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PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
10 months ago
Sleeping Aids
Hi all Does anyone have any good sleep aid tablets to recommend that are ok to take whilst on Levothyroxine . My sleep is terrible and my doctor wont help. massive thanks
Hi all Does anyone have any good sleep aid tablets to recommend that are ok to take whilst on Levothyroxine . My sleep is terrible and my doctor wont help. massive thanks
Gyp101
in
Thyroid UK
10 months ago
sleep apnea and afib
According to monitoring with apple watch, my over night pulse rate often goes into the low 40s. In addition when I check in the morning I am often in afib. I have sleep apea and use a CPAP. Just wondering if anyone else has these low overnight pulse rates and any linkage to sleep apnea triggering afib
According to monitoring with apple watch, my over night pulse rate often goes into the low 40s. In addition when I check in the morning I am often in afib. I have sleep apea and use a CPAP. Just wondering if anyone else has these low overnight pulse rates and any linkage to sleep apnea triggering afib
Xian1
in
Atrial Fibrillation Support
11 months ago
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Horizitom
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
tuckerdog109
in
Restless Legs Syndrome
11 months ago
Burning pain to side of scapular post several breast ops - anyone have this too?
Dear all Hope you are doing as well as can be. I am really struggling with very bad, deep burning in the area of my upper left back, in-between the shoulder blade and my spine and wondered if anyone else has had this issue post surgery/ies? I have a lot of lumps and spasmed areas anyway, all over
Dear all Hope you are doing as well as can be. I am really struggling with very bad, deep burning in the area of my upper left back, in-between the shoulder blade and my spine and wondered if anyone else has had this issue post surgery/ies? I have a lot of lumps and spasmed areas anyway, all over
DJK99
in
SHARE Breast Cancer Support
1 year ago
threadworm fibromyalgia link?
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Emmybird2
in
Fibromyalgia Action UK
11 months ago
Hey Y'all
Just stumbled across this site. I'm a MBC Thriver!! In July 2017 it was confirmed that I in fact had HR+ HER2- BC after years of mammograms and ultrasounds. I always knew it was cancer that was causing my issues. At 39 most OB/GYN play it off as hormone changes. What was the final straw was I lost my
Just stumbled across this site. I'm a MBC Thriver!! In July 2017 it was confirmed that I in fact had HR+ HER2- BC after years of mammograms and ultrasounds. I always knew it was cancer that was causing my issues. At 39 most OB/GYN play it off as hormone changes. What was the final straw was I lost my
tamtam425
in
SHARE Metastatic Breast Cancer
1 year ago
Anyone experience insomnia since starting pirtobrutinib?
About an hour after I take it, I feel like I drank a triple espresso. At night it is causing insomnia. So far this is the only side effect except some nausea after my morning pill. My lymph nodes have gone down slightly. White count went up 5000 points in the first week, but interesting enough, my
About an hour after I take it, I feel like I drank a triple espresso. At night it is causing insomnia. So far this is the only side effect except some nausea after my morning pill. My lymph nodes have gone down slightly. White count went up 5000 points in the first week, but interesting enough, my
ReneeSusan
in
CLL Support
11 months ago
Great video on healing a "leaky gut" and I found this probiotic to be the best deal on Amazon!
For myself ... I believe my PD-like symptoms is from my "leaky gut". And, fortunately after more than 2 years of self-diagnosis --- my various symptoms are still very, very, very mild. My neuro/MDS is Dr. Bozo who said after my exam: [i]"The good news is that you don't have Parkinson. The bad news
For myself ... I believe my PD-like symptoms is from my "leaky gut". And, fortunately after more than 2 years of self-diagnosis --- my various symptoms are still very, very, very mild. My neuro/MDS is Dr. Bozo who said after my exam: [i]"The good news is that you don't have Parkinson. The bad news
PDWarrior1900
in
Cure Parkinson's
11 months ago
I was diagnosed 4 years ago with relapsing remitting. In the MS community no one ever talks about lesions black holes or myelin. Why!
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
After my initial diagnosis on my next visit I asked my neurologist how many lesions I had. He said “ I don’t really know. This guy is one of the most renowned neurologists in the world. I said, how long have you been doing this? X years. Then what does your gut say? He said in between 50 and 75 but
Mark1499
in
My MSAA Community
11 months ago
fatigue
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
i have been taking Firmagon for 3 months Since I started am Lucky i have no more pain or very little. My only problem is fatigue . I am supposed to start next week on Apalutamide. I am wondering it is a good combination . Also if my fatigue will get worse . Does anyone knows Thank you
Raminagrobis
in
Advanced Prostate Cancer
11 months ago
Update- I no longer take Dipyridamole
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
I have been meaning to update the group on this. I have stopped taking Dipyridamole for over a month now, closer to two months. I took Dipyridamole for two years. I was nearing the end of my Dipyridamole supply. I was wondering how much it was helping. So I stopped abruptly. Since then I have
WideBody
in
Restless Legs Syndrome
11 months ago
Mirapex for depression
My mom is currently taking .250 mg of Mirapex once at night and once in the morning. Taking in the morning because it helps with anxiety to for her. Wanting to go up to .250 at night and keep .125 during the day. She seems to be building tolerance and not helping as much as initially did at the beginning
My mom is currently taking .250 mg of Mirapex once at night and once in the morning. Taking in the morning because it helps with anxiety to for her. Wanting to go up to .250 at night and keep .125 during the day. She seems to be building tolerance and not helping as much as initially did at the beginning
84withb12d
in
Anxiety Support
11 months ago
Curious
Hi wondering if anyone has had groin discomfort in their CLL journey, l have for a couple of weeks on and off,l do gardening when fatigue allows me too so could be a strain,thanks all.
Hi wondering if anyone has had groin discomfort in their CLL journey, l have for a couple of weeks on and off,l do gardening when fatigue allows me too so could be a strain,thanks all.
sun_flower
in
CLL Support
11 months ago
To see a neurologist or aps dr at lupus centre?
I have had a problem with a movement disorder for a few yrs now. I seen a local neurologist who don't think my movement disorder could be related to aps, why i don't know as it's a symptom of aps albeit rare I do know that. He has certainly never come across a person with aps and movement disorder. What
I have had a problem with a movement disorder for a few yrs now. I seen a local neurologist who don't think my movement disorder could be related to aps, why i don't know as it's a symptom of aps albeit rare I do know that. He has certainly never come across a person with aps and movement disorder. What
Charts
in
Hughes Syndrome APS Forum
11 months ago
Just looking for help like most of you.
I have been lurking here and on other sites, hoping to find some path to reduce or eliminate if possible my PLMD. I think I have had it for many years, but was officially diagnosed with it during an in lab sleep study I had recently. They found mild sleep apnea which is now well controlled with CPAP
I have been lurking here and on other sites, hoping to find some path to reduce or eliminate if possible my PLMD. I think I have had it for many years, but was officially diagnosed with it during an in lab sleep study I had recently. They found mild sleep apnea which is now well controlled with CPAP
stteb
in
Restless Legs Syndrome
11 months ago
Provigil (Modafinil) for fatigue 'n stuff
Saw my Neurologist yesterday for my 6 month regular visit. He asked how I was doing. I told him good in that I intermittently get my sense of smell back, but bad because I get fatigued very easily, despite the crazy amount of exercise I do. Without hesitation, he offered to have me try Provigil. I had
Saw my Neurologist yesterday for my 6 month regular visit. He asked how I was doing. I told him good in that I intermittently get my sense of smell back, but bad because I get fatigued very easily, despite the crazy amount of exercise I do. Without hesitation, he offered to have me try Provigil. I had
bassofspades
in
Cure Parkinson's
11 months ago
Questionn
Can a Patent Ductus Aerteriosus be diagnosed with a posterlateral thoracotomy then be monitor to make sure it closes?
Can a Patent Ductus Aerteriosus be diagnosed with a posterlateral thoracotomy then be monitor to make sure it closes?
LonerIQ
in
Lung Conditions Community Forum
11 months ago
Lining too thin?
Hello! I posted last week about messing up my progynova dosage. I had my scan yesterday and my lining was measured at 7.8 mm and the nurse said everything looked okay and transfer is booked for next Thursday. However, when looking online, a lot of sites suggest optimal thickness should be 8.5+and I’m
Hello! I posted last week about messing up my progynova dosage. I had my scan yesterday and my lining was measured at 7.8 mm and the nurse said everything looked okay and transfer is booked for next Thursday. However, when looking online, a lot of sites suggest optimal thickness should be 8.5+and I’m
Dinobaby05
in
Fertility Network UK
11 months ago
lipodystrophy and Parkinson’s?
does anyone else have lipodystrophy associated with their Parkinson’s? I’ve had Parkinson’s for more than 12 years and it has mostly been well controlled by steadily increasing levels of medication. Recently, however, I’ve been losing weight and body fat consistent with generalised Lipodystrophy. I
does anyone else have lipodystrophy associated with their Parkinson’s? I’ve had Parkinson’s for more than 12 years and it has mostly been well controlled by steadily increasing levels of medication. Recently, however, I’ve been losing weight and body fat consistent with generalised Lipodystrophy. I
Cv235
in
Cure Parkinson's
11 months ago
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