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Tired Tavern - Discord server for people with CFS/ME and Long Covid
Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a very welcoming community that helps one another by sharing experiences, comfort and understanding. We also have server and community events coming
Hi guys, Just wanted to say that our CFS/ME and Long Covid Discord server has been up and running for two weeks now and we're close to 150 members. We're a very welcoming community that helps one another by sharing experiences, comfort and understanding. We also have server and community events coming
TiredTavern
in
Myalgic Encephalomyelitis Community
6 months ago
first time covid - symptoms expectation
Hello fellow RA warriors, I have been very careful since the start of the covid era - very limited outings/socializing, always mask up when out, no more gym exercise classes. I decided to enjoy the holiday a little bit more this year - dined out with a few family members in a crowded and popular restaurant
Hello fellow RA warriors, I have been very careful since the start of the covid era - very limited outings/socializing, always mask up when out, no more gym exercise classes. I decided to enjoy the holiday a little bit more this year - dined out with a few family members in a crowded and popular restaurant
Mymymy
in
NRAS
6 months ago
Pneumonia Vaccine
I was talking to a very friendly Doctors wife yesterday who works on his admin and we talked about the amount of people suffering and in some cases hospitalised with pneumonia. She said that the vaccine I was given about 10yrs ago is now not considered to be sufficient protection. It is thought that
I was talking to a very friendly Doctors wife yesterday who works on his admin and we talked about the amount of people suffering and in some cases hospitalised with pneumonia. She said that the vaccine I was given about 10yrs ago is now not considered to be sufficient protection. It is thought that
Ridge
in
PMRGCAuk
5 months ago
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Covid testing
Does anybody know if home carers are still expected to do Covid tests? I have a new carer and when she came today she was coughing a lot. I asked her when she had last tested and she said she hasn’t tested since January of this year.
Does anybody know if home carers are still expected to do Covid tests? I have a new carer and when she came today she was coughing a lot. I asked her when she had last tested and she said she hasn’t tested since January of this year.
thelmar
in
NRAS
6 months ago
Disability Allowance - Any Advice Please
Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No I answered! “Well you should have a look at that” they replied “especially if you have had to stop work” So that got me thinking. I am 62, I
Hi everybody. At a recent trip to hospital for my usual check ups a question was posed by one of the medical staff. “Are you getting Disability Allowance”? No I answered! “Well you should have a look at that” they replied “especially if you have had to stop work” So that got me thinking. I am 62, I
Investigator1
in
Vasculitis UK
6 months ago
shingrix
Does anyone know how long you have to leave it after rutuximab before having the shingles vaccine. I had infusion in December & my GP has never offered this or the pneumonia jab so was going to chase this up. Tia
Does anyone know how long you have to leave it after rutuximab before having the shingles vaccine. I had infusion in December & my GP has never offered this or the pneumonia jab so was going to chase this up. Tia
juli-pa
in
Vasculitis UK
5 months ago
shingles vaccination
hello. Has anyone had the shingles vaccination, I have PV and on Hydroxycarbamide. Wondering if to have it or not. take care x
hello. Has anyone had the shingles vaccination, I have PV and on Hydroxycarbamide. Wondering if to have it or not. take care x
Maisie10
in
MPN Voice
8 months ago
Covid First Time
Well I have finally caught Covid, in fact it is the first time that I have noticeably caught anything since 2019. At the moment I have chills, vomiting and a headache=not happy. Just wondering if anyone has any tips or info. on how to stay as comfy as possible and anything to look out for Asthma wise
Well I have finally caught Covid, in fact it is the first time that I have noticeably caught anything since 2019. At the moment I have chills, vomiting and a headache=not happy. Just wondering if anyone has any tips or info. on how to stay as comfy as possible and anything to look out for Asthma wise
LittleZebra
in
Asthma Community Forum
6 months ago
Covid and AF
Apologies if I posted this earlier. Despite countless jabs against covid (I am 79 ) and escaping the virus the past three and a half years I succumbed to the latest variant last Sunday 10th Dec. At first I thought it was just a heavy cold with a cough. Also I was thinking that I was more susceptible
Apologies if I posted this earlier. Despite countless jabs against covid (I am 79 ) and escaping the virus the past three and a half years I succumbed to the latest variant last Sunday 10th Dec. At first I thought it was just a heavy cold with a cough. Also I was thinking that I was more susceptible
Camelia23
in
AF Association
6 months ago
COVID
Doea anyone have any advice. I had my ablation in September and a nurse told me not to have a flu jab or covid booster. I am now stuck at home with Covid. I am a little worried about it triggering AFib.
Doea anyone have any advice. I had my ablation in September and a nurse told me not to have a flu jab or covid booster. I am now stuck at home with Covid. I am a little worried about it triggering AFib.
Be-still-my-heart
in
AF Association
6 months ago
Bands pulmonary fibrosis tomography
hello my story in short in 2022 I had covid 19 after recovery I did a lung X-ray which did not show anything suspicious now in September 2023 a year after covid19 I started having breathing difficulties I couldn't breathe deeply and I was falling into bed we can't I'm going to the end of the cascading
hello my story in short in 2022 I had covid 19 after recovery I did a lung X-ray which did not show anything suspicious now in September 2023 a year after covid19 I started having breathing difficulties I couldn't breathe deeply and I was falling into bed we can't I'm going to the end of the cascading
Petre84
in
Lung Conditions Community Forum
6 months ago
Phone-call from receptionist today
Only just joined and not sure where to begin as I feel as if I’m in shock a little and desperately trying to find out information. I had a phone call from the drs receptionist this afternoon to tell me I have hypothyroidism after some blood tests and needed to pick up a prescription which I would need
Only just joined and not sure where to begin as I feel as if I’m in shock a little and desperately trying to find out information. I had a phone call from the drs receptionist this afternoon to tell me I have hypothyroidism after some blood tests and needed to pick up a prescription which I would need
Benjipuss
in
Thyroid UK
6 months ago
covid meds and prednisolne
Evening all I have PMR and currently tapering Pred down, I am on 3 mg per day. However yesterday I tested positive for Covid. Two questions 1. do I need to inform my GP as my immune system is compromised the NHS site is not clear. 2. What meds does anyone suggest for the hacking cough, runny nose
Evening all I have PMR and currently tapering Pred down, I am on 3 mg per day. However yesterday I tested positive for Covid. Two questions 1. do I need to inform my GP as my immune system is compromised the NHS site is not clear. 2. What meds does anyone suggest for the hacking cough, runny nose
JAC1947
in
PMRGCAuk
6 months ago
Round and round
had last O treatment end of June. I have been sick since 3 rounds of upper respiratory which has turned to pneumonia I can’t get out of this cycle. Supposed to see ms dr tomorrow to discuss pushing O back to 6 months I’ve been on 5 month. X-ray showed Mass on lungs which is either pneumonia or the big
had last O treatment end of June. I have been sick since 3 rounds of upper respiratory which has turned to pneumonia I can’t get out of this cycle. Supposed to see ms dr tomorrow to discuss pushing O back to 6 months I’ve been on 5 month. X-ray showed Mass on lungs which is either pneumonia or the big
NanaCC179
in
My MSAA Community
8 months ago
Advice request - going in circles with doctors
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Hi all, I've been suffering with endometriosis for years but I'm really struggling to get proper help with it, and the doctors seem to be thinking now it might be something else. I've had surgery to remove endometriosis twice (and the second time I also had an ovarian cyst removed which was larger than
Bookworm321123
in
Endometriosis UK
3 months ago
A little, very quiet, thumbs up 👍
Well, I've been keeping quiet about returning (again!) to C25K but I have just managed Week 4, Run 3 without any problems so I am HOPING I can finally get back on the trotting pony regularly now. After literally a whole year of Covid, colds, sinus and chest infections, PVF/Long Covid, post-Covid cough
Well, I've been keeping quiet about returning (again!) to C25K but I have just managed Week 4, Run 3 without any problems so I am HOPING I can finally get back on the trotting pony regularly now. After literally a whole year of Covid, colds, sinus and chest infections, PVF/Long Covid, post-Covid cough
Over60sRunner
Graduate
in
Couch to 5K
6 months ago
Long Covid
Hi All Last week I was diagnosed with post covid viral syndrome (long Covid) I am feeling so unwell and fatigued, just wonder if anyone on here is coping with that too Thanks Annie
Hi All Last week I was diagnosed with post covid viral syndrome (long Covid) I am feeling so unwell and fatigued, just wonder if anyone on here is coping with that too Thanks Annie
Annieosb
in
Lung Conditions Community Forum
6 months ago
Thrush 3 days before FET
Hi everyone, I am booked for a natural FET on Monday (I didn't take anything this cycle, not even progesterone) and the Friday before I discovered that my discharge looked like cottage cheese and I may be getting thrush. Which I haven't had in years! Has this happened to anyone else before their FET
Hi everyone, I am booked for a natural FET on Monday (I didn't take anything this cycle, not even progesterone) and the Friday before I discovered that my discharge looked like cottage cheese and I may be getting thrush. Which I haven't had in years! Has this happened to anyone else before their FET
raverg
in
Fertility Network UK
5 months ago
PMR and Pfizer Covid Vaccine
Within 5 days of my husband and I receiving the first Pfizer Covid jab, he started getting pains in his legs and shoulders. He took paracetamol & used Bio Freeze, similar to deep heat. He got progressively worse, a GP diagnosed Frozen Shoulder over the phone, prescribed Co-Codamol & Naproxen. Within
Within 5 days of my husband and I receiving the first Pfizer Covid jab, he started getting pains in his legs and shoulders. He took paracetamol & used Bio Freeze, similar to deep heat. He got progressively worse, a GP diagnosed Frozen Shoulder over the phone, prescribed Co-Codamol & Naproxen. Within
heartsonfire
in
PMRGCAuk
6 months ago
Helicobacter pylori
Good morning just wondered if you have come across H Pylori I seem to have tested positive for this test. Waiting to hear from GP later today, what questions should I ask? I was assuming not enough stomach acid but now not sure what’s going on with my guts! Look forward to hearing your views
Good morning just wondered if you have come across H Pylori I seem to have tested positive for this test. Waiting to hear from GP later today, what questions should I ask? I was assuming not enough stomach acid but now not sure what’s going on with my guts! Look forward to hearing your views
Bollieforme
in
Thyroid UK
8 months ago
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