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Some advice please
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Hi, I'm in surgical menopause and have not felt 'well' for a number of years now. I won't bore you with the backstory of my trials and tribulations with HRT, all in the pursuit of feeling well enough to fully function. I've questioned Thyroid for some time, I had tests last September and posted them
Sunnyyellowlady
in
Thyroid UK
3 months ago
magnesium supplements
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Grumpyfairy
in
MPN Voice
3 months ago
darolutamide monotherapy experience?
If you’ve had darolutamide mono therapy, I’m interested in your experience with effectiveness and side effects, especially compared to ADT like Lupron.
If you’ve had darolutamide mono therapy, I’m interested in your experience with effectiveness and side effects, especially compared to ADT like Lupron.
ron_bucher
in
Advanced Prostate Cancer
3 months ago
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update on prolotherapy
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
Hidden
in
Neuropathy Support
9 months ago
update on prolotherapy and llltherapy
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
I have had my first prolotherapy injections, they don't hurt much at all.......I must admit the next day I thought oh no I have done the wrong thing....my legs were so bad I wanted to jump off the bridge. Today they have settled down a bit. I suppose this has happened because the prolotherapy causes
Hidden
in
Restless Legs Syndrome
9 months ago
3 Abiraterone tabs in place of 4.
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
Warriors Some time back I posted that my MO had told me to take 3 Abiraterone tablets with 5 mg Prednisone daily instead of 4 to help with an out of control Blood Pressure problem. I was worried (as were some of the responses) that this could impact the ADT therapy. Recently had blood work done
85236442968
in
Advanced Prostate Cancer
3 months ago
Testosterone Recovery: Orgovyx vs Lupron, Part-II
Here's another plot summarizing data from a 2020 paper in the New England Journal of Medicine by Neil Shore, et al. that shows Orgovyx has much faster "ON" and "OFF" changes in testosterone levels, compared to Lupron. This plot compares the percentage of men who recover their testosterone (defined
Here's another plot summarizing data from a 2020 paper in the New England Journal of Medicine by Neil Shore, et al. that shows Orgovyx has much faster "ON" and "OFF" changes in testosterone levels, compared to Lupron. This plot compares the percentage of men who recover their testosterone (defined
janebob99
in
Prostate Cancer Network
3 months ago
Radiation & Underactive Bladder
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
Does anyone on this forum have an Underactive Bladder and has also undergone prostate radiation treatments? I will be starting a series of 34 radiation treatments coupled with a 6-month hormone therapy (orgovyx) program. Less than 6 years ago I chose RP over radiation as primary treatment for my PCa
brilliant17
in
Advanced Prostate Cancer
3 months ago
Does NSAIDS reduce ADT effectiveness?
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
Hello I have a question about taking NSAIDS while on ADT - up to now I have only used tylenol - I had read somewhere that NSAIDS subtract some effectiveness of the hormone therapy and I have avoided it - but with the amount of inflammation after 8 months, I would like to use some - primarily to let
jackwfrench
in
Advanced Prostate Cancer
3 months ago
medication
hi guys,on amlodipine,aspirin,ramipril,and bisop to treat, moderate leaky aorta valve with thoracic aneurysm, can anyone explain why they won’t repair it yet,ever time I meet with my cardiologist they don’t say much and i often get different doctors, and kinda being on the quiet side …. Still feeling
hi guys,on amlodipine,aspirin,ramipril,and bisop to treat, moderate leaky aorta valve with thoracic aneurysm, can anyone explain why they won’t repair it yet,ever time I meet with my cardiologist they don’t say much and i often get different doctors, and kinda being on the quiet side …. Still feeling
Hidden
in
British Heart Foundation
6 months ago
Docetaxel Failing
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Greetings from Inverness in the beautiful Highlands of Scotland! I would like to share my journey with you and hopefully get some advice on future treatments. In December 2022 following diagnoses of advanced prostate cancer with multiple bone metastasis I started zytiga + prednisone and 6 monthly triptorelin
Fisherman2
in
Advanced Prostate Cancer
3 months ago
BILLY NEEDS HELP
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
OK troops, after 26 years of surviving post prostectomy, with a Gleason 4/3, 4/4, some 41 rounds of intermittent hormone therapy using lupron, casadex, advodart, I had a break thru last November as my psa went back up mid on cycle. After having my radiation oncologist ignore the realities of this, I
billyboy3
in
Advanced Prostate Cancer
3 months ago
Vitamin D again: High-dose vit D to attenuate bone loss in patients with prostate cancer on ADT, phase 2 RCT result
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
I take it for other reasons (and I am taking zometa) but this thing with vit D and bone loss is a never ending story…. https://pubmed.ncbi.nlm.nih.gov/38520382/
Maxone73
in
Advanced Prostate Cancer
3 months ago
Estrogen Replacement therapy after surgical menopause
Hi everyone! I would like to chat with somebody who may have or is going through a similar experience. I had a full hysterectomy- removal of everything, over 20 years ago. I am on 2mg of Estrogen once per day. The docs used to do the implant yearly but it is no longer available. I am now 51
Hi everyone! I would like to chat with somebody who may have or is going through a similar experience. I had a full hysterectomy- removal of everything, over 20 years ago. I am on 2mg of Estrogen once per day. The docs used to do the implant yearly but it is no longer available. I am now 51
JenniferBut
in
Menopause and Perimenopause Support
6 months ago
Pancreas problems after RT for prostate
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
I was diagnosed with prostate cancer two years ago. Received radiotherapy and hormone therapy. My PSA levels have dropped and progress seems OK. I have also had M.E. and fibromyalgia for over 25 years and, as part of that, IBS. Since starting the hormone therapy and radiotherapy I became more and more
Nomojo56
in
Pelvic Radiation Disease Association
3 months ago
Wondering if anyone can relate to these symptoms
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
After an appointment with a dietician I was tested for suspected EPI and my level was very low - 53. I have been prescribed Creon 25000 and taking those for about 4 weeks.I have had M.E/CFS and fibromyalgia for over 25 years and two years ago was diagnosed with prostate cancer. I had radiotherapy and
Nomojo56
in
Chronic Pancreatitis Support
3 months ago
Group therapy for arthritic pain including PMR
Does anyone know of any face-to-face groups within the Portsmouth area? Or, does anyone know who to contact to find out? Any advice would be gratefully received. Thank you
Does anyone know of any face-to-face groups within the Portsmouth area? Or, does anyone know who to contact to find out? Any advice would be gratefully received. Thank you
Markandevie
in
PMRGCAuk
9 months ago
DEXA sooner that 2 years?
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
Has anyone who took ADT for 18 months gotten a DEXA reimbursed or denied by Medicare if the repeat scan was sooner than 2 years? It seems that if easily falls under "medically necessary" because of the damage ADT can do to bone health, but I can't get a straight answer from Medicare. Thanks for any
RugbyVLS
in
Advanced Prostate Cancer
3 months ago
After ADT
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Adrenal insufficiency after stopping ADT & steroids. My 72 year old husband had radical, robotic surgery 7 years ago. PSAs were 0 until 2 years ago, then barely detectable. Had the special PET scan, 3 spots lit up in lymph nodes, (in the area, none remote.) Had 6.5 weeks radiation therapy. Had 2 years
Catmama5
in
Advanced Prostate Cancer
3 months ago
when is enough enough
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
as I read the post here I am struck by the bravery and never give up attitudes of the men who share their stories here. I have not faced hardly any of the difficulties I read about yet I have already made up my mind that I’m going to stop treatment and enjoy what time I have left . Am I just a wiener
Thesledge
in
Advanced Prostate Cancer
3 months ago
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