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Faslodex/Fulvestrant update
For those being offered or starting this protocol - here’s an update. I know when I joined this group - it meant a lot to get information and experiences. Faslodex is my second line treatment- after Ibrance, Femara & zoladex. I’ve been feeling well on Faslodex - still going about my daily routine and
For those being offered or starting this protocol - here’s an update. I know when I joined this group - it meant a lot to get information and experiences. Faslodex is my second line treatment- after Ibrance, Femara & zoladex. I’ve been feeling well on Faslodex - still going about my daily routine and
Ntash01
in
SHARE Metastatic Breast Cancer
2 years ago
Weaning off ropinirol
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
Hi! I have been told before but can’t remember how to wean myself off ropinirol, I’m currently down to 0.50mg at night but if I go lower than that I don’t sleep at all! Which isn’t helpful when I work full time, I’m in the uk so my doc won’t prescribe opioids, I’m already taking Gabapentin and that’s
jaime77
in
Restless Legs Syndrome
2 years ago
Early Stage or In Situ and MBC recurrence
I was diagnosed in situ 7 years ago. I opened for a Mastectomy and reconstruction as my dr said recurrence rate is less than 2 % as opposed to lumpectomy with radiation and approximately 13% recurrence. Seemed like a no brainer to me at 59. They found clusters of cancer cells in one lymph node. Removed
I was diagnosed in situ 7 years ago. I opened for a Mastectomy and reconstruction as my dr said recurrence rate is less than 2 % as opposed to lumpectomy with radiation and approximately 13% recurrence. Seemed like a no brainer to me at 59. They found clusters of cancer cells in one lymph node. Removed
boc13
in
My Breast Cancer Community
2 years ago
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Are you relatively happy with your implant reconstruction after bilateral mastectomy?
Having surgery in a few weeks and worried about how I will look after reconstruction.
Having surgery in a few weeks and worried about how I will look after reconstruction.
EttaMagath
in
SHARE Breast Cancer Support
2 years ago
Fatigue with PMR
I've recently been diagnosed with PMR. Steroids are working well , 15mg daily but I am exhausted. My consultant said it is likely to be the PMR, has anyone else experienced this and will it settle? I had a Mastectomy and reconstruction in June 2019 and occasionally get fatigue days as a result. This
I've recently been diagnosed with PMR. Steroids are working well , 15mg daily but I am exhausted. My consultant said it is likely to be the PMR, has anyone else experienced this and will it settle? I had a Mastectomy and reconstruction in June 2019 and occasionally get fatigue days as a result. This
Jigsawlass
in
PMRGCAuk
2 years ago
***SENSITIVE*** OTD
Hellooooo, hope you are all well and happy 💕💕💕💕💕 It's finally OTD and the TWW is finally over. I was in Prague for my treatment and had to travel back home on 7dp5dt. I was really scared as I had lost one of my natural pregnancies after air travel, so was anxious and tensed to say the least. 8dp5dt
Hellooooo, hope you are all well and happy 💕💕💕💕💕 It's finally OTD and the TWW is finally over. I was in Prague for my treatment and had to travel back home on 7dp5dt. I was really scared as I had lost one of my natural pregnancies after air travel, so was anxious and tensed to say the least. 8dp5dt
Babyrainbow
in
Fertility Network UK
2 years ago
Bursitis Treatment
I have had ongoing bursitis in both of my hips for about 3-4 years. Very painful, for example, when I carry a basket of laundry up stairs or need to lift just about anything that is heavy. I had this checked out about 3 years ago before COVID limited doctor visits. At that time they told me to take 3
I have had ongoing bursitis in both of my hips for about 3-4 years. Very painful, for example, when I carry a basket of laundry up stairs or need to lift just about anything that is heavy. I had this checked out about 3 years ago before COVID limited doctor visits. At that time they told me to take 3
bmenard
in
Arthritis Action
2 years ago
My job requires I lift 50 lbs. If I have a bilateral mastectomy will I be allowed to return to work once healed, or will I loose my job?
mastectomy, return to work
mastectomy, return to work
EttaMagath
in
SHARE Breast Cancer Support
2 years ago
Oedema & fungating cancer
My good friend had a mastectomy a few years ago, she’s now got secondary fungating cancer & having the dressings changed daily by district nurses. They are very kind but don’t have experience of dressing this cancer. Now she has oedema in her hands & legs & getting conflicting advice on whether to put
My good friend had a mastectomy a few years ago, she’s now got secondary fungating cancer & having the dressings changed daily by district nurses. They are very kind but don’t have experience of dressing this cancer. Now she has oedema in her hands & legs & getting conflicting advice on whether to put
KT22
in
My Breast Cancer Community
2 years ago
Jolting from sleep.
Hello everyone, I'm writing to see if anybody has any episodes of being suddenly jolted from their sleep, especially if you have FND and Fibromyalgia? I've experienced it once, several years ago and had an episode today, which is quite scary if you're on your own.
Hello everyone, I'm writing to see if anybody has any episodes of being suddenly jolted from their sleep, especially if you have FND and Fibromyalgia? I've experienced it once, several years ago and had an episode today, which is quite scary if you're on your own.
LEEJUNFAN
in
Functional Neurological Disorder - FND Hope
2 years ago
Pulmonary Fibrosis/Pulmonary Hypertension how long?
I know that we have very different experiences with our ILD. I had a look on an American PH news site and see that they have been testing an oral spray which has given quite favourable results for PF sufferers. Wonder how long it will take for UK to get it! Here is an extract from the article. It would
I know that we have very different experiences with our ILD. I had a look on an American PH news site and see that they have been testing an oral spray which has given quite favourable results for PF sufferers. Wonder how long it will take for UK to get it! Here is an extract from the article. It would
Little-Lung-Lulu
in
Lung Conditions Community Forum
2 years ago
Long term use of Duloxetine
Hi, I have been taking Duloxetine continuously since 2003. I did try Sertraline but I couldn't function. Seeing my GP at the moment is a nightmare. I am just aware that my anxiety episodes are getting more frequent with no rhyme or reason for them. Have they stopped working? and is it dangerous to be
Hi, I have been taking Duloxetine continuously since 2003. I did try Sertraline but I couldn't function. Seeing my GP at the moment is a nightmare. I am just aware that my anxiety episodes are getting more frequent with no rhyme or reason for them. Have they stopped working? and is it dangerous to be
Shaz8465
in
Anxiety Support
2 years ago
PGE1, PGA1, Amodiaquine (AQ), Chloroquine (CQ), 5,6-Dihydroxyindole (DHI), Nurr1 and slowing progression
(This started as a post on PGE1 and PGA2, but then I found AQ, CQ, and DHI might do the same thing so I have changed the title) It has been 2 years since this was posted in HU: https://healthunlocked.com/cure-parkinsons/posts/143562876/2-compounds-show-ability-to-protect-neurons-raise-dopamine-levels
(This started as a post on PGE1 and PGA2, but then I found AQ, CQ, and DHI might do the same thing so I have changed the title) It has been 2 years since this was posted in HU: https://healthunlocked.com/cure-parkinsons/posts/143562876/2-compounds-show-ability-to-protect-neurons-raise-dopamine-levels
Bolt_Upright
in
Cure Parkinson's
2 years ago
Sleep Apnea
Does any one have issues with sleep apnea with this illness? PMR 20 years, GCA at least 10. Pred 12 years, Actemra 2 years. My blood pressure goes up when I sleep. I am scheduled to be tested for sleep apnea. I am wondering if this is why I can't get any remission or control of this illness?
Does any one have issues with sleep apnea with this illness? PMR 20 years, GCA at least 10. Pred 12 years, Actemra 2 years. My blood pressure goes up when I sleep. I am scheduled to be tested for sleep apnea. I am wondering if this is why I can't get any remission or control of this illness?
phebamom
in
PMRGCAuk
2 years ago
RLS, PLMS or Rem Sleep Disorder
This is developing quite nicely, I think. (Strange to say, I hear you say) My consultant heard my doctor's diagnosis of PLMS, but felt that it may be REM sleep disorder. I am now beginning to think like him. (BTW does anyone sleep with mouth open? I mention because a cough is developing, so "out with
This is developing quite nicely, I think. (Strange to say, I hear you say) My consultant heard my doctor's diagnosis of PLMS, but felt that it may be REM sleep disorder. I am now beginning to think like him. (BTW does anyone sleep with mouth open? I mention because a cough is developing, so "out with
Spurdog1
in
Restless Legs Syndrome
2 years ago
Sleep apnea
Hi friends I was recently diagnosed with CA and was wondering if anyone new if sleep apnea might be linked?
Hi friends I was recently diagnosed with CA and was wondering if anyone new if sleep apnea might be linked?
Guardsman68
in
Ataxia UK
2 years ago
Sibelium and mental health
Hello, ive been taking sibelium 5mg for about 4 months, it has been going ok sk far, the only symptoms i experienced were drowsiness and increased appetite, but recently i got a really bad stomach flu and had to take antibiotics, although my pharmacist and drs told me there is no interactions, i felt
Hello, ive been taking sibelium 5mg for about 4 months, it has been going ok sk far, the only symptoms i experienced were drowsiness and increased appetite, but recently i got a really bad stomach flu and had to take antibiotics, although my pharmacist and drs told me there is no interactions, i felt
Kevin160
in
National Migraine Centre
2 years ago
Taxol Update
I want to put this out there for those considering or starting Taxol and hope it helps. My doctor uses a fairly elaborate pre-med and med protocol that they are studying at our center because his patients tolerate the drug much better than others. I actually witnessed this in the infusion room when a
I want to put this out there for those considering or starting Taxol and hope it helps. My doctor uses a fairly elaborate pre-med and med protocol that they are studying at our center because his patients tolerate the drug much better than others. I actually witnessed this in the infusion room when a
Iwasborntodothis
in
SHARE Metastatic Breast Cancer
2 years ago
5th failed transfer
Hi all - my fifth transfer (from my 3rd collection) has just failed. This is the first time I have taken prednisone 25mg, had intralipids and humira injections. I was sure we had found the real cause of failed implantation and my 2 miscarriages but now I am not so sure. Our embryos have always been
Hi all - my fifth transfer (from my 3rd collection) has just failed. This is the first time I have taken prednisone 25mg, had intralipids and humira injections. I was sure we had found the real cause of failed implantation and my 2 miscarriages but now I am not so sure. Our embryos have always been
strawberriesandcream
in
Fertility Network UK
2 years ago
FET prep...advice please
Hi ladies I'll be doing my 2nd (and final FET) soon, does anyone have any advice on when to stop caffeine before? I only really have one coffee a day (max 2), but last time I switched to decaf a few weeks before then didn't have any once I started meds. Should I be cutting it out sooner? Same for alcohol
Hi ladies I'll be doing my 2nd (and final FET) soon, does anyone have any advice on when to stop caffeine before? I only really have one coffee a day (max 2), but last time I switched to decaf a few weeks before then didn't have any once I started meds. Should I be cutting it out sooner? Same for alcohol
Loosy80
in
Fertility Network UK
2 years ago
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