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Rosai-Dorfman disease
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ET Increase in Platelets Linear or Random?
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
I've had ET since my early 30s and my platelets seem to be increasing by a set amount each year, I'm now in my 40s and platelets are at 900. It seems like I should be able to plot that and figure out when its going to get to a worrying level. So I guess I'd like to know at what level will I need to
Jpn4
in
MPN Voice
2 months ago
blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
3 months ago
Help on blood test results
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Can anyone on here advise on these results? Does this mean I 100% don't have lupus? 🤞🏼Or are there different types of lupus that I havnt been tested for?
Peppermints
in
LUPUS UK
3 months ago
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Hypothyroid and loose stools.
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hi, first time posting. Diagnosed with underactive thyroid & high cholesterol in December 23 , started on lowest dose (25mg Eutirox), reviewed in Feb 24 thyroid results improved and cholesterol down a little so continuing on same dose to be reviewed again in August. I have had loose stools for a while
Hellodoll
in
Thyroid UK
3 months ago
occasional AF
My husband has recently had several bouts of AF lasting just a few minutes each. Heart rate only slightly raised. He is 72, pretty fit and not overweight. Had an ECG at the doctors which didn't detect AF. GP just said to leave it but call an ambulance if happens again and he is breathless. Is this how
My husband has recently had several bouts of AF lasting just a few minutes each. Heart rate only slightly raised. He is 72, pretty fit and not overweight. Had an ECG at the doctors which didn't detect AF. GP just said to leave it but call an ambulance if happens again and he is breathless. Is this how
Norfolk_spaniel
in
Atrial Fibrillation Support
2 months ago
Multaq Side Effects
Been on 400mg of Multaq bid for a month now and have had few issues with it so far but what I have noticed is that an hour or so after taking it I become extremely fatigued to the point I have to lie down for a nap. Is this something others have experienced? I was on Amiodarone for 6 months and had zero
Been on 400mg of Multaq bid for a month now and have had few issues with it so far but what I have noticed is that an hour or so after taking it I become extremely fatigued to the point I have to lie down for a nap. Is this something others have experienced? I was on Amiodarone for 6 months and had zero
Foreverfibber
in
Atrial Fibrillation Support
2 months ago
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
https://www.science.org/doi/10.1126/scisignal.adi9018 "Editor’s summary: The cell death that occurs in neurodegenerative diseases is due partly to decreased
Proximity proteomic analysis of the NRF family reveals the Parkinson’s disease protein ZNF746/PARIS as a co-complexed repressor of NRF2
https://www.science.org/doi/10.1126/scisignal.adi9018 "Editor’s summary: The cell death that occurs in neurodegenerative diseases is due partly to decreased
Bolt_Upright
in
Cure Parkinson's
6 months ago
Role of Luteolin in overcoming Parkinson's disease 2021
Role of Luteolin in overcoming Parkinson's disease 2021
https://sci-hub.ru/10.1002/biof.1706 "The incidence of life threating neurodegenerative diseases such as PD is increasing day by day. Sporadic as well as genetic causes are well documented. Due to the decline in the dopaminergic neurons,
Role of Luteolin in overcoming Parkinson's disease 2021
https://sci-hub.ru/10.1002/biof.1706 "The incidence of life threating neurodegenerative diseases such as PD is increasing day by day. Sporadic as well as genetic causes are well documented. Due to the decline in the dopaminergic neurons,
Bolt_Upright
in
Cure Parkinson's
6 months ago
Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
3 months ago
Advice please?
Hi all. I just wanted to see if anybody has experienced the same as me. I am a 28 year old male. I used to drink very heavily for around 6-7 years. I drank vodka with lemonade and could get through a couple of litres a week following my dad's death (not an excuse but it is the reason I drank so much
Hi all. I just wanted to see if anybody has experienced the same as me. I am a 28 year old male. I used to drink very heavily for around 6-7 years. I drank vodka with lemonade and could get through a couple of litres a week following my dad's death (not an excuse but it is the reason I drank so much
Connorsw95
in
British Liver Trust
6 months ago
Digoxin + Lopresspor
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
Is anyone on Digoxin plus Lopressor long term for chronic persistent afib and how do you feel? Thanks
farewelltoarms
in
Atrial Fibrillation Support
2 months ago
Just saw my first rheumatologist yesterday, very confused by diagnosis?
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be possible to have rheumatoid arthritis? All of my symptoms for the past 5 and 1/2 months seem to be classical PMR (before I started taking prednisone
LarMarge6
in
PMRGCAuk
3 months ago
Deuterium Depleted Water
OK guys, I've been looking at this for a while and thought I'd condense it down and share it with you guys.I'm really not interested in arguments with people. If you don't agree, get yourself a cup of coffee, chill out and move on. Water his made of hydrogen and oxygen. Deuterium is a hydrogen isotope
OK guys, I've been looking at this for a while and thought I'd condense it down and share it with you guys.I'm really not interested in arguments with people. If you don't agree, get yourself a cup of coffee, chill out and move on. Water his made of hydrogen and oxygen. Deuterium is a hydrogen isotope
MrG68
in
Advanced Prostate Cancer
6 months ago
3 years post successful PVI RF Ablation
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Had my three year check up, ECG, Holter monitor, PM diagnostic, echo and full bloods.All good. No AFIB since ablation. BP good. PM has many years left. Only meds 15mg zarelto and 40mg micardis. Still have not got back to as much energy as I would like, maybe just getting old.
Geoffa1
in
Atrial Fibrillation Support
2 months ago
May is Vasculitis Awarenes Month
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes, but still a rare disease. Maddie is a vasculitis warrior, take a moment to read her story. To donate to #VasculitisUK ‘s campaign this month to
zoe69
Vasculitis UK
in
Vasculitis UK
2 months ago
RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
3 months ago
Here We Go Again
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
Four days ago, I reported that after 4 ‘failed’ ablations, I had undergone a ‘successful’ cardioversion for what my EP said was atrial tachycardia. For four days, I enjoyed normal sinus rhythm and a heart rate of between 50 and 70bpm. However, my joy was short lived. This evening, whilst watching a
frankiec5
in
Atrial Fibrillation Support
2 months ago
TSH Level
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
3 months ago
PNT article on recent success in generating locus coeruleus (LC) norepinephrine (NE) neurons, to study their role in diseases such as PD.
"Nerve cells originating in the locus coeruleus extend throughout the brain and spinal cord via an extensive branching system, where they release norepinephrine to regulate heartbeat, blood pressure, arousal, memory, and attention." "In Parkinson’s, the locus coeruleus is one of the first brain regions
"Nerve cells originating in the locus coeruleus extend throughout the brain and spinal cord via an extensive branching system, where they release norepinephrine to regulate heartbeat, blood pressure, arousal, memory, and attention." "In Parkinson’s, the locus coeruleus is one of the first brain regions
jeffreyn
in
Cure Parkinson's
6 months ago
A puzzle
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
MrsMarigold
in
LUPUS UK
3 months ago
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