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Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
Update on “20 years old and Scared”
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Hey guys, roughly 11 months ago I posted in this group worried to death about my unspecified polycythemia diagnosis. You guys provided me with so much support during that time, even though I was a bit shy to respond to comments after a couple of days. Well, I was tested for the JAK2 gene which came back
Lc06091
in
MPN Voice
2 years ago
Food plan for transplant woman weight 80
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
Hi, One year kidney transplant. My weight is 80 +. Any one having food plan for my situation please?
noor99
in
Kidney Transplant Patient Support
2 years ago
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Home dialysis question
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Has anyone had experience with both home hemodialysis and peritoneal dialysis? If so, what were the pros and cons for each.
Yojimboken
in
Kidney Dialysis
2 years ago
Introduction: I'm new here
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Hi my name is Jay and I just wanted to introduce myself. My husband has vasculitus which has aggressively attacked his kidneys so he will need a kidney transplant once the condition is under control. At the moment he is on dialysis 3 times a week. We only found out how ill he was in November 2021 so
Kanjee18
in
Vasculitis UK
2 years ago
At a Dialysis Crossroads
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
I have to decide whether to get a fistula in my arm and go with hemodialysis, or go with peritoneal dialysis. I spent a couple of hours in a center talking to a couple of nurses about peritoneal dialysis and it sounds like a bad choice given its near constant presence in your life. With hemodialysis
MP11
in
Kidney Dialysis
3 years ago
Macular oedema and steroids
I have diabetic macular oedema and my opthamologist said today that although my eyes are not getting any worse my right eye maybe needs some laser. She said she thought it wasn’t the diabetes that was the problem, I am in remission with a hba1c of 37 but the steroids. Any thoughts on this please. My
I have diabetic macular oedema and my opthamologist said today that although my eyes are not getting any worse my right eye maybe needs some laser. She said she thought it wasn’t the diabetes that was the problem, I am in remission with a hba1c of 37 but the steroids. Any thoughts on this please. My
Koalajane
in
PMRGCAuk
3 years ago
Tacrolimus?
Hi guys, Can anyone tell me if 14mg of tacrolimus everyday after 3 months post transplant is normal? I know from other consultants that I have slight rejection. I have 1 consultant who will not give me an answer to "what are my blood results". He says everything is fine and there is nothing to worry
Hi guys, Can anyone tell me if 14mg of tacrolimus everyday after 3 months post transplant is normal? I know from other consultants that I have slight rejection. I have 1 consultant who will not give me an answer to "what are my blood results". He says everything is fine and there is nothing to worry
Zukosmile07
in
British Liver Trust
3 years ago
Prednisolone
Has anyone managed to come off Prednisolone 8 yrs after transplant and just manage on Tacrolimus alone?
Has anyone managed to come off Prednisolone 8 yrs after transplant and just manage on Tacrolimus alone?
Tracy1654
in
Kidney Transplant Patient Support
3 years ago
Menopause and Sickle Cell
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
I am experiencing menopause because, I haven't had a period in many months. But what I notice is that I'm experiencing sickle cell crisis more often. After reading a lot information, I discovered that since the hormones protecting me and now going down, I'm at risk of many things, including stroke, heart
Iyalode26
in
Sickle Cell Society
3 years ago
Can I take Imedeen if taking Theroxine 50
I have been diagnosed with under active thyroid in 2015 and have been on Theroxine 50 ever since. Feeling good. Would like to start taking the Marine Complex, exclusive to IMEDEEN Skincare tablets. From sources across the web I found it contains: Grape seed extract, Zinc, Vitamin C, Lycopene, Vitamin
I have been diagnosed with under active thyroid in 2015 and have been on Theroxine 50 ever since. Feeling good. Would like to start taking the Marine Complex, exclusive to IMEDEEN Skincare tablets. From sources across the web I found it contains: Grape seed extract, Zinc, Vitamin C, Lycopene, Vitamin
Supersoco
in
Thyroid UK
3 years ago
How long have we got? I just need info and experiences please
Hey all, I've come on here because I'd like some more info on liver failure and the helpline isn't open until Monday so I'm hoping you guys can help? My 93 year old grandad has been in heart failure for some years now and we know his organs are failing. In the last few months though, his tummy has been
Hey all, I've come on here because I'd like some more info on liver failure and the helpline isn't open until Monday so I'm hoping you guys can help? My 93 year old grandad has been in heart failure for some years now and we know his organs are failing. In the last few months though, his tummy has been
Bim16
in
British Liver Trust
3 years ago
Can I come to UK for transplant?
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
Devumair
in
Dialysis Support
3 years ago
HV88 Virus
Post liver transplant 3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know. Thankfully copies are low and now on 1mg of Sirolimus to keep copies low Taking 0.5 Advagraf now as LFT's are still excellent and all well within range and the reduction has helped renal
Post liver transplant 3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know. Thankfully copies are low and now on 1mg of Sirolimus to keep copies low Taking 0.5 Advagraf now as LFT's are still excellent and all well within range and the reduction has helped renal
Geordiemac
in
British Liver Trust
3 years ago
Anyone’s gfr from their labs differ from gfr calculators?
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
My labs show a different gfr than what the calculators show. Is it bc there’s other blood related factors that get equated? Bc my creatinine has remained at 1.10 and bun 20 for over 10 years but over the years my blood labs show my gfr going from 96-70 in about 10 years. Note I didn’t get labs done
FThomp
in
Early CKD Support
3 years ago
ACR results
So I'm so confused lol I phoned the gp who's receptionist told me my urine microalbumin level was 3 and satisfactory. I went and got a print out and infact my microalbumin was <3 mg/l which I'm gathering is good. My urine creatinine was 3.5mmol/L but there were no ranges so I'm not sure if that's good
So I'm so confused lol I phoned the gp who's receptionist told me my urine microalbumin level was 3 and satisfactory. I went and got a print out and infact my microalbumin was <3 mg/l which I'm gathering is good. My urine creatinine was 3.5mmol/L but there were no ranges so I'm not sure if that's good
Jodyfmurphy
in
Early CKD Support
3 years ago
ANA positive patients needed for a new research study
Hi everyone, I have received a request from researchers at University of Nottingham for a project about whether antinuclear antibodies (ANA) can be predictive of disease.
[u]Lay summary[/u]
[i]Patients with rare diseases frequently describe a long path to diagnosis. ANA-associated diseases are
Hi everyone, I have received a request from researchers at University of Nottingham for a project about whether antinuclear antibodies (ANA) can be predictive of disease.
[u]Lay summary[/u]
[i]Patients with rare diseases frequently describe a long path to diagnosis. ANA-associated diseases are
Paul_Howard
LUPUS UK
in
LUPUS UK
3 years ago
My husband hasCKD. I’m so scared
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Hello everyone! I’m really scared for my husbands life. He is 45 years old and his primary has just diagnosed him with CKD. He has GFR of 70. Doctor really scared us by telling us that at his age he would properly require Dialysis and a kidney transplant. We have an appointment to see a specialist
Dianamillo
in
Early CKD Support
3 years ago
Rambler 64
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Hi. I'm have CKD stage 4, possibly 5. My gfr is 13. I'm on the national renal transplant list for a donated kidney. I have opted for peritoneal dialysis when it gets to gfr 9. I get restless legs in bed & sometimes when I'm sitting watching the TV at night. I've put some weights on my legs at night which
Rambler64
in
Restless Legs Syndrome
3 years ago
Low triiodothyronine levels correlate with high B-type natriuretic peptide levels in patients with heart failure
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
An association between low T3 and cardiac disorders. They appear to very responsibly avoid unwarranted conclusions - which came first? - but at least the question is being asked. [i] • Open Access • Published: 08 November 2021
Low triiodothyronine levels correlate with high B-type natriuretic
helvella
Thyroid UK
in
Thyroid UK
3 years ago
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