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Sickle-cell anaemia
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High neutrophil countš±
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
My wife's last blood test showed her platelets were up at @800 And her neutrophil count at over 70, her Hgb was 116, hematocrit was 0.38 which is high for her, but as it was only three weeks since she had three units of packed red cells and a bag of iron, that was expected. I read in the guardian of
jointpain
in
MPN Voice
8 months ago
Iron Infusions
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
Hi all, just wondering if anyone in this group has ever had an iron infusion? When I was first diagnosed with my B12 deficiency, they also found that my vitamin D was deficient and my iron was only just in normal. Vitamin D is now fine on the daily tablets, but I've been struggling for about 18 months
KatieG75147
in
Pernicious Anaemia Society
5 months ago
low iron and tremor
I have been tremoring for the last month and today my GP freaked out at my very low normal iron blood level. He said I eat meat so he can't understand why it's so low. Anyway, I checked with Google and low iron can cause tremors so I hope this is what is wrong and I will supplement with iron tablets
I have been tremoring for the last month and today my GP freaked out at my very low normal iron blood level. He said I eat meat so he can't understand why it's so low. Anyway, I checked with Google and low iron can cause tremors so I hope this is what is wrong and I will supplement with iron tablets
MEguy
in
Thyroid UK
8 months ago
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Rapid responses to recent BMJ article
Thanks to Ā Retteacherand Ā LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Thanks to Ā Retteacherand Ā LadyBothwellfor mentioning this article. I wondered if people had seen the rapid responses to the article. BMJ Vitamin B12 article Vitamin B12 BMJ 2023;383:e071725 https://www.bmj.com/content/383/bmj-2022-071725 Rapid Responses to above article https://www.bmj.com/content
Sleepybunny
in
Pernicious Anaemia Society
8 months ago
From oxy to buprenorphine
I had my iron levels tested and all is good, not a candidate for infusion. Dr. Buchfuhrer suggested I switch from oxycodone to buprenorphine and tonight I did. Was nervous to go off of Oxy as it worked, but I noticed it was wearing off earlier and earlier. At 5 mg three times a day, I didnāt want
I had my iron levels tested and all is good, not a candidate for infusion. Dr. Buchfuhrer suggested I switch from oxycodone to buprenorphine and tonight I did. Was nervous to go off of Oxy as it worked, but I noticed it was wearing off earlier and earlier. At 5 mg three times a day, I didnāt want
Marlayna67
in
Restless Legs Syndrome
8 months ago
Worried out of my mind
I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a B12 level of 153. I was then taken off injections and told that I should never have been given them in the first place and couldnāt get them reinstated
I have been self injecting for several years as I was initially given B12 loading doses and 1 injection every 3 months when I was initially diagnosed with a B12 level of 153. I was then taken off injections and told that I should never have been given them in the first place and couldnāt get them reinstated
Hayley31
in
Pernicious Anaemia Society
4 months ago
Iron infusion
Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will give me a much needed boost my ferritin is down to 18 and my TSA 11.4 ..any side effects on my atrophic gastritis known I would be glad to be
Finally after many many months I found a sympathetic GP who referred me for an infusion on NHS ..a week later and I have an appt next week.Hopefully this will give me a much needed boost my ferritin is down to 18 and my TSA 11.4 ..any side effects on my atrophic gastritis known I would be glad to be
davina70
in
Pernicious Anaemia Society
8 months ago
Help with results please
Hello, Just trying to work out if thyroid looks ok please and doesn't need any further investigation? I know I'm iron deficient with a low ferritin level but have been supplementing for 8 weeks now and have got up from 8 ug/L to 31 ug/L and am no longer anaemic either as Hb has raised a little too
Hello, Just trying to work out if thyroid looks ok please and doesn't need any further investigation? I know I'm iron deficient with a low ferritin level but have been supplementing for 8 weeks now and have got up from 8 ug/L to 31 ug/L and am no longer anaemic either as Hb has raised a little too
Bertiepuss
in
Thyroid UK
8 months ago
PA and oral B12 supplements
I have recently been diagnosed with PA and Iāve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I understand, on local UK NHS protocols, or how my GP has interpreted them). I was therefore wondering if there is any benefit in taking oral B12
I have recently been diagnosed with PA and Iāve had an initial booster course of 6x B12 injections with a plan for 3 monthly injections for life (based, I understand, on local UK NHS protocols, or how my GP has interpreted them). I was therefore wondering if there is any benefit in taking oral B12
Pa234aw
in
Pernicious Anaemia Society
8 months ago
windyway
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? Iāve talked my dr into every 2 months is this enough ? Iām having heart palpitations/ irregular fast heart beats is this connected? Iāve read this
Hi all I have pernicious anemia How much & how regular do I need B12 injections? I had 6 loading over 2 weeks in December /January and every 3 months ?? Iāve talked my dr into every 2 months is this enough ? Iām having heart palpitations/ irregular fast heart beats is this connected? Iāve read this
Windyway
in
Pernicious Anaemia Society
4 months ago
B12 help
Following on from previous post I have an under active thyroid (Hashimotoās) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didnāt tell me that. I have been supplementing B complex and sometimes B12
Following on from previous post I have an under active thyroid (Hashimotoās) and my bloods from October 2021 was MCH 32.8 (27-32) and B12 was 379 (197-771). I read online the MCH this high was macrocytic anaemia but my endo didnāt tell me that. I have been supplementing B complex and sometimes B12
Denny39
in
Pernicious Anaemia Society
8 months ago
new blood tests
Hct is lower again to 37 and Hgb 11.5, iron panel still anemic. New Blood Test. Anion Gap. Normal range per lab. 6-22 My test result was 3 Anyone have any insight? thank you
Hct is lower again to 37 and Hgb 11.5, iron panel still anemic. New Blood Test. Anion Gap. Normal range per lab. 6-22 My test result was 3 Anyone have any insight? thank you
Pickleball11
in
MPN Voice
8 months ago
Haematologists consultant
Hi Iāve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasnāt deficient!! , my dr didnāt
Hi Iāve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasnāt deficient!! , my dr didnāt
Windyway
in
Pernicious Anaemia Society
4 months ago
Supplimenting Vit B12 and Folate - how much?
Hello,My recent blood test shows: Ferritin 107ug/l (30-250) B12 377ng/l (200-900) Folate 4.7ug/l (3-20.50) (they forgot to test for Thyroid, so I have got to book in again for that...) I have checked previous messages and think that my Folate is low and B12 could be improved. There are supplements
Hello,My recent blood test shows: Ferritin 107ug/l (30-250) B12 377ng/l (200-900) Folate 4.7ug/l (3-20.50) (they forgot to test for Thyroid, so I have got to book in again for that...) I have checked previous messages and think that my Folate is low and B12 could be improved. There are supplements
GrowingVeg
in
Thyroid UK
8 months ago
Help with next appointment following loading doses
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both ānormalā but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I donāt have the actual results other than the B12). I didnāt have any really noticeable response
Following a B12 of 194ng/L (187 - 883) in August, in Sept it was 208. MMA and Folate both ānormalā but Homocysteine was slightly above range so I have been given 6 loading doses and daily Folic Acid. (I donāt have the actual results other than the B12). I didnāt have any really noticeable response
GW1000
in
Pernicious Anaemia Society
8 months ago
blood count results?
Hi everyone! š I was just wondering whether any of you wonderful intellectual people can read these blood results and maybe give me an insight to what they actually mean and if they are ok!? Iron is what I am most interested inā¦ I am currently awaiting my yearly full vitamin panel blood test -
Hi everyone! š I was just wondering whether any of you wonderful intellectual people can read these blood results and maybe give me an insight to what they actually mean and if they are ok!? Iron is what I am most interested inā¦ I am currently awaiting my yearly full vitamin panel blood test -
ThyroidObsessed
in
Thyroid UK
8 months ago
B12 result after 6 monthsā¦
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
Extra doses!
Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long time now, I have been having my jabs every three months. Previous to that, it was every two months, as according to my then endcronologist, it
Hi everyone, Out of interest, does anymore here who has B12 deficiency and pernicious anaemia, self adminster extra doses? The reason I ask, is for a long time now, I have been having my jabs every three months. Previous to that, it was every two months, as according to my then endcronologist, it
JOLLYDOLLY
in
Pernicious Anaemia Society
4 months ago
Serum ferritin level & RBC count help please
Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ācouldā maybe be the reason Iām still feeling exhausted/heavy tired legs?? Thank you in advance
Hi there, just wondered If anyone could please tell me if a Ferritin level of 44ng/ml and a RBC count of 3.76 (whilst actually already taking Ferrous Fumerate 210mg twice per day) is still pretty low and ācouldā maybe be the reason Iām still feeling exhausted/heavy tired legs?? Thank you in advance
CandiR
in
Pernicious Anaemia Society
8 months ago
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