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Travel Insurance
Hi everyone from NZ. I got lymphedema in my left arm 12 years ago following a double mastectomy post Inflammatory Breast Cancer. I have had cellulitis several times and my GP used to give me anti-biotics if I was going away. However my new GP won't - says see a Dr when overseas. Not always possible!
Hi everyone from NZ. I got lymphedema in my left arm 12 years ago following a double mastectomy post Inflammatory Breast Cancer. I have had cellulitis several times and my GP used to give me anti-biotics if I was going away. However my new GP won't - says see a Dr when overseas. Not always possible!
ThorntonHeath
in
LSN
6 years ago
Bone Metastatic cancer treatment
I was diagnosed Breast lobular invasive cancer stage II on 2014, I had bilateral mastectomy, Radiation and Chemotherapy. On August 2017 my cancer came back to metastatic bone cancer and I have been on Ibrance, Letrozole and Xgeva since 9/17. My cancer markers went down, I was feeling better even when
I was diagnosed Breast lobular invasive cancer stage II on 2014, I had bilateral mastectomy, Radiation and Chemotherapy. On August 2017 my cancer came back to metastatic bone cancer and I have been on Ibrance, Letrozole and Xgeva since 9/17. My cancer markers went down, I was feeling better even when
PLASEM
in
SHARE Metastatic Breast Cancer
6 years ago
I NEED A STAIR LIFT HELP
So I thought it has been 6 weeks since my bilateral mastectomy i need to do laundry running out of undies LOL, I need to clean the cat box and i need a shower maybe clean out the dishwasher need clean dishes. I go down stairs with a load of laundry put it in the washer clean the cat box come back up
So I thought it has been 6 weeks since my bilateral mastectomy i need to do laundry running out of undies LOL, I need to clean the cat box and i need a shower maybe clean out the dishwasher need clean dishes. I go down stairs with a load of laundry put it in the washer clean the cat box come back up
Hidden
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My MSAA Community
6 years ago
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6 month check-up: feeling great, but whoops!
So, I have been wanting to post about my recovery after first line treatment for high grade serous Ovarian Cancer, but I thought I would wait for my sixth month check up. They only run a CA-125 blood test and talk to us, and only require a CT scan if your CA-125 climbs. I have been feeling better and
So, I have been wanting to post about my recovery after first line treatment for high grade serous Ovarian Cancer, but I thought I would wait for my sixth month check up. They only run a CA-125 blood test and talk to us, and only require a CT scan if your CA-125 climbs. I have been feeling better and
Lindaura
in
My Ovacome
6 years ago
NHS won't replace my implants!
I have inherited a faulty BRCA2 gene with my mother and sister dying from ovarian cancer. Because I was alerted there was a connection between breast cancer and ovarian cancer, my breast cancer was discovered early. After a mastectomy and implants over 20 years ago, I was told by the hospital that
I have inherited a faulty BRCA2 gene with my mother and sister dying from ovarian cancer. Because I was alerted there was a connection between breast cancer and ovarian cancer, my breast cancer was discovered early. After a mastectomy and implants over 20 years ago, I was told by the hospital that
Riches
in
My Ovacome
6 years ago
Solid lump behind young mastectomy scar
Hello lovely ladies I hope you are well? I haven’t posted in a long while but do read my regular ‘digests’ and dip in when I think I can help. And I now find myself in need! I have recently (7 weeks? ago) undergone a 2nd mastectomy this time no lymph involvement so no cording or lymphodema (unlike the
Hello lovely ladies I hope you are well? I haven’t posted in a long while but do read my regular ‘digests’ and dip in when I think I can help. And I now find myself in need! I have recently (7 weeks? ago) undergone a 2nd mastectomy this time no lymph involvement so no cording or lymphodema (unlike the
Debster2016
in
My Breast Cancer Community
6 years ago
My ACTH Stimulation test is to have 3 blood draws
After waiting for several months I was finally able to see a specialist (where I live a GP cannot order this test). I’m wondering if any of you have had this test that will have 3 blood draws? At first she said they only do this test if you are off prednisone. I wasn’t shocked to hear this as someone
After waiting for several months I was finally able to see a specialist (where I live a GP cannot order this test). I’m wondering if any of you have had this test that will have 3 blood draws? At first she said they only do this test if you are off prednisone. I wasn’t shocked to hear this as someone
Mrs-CJ
in
PMRGCAuk
6 years ago
Great day at Kaiser
Today was special at the Kaiser Hospital. I had an appointment with my neurologist at 10:30, I arrived too early because my calendar said 10:00, but I got a rock star parking spot. I sat in the waiting room and did my puzzles expecting a long wait. (My doctor will spend as much time as you need) Today
Today was special at the Kaiser Hospital. I had an appointment with my neurologist at 10:30, I arrived too early because my calendar said 10:00, but I got a rock star parking spot. I sat in the waiting room and did my puzzles expecting a long wait. (My doctor will spend as much time as you need) Today
CraigS
in
My MSAA Community
6 years ago
A Neurologist is Asking YOUR Help to do a Study On a DRUG that Extends the QUALITY Of LIFE and CAN Restore LOST FUNCTIONS to Those With PSP
What I’m going to detail is no joke. There is a Neurologist, a Dr. Johan Samanta, who is willing to go beyond what any other doctor has offered or suggested in order to force other doctors all over the world to prescribe the drug Tasigna. This is a drug that has shown it can restore lost abilities, depending
What I’m going to detail is no joke. There is a Neurologist, a Dr. Johan Samanta, who is willing to go beyond what any other doctor has offered or suggested in order to force other doctors all over the world to prescribe the drug Tasigna. This is a drug that has shown it can restore lost abilities, depending
grafixapn
in
PSP Association
6 years ago
SCT
So I’m white English and my partner is mixed race Jamaican / German. He has trait with crisis. They say if one parent has it then the chance is slim to nothing for a child to have it. His mum had nothing while his dad has trait. Tomorrow I am having a C-section as our baby is breech. I fear our child
So I’m white English and my partner is mixed race Jamaican / German. He has trait with crisis. They say if one parent has it then the chance is slim to nothing for a child to have it. His mum had nothing while his dad has trait. Tomorrow I am having a C-section as our baby is breech. I fear our child
Tracy-
in
Sickle Cell Society
6 years ago
severe headaches
for some reason I am now getting severe headaches and was told not to take aspirin, Motrin , Aleve, Motrin... what can you take with Methotrexate >
for some reason I am now getting severe headaches and was told not to take aspirin, Motrin , Aleve, Motrin... what can you take with Methotrexate >
kfmeme
in
LUPUS UK
6 years ago
Sore bones
Hi had a mastectomy then chemo and rads now on injections to put overies to sleep and exemestan tablets and I’m in so much pain my bones are so sore anybody got any suggestions doc given me cocodimal not working very well 😕😕
Hi had a mastectomy then chemo and rads now on injections to put overies to sleep and exemestan tablets and I’m in so much pain my bones are so sore anybody got any suggestions doc given me cocodimal not working very well 😕😕
Sebsmum
in
My Breast Cancer Community
6 years ago
Early onset Altzeimer's testing
Hi - can I ask my GP for a APOE test if I am concerned about my memory, or does it have to run in the family before they will test? Are there any specific tests I could ask for? I have just turned 60, and have to think carefully now about what to do with everyday things - pour milk in a cup etc, it
Hi - can I ask my GP for a APOE test if I am concerned about my memory, or does it have to run in the family before they will test? Are there any specific tests I could ask for? I have just turned 60, and have to think carefully now about what to do with everyday things - pour milk in a cup etc, it
clarabelle17
in
Thyroid UK
6 years ago
Surely I should be getting some of the twin pregnancy vibes?!
Such mixed emotions this morning. I’m due to take my trigger shot today, ready for egg collection on Monday. I got a phone call from my twin brother to say that he and his wife are expecting. They have no idea we’re going through ivf. I’m obviously thrilled for them but the timing of them telling me
Such mixed emotions this morning. I’m due to take my trigger shot today, ready for egg collection on Monday. I got a phone call from my twin brother to say that he and his wife are expecting. They have no idea we’re going through ivf. I’m obviously thrilled for them but the timing of them telling me
Lamorna80
in
Fertility Network UK
6 years ago
Need to plump up my lining
21st July I phoned the hospital with my period to start my medicated fet. 21st of friggin July and I'm still not close to embryo transfer!!!! Had my lining check after taking 3 x 2mg of progynova every day for two weeks and my lining is only 5.4mm - to go back next week. 6 appointments so far before
21st July I phoned the hospital with my period to start my medicated fet. 21st of friggin July and I'm still not close to embryo transfer!!!! Had my lining check after taking 3 x 2mg of progynova every day for two weeks and my lining is only 5.4mm - to go back next week. 6 appointments so far before
Hidden
in
Fertility Network UK
6 years ago
Medical problems and ESA tribunal
Hi I'm new to this site , but was wondering if anyone knew about the point scoring system used for ESA , I am waiting for my tribunal and have multiple health conditions including narcolepsy , NEAD and angina to name but a few . Please can you let me know what to expect and why my serious conditions
Hi I'm new to this site , but was wondering if anyone knew about the point scoring system used for ESA , I am waiting for my tribunal and have multiple health conditions including narcolepsy , NEAD and angina to name but a few . Please can you let me know what to expect and why my serious conditions
Bradley22
in
PBC Foundation
6 years ago
Aria our best fan!!
Hello BLF friends 🍂🍁 Autumn is coming with pretty colours. I’ll take some pictures of the mountains when I can. Not in Milan where Bea has temperatures of 30 and Aria is saying to Liverpool how dare you score in extra time! Just how I feel 😉 Anyway still having respiratory physio every other day
Hello BLF friends 🍂🍁 Autumn is coming with pretty colours. I’ll take some pictures of the mountains when I can. Not in Milan where Bea has temperatures of 30 and Aria is saying to Liverpool how dare you score in extra time! Just how I feel 😉 Anyway still having respiratory physio every other day
Hidden
in
Lung Conditions Community Forum
6 years ago
Hello
I am 64 years old and was diagnosed over 10 years ago. I have been going to the gym 2 days a week (with a personal trainer) for about 9 of those 10 years. I have been fortunate in that I do not suffer with too many symptoms of PD and have not had to give up much. I am happily married, have 3 adult children
I am 64 years old and was diagnosed over 10 years ago. I have been going to the gym 2 days a week (with a personal trainer) for about 9 of those 10 years. I have been fortunate in that I do not suffer with too many symptoms of PD and have not had to give up much. I am happily married, have 3 adult children
Arizonanative1954
in
Cure Parkinson's
6 years ago
Sharing an uplifting song by Muse for those days when Lupus just needs it’s ass kicking quite frankly :) Anyone got any other suggestions?
Hi everyone, Just thought I’d try and share this track by Muse called ‘Dig Down’. I just think the words (and video) are just what’s needed on those mornings when I have to drag my aching body into work due to Lupus! Does anyone have any other uplifting, powerful tracks that help get them going? I’d
Hi everyone, Just thought I’d try and share this track by Muse called ‘Dig Down’. I just think the words (and video) are just what’s needed on those mornings when I have to drag my aching body into work due to Lupus! Does anyone have any other uplifting, powerful tracks that help get them going? I’d
Serser
in
LUPUS UK
6 years ago
DA Weaning...😤
For the past two nights I have decreased my Mirapex from 1.0mg down to 0.5mg with the addition of Gabapentin 300mg in the afternoon and 300mg at bedtime. I’m forced to wean the Mirapex quickly because of the amount of Mirapex 0.25mg that she has given me, no refills after just 1 month. My entire body
For the past two nights I have decreased my Mirapex from 1.0mg down to 0.5mg with the addition of Gabapentin 300mg in the afternoon and 300mg at bedtime. I’m forced to wean the Mirapex quickly because of the amount of Mirapex 0.25mg that she has given me, no refills after just 1 month. My entire body
Hidden
in
Restless Legs Syndrome
6 years ago
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