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Sjogren-Larsson syndrome
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Hypoxia?
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
I posted a question on a video by Dr Neale Barnard regarding RLS. A kind person posted this in response: Finnish doctor found out that the root cause of restless legs is hypoxia. So, enhancing the blood flow by lifestyle that is beneficial to glycocalyx and eNOS, is a cure 😊 Dr Dean Ornish, Campbell
kicker2
in
Restless Legs Syndrome
3 years ago
MMC after heartbeat
Hi all, I found out last week my baby stopped growing at 9 weeks 1 day. Up until this point it was spot on for growth, and heart was beating perfectly. I had bleeding in the pregnancy but that was fine and due to it being an FET and not connected to the pregnancy. My question is, when a pregnancy is
Hi all, I found out last week my baby stopped growing at 9 weeks 1 day. Up until this point it was spot on for growth, and heart was beating perfectly. I had bleeding in the pregnancy but that was fine and due to it being an FET and not connected to the pregnancy. My question is, when a pregnancy is
strawberriesandcream
in
Fertility Network UK
3 years ago
Do I really need my fallopian tubes checked?
I was diagnosed with PCOS last year and was told by a gynecologist that I'd need to have a fallopian tube test (HyCoSy) prior to starting ovulation medication (Clomid I believe). I've been waiting 4 months for the test and this month is yet another cycle they're unable to fit me in for! They seem to
I was diagnosed with PCOS last year and was told by a gynecologist that I'd need to have a fallopian tube test (HyCoSy) prior to starting ovulation medication (Clomid I believe). I've been waiting 4 months for the test and this month is yet another cycle they're unable to fit me in for! They seem to
CoralCats
in
Fertility Network UK
3 years ago
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Too much fluid around baby??
Hi I am carrying twin boys DCDA, and I went for my first growth scan at 24wks the sonographer told me one of my babies has a little extra fluid I was sent for an early GTT test came back normal.. Haven't heard anything else since. Was wondering if anyone has had the same experience? If so what was the
Hi I am carrying twin boys DCDA, and I went for my first growth scan at 24wks the sonographer told me one of my babies has a little extra fluid I was sent for an early GTT test came back normal.. Haven't heard anything else since. Was wondering if anyone has had the same experience? If so what was the
Sev36
in
Pregnancy and Parenting Support
3 years ago
Does anyone take Celebrex ?
Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have Osteoarthritis in most joints and my consultant has prescribed CELEBREX. I am wary of taking more meds but I am really struggling with my joints stiffness
Hi Everyone , Does anybody else take Celebrex? I am on hydroxychloroquine Azathiropine, to mention just a few for the Lupus and Sjogren's. I now have Osteoarthritis in most joints and my consultant has prescribed CELEBREX. I am wary of taking more meds but I am really struggling with my joints stiffness
Mrsdoozer
in
LUPUS UK
3 years ago
Ropinirole and Gabapentin
Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms have got a lot worse and in the last couple of months I've developed spasms and jerking, mainly in my right shoulder (I've nearly punched myself
Hi All, I'm 53 and based in the UK. I've had steadily worsening RLS and been taking 2mg of Ropinirole for around 8 years now. Over the last year my symptoms have got a lot worse and in the last couple of months I've developed spasms and jerking, mainly in my right shoulder (I've nearly punched myself
Shaunygee
in
Restless Legs Syndrome
3 years ago
RLS and now apnea
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
grandpianoman
in
Restless Legs Syndrome
3 years ago
Steroids with general anaesthetic
Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop assessment didn't mention it have just been reading around and feel really nervous now. Especially as I've been taking steroids for 21 years.
Do I need to double the dose of my steroids (currently 11.5) on the day of hysteroscopy under general anaesthetic and also on the day afterwards? Preop assessment didn't mention it have just been reading around and feel really nervous now. Especially as I've been taking steroids for 21 years.
maria40
in
PMRGCAuk
3 years ago
Starting Ropinirole as a first med for RLS?
I have had more severe RLS since last March, which is possibly a Long-Covid symptom. So far I have had my iron/ferritin tested. My ferritin was on 25 initially but has gone up to 45 after taking oral iron supplement which I still continue to take. My RSL has not improved much yet though. It is still
I have had more severe RLS since last March, which is possibly a Long-Covid symptom. So far I have had my iron/ferritin tested. My ferritin was on 25 initially but has gone up to 45 after taking oral iron supplement which I still continue to take. My RSL has not improved much yet though. It is still
KassandraTroy
in
Restless Legs Syndrome
3 years ago
NAD IV ? Anyone tried
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Is it a cure ? Is there any way to get IV benefit by other means. ? What is the best brand for intra nasal NAD ? R suppositories better ? NR or NMN. What's better.? What boosters (ex Resveratrol) I just want my dad to have DNA repair and have more energy! Thankyou for any guidance . Kind regards
Vegegardner
in
Cure Parkinson's
3 years ago
Anyone else with EDS have severe asthma?
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
I’m just wondering if anyone else is in the same situation as me and has EDS and severe, uncontrolled asthma? Now I know that the two aren’t linked but I’m just curious. I have many other health issues that aren’t related to EDS and are very rare so I rarely find anyone to talk to that has similar
WheezyZebra
in
Ehlers-Danlos Support UK
3 years ago
RLS and Magnesium
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Has anyone experienced this? I started taking Magnesium for my RLS but each time I take it I get terrible cramps in my legs and toes several times a night. Yet Magnesium is used to get rid of cramp. I am not subject to cramp normally. Perhaps it’s the same mechanism as Homeopathic remedies whereby a
Bruxelles
in
Restless Legs Syndrome
3 years ago
Any thoughts here?
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
My husband was put on GABApentin, stilnox and madopar. He only used madopar once. He’s afraid to continue it. Although he did notice last night his legs were more restless without it . This process is so frustrating as he’s been withdrawing from opiates since one month. Any feedback from anyone is helpful
RCHD
in
Restless Legs Syndrome
3 years ago
Codeine
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
I have been taking one 15mg codeine phosphate before bed and I have slept all night with no restless legs.
Bridall
in
Restless Legs Syndrome
3 years ago
Postnatal thyroiditis ??? Test results
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Hi im looking for some help. I have been getting thyroid symptoms for many years on and off never have I been medicated. I have had 4 children in 5 years and become unwel after giving birth with my previous children but I had my little boy 10 weeks ago and 6 weeks ago I became ill with all thyroid
Youngandbroken
in
Thyroid UK
3 years ago
What does "High" mean really?
If I have antibodies flagged as "high" on a blood test which are associated with Sjogren's (Anti-SS-B), Polymyositis (Anti-Jo-1) and SLE (Ribosomal P), does that mean I have all three autoimmune diseases? I was originally confirmed with Lupus. I'm relatively new to all this & these labs were 1/7/21
If I have antibodies flagged as "high" on a blood test which are associated with Sjogren's (Anti-SS-B), Polymyositis (Anti-Jo-1) and SLE (Ribosomal P), does that mean I have all three autoimmune diseases? I was originally confirmed with Lupus. I'm relatively new to all this & these labs were 1/7/21
MotorCityGirl
in
LUPUS UK
3 years ago
Get woken up by Restless Legs
So whilst I tend to have fidgety legs during the day, I'm not bothered by them. However, night times are a different matter. I have no problems falling asleep but approx. 90 mins into my sleep I'm awoken by me restless legs and am often then awake for 2-4 hours before falling asleep again. I was originally
So whilst I tend to have fidgety legs during the day, I'm not bothered by them. However, night times are a different matter. I have no problems falling asleep but approx. 90 mins into my sleep I'm awoken by me restless legs and am often then awake for 2-4 hours before falling asleep again. I was originally
Mchmav
in
Restless Legs Syndrome
3 years ago
More advice please prior to GP consultation
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Hi experts. I upped my pred dose to 20 mg 2 weeks ago believing I had PMR flare after dropping to 15 for 2 weeks. But with your knowledge and experience you suggested Piriformis syndrome - am still struggling with the PS pains but am fortunately having some sports therapy massage and stretching and exercising
Pocketdog
in
PMRGCAuk
3 years ago
Nebivolol timing and low blood pressure
I take 2.5mg Nebivolol and 200mg Flecainide daily, taking the Nebivolol in the mornings. I have low normal BP but recently have had readings in the 80/50 range which make me feel pretty bad. I drink water and keep my salt level up but every day down it goes about 2 hours after I take the Nebivolol
I take 2.5mg Nebivolol and 200mg Flecainide daily, taking the Nebivolol in the mornings. I have low normal BP but recently have had readings in the 80/50 range which make me feel pretty bad. I drink water and keep my salt level up but every day down it goes about 2 hours after I take the Nebivolol
Finvola
in
AF Association
3 years ago
eosinophilic fasciitis
Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't sure what it is that I have - I certainly have morphea and scleroderma plus this. Can anyone add any information on this? Has caused the skin
Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't sure what it is that I have - I certainly have morphea and scleroderma plus this. Can anyone add any information on this? Has caused the skin
knoppia
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
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