering from daily headache. He always had migraine with
Springbunny
in
The Brain Tumour Charity
2 years ago
we are waiting for diagnosis. And I am so scared…
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures. It went away after 2 weeks, then he started suffering from daily headache. He always had migraine
My husband had very strange sensation about 2 months ago. He describes it “electric ants marching from his temple to the end of the arms” and felt nauseous. If I think back, it might have been seizures. It went away after 2 weeks, then he started suffering from daily headache. He always had migraine
Springbunny
in
Meningioma Support
2 years ago
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