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1 month to go until 100 miles in May!
🏃🐕 🏊🚴💪 JUST 1 MONTH TO GO!!! Not yet registered!? Join us for the 2023 100 Miles in May Challenge....🎖If you’re looking for a 2023 challenge to get fit, get outdoors and raise vital funds for a cause you care about - look no further!You can support two amazing charities this May when SKCIN and
🏃🐕 🏊🚴💪 JUST 1 MONTH TO GO!!! Not yet registered!? Join us for the 2023 100 Miles in May Challenge....🎖If you’re looking for a 2023 challenge to get fit, get outdoors and raise vital funds for a cause you care about - look no further!You can support two amazing charities this May when SKCIN and
SkcinHQ
Partner
in
Skin Cancer UK
1 year ago
Breathlessness
Hi I am currently on a cycle which involves two sessions at two weeks apart called TETP. So I am having etoposide and paclitaxel then cisplatin and paclitaxel two weeks later. I was wondering if anyone else has experienced a tight chest and breathlessness when having any of the above. Also I have developed
Hi I am currently on a cycle which involves two sessions at two weeks apart called TETP. So I am having etoposide and paclitaxel then cisplatin and paclitaxel two weeks later. I was wondering if anyone else has experienced a tight chest and breathlessness when having any of the above. Also I have developed
Swimbuddy
in
My Ovacome
7 months ago
Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
7 months ago
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RAI POST THYROID CANCER
Has anyone had radioactive iodine treatment after thyroid cancer and then experienced a dry annoying cough quite quickly after?
Has anyone had radioactive iodine treatment after thyroid cancer and then experienced a dry annoying cough quite quickly after?
ADouble
in
Thyroid UK
7 months ago
BC Which Hospital Update _ and eyesl
I got a call saying I could go into local hospital for my flexy cystoscopy There is a 25 mile difference. My last rigid cystoscopy showed that 5 out of 6 biopsies was low grade, hence the flexy cystoscopy.. I have not long ago finished my 3 x BCG infusions - Have they worked, my flexy cystoscopy
I got a call saying I could go into local hospital for my flexy cystoscopy There is a 25 mile difference. My last rigid cystoscopy showed that 5 out of 6 biopsies was low grade, hence the flexy cystoscopy.. I have not long ago finished my 3 x BCG infusions - Have they worked, my flexy cystoscopy
Ern007
in
Lung Conditions Community Forum
7 months ago
Answer to unknown question
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Jan 2024 (after lots of research and nearly 3 years on from original diagnosis of Metastatic Prostate Cancer with extensive bone metastases) I have just worked out the answer to the question I didn't know I wanted to ask. Instead of worrying about PSA and other test results my real concern was "what
Brendan1904
in
Advanced Prostate Cancer
7 months ago
Olaparib hasn’t worked for me . Anyone had this happen and had success with another PARP?
Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7 months of Olaparib and then CT scan showed new tumour on spleen. CA125 36. Oncologist mentioned later trying another PARP possibly Rucaparib
Hi everyone, I’m back of Chemo for 3rd line, this time with Carbo and Caelyx. This is just a year after 1st recurrence, Chemo reduced cancer to nearly NED, 7 months of Olaparib and then CT scan showed new tumour on spleen. CA125 36. Oncologist mentioned later trying another PARP possibly Rucaparib
Towergirl
in
My Ovacome
7 months ago
ATM gene mutation
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
I just received results from genetic testing that I have a ATM gene mutation. I am currently not on any meds and my last PSMA pet scan was negation. I am scheduled for a follow up PSA test mid march based on rising PSA after 5 years undetectable. Based on the ATM finding will this change any future therapy
Rfs1975
in
Advanced Prostate Cancer
7 months ago
Not about PCa but interesting: GLP-1 Receptor Agonists help with colorectal cancer
"A research letter recently published in JAMA Oncology has provided some promising insights into the potential of Glucagon-like peptide 1 receptor agonists (GLP-1 RAs) in lowering the risk of colorectal cancer (CRC) among patients with type 2 diabetes. The study involved a national retrospective analysis
"A research letter recently published in JAMA Oncology has provided some promising insights into the potential of Glucagon-like peptide 1 receptor agonists (GLP-1 RAs) in lowering the risk of colorectal cancer (CRC) among patients with type 2 diabetes. The study involved a national retrospective analysis
Maxone73
in
Fight Prostate Cancer
7 months ago
Which Treatment for These Biopsy Results?
I now have my biopsy results Gleason 3 + 4 ie 90% of 3 and 10% of 4 Grade 2 The consultant said it was Intermediate but at one point used the term Low intermediate. Is this latter term valid given the stats? T2a NO MO - but I am puzzled about this because although it was mostly all on the left side
I now have my biopsy results Gleason 3 + 4 ie 90% of 3 and 10% of 4 Grade 2 The consultant said it was Intermediate but at one point used the term Low intermediate. Is this latter term valid given the stats? T2a NO MO - but I am puzzled about this because although it was mostly all on the left side
Nordman
in
Advanced Prostate Cancer
7 months ago
psoas Muscle Tumors
my OVCA metastasized to my Psoas muscle 6 years after preliminary OVCA diagnosis. Various chemo and immunotherapy are helping keep it contained. Has anyone had surgery for removal of a psoas tumor? I’d love to hear from you. Thank you.
my OVCA metastasized to my Psoas muscle 6 years after preliminary OVCA diagnosis. Various chemo and immunotherapy are helping keep it contained. Has anyone had surgery for removal of a psoas tumor? I’d love to hear from you. Thank you.
Leniko
in
My Ovacome
7 months ago
What is the next step
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
I have one more Immunotherapy for my bladder cancer, so far all scan have shown no metastasis. Now I need to focus on my PC after more than a year of ignoring it. My PSA has been fluctuating and is now 0.65, doubling time is 16 months, I have not had ADT yet and my MO wants to just wait and watch. What
old64horn
in
Advanced Prostate Cancer
7 months ago
Important caveat regarding estrogen therapy
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
Prof. Richard Wassersug tells me that estrogen therapy may be contraindicated if you have a BRCA 1 or 2 gene mutation. You can get a free, saliva germline genetic test of 30 genes from Color, Inc. as part of the PROMISE registry.
janebob99
in
Prostate Cancer Network
7 months ago
second recurrence
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hi ladies here I am again on my 2nd recurrence. A little bit unusual presentation as I complained of ongoing back pain had,had MRI and CT which had all been clear. Until the most recent scan showed a lymph node under my breast. They have not been able to biopsy it as I have just had a DVT and so I am
Hota
in
My Ovacome
7 months ago
GCA flare
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Diagnosed April 2018 with PMR. Three months later GCA. I am currently on 3mgs prednisolone. Over the last two days have scalp pain on right side only … no jaw pain. It feels a bit like I am getting a cold sore but no cold sore showing up. Could it be a GCA flare? Thank you to everyone who replies.
Reddev
in
PMRGCAuk
11 months ago
New Malecare AI Assisted PCa Search
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
dmt1121
in
Advanced Prostate Cancer
8 months ago
nephrectomy
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
hi I’m just after a bit of advice I had my right kidney removed 4 weeks ago it was removed robotically and took over 7 hours due to the size of a non cancerous tumour. I had 4 small incisions and one large one lower down which is quite big! My tummy is still very swollen and sore. Is this normal? I
higham23
in
MPN Voice
8 months ago
Short-term vs Long-Term ADT for High Risk Men
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
Here's a review of a recent presentation at ASCO 2023 by Artera.ai regarding the use of Artificial Intelligence analysis of biopsy slides to predict which high-risk men do or don't benefit from short-term ADT vs long-term ADT. Their findings are summarized here: [i]"Based on these results, it appears
janebob99
in
Prostate Cancer Network
8 months ago
First blood test after starting Peg 17/12/2023
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Hi, Blood test from 28/12/2023 Platelets down to 427 (previous 580, 560, 504). Elevated Potassium 5.4 and ALT 96. I guess Peg has elevated ALT?? My next FU is March 14th. I’m really hoping I don’t have to increase Peg which is currently 45 weekly.
Carol0925
in
MPN Voice
8 months ago
Mutations
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
I am on Orserdu (elacestrant) for a ESR1 mutation and feeling great but my CA27-29 tumor marker numbers continue to rise. Prior to this medication I was on Capecitabine for a PIC3 mutation and prior to that Piqray. Does any one know what meds work to target both mutations simultaneously?
Healthplus1
in
SHARE Metastatic Breast Cancer
8 months ago
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