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How much folate is everyone taking?
How much folate is everyone taking?I’m now currently twice a day, will be moving to three times a day. When I was injecting once a day, I was taking one 5mg of folic acid. Now that I’ve increased my injections, im wondering if I should increase my folic acid.
How much folate is everyone taking?I’m now currently twice a day, will be moving to three times a day. When I was injecting once a day, I was taking one 5mg of folic acid. Now that I’ve increased my injections, im wondering if I should increase my folic acid.
qwertystar
in
Pernicious Anaemia Society
8 months ago
Panpharma B12 Depot out of stock at Apohealth - now what do I do?
Hi I made the mistake of ordering Panpharma Vitamin B12 from Apohealth recently but when it came the box looked a bit different and I realised I'd not ordered the "depot" version. I had cobalamin not hydroxy. So, annoyed with myself, I sent them back. I kept forgetting to reorder. Came to do it
Hi I made the mistake of ordering Panpharma Vitamin B12 from Apohealth recently but when it came the box looked a bit different and I realised I'd not ordered the "depot" version. I had cobalamin not hydroxy. So, annoyed with myself, I sent them back. I kept forgetting to reorder. Came to do it
FancyPants54
in
Pernicious Anaemia Society
8 months ago
What now, totally lost and scared
I was all ready to start self injecting B12 having done much research and received helpful advice on here, received supplies and got my first jab done at a clinic. I doubted my GP would consider injections as my total serum B12 was 747ng/L (200-900) 3 months ago so decided to go this alone. Very low
I was all ready to start self injecting B12 having done much research and received helpful advice on here, received supplies and got my first jab done at a clinic. I doubted my GP would consider injections as my total serum B12 was 747ng/L (200-900) 3 months ago so decided to go this alone. Very low
Bertiepuss
in
Pernicious Anaemia Society
8 months ago
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vitamin D and magnesium deficiency from B12 loading doses
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
JesusMercy60
in
Pernicious Anaemia Society
3 months ago
Vitamin D and Anemia: Insights into an Emerging Association
Found an interesting study. The conclusion sold it for me. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4659411/ CONCLUSION Vitamin D is associated with anemia in various study populations and recent evidence suggests that the association may differ by race and is likely specific to anemia of inflammation
Found an interesting study. The conclusion sold it for me. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4659411/ CONCLUSION Vitamin D is associated with anemia in various study populations and recent evidence suggests that the association may differ by race and is likely specific to anemia of inflammation
WideBody
in
Restless Legs Syndrome
8 months ago
Another cause of Pernicious Anaemia?
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
We know that certain gastric operations cause Pernicious Anaemia and therefore lifelong b12 injections are required . But what I’ve never seen mentioned is the possibility of radiotherapy cancer treatment in the region of the stomach that contains the parietal cells , causing Pernicious Anaemia . Surely
wedgewood
in
Pernicious Anaemia Society
3 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
3 months ago
Hypothesis II
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
My hypothesis is that the antibody that attacks the intrinsic factor and or parietal cell may also bind to B12 rendering it unusable at the cellular level. That the production of the antibody with regards to amount is unknown and different at different times for the individual and different for each
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Self Injecting Query
I posted earlier about my health problems over the past two years. I saw an old post that said if you have Neuro symptoms then you should get loading doses then a jab every 2 months. This is my NHS regime currently. I've had jabs for about 10 years, was on 3 monthly and was changed to two monthly. "
I posted earlier about my health problems over the past two years. I saw an old post that said if you have Neuro symptoms then you should get loading doses then a jab every 2 months. This is my NHS regime currently. I've had jabs for about 10 years, was on 3 monthly and was changed to two monthly. "
Sparklingsunshine
in
Pernicious Anaemia Society
3 months ago
Reversing Out
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Good day friends. I need some help and advice. I was diagnosed with autoimmune atrophic gastritis, I have started EOD B12 injections about 1 month ago. My symptoms have gotten worse, first it was muscle twitches that have now gotten better But stomach issues are worse, I am starting to have what
Canadian77
in
Pernicious Anaemia Society
3 months ago
B12 injections stopped by gp after 5 years treatment on nhs
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
I was diagnosed with chronic b12 deficiency years ago - my GP started giving me injections every 3 months and my nurse told me that it was for life. I’ve always eaten meat my whole life - so my deficiency was not caused by diet. They have stated that my deficiency is due to malabsorption, but my intrinsic
LaraPA
in
Pernicious Anaemia Society
3 months ago
ALS and B12
I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading, "Vitamin B12 levels and MND/ALS". https://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-4-298
I ran across an article that was interesting, if for no other reason, for its quite detailed description of B12 deficiency. Scroll down to the heading, "Vitamin B12 levels and MND/ALS". https://jmedicalcasereports.biomedcentral.com/articles/10.1186/1752-1947-4-298
WiscGuy
in
Pernicious Anaemia Society
8 months ago
early pregnancy -Hydroxy33
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
Anybody know if I can inject Hevert 2 ml depot B12 from Germany in early pregnancy? I'm in the USA and the cyanocobalamin injection is the only one I could get otherwise. It has benzyl alcohol etc. here. So, B 12 is not everywhere the same. I just want to make sure I'm injecting the right amount every
AstiSP
in
Pernicious Anaemia Society
3 months ago
Iron profile
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
So these are my levels 6 weeks post iron infusion ,a combination of coming off the gabapentin and moving to pregablin I'm no longer depressed and able to function ,although my legs are still live they are no longer violent. Serum.iron ..22 Serum tibc 47 Iron transferrin sat 46.8 Serum ferritin 175
Baz33
in
Restless Legs Syndrome
8 months ago
GP visit!
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
So I went to see my GP yesterday and discussed my symptoms, and asked about B12 injections. Got the same old story - test within range, symptoms aren’t bad enough, try oral B12 for three months, despite my explaining that I have low stomach acid and problems with malabsorption, which she again dismissed
Chickens44
in
Pernicious Anaemia Society
3 months ago
Sitagliptin
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
Hi all Does anyone know if this medicine for type 2 diabetes has any effect on RLS/PLMD. I did a search and could not find it. I have been on 2 diabetic mecicines and both have sent my legs crazy or has other side effects. Thanks.
CORFUORBUST
in
Restless Legs Syndrome
8 months ago
Bruxism, botulinum toxin, Hashimoto, anxiety, tension
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
I have had Hashimoto's Thyroiditis since 2014. I'm 34 years old. In addition I also have diabetes, PCOS and PTSD. I suffer from bruxism, a lot of anxiety, I live in a houve with children with autism. I broke my teeth and a dentist reconstructed them. Now I use dental plaque to sleep. But I still
Margimet
in
Thyroid UK
8 months ago
Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
4 months ago
Iron deficiency problem? But told satisfactory . Please can anyone advise
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
Hi everyone, Hope you are all keeping well as we can be. Apologies for this long post I recently requested in Sep to have my VIT D levels checked as I recognised some of the symptoms from when I was deficient. And for some reason my levels had dropped so started 5 weeks ago to take a twice weekly
PJDJ_08
in
Thyroid UK
8 months ago
Non-Functional B12 Cellular Activity.
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
Non-Functional B12 Cellular Activity. A study posted by technoid. https://pure.tudelft.nl/ws/portalfiles/portal/153859755/Design_of_a_treatment_protocol_to_improve_the_health_of_B12_deficient_patients.pdf It is a study of the biochemistry of vitamin B12 cellular metabolism. 4 years of treating B12
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
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