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B1 and Carbilev
I want to report first hat I have reduced my dose of B1 from 2.1g a day to 1,2 and I really feel that it is working now. It is early days but my tremor seems mildly better. I am not struggling to get food into my mouth, and I feel hopeful and energetic. No depression. When I was diagnosed in January
I want to report first hat I have reduced my dose of B1 from 2.1g a day to 1,2 and I really feel that it is working now. It is early days but my tremor seems mildly better. I am not struggling to get food into my mouth, and I feel hopeful and energetic. No depression. When I was diagnosed in January
Celtis
in
Cure Parkinson's
6 years ago
Overthinking thinking and thinking 🤔
Today I’m trying my hardest whilst out at work to push these negative thoughts from my mind. What’s triggered it is a couple of months back on the odd night I’d wake like I’m was trying to catch my breath. Can’t recall any nightmare before it, do went to GP who has referred me to sleep clinic and that
Today I’m trying my hardest whilst out at work to push these negative thoughts from my mind. What’s triggered it is a couple of months back on the odd night I’d wake like I’m was trying to catch my breath. Can’t recall any nightmare before it, do went to GP who has referred me to sleep clinic and that
Sunshine0307
in
Anxiety Support
6 years ago
MS-Related Insomnia
I came across this article and wanted to share my tips for sleep. https://multiplesclerosisnewstoday.com/2018/10/04/ms-related-insomnia-exhausting/?utm_source=Multiple+Sclerosis&utm_campaign=0a8c058571-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-0a8c058571-73067309 1) Melatonin 2) Magnesium
I came across this article and wanted to share my tips for sleep. https://multiplesclerosisnewstoday.com/2018/10/04/ms-related-insomnia-exhausting/?utm_source=Multiple+Sclerosis&utm_campaign=0a8c058571-RSS_US_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_b5fb7a3dae-0a8c058571-73067309 1) Melatonin 2) Magnesium
IFwczs
in
My MSAA Community
6 years ago
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Mastectomy scheduled
After the waiting period following scans and more biopsies I’m having a radical mastectomy on Monday . The consultant said the scan showed no spinal involvement but there are two separate types of tumour in the rt breast . As I’m a 38DD it will be very noticeable I guess , but that’s the least of the
After the waiting period following scans and more biopsies I’m having a radical mastectomy on Monday . The consultant said the scan showed no spinal involvement but there are two separate types of tumour in the rt breast . As I’m a 38DD it will be very noticeable I guess , but that’s the least of the
Chick44nzrn
in
Breast Cancer India
6 years ago
Life is unfare
I had my mastectomy in late December 2016, had to spend 3 months in a nursing home because of various problems and they looked after me wonderfully. Then this year I had 2 melanomas on my skin which had to be lazered of. Then my husband died end of July and now I have 3 hospital appointments to attend
I had my mastectomy in late December 2016, had to spend 3 months in a nursing home because of various problems and they looked after me wonderfully. Then this year I had 2 melanomas on my skin which had to be lazered of. Then my husband died end of July and now I have 3 hospital appointments to attend
MRK-3
in
My Breast Cancer Community
6 years ago
e trait and strait
if one member of couple has hemoglobin E trait and other has hemoglobin S trait there have a chance of pregnency.
if one member of couple has hemoglobin E trait and other has hemoglobin S trait there have a chance of pregnency.
khanbha
in
Sickle Cell Society
6 years ago
Travel Insurance
Hi everyone from NZ. I got lymphedema in my left arm 12 years ago following a double mastectomy post Inflammatory Breast Cancer. I have had cellulitis several times and my GP used to give me anti-biotics if I was going away. However my new GP won't - says see a Dr when overseas. Not always possible!
Hi everyone from NZ. I got lymphedema in my left arm 12 years ago following a double mastectomy post Inflammatory Breast Cancer. I have had cellulitis several times and my GP used to give me anti-biotics if I was going away. However my new GP won't - says see a Dr when overseas. Not always possible!
ThorntonHeath
in
LSN
6 years ago
Bone Metastatic cancer treatment
I was diagnosed Breast lobular invasive cancer stage II on 2014, I had bilateral mastectomy, Radiation and Chemotherapy. On August 2017 my cancer came back to metastatic bone cancer and I have been on Ibrance, Letrozole and Xgeva since 9/17. My cancer markers went down, I was feeling better even when
I was diagnosed Breast lobular invasive cancer stage II on 2014, I had bilateral mastectomy, Radiation and Chemotherapy. On August 2017 my cancer came back to metastatic bone cancer and I have been on Ibrance, Letrozole and Xgeva since 9/17. My cancer markers went down, I was feeling better even when
PLASEM
in
SHARE Metastatic Breast Cancer
6 years ago
I NEED A STAIR LIFT HELP
So I thought it has been 6 weeks since my bilateral mastectomy i need to do laundry running out of undies LOL, I need to clean the cat box and i need a shower maybe clean out the dishwasher need clean dishes. I go down stairs with a load of laundry put it in the washer clean the cat box come back up
So I thought it has been 6 weeks since my bilateral mastectomy i need to do laundry running out of undies LOL, I need to clean the cat box and i need a shower maybe clean out the dishwasher need clean dishes. I go down stairs with a load of laundry put it in the washer clean the cat box come back up
Hidden
in
My MSAA Community
6 years ago
6 month check-up: feeling great, but whoops!
So, I have been wanting to post about my recovery after first line treatment for high grade serous Ovarian Cancer, but I thought I would wait for my sixth month check up. They only run a CA-125 blood test and talk to us, and only require a CT scan if your CA-125 climbs. I have been feeling better and
So, I have been wanting to post about my recovery after first line treatment for high grade serous Ovarian Cancer, but I thought I would wait for my sixth month check up. They only run a CA-125 blood test and talk to us, and only require a CT scan if your CA-125 climbs. I have been feeling better and
Lindaura
in
My Ovacome
6 years ago
NHS won't replace my implants!
I have inherited a faulty BRCA2 gene with my mother and sister dying from ovarian cancer. Because I was alerted there was a connection between breast cancer and ovarian cancer, my breast cancer was discovered early. After a mastectomy and implants over 20 years ago, I was told by the hospital that
I have inherited a faulty BRCA2 gene with my mother and sister dying from ovarian cancer. Because I was alerted there was a connection between breast cancer and ovarian cancer, my breast cancer was discovered early. After a mastectomy and implants over 20 years ago, I was told by the hospital that
Riches
in
My Ovacome
6 years ago
My ACTH Stimulation test is to have 3 blood draws
After waiting for several months I was finally able to see a specialist (where I live a GP cannot order this test). I’m wondering if any of you have had this test that will have 3 blood draws? At first she said they only do this test if you are off prednisone. I wasn’t shocked to hear this as someone
After waiting for several months I was finally able to see a specialist (where I live a GP cannot order this test). I’m wondering if any of you have had this test that will have 3 blood draws? At first she said they only do this test if you are off prednisone. I wasn’t shocked to hear this as someone
Mrs-CJ
in
PMRGCAuk
6 years ago
Solid lump behind young mastectomy scar
Hello lovely ladies I hope you are well? I haven’t posted in a long while but do read my regular ‘digests’ and dip in when I think I can help. And I now find myself in need! I have recently (7 weeks? ago) undergone a 2nd mastectomy this time no lymph involvement so no cording or lymphodema (unlike the
Hello lovely ladies I hope you are well? I haven’t posted in a long while but do read my regular ‘digests’ and dip in when I think I can help. And I now find myself in need! I have recently (7 weeks? ago) undergone a 2nd mastectomy this time no lymph involvement so no cording or lymphodema (unlike the
Debster2016
in
My Breast Cancer Community
6 years ago
Great day at Kaiser
Today was special at the Kaiser Hospital. I had an appointment with my neurologist at 10:30, I arrived too early because my calendar said 10:00, but I got a rock star parking spot. I sat in the waiting room and did my puzzles expecting a long wait. (My doctor will spend as much time as you need) Today
Today was special at the Kaiser Hospital. I had an appointment with my neurologist at 10:30, I arrived too early because my calendar said 10:00, but I got a rock star parking spot. I sat in the waiting room and did my puzzles expecting a long wait. (My doctor will spend as much time as you need) Today
CraigS
in
My MSAA Community
6 years ago
A Neurologist is Asking YOUR Help to do a Study On a DRUG that Extends the QUALITY Of LIFE and CAN Restore LOST FUNCTIONS to Those With PSP
What I’m going to detail is no joke. There is a Neurologist, a Dr. Johan Samanta, who is willing to go beyond what any other doctor has offered or suggested in order to force other doctors all over the world to prescribe the drug Tasigna. This is a drug that has shown it can restore lost abilities, depending
What I’m going to detail is no joke. There is a Neurologist, a Dr. Johan Samanta, who is willing to go beyond what any other doctor has offered or suggested in order to force other doctors all over the world to prescribe the drug Tasigna. This is a drug that has shown it can restore lost abilities, depending
grafixapn
in
PSP Association
6 years ago
SCT
So I’m white English and my partner is mixed race Jamaican / German. He has trait with crisis. They say if one parent has it then the chance is slim to nothing for a child to have it. His mum had nothing while his dad has trait. Tomorrow I am having a C-section as our baby is breech. I fear our child
So I’m white English and my partner is mixed race Jamaican / German. He has trait with crisis. They say if one parent has it then the chance is slim to nothing for a child to have it. His mum had nothing while his dad has trait. Tomorrow I am having a C-section as our baby is breech. I fear our child
Tracy-
in
Sickle Cell Society
6 years ago
severe headaches
for some reason I am now getting severe headaches and was told not to take aspirin, Motrin , Aleve, Motrin... what can you take with Methotrexate >
for some reason I am now getting severe headaches and was told not to take aspirin, Motrin , Aleve, Motrin... what can you take with Methotrexate >
kfmeme
in
LUPUS UK
6 years ago
Sore bones
Hi had a mastectomy then chemo and rads now on injections to put overies to sleep and exemestan tablets and I’m in so much pain my bones are so sore anybody got any suggestions doc given me cocodimal not working very well 😕😕
Hi had a mastectomy then chemo and rads now on injections to put overies to sleep and exemestan tablets and I’m in so much pain my bones are so sore anybody got any suggestions doc given me cocodimal not working very well 😕😕
Sebsmum
in
My Breast Cancer Community
6 years ago
Early onset Altzeimer's testing
Hi - can I ask my GP for a APOE test if I am concerned about my memory, or does it have to run in the family before they will test? Are there any specific tests I could ask for? I have just turned 60, and have to think carefully now about what to do with everyday things - pour milk in a cup etc, it
Hi - can I ask my GP for a APOE test if I am concerned about my memory, or does it have to run in the family before they will test? Are there any specific tests I could ask for? I have just turned 60, and have to think carefully now about what to do with everyday things - pour milk in a cup etc, it
clarabelle17
in
Thyroid UK
6 years ago
Surely I should be getting some of the twin pregnancy vibes?!
Such mixed emotions this morning. I’m due to take my trigger shot today, ready for egg collection on Monday. I got a phone call from my twin brother to say that he and his wife are expecting. They have no idea we’re going through ivf. I’m obviously thrilled for them but the timing of them telling me
Such mixed emotions this morning. I’m due to take my trigger shot today, ready for egg collection on Monday. I got a phone call from my twin brother to say that he and his wife are expecting. They have no idea we’re going through ivf. I’m obviously thrilled for them but the timing of them telling me
Lamorna80
in
Fertility Network UK
6 years ago
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