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Sjogren-Larsson syndrome
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Qutenza patch
Has anyone tried this? It contains capsaicin. I use lidocaine patches to numb my sesamoiditis. I am awaiting referal to get the qutenza patch be put on.
Has anyone tried this? It contains capsaicin. I use lidocaine patches to numb my sesamoiditis. I am awaiting referal to get the qutenza patch be put on.
Khae
in
Fibromyalgia Action UK
6 years ago
Restless Toes syndrome
It seems like most people have restless legs syndrome, I have restless syndrome. Every night I take Requip 3, and during the day I take requip 1 of my toes twitching. when I go somewhere overnight and forget to put my requip in, that night my toes do their twitching and then they start hurting
It seems like most people have restless legs syndrome, I have restless syndrome. Every night I take Requip 3, and during the day I take requip 1 of my toes twitching. when I go somewhere overnight and forget to put my requip in, that night my toes do their twitching and then they start hurting
bauerannec
in
Restless Legs Syndrome
6 years ago
Dealing with the loss in memory
Hi, I was diagnosed with TLE when I was 18. The thing that I battle with the most is the mood disturbances, crippling depression and severe anxiety. After 4 years of trying to find the right treatment to manage my moods, I was eventually put on a high dose of 500mg Lamictin and 50mg Topalex. Since then
Hi, I was diagnosed with TLE when I was 18. The thing that I battle with the most is the mood disturbances, crippling depression and severe anxiety. After 4 years of trying to find the right treatment to manage my moods, I was eventually put on a high dose of 500mg Lamictin and 50mg Topalex. Since then
Clo_clo
in
Epilepsy South Africa
6 years ago
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Pneumococcal Immunisation
Morning all, has anybody had Pneumococcal Immunisation whilst on steroids? I've been offered this as a precaution against pneumonia, septicaemia and meningitis. I'm slightly concerned about its interaction with GCA/PMR and/or steroids.
Morning all, has anybody had Pneumococcal Immunisation whilst on steroids? I've been offered this as a precaution against pneumonia, septicaemia and meningitis. I'm slightly concerned about its interaction with GCA/PMR and/or steroids.
Ronnie101
in
PMRGCAuk
6 years ago
First IVF appt - what to expect?!
Hi everyone, Apologies if this is already discussed elsewhere...I’ve just had my NHS IVF referral appt at the hospital confirmed by my GP for next month and wondering what to expect. From what I can gather this will be with a specialist/consultant at the hospital that provides the treatment to check
Hi everyone, Apologies if this is already discussed elsewhere...I’ve just had my NHS IVF referral appt at the hospital confirmed by my GP for next month and wondering what to expect. From what I can gather this will be with a specialist/consultant at the hospital that provides the treatment to check
threesthemagicnumber
in
Fertility Network UK
6 years ago
Has anyone successfully weaned off DA meds and feeling ok
As I awaken every morning around 4am I immediately go to this site in an attempt to read everything and anything I can to help me with this awful disorder. Thank you so much for all the helpful info. It has given me some tools to hopefully get a few hours of sleep here and there. I thought things were
As I awaken every morning around 4am I immediately go to this site in an attempt to read everything and anything I can to help me with this awful disorder. Thank you so much for all the helpful info. It has given me some tools to hopefully get a few hours of sleep here and there. I thought things were
mmb8083
in
Restless Legs Syndrome
6 years ago
Withdrawal symptoms rls
Just wondered if someone can give me some advice, I have rls and have been usi g pramipexole 88 mg tabs since 2013, I am upto 4 tabs a night, the drug hasn't really worked for a while, so went to go, advised too come off them and reduce my dosage over several days, which I have, I've now been prescribed
Just wondered if someone can give me some advice, I have rls and have been usi g pramipexole 88 mg tabs since 2013, I am upto 4 tabs a night, the drug hasn't really worked for a while, so went to go, advised too come off them and reduce my dosage over several days, which I have, I've now been prescribed
BLUES60
in
Restless Legs Syndrome
6 years ago
RLS SEVERE
Hi there, I have recently started a medication called citalpram(celexa) and I noticed a few months ago I started getting signs of rls. It’s making me go crazy!! I try everything from warm baths, magnesium, massage my legs and I even take a sleeping pill or Ativan sometimes and I still can’t go to sleep
Hi there, I have recently started a medication called citalpram(celexa) and I noticed a few months ago I started getting signs of rls. It’s making me go crazy!! I try everything from warm baths, magnesium, massage my legs and I even take a sleeping pill or Ativan sometimes and I still can’t go to sleep
Kittykat1234
in
Restless Legs Syndrome
6 years ago
Confused about buserelin spray- starting today!
Hi all I’m having a FET cycle and as it’s day 21 of my cycle, starting buserelin/suprefact nasal spray (100mg spray) Having a mental block and can’t work out what to do. My instructions say one spray four times a day. Does that mean in one nostril (so 4 sprays in total) or in each nostril (so 8 sprays
Hi all I’m having a FET cycle and as it’s day 21 of my cycle, starting buserelin/suprefact nasal spray (100mg spray) Having a mental block and can’t work out what to do. My instructions say one spray four times a day. Does that mean in one nostril (so 4 sprays in total) or in each nostril (so 8 sprays
MissyR
in
Fertility Network UK
6 years ago
Questions about transitioning to lower doses of Tramadol while on Pregablin (Lyrica)?
Anyone know the standard dose of Tramadol that works well with Lyrica to eliminate RLS symptoms? I’m on 100 mgs Lyrica and 100 mgs of Tramadol 3 x a day. With that I am RLS free, but my doctor wants me to cut back to 50, 50 and 100. I started titrating down last week to just 50 mgs with my morning
Anyone know the standard dose of Tramadol that works well with Lyrica to eliminate RLS symptoms? I’m on 100 mgs Lyrica and 100 mgs of Tramadol 3 x a day. With that I am RLS free, but my doctor wants me to cut back to 50, 50 and 100. I started titrating down last week to just 50 mgs with my morning
Bganim1947
in
Restless Legs Syndrome
6 years ago
New medication
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
Hi there, I’ve recently been prescribed Glyceryl Trinitrate (Deponit) patches & Hydroxychloroquine (tablets) for my limited cutaneous systemic sclerosis after various previous meds not working. Has anyone else used these? Any success? Many thanks in advance for your replies 😊
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Postpartum Thyroiditis
Hi all! I have a baby girl who is 4.5months old. A couple of months ago I started to get classic hyper symptoms and got myself checked out (I’d seen them before in my sister who was hyper/Graves but is now in remission). My thyroid levels were high and postpartum thyroiditis was suspected as the cause
Hi all! I have a baby girl who is 4.5months old. A couple of months ago I started to get classic hyper symptoms and got myself checked out (I’d seen them before in my sister who was hyper/Graves but is now in remission). My thyroid levels were high and postpartum thyroiditis was suspected as the cause
EvaNik
in
Thyroid UK
6 years ago
Returning to work advice
Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results
Dear all I’m looking for some advice I’ve been off work since Feb 2018 with fatigue , joint pain , nerve pain , dry eyes & mouth . I’ve had numerous test and have seen a Rheumatologist privately . He ruled out lupus as all blood NAD . He suggested I had Sjogrens . I’m currently awaiting the results
Angelamarston1963
in
LUPUS UK
6 years ago
Embarking on the IVF road.
So after 4 years and multiple attempts with gonal f, an operation and a misscarraige we had a consultation today with the Dr after I over responded (again) this round. The Dr said we could either try a couple more rounds of ovulation induction seeing as it has worked once or we could start the IVF journey
So after 4 years and multiple attempts with gonal f, an operation and a misscarraige we had a consultation today with the Dr after I over responded (again) this round. The Dr said we could either try a couple more rounds of ovulation induction seeing as it has worked once or we could start the IVF journey
bms12
in
Fertility Network UK
6 years ago
He, Dic Carlson, Another suggestion...
Have you tried or looked into info on Lithium orotate? (This is the mineral form of lithium, not the drug form of lithium carbonate.) Dr. Jonathan Wright has written about it, and here are a few others. There is a lot of info on using lithium orotate, and of course, there is always what people say
Have you tried or looked into info on Lithium orotate? (This is the mineral form of lithium, not the drug form of lithium carbonate.) Dr. Jonathan Wright has written about it, and here are a few others. There is a lot of info on using lithium orotate, and of course, there is always what people say
lauraflora
in
Restless Legs Syndrome
6 years ago
Big news for SCA3. Citalopram.
If you have a diagnosis of SCA3 but are not symptomatic then I suggest buying and printing out these research reports and taking them to your doctor. Keep in mind this is only in animal research and very often what works in animals turns out to be less efficacious in humans. The flip side to that is
If you have a diagnosis of SCA3 but are not symptomatic then I suggest buying and printing out these research reports and taking them to your doctor. Keep in mind this is only in animal research and very often what works in animals turns out to be less efficacious in humans. The flip side to that is
sunvox
in
Ataxia UK
6 years ago
Insomia
Hi, Has anybody found a solution to sleepless nights from long term intake of Prednisone. Sleeping pills made me so drowsy and tired that I felt the whole day like a sumby. Tried Magnesium and Valerian drops, but still woke up every hour and couldn't go back to sleep. Thanks
Hi, Has anybody found a solution to sleepless nights from long term intake of Prednisone. Sleeping pills made me so drowsy and tired that I felt the whole day like a sumby. Tried Magnesium and Valerian drops, but still woke up every hour and couldn't go back to sleep. Thanks
Orchid47
in
PMRGCAuk
6 years ago
Desperate for something to help with this nightmare RSL
Hi everyone i'm new to this forum and been searching in sheer desperation to try to find something to help me with this nightmare condition, i know its no a life threatening disease so to some might sound a petty condition to have but when you have it weather mild or severely you know its not petty at
Hi everyone i'm new to this forum and been searching in sheer desperation to try to find something to help me with this nightmare condition, i know its no a life threatening disease so to some might sound a petty condition to have but when you have it weather mild or severely you know its not petty at
cat57
in
Restless Legs Syndrome
6 years ago
Has anyone tried Hydroxyzine?
I am halfway to my goal to get off Mirapex (every two weeks I cut 1/4 of a .5mg pill so I am now at .75mg). I have started LDN (began with 1ml and every 10 days I add .5ml so I am now at 2.5ml). I also add a toke of mj before bed. And I have been taking herbals to get rid of SIBO. I don't know if it
I am halfway to my goal to get off Mirapex (every two weeks I cut 1/4 of a .5mg pill so I am now at .75mg). I have started LDN (began with 1ml and every 10 days I add .5ml so I am now at 2.5ml). I also add a toke of mj before bed. And I have been taking herbals to get rid of SIBO. I don't know if it
libraryannie
in
Restless Legs Syndrome
6 years ago
Fibromyalgia, Anxiety, and RLS any med suggestions?
Does anyone have a suggestion for meds to help fibromyalgia? I weaned off ropinirole and am not currently taking any meds for RLS. I tried Wellbutrin for anxiety/depression but had horrible nightmares. I am now taking Lexapro which I know is on the do not take with RLS list, but I felt I had no other
Does anyone have a suggestion for meds to help fibromyalgia? I weaned off ropinirole and am not currently taking any meds for RLS. I tried Wellbutrin for anxiety/depression but had horrible nightmares. I am now taking Lexapro which I know is on the do not take with RLS list, but I felt I had no other
3labs
in
Restless Legs Syndrome
6 years ago
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