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Sickle-cell anaemia
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Ferritin level information
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
I have seen numerous claims of “check your ferritin level, if it’s <100 you need to start taking iron.” Unfortunately, it’s just not that simple. That guideline has not been established. I have confirmed this with my RLS physicians. He said ferritin level is only 1 component used along with transferrin
DataRN
in
Restless Legs Syndrome
2 years ago
Conflict between urine microalbumin and creatinine levels
I am a 52 yrs old man, an engineer from Sudan. I am on Crestor 10mg since 2007 with controlled lipid profile except HDL around 40mg/dl, also on Telmisartan 40mg since 2010 which reduced urine microalbumin from 50 to 26 mcg/l. I am a neither diabetic nor hypertensive. Recently my PB dropped down to 60
I am a 52 yrs old man, an engineer from Sudan. I am on Crestor 10mg since 2007 with controlled lipid profile except HDL around 40mg/dl, also on Telmisartan 40mg since 2010 which reduced urine microalbumin from 50 to 26 mcg/l. I am a neither diabetic nor hypertensive. Recently my PB dropped down to 60
Waise
in
Early CKD Support
2 years ago
Iron panel results - comments please
Attached is an image of my latest results - hopefully this is readable..? Would appreciate some advice...I'm currently supplementing 2 x Solgar Gentle Iron 2mg tablets. Inflammation is up slightly from my thyroid panel a few weeks ago Iron is up slightly from my last test in Jan which was 17.12 TIBC
Attached is an image of my latest results - hopefully this is readable..? Would appreciate some advice...I'm currently supplementing 2 x Solgar Gentle Iron 2mg tablets. Inflammation is up slightly from my thyroid panel a few weeks ago Iron is up slightly from my last test in Jan which was 17.12 TIBC
Molly161018
in
Thyroid UK
2 years ago
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Diagnosis update - PV - in limbo
Hi So had my appointment with yet another different haematologist today following my BMB. Still no further forward. Apparently bone marrow aspirate was non cellular so nothing to show from that. Spongy marrow shown an small abnormality but haem consultants think its no conclusive. They have said they
Hi So had my appointment with yet another different haematologist today following my BMB. Still no further forward. Apparently bone marrow aspirate was non cellular so nothing to show from that. Spongy marrow shown an small abnormality but haem consultants think its no conclusive. They have said they
LittleLuna
in
MPN Voice
2 years ago
Parietal Cell Antibody test refused by GP
I posted a few weeks back about my Dad who I suspect has b12 absorption problems either as a result of low stomach acid or PA. He tested negative for IF antibodies so zi asked a GP at his surgery if they would test for Parietal Cell antibodies. She didn't seem to know what I was talking about?! Said
I posted a few weeks back about my Dad who I suspect has b12 absorption problems either as a result of low stomach acid or PA. He tested negative for IF antibodies so zi asked a GP at his surgery if they would test for Parietal Cell antibodies. She didn't seem to know what I was talking about?! Said
Needleandthread44
in
Pernicious Anaemia Society
2 years ago
B12 Patches
The forum has been a true blessing! More information than my GP! My question: Has anyone tried B12 Patches, instead of B12, injections with any success? I am currently injecting B12, 2-3X week, 1ML, subcutaneous., been injecting since Nov. 2021, my GP, is not very knowledgeable about PERNICIOUS
The forum has been a true blessing! More information than my GP! My question: Has anyone tried B12 Patches, instead of B12, injections with any success? I am currently injecting B12, 2-3X week, 1ML, subcutaneous., been injecting since Nov. 2021, my GP, is not very knowledgeable about PERNICIOUS
RisingOne
in
Pernicious Anaemia Society
2 years ago
Adalimumab effect only lasting 10 days
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
I am on fortnightly injections and find day 1 to 11 I am quite pain free and not fatigued, but then it wears off. Does anyone else experience this?
vonniesims
in
NRAS
2 years ago
Advice on iron
Hi all, so after my iron results a week or so ago and my dr dismissing that i have iron deficiency anemia i decided to self medicate with ferrous fumerate 210mg. Last week i took 3 a day with vitamin c capsules as i read somewhere that that is the adult doseage ( i can't find it now) i have suffered
Hi all, so after my iron results a week or so ago and my dr dismissing that i have iron deficiency anemia i decided to self medicate with ferrous fumerate 210mg. Last week i took 3 a day with vitamin c capsules as i read somewhere that that is the adult doseage ( i can't find it now) i have suffered
catpurple7
in
Thyroid UK
2 years ago
Finally got results
Got letter from GP with results. He says T3 is slightly below the normal range but if I am feeling well this is the level he would be reasonably happy with. Alkaline phosphatase is very slightly raised as is haemoglobin both to be tested again in 3 months. Still waiting the results of the vitamin D test
Got letter from GP with results. He says T3 is slightly below the normal range but if I am feeling well this is the level he would be reasonably happy with. Alkaline phosphatase is very slightly raised as is haemoglobin both to be tested again in 3 months. Still waiting the results of the vitamin D test
Hidden
in
Thyroid UK
2 years ago
Neutropenia and its effects.....
I was diagnosed with lupus by my rheumatologist in 2020. Since 2016 I have had low iron levels on numerous occasions, which was initially treated with oral iron with little effect. I was eventually given an iron infusion in May 2021. This brought my iron levels up for some time, but in April this
I was diagnosed with lupus by my rheumatologist in 2020. Since 2016 I have had low iron levels on numerous occasions, which was initially treated with oral iron with little effect. I was eventually given an iron infusion in May 2021. This brought my iron levels up for some time, but in April this
Ophelia1
in
LUPUS UK
2 years ago
Increased PA Symptoms and Iron Deficiency
I have no idea if what I'm experiencing is just a flare or could be possible related to my iron deficiency issues, but I figured I'd post on here to see if anyone else has had a similar experience. I was diagnosed with both PA and Iron Deficiency without Anemia at the same time. I have been doing
I have no idea if what I'm experiencing is just a flare or could be possible related to my iron deficiency issues, but I figured I'd post on here to see if anyone else has had a similar experience. I was diagnosed with both PA and Iron Deficiency without Anemia at the same time. I have been doing
lambuth_eagle
in
Pernicious Anaemia Society
2 years ago
About Iron
I'm asking a lot of questions - sorry - but I really have to get this problem sorted out, and this is such a great place to ask questions. When I first got RLS really badly, I read up and found out about possible iron deficiency. I thought this was strange as I eat huge amounts of food with lots of
I'm asking a lot of questions - sorry - but I really have to get this problem sorted out, and this is such a great place to ask questions. When I first got RLS really badly, I read up and found out about possible iron deficiency. I thought this was strange as I eat huge amounts of food with lots of
Desperate100
in
Restless Legs Syndrome
2 years ago
help with drinking 2 to 3 litres of water a day.
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
Kraskie1915
in
CLL Support
2 years ago
Latest #s - Is my B12 sublingual 1000mcg daily working?
Hello, My Friends (who are most likely asleep as I write this from Ohio). On June 14th I had updated blood tests done that I specifically requested based on suggestions made on this forum so we could see if maybe my B12 treatment is getting into my cells. My B12 blood serum is close to 1000, but we
Hello, My Friends (who are most likely asleep as I write this from Ohio). On June 14th I had updated blood tests done that I specifically requested based on suggestions made on this forum so we could see if maybe my B12 treatment is getting into my cells. My B12 blood serum is close to 1000, but we
Hidden
in
Pernicious Anaemia Society
2 years ago
Betaine HCl (hydrochloric acid) for autoimmune atrophic gastritis low acid pain (have PA as well)
Happy Sunday to you... I was wondering if any of you use or have used Betaine HCl (with pepsin) for low acid stomach pain and discomfort. I have tried all the acid reducers per gastro doc which didn't work well or not at all for me, and my stomach continued to get worse. While researching I learned
Happy Sunday to you... I was wondering if any of you use or have used Betaine HCl (with pepsin) for low acid stomach pain and discomfort. I have tried all the acid reducers per gastro doc which didn't work well or not at all for me, and my stomach continued to get worse. While researching I learned
Hidden
in
Pernicious Anaemia Society
2 years ago
B12-supplement causing restlessness, brain fog, anhedonia and sexual dysfunction
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Hi! I made a post a while ago about reaction to B12. I still keep reacting badly. I dont understand what is happening and How.I keep getting restless and have bad sleep. Also get bad brain fog, concentration and anhedonia. The new symtom is sexual dysfunction.I had taken small doses B12 because of
Sofa00
in
Pernicious Anaemia Society
2 years ago
Positive Intrinsic Factor
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
Ecf123
in
Pernicious Anaemia Society
2 years ago
Recent NHS iron results
I posted my medichecks results a few weeks ago with full thyroid panel indicating low ferritin . I made an appointment with gp who was not aware of the NICE guidlines regarding this. I gave her a copy of the information I had from this site and she accepted them However because I am over 60 she was
I posted my medichecks results a few weeks ago with full thyroid panel indicating low ferritin . I made an appointment with gp who was not aware of the NICE guidlines regarding this. I gave her a copy of the information I had from this site and she accepted them However because I am over 60 she was
Starmen
in
Thyroid UK
2 years ago
Tests for iron
Following the advice in the Mayo's clinic protocol, I asked my doctor for a full iron assessment including serum iron, ferritin, total iron-binding capacity, and percentage transferrin saturation which should be measured in the early morning after an overnight fast. She did not arrange any tests for
Following the advice in the Mayo's clinic protocol, I asked my doctor for a full iron assessment including serum iron, ferritin, total iron-binding capacity, and percentage transferrin saturation which should be measured in the early morning after an overnight fast. She did not arrange any tests for
Desperate100
in
Restless Legs Syndrome
2 years ago
Help with results and GP recommendations
I have been struggling with Hashimoto since 2016 probably undiagnosed for a long time. My TSH results at the GP have always been around 3-4 and the GP always said your results are in range but I was feeling knackered. I have seen a few a functional medicine doctors over the years while they have helped
I have been struggling with Hashimoto since 2016 probably undiagnosed for a long time. My TSH results at the GP have always been around 3-4 and the GP always said your results are in range but I was feeling knackered. I have seen a few a functional medicine doctors over the years while they have helped
RachelChD
in
Thyroid UK
2 years ago
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