Search
Search
About
Log in
Join
Experiences with
Sjogren-Larsson syndrome
Posts
Communities
3,294 public posts
Filter results
RLS
I take 2 Ropinirole 0.25 mg and 2 Codeine Phosphate 15mg at bedtime and every 2-3 nights take 1 Ferro-tab 200 mg. Then about 2-3 hrs later take 2 Panadol, then about 2 hrs later take another 2 codeine Phosphate again. This allows me to get a few hours sleep!! Then I sometimes take 1 Madopar 62.5 if
I take 2 Ropinirole 0.25 mg and 2 Codeine Phosphate 15mg at bedtime and every 2-3 nights take 1 Ferro-tab 200 mg. Then about 2-3 hrs later take 2 Panadol, then about 2 hrs later take another 2 codeine Phosphate again. This allows me to get a few hours sleep!! Then I sometimes take 1 Madopar 62.5 if
Dunedinite
in
Restless Legs Syndrome
2 years ago
Sjogren's diagnosis
I've finally been given a diagnosis of Sjogren's at last after being referred to rheumatology in 2019 Rheumatology are starting me on hydroxychloroquine to see how I go.It was nice to be listened to and get some answers
I've finally been given a diagnosis of Sjogren's at last after being referred to rheumatology in 2019 Rheumatology are starting me on hydroxychloroquine to see how I go.It was nice to be listened to and get some answers
Kels1974
in
NRAS
3 years ago
MMC Chromosome results “Trisomy for Chromosome 15”
Hi, I had a MMC almost 7 weeks ago and just had genetic testing results back from London lab. My husband and myself now need to go for a blood test to see if we are carriers of any chromosomal errors. We’ve had 55 eggs collected over 4 fresh cycles - all four ending in miscarriage. I read up about our
Hi, I had a MMC almost 7 weeks ago and just had genetic testing results back from London lab. My husband and myself now need to go for a blood test to see if we are carriers of any chromosomal errors. We’ve had 55 eggs collected over 4 fresh cycles - all four ending in miscarriage. I read up about our
Downonthefarm
in
Fertility Network UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
RLS Medication Recommendations
Greetings all. I I've been reading quite a bit about Ropinirole and why it's bad. I was first prescribed it in August 2021 for RLS. I have 2 spinal cord injuries resulting in neuropathy in both feet and my right leg. My leg jerks uncontrollably throughout the day and night resulting in a terrible quality
Greetings all. I I've been reading quite a bit about Ropinirole and why it's bad. I was first prescribed it in August 2021 for RLS. I have 2 spinal cord injuries resulting in neuropathy in both feet and my right leg. My leg jerks uncontrollably throughout the day and night resulting in a terrible quality
vertices
in
Restless Legs Syndrome
2 years ago
ME/CFS discussed in terms of thyroid dysfunction
Interesting papers are coming in, in droves almost. This downloadable paper discusses links between thyroid function in critical illness and ME/CFS. Title and Abstract here:
PERSPECTIVE article
Front. Med., 08 March 2022 | https://doi.org/10.3389/fmed.2022.818728
Perspective: Drawing
Interesting papers are coming in, in droves almost. This downloadable paper discusses links between thyroid function in critical illness and ME/CFS. Title and Abstract here:
PERSPECTIVE article
Front. Med., 08 March 2022 | https://doi.org/10.3389/fmed.2022.818728
Perspective: Drawing
diogenes
in
Thyroid UK
2 years ago
CBD and RLS
Like so many of us, I am ALSO weaning off of pramipexole. I have been taking a "low" 0.375 or 1.5 of the 0.25 mg tablet (with 600 mg Gabapentin) at 1030 pm (prior to a 12 am bedtime) for the dreaded RLS onset at 130-2 am, which would then last for 1 to 3 hours. It was working but I was feeling the
Like so many of us, I am ALSO weaning off of pramipexole. I have been taking a "low" 0.375 or 1.5 of the 0.25 mg tablet (with 600 mg Gabapentin) at 1030 pm (prior to a 12 am bedtime) for the dreaded RLS onset at 130-2 am, which would then last for 1 to 3 hours. It was working but I was feeling the
Crazilegs
in
Restless Legs Syndrome
2 years ago
Confused about not taking the Down syndrome test
Hello ladies, I am 35 weeks pregnant and I was refused a down syndrome test in the first trimester. But I don't know why now I am worried about it. Can anyone please suggest or what should I do now. So that I can remove these negative things from my mind.
Hello ladies, I am 35 weeks pregnant and I was refused a down syndrome test in the first trimester. But I don't know why now I am worried about it. Can anyone please suggest or what should I do now. So that I can remove these negative things from my mind.
Dilpreet123
in
Pregnancy and Parenting Support
3 years ago
Cold Turkey on Pramipexole?
I have had RLS for 40 years and have been prescribed Prmipexole for the last 10 years.I was taking 6mg pr day.The augmentation is horrific. I have managed to cut this dose in half. I used Tramadol to help mitigate the worst side effects. I was doing quite well until I gt down to half the dose. Then it
I have had RLS for 40 years and have been prescribed Prmipexole for the last 10 years.I was taking 6mg pr day.The augmentation is horrific. I have managed to cut this dose in half. I used Tramadol to help mitigate the worst side effects. I was doing quite well until I gt down to half the dose. Then it
welschrispy
in
Restless Legs Syndrome
2 years ago
RLS and Marijuana
Does anyone know of a good practitioner in Toronto who is very knowledgeable about treating RLS with CBD and/or marijuana? I was told that typically suggested doses of CBD are far too low to be very effective. What about marijuana capsules or vaporizers? As time goes on I am less and less confident
Does anyone know of a good practitioner in Toronto who is very knowledgeable about treating RLS with CBD and/or marijuana? I was told that typically suggested doses of CBD are far too low to be very effective. What about marijuana capsules or vaporizers? As time goes on I am less and less confident
Celloguy
in
Restless Legs Syndrome
2 years ago
Opinions on Hemp creams.
Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen. It has a lot of good reviews but they also have a stronger version. I'm posting this because I've used Voltarol in the past and it doesn't really
Hello everyone, I've recently decided to purchase some compression gloves for my hands and this cream called Hemp Active cream by 5kind popped up on my screen. It has a lot of good reviews but they also have a stronger version. I'm posting this because I've used Voltarol in the past and it doesn't really
Bunnzillah
in
LUPUS UK
3 years ago
TOO MUCH MOVICOL !
Advice again please! After three months Movicol for impacted bowel my GP advised I had been overdoing it with the Movicol ( Although still having terrible wind,stomach pain and feel like something there I cannot Pass. So on her advice took no laxatives' for three days and then two satchets of Fibrogel
Advice again please! After three months Movicol for impacted bowel my GP advised I had been overdoing it with the Movicol ( Although still having terrible wind,stomach pain and feel like something there I cannot Pass. So on her advice took no laxatives' for three days and then two satchets of Fibrogel
Shopnow1
in
IBS Network
2 years ago
the culprit is in the cbd I am taking
HI, thanks to all of you who have responded to my last post. After days of wondering as what is the reason the oxycodone I have taking for years lost effectiveness all of a sudden. It is not the pregabalin but the high-dose CBD I have been taking in the past half month reduces the effectiveness of
HI, thanks to all of you who have responded to my last post. After days of wondering as what is the reason the oxycodone I have taking for years lost effectiveness all of a sudden. It is not the pregabalin but the high-dose CBD I have been taking in the past half month reduces the effectiveness of
halperinchen
in
Restless Legs Syndrome
3 years ago
Has anyone tapered off/withdrawn from Methadone...after using it to get off the DA drugs?
I seriously need help-each time I find a doctor to prescribe Methadone, they give it to me for a short time and then state they can no longer do so. I cannot live with this monthly terror...the current doc said I have one month to find someone else, as his clinic is being monitored. Today I had a new
I seriously need help-each time I find a doctor to prescribe Methadone, they give it to me for a short time and then state they can no longer do so. I cannot live with this monthly terror...the current doc said I have one month to find someone else, as his clinic is being monitored. Today I had a new
TeddiJ
in
Restless Legs Syndrome
3 years ago
HAS ANYONE HAD SEVERE RLS EPISODES OCCURRING WHILE UNDER SEDATION DURING MEDICAL PROCEDURE?
In the past 10 or more years I have needed occasional Epidural injections under sedation due to a spinal injury. Problem is I become combative during most of these procedures and have been lucky that no one has gotten hurt during these occurrences. I thought this was happening due to my personal fear
In the past 10 or more years I have needed occasional Epidural injections under sedation due to a spinal injury. Problem is I become combative during most of these procedures and have been lucky that no one has gotten hurt during these occurrences. I thought this was happening due to my personal fear
IrisRN
in
Restless Legs Syndrome
3 years ago
Extremely high free beta HCG at week 12 screening
Hi i am38, pregnant via IVF for 1st child. 12weeks screening put me 1:40 chance for Down’s syndrome, due to very high hcg 5.83 mom. The rest are within normal range. Subsequent NIPT showed low chance for all three syndromes. Any thoughts if I still should do aminocentesis ? Any similar experience with
Hi i am38, pregnant via IVF for 1st child. 12weeks screening put me 1:40 chance for Down’s syndrome, due to very high hcg 5.83 mom. The rest are within normal range. Subsequent NIPT showed low chance for all three syndromes. Any thoughts if I still should do aminocentesis ? Any similar experience with
Popout
in
Pregnancy and Parenting Support
3 years ago
Morphine Sulphate
My insurance company has randomly decided not to cover my Oxycontin 15mg that I take for RLS that they have been covering for the last two years because they have decided i should be classified under their pain management protocol, which they seem to adhere to as if decreed from the heavens above. It's
My insurance company has randomly decided not to cover my Oxycontin 15mg that I take for RLS that they have been covering for the last two years because they have decided i should be classified under their pain management protocol, which they seem to adhere to as if decreed from the heavens above. It's
ziggypiggy
in
Restless Legs Syndrome
3 years ago
Zumenon and when did you stop
I haven’t posted for some time as 2021 was a year of investigation and procedures. I am pregnant again after my 10th transfer with one baby. Still early days - currently 10 +4. I had to move from progynova to zumenon due to supply issue. I would love to hear how many zumenon per day you were on and when
I haven’t posted for some time as 2021 was a year of investigation and procedures. I am pregnant again after my 10th transfer with one baby. Still early days - currently 10 +4. I had to move from progynova to zumenon due to supply issue. I would love to hear how many zumenon per day you were on and when
Georgie17
in
Fertility Network UK
3 years ago
Booking your 3rd/4th Covid Vaccine
https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-coronavirus-vaccination/ It looks like it's much easier to book your vaccine now: The 3rd dose is for people who had a severely weakened immune system when they received their 1st or 2nd dose. The vaccine may not have given
https://www.nhs.uk/conditions/coronavirus-covid-19/coronavirus-vaccination/book-coronavirus-vaccination/ It looks like it's much easier to book your vaccine now: The 3rd dose is for people who had a severely weakened immune system when they received their 1st or 2nd dose. The vaccine may not have given
Moomin8
in
NRAS
3 years ago
Instant help
I would like to inform you about a funny instant release that I came across recently. When I am in bed trying to sleep and my legs are jumping because my dopamine agonist doesn’t work, then I stand on my cold balcony only in my underwear for about 5 minutes (at the moment it is maybe about 0 and 8 degree
I would like to inform you about a funny instant release that I came across recently. When I am in bed trying to sleep and my legs are jumping because my dopamine agonist doesn’t work, then I stand on my cold balcony only in my underwear for about 5 minutes (at the moment it is maybe about 0 and 8 degree
Happyfriday123
in
Restless Legs Syndrome
3 years ago
*SENSITIVE* Vanishing twin
Just an update On our situation. Sadly it was confirmed at our scan yesterday that out twin was no longer there and all that was left was an empty sac. We have now gone from a twin pregnancy to a singleton pregnancy. We still feel incredibly lucky and happy as the bigger twin was alive and kicking
Just an update On our situation. Sadly it was confirmed at our scan yesterday that out twin was no longer there and all that was left was an empty sac. We have now gone from a twin pregnancy to a singleton pregnancy. We still feel incredibly lucky and happy as the bigger twin was alive and kicking
Bozo_the_pumpkin
in
Fertility Network UK
3 years ago
1
...
38
39
40
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1451 results
Fertility Network UK
360 results
PMRGCAuk
135 results
View top 10 communities
Sort by
Most Relevant
Newest