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Sjogren-Larsson syndrome
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Starting to withdraw from Ropinirole
Hello, my fellow sufferers. Well, I've taken the plunge. Last night I reduced the 1.5mg of Ropinirole I've been taking for three months back to the 1.25mg I was having three months ago. My GP has been very sympathetic, admitted that I know more about it than I do, and has given me codeine for the past
Hello, my fellow sufferers. Well, I've taken the plunge. Last night I reduced the 1.5mg of Ropinirole I've been taking for three months back to the 1.25mg I was having three months ago. My GP has been very sympathetic, admitted that I know more about it than I do, and has given me codeine for the past
RosieRow
in
Restless Legs Syndrome
6 years ago
Timing of drugs - update
So all of this worry and concern about timings of our drugs etc, getting mixed up initially (going an hour the other way for my alarm setting!), then fixing it all before I went to sleep.... I realised that I have been taking my middle of the day progynova exactly an hour late every single day since
So all of this worry and concern about timings of our drugs etc, getting mixed up initially (going an hour the other way for my alarm setting!), then fixing it all before I went to sleep.... I realised that I have been taking my middle of the day progynova exactly an hour late every single day since
Hidden
in
Fertility Network UK
6 years ago
Other’s opinions
Was just messaging my bff saying how I think my Mum thinks we are silly going for IVF. Story is I fell pregnant in Sep 18 but had MMC. The month I fell was the only normal 28 day cycle I had with ov on day 14. Not been able to get pregnant since and in April was prescribed Clomid to get the ovulation
Was just messaging my bff saying how I think my Mum thinks we are silly going for IVF. Story is I fell pregnant in Sep 18 but had MMC. The month I fell was the only normal 28 day cycle I had with ov on day 14. Not been able to get pregnant since and in April was prescribed Clomid to get the ovulation
Rivaligure
in
Fertility Network UK
6 years ago
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Clonidine to counteract alertness from Opioid
Hi - After taking mirapex for 10 years and then augmenting, withdrawal etc, (many of you know the awful drill,) I was prescribed low dose oxycodone which resolves the RLS symptoms completely, but seems to cause inability to sleep or alerting. I have now been prescribed clonidine to help with the restlessness
Hi - After taking mirapex for 10 years and then augmenting, withdrawal etc, (many of you know the awful drill,) I was prescribed low dose oxycodone which resolves the RLS symptoms completely, but seems to cause inability to sleep or alerting. I have now been prescribed clonidine to help with the restlessness
Walras
in
Restless Legs Syndrome
6 years ago
Catechins
Doing some research - I think I have Hashimotos - although an absolute diagnosis a little elusive - am reading various info regards green tea / catechins not that they are not suitable - any insights very welcome ......... Thank you
Doing some research - I think I have Hashimotos - although an absolute diagnosis a little elusive - am reading various info regards green tea / catechins not that they are not suitable - any insights very welcome ......... Thank you
Shekina
in
Thyroid UK
6 years ago
Iron supplements and levadopa.
Discovered this little snippet, on my travels in the ether. Hope it helps some people. "Iron supplements can decrease the availability of several medications, including levodopa, which is used to treat restless leg syndrome and Parkinson's disease and levothyroxine, which is used to treat a low-functioning
Discovered this little snippet, on my travels in the ether. Hope it helps some people. "Iron supplements can decrease the availability of several medications, including levodopa, which is used to treat restless leg syndrome and Parkinson's disease and levothyroxine, which is used to treat a low-functioning
Madlegs1
in
Restless Legs Syndrome
6 years ago
Post Grad Musing! 🤔 Keep going, it really is so worth it! ❤️
Hi Runners A pretty eventful run yesterday and nothing to do with a PB! Although it might be a PB in the amount of obstacles and things that kept NOT going according to the plan. SaskieAllieCat had me musing about my C25K journey so far. I thought I would share my thinking about my not so great run,
Hi Runners A pretty eventful run yesterday and nothing to do with a PB! Although it might be a PB in the amount of obstacles and things that kept NOT going according to the plan. SaskieAllieCat had me musing about my C25K journey so far. I thought I would share my thinking about my not so great run,
Fabulous450
Graduate
in
Couch to 5K
6 years ago
Melted Magnesium Maleate
Talke about 12 tablets and microwave in a ceramic cup. After cooling rubs your upper and lower legs.. It helps me. I also take a large head super vibrator and massage all I can reach for about five minutes. It helps. Before starting this regimen I take two 600mg of Tylenol The real Tylenol if you please
Talke about 12 tablets and microwave in a ceramic cup. After cooling rubs your upper and lower legs.. It helps me. I also take a large head super vibrator and massage all I can reach for about five minutes. It helps. Before starting this regimen I take two 600mg of Tylenol The real Tylenol if you please
troopdad
in
Restless Legs Syndrome
6 years ago
Methotrexate while on Methadone treatment. I need advice.
Has anyone ever taken Methotrexate while on methadone treatment I currently take 75 mg of methadone liquid oral once-daily I was prescribed methotrexate 2.5 mg six tablets once per week for sarcoidosis my question is has anyone else taken Methotrexate while on methadone treatment because I am concerned
Has anyone ever taken Methotrexate while on methadone treatment I currently take 75 mg of methadone liquid oral once-daily I was prescribed methotrexate 2.5 mg six tablets once per week for sarcoidosis my question is has anyone else taken Methotrexate while on methadone treatment because I am concerned
Hidden
in
NRAS
6 years ago
sorry to go on but its getting to much Sunday dinner
hi peeps i am off again omeprozole ranitidine gavision + etc ahh sunday dinner little bowl mash potato peas carrots gravy well two spoon ful you gussed it into sicky bag mush mush it sound like a dance from the sixties sit down again another go no joy slurp burp agh yuk up it comes again right
hi peeps i am off again omeprozole ranitidine gavision + etc ahh sunday dinner little bowl mash potato peas carrots gravy well two spoon ful you gussed it into sicky bag mush mush it sound like a dance from the sixties sit down again another go no joy slurp burp agh yuk up it comes again right
pauluk60
in
NRAS
6 years ago
Zinc
Since being diagnosed with macular degeneration recently I have been taking a supplement containing lutein. It also contains zinc. I seem to remember hearing/seeing something about zinc being contraindicated for taking when using predisolone for pmr. I have pmrgca, into third year, down, at second attempt
Since being diagnosed with macular degeneration recently I have been taking a supplement containing lutein. It also contains zinc. I seem to remember hearing/seeing something about zinc being contraindicated for taking when using predisolone for pmr. I have pmrgca, into third year, down, at second attempt
DDKRM
in
PMRGCAuk
6 years ago
Has anyone tried Magnesium Chloride foot baths?
My Dr recommended MC foot soaks for 30 minutes per soak. Along with 10 mg ER Oxycodon at night I am no longer having episodes!
My Dr recommended MC foot soaks for 30 minutes per soak. Along with 10 mg ER Oxycodon at night I am no longer having episodes!
Hidden
in
Restless Legs Syndrome
6 years ago
Ropinirole for long airplane flights?
My daughter, aged 44, also suffers from restless leg syndrome. She manages her condition without medication. However, she finds long flights miserable and her primary care physician has scripted her ropinirole and suggests starting a couple of weeks before the next long flight. I am questioning staying
My daughter, aged 44, also suffers from restless leg syndrome. She manages her condition without medication. However, she finds long flights miserable and her primary care physician has scripted her ropinirole and suggests starting a couple of weeks before the next long flight. I am questioning staying
whiteleye
in
Restless Legs Syndrome
6 years ago
Levetiracetam (Keppra) to help in some cases of RLS.
Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not very nice. My GP eventually discovered I was suffering with myoclonic jerks, not restless leg syndrome. I saw him yesterday’ & he has agreed to try keppra ( levetiracetam) 250mg at night. I took the first
Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not very nice. My GP eventually discovered I was suffering with myoclonic jerks, not restless leg syndrome. I saw him yesterday’ & he has agreed to try keppra ( levetiracetam) 250mg at night. I took the first
Tim61
in
Restless Legs Syndrome
6 years ago
Newly Diagnosed
After suffering with Raynaud’s for a couple of years I finally saw a rheumatologist about 6 weeks ago. Blood tests reveal that I am anticentromere antibody positive with Systemic Sclerosis, which I understand used to be called CREST Syndrome. She has organised a whole host of further tests, bloods, X-rays
After suffering with Raynaud’s for a couple of years I finally saw a rheumatologist about 6 weeks ago. Blood tests reveal that I am anticentromere antibody positive with Systemic Sclerosis, which I understand used to be called CREST Syndrome. She has organised a whole host of further tests, bloods, X-rays
Cubbikins
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Just started Medical Cannabis for RLS and Sleep
I have been prescribed medical cannabis for my RLS - I live in NSW Australia. It is the best thing I have ever had to help. This is a 2 part CBD 1 part THC mix. I only take 1/2 ml or 1/10th of a teaspoon per night but it gives me the best sleep ever - from waking up 3 - 4 times a night with full on
I have been prescribed medical cannabis for my RLS - I live in NSW Australia. It is the best thing I have ever had to help. This is a 2 part CBD 1 part THC mix. I only take 1/2 ml or 1/10th of a teaspoon per night but it gives me the best sleep ever - from waking up 3 - 4 times a night with full on
Goldy700
in
Restless Legs Syndrome
6 years ago
Answers at last
Just got back from seeing Dr Phillip Bull a private specialist in Hypermobility and EDS, he has diagnosed my son with Hypermobility EDS and POTS, given us both some great advice. For anyone who has been fobbed off by some Rheumatologists who have not got the skills in diagnosing EDS, it really is worth
Just got back from seeing Dr Phillip Bull a private specialist in Hypermobility and EDS, he has diagnosed my son with Hypermobility EDS and POTS, given us both some great advice. For anyone who has been fobbed off by some Rheumatologists who have not got the skills in diagnosing EDS, it really is worth
Anne2018
in
Ehlers-Danlos Support UK
6 years ago
AMH Levels?
Hi all, I’ve been TTC for 18 months. I fell naturally in month 3 but had a MMC. Cycles were never quite right and saw private consultant who prescribed Clomid. Just finished 7th round with no luck despite releasing two eggs every cycle at right time and good thickness endometrium. Consultant tested for
Hi all, I’ve been TTC for 18 months. I fell naturally in month 3 but had a MMC. Cycles were never quite right and saw private consultant who prescribed Clomid. Just finished 7th round with no luck despite releasing two eggs every cycle at right time and good thickness endometrium. Consultant tested for
Rivaligure
in
Fertility Network UK
6 years ago
My fight against augumentation
Hi all just thought id let you know about my last 5 weeks fighting above, ive been on parpeximole for 5 yrs starting with one then reaching 6, far too many, so in last 12mths my rls has increased to the point if not sleeping at all some nights, so i decided i would come off parpeximole as i thought i
Hi all just thought id let you know about my last 5 weeks fighting above, ive been on parpeximole for 5 yrs starting with one then reaching 6, far too many, so in last 12mths my rls has increased to the point if not sleeping at all some nights, so i decided i would come off parpeximole as i thought i
BLUES60
in
Restless Legs Syndrome
6 years ago
Second opinion outcome
Hi everyone, As promised an update on my second opinion. In case you didn’t see it on the original thread, my GP was more than happy to do a second referral, she said she would have suggested it if I hadn’t of done anyway. So I decided to go private as I wanted to make sure I saw the right person and
Hi everyone, As promised an update on my second opinion. In case you didn’t see it on the original thread, my GP was more than happy to do a second referral, she said she would have suggested it if I hadn’t of done anyway. So I decided to go private as I wanted to make sure I saw the right person and
Littlemisssunshine87
in
LUPUS UK
6 years ago
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