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Rosai-Dorfman disease
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More questions
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
First question: I had an episode of atrial fibrillation Friday morning. Usually, when I have an episode, I feel normal after it stops. I took a flecainide and it stopped after a couple of hours, but I felt bad the rest of the day - as if I were still in afib, without the pounding heart. I took a couple
HotGuacamole
in
Atrial Fibrillation Support
19 days ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
3 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
3 months ago
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Unusual prescription?
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Hi all, I'm 73 with no weight, diabetes or BP ailments. A CT scan at a Targeted Lung Check last year revealed mild emphysema and "coronary artery calcification". The ensuing ECG indicated heart block (LAFB). Following an ultrasound last Thursday (during which I was told that there was an anomaly that
Globus
in
Anticoagulation Support
20 days ago
Lightheadedness after AFib episode
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
A few weeks ago I posted about not being given any medication to shorten my AFib attacks and received many useful replies. Thank you all.. Since then I have sent my ECG readings to my cardiologist and 2 weeks ago I was started on 50 mg Flecanide twice a day with instructions to take another 50 mg one
Jomaur
in
Atrial Fibrillation Support
21 days ago
Walking round the close....
Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want
Well i went for my first walk round the close and felt like i had ran a marathon. I am exhausted now. I keep forgetting i have had major heart surgery. I was only in theatre for an hour yet in that time they repaired my heart. The trouble is i forget i have other health problems to deal with. I want
sylvi
in
NRAS
21 days ago
SteveN
I am posting this here because the site won’t let me do anything else! I wanted to know if there are any Lyme disease sufferers on here, or any with ADHD/Autism? I am a Lyme disease sufferer and have spent about the last 5 years trying to test a theory about finding/engineering a treatment or cure.
I am posting this here because the site won’t let me do anything else! I wanted to know if there are any Lyme disease sufferers on here, or any with ADHD/Autism? I am a Lyme disease sufferer and have spent about the last 5 years trying to test a theory about finding/engineering a treatment or cure.
Weavernat
in
Pernicious Anaemia Society
6 months ago
Rheumatoid arthritis
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Hi I'm on prednisone and leflunomide vid d and jyseleca I have come up with a high temp and a fever, please tell me can I take any pain killers my body is killing me
Alisa123
in
NRAS
3 months ago
Stomach rumbling growling and pain
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
Hi, i have a lot of stomach growling and rumbling which is extremely loud and can be heard from far away. People have commented on hearing a lot of noise and it makes me uncomfortable. I also get a lot of pain. The rumbling/growling happens most of the day and last quite a long time between intervals
spiderman5674
in
IBS Network
6 months ago
How maternal lupus affects the child
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
All moms, please fill out this survey. It won't take long and you'll be the part of a research aimed at determining how maternal lupus may be related to the development of allergies in the child.Your help will be very appreciated. Thank you! ☺ https://forms.gle/kRVd79WSpzA6Gf3n9
gabriele_klim
in
LUPUS UK
3 months ago
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day?
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Is it harmful if you have an autoimmune disease and take Low Dose Naltrexone (LDN) twice a day? Answered by Michelle Kilmer Moser RPh https://youtu.be/Wtr69oDmM7Q
Shewulf
Administrator
in
LDN Research Trust
3 months ago
My introduction Hi
Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading
Hiya everyone. Here, as I have recently, by accident really, been to the doctor to see if I might qualify for weight loss drugs, having heard such good things about ozempic or the tablet version Rybelsus. Dr said no, I don't qualify for it. But BP was 185/172 which shows hypertensive crisis, heading
Halcyondaze
in
British Liver Trust
23 days ago
Echo results.
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Hi I have afib, not usually too often but have had a few episodes this year. On all the usual meds. Have just been given an inhaler as hyperinflated patches were found on my lungs in a chest x ray. Anyway had the results of my latest echocardiogram yesterday and was wondering if you good people can interpret
Lupaal
in
Atrial Fibrillation Support
23 days ago
low resting heart rate
Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to
Hi All, I have Low resting heart rate, regardless of upping dose. I’ve upped my T3 meds from 20mcg to 25mcg and I take 100mcg of Levo and my resting hr stays at 52/51bpm my resting heart rate was the same at 15mcg T3 too. Initially when I up the dose for 2-3 days resting heart rate will increase to
Thyroid_mum
in
Thyroid UK
24 days ago
Advice about experts at London Bridge Hospital
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
I have an unusual history. In 2007, I recovered from several months in hospital with hypoxia and very severe chest pain only when I was put on heparin. I have a very severe history of clotting on my Mum's side of the family and family and friends begged the doctors to try anticoagulation because
Annslack
in
Hughes Syndrome APS Forum
24 days ago
Doccla Home Monitoring
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Hi All Its been a while since I last posted but basically my AF kicked in again over a year ago and it was problematic, after swapping and changing my medication i am now on amiodarone which seems to be keeping it under control but I'm told this is not a long term fix because of the side affects of
Bauldy
in
Atrial Fibrillation Support
24 days ago
Afib and Bone density supplements
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
I have had afib for about four years now. My latest bone density test shows osteoporosis. My primary wants me to take Prolia or some other prescription medication. My research indicates "causes arrhyhtmia" as the number one side effect. Clearly a problem for me. I have looked at several bone density
ijregner
in
Atrial Fibrillation Support
24 days ago
No more appointments
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
Puzzled8
in
Atrial Fibrillation Support
24 days ago
Is nmCRPC potentially curable?
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
I would appreciate any input on this. I searched the internet and found this article from Fred Saad: Treatment of nonmetastatic castration-resistant prostate cancer: focus on second-generation androgen receptor inhibitors https://www.nature.com/articles/s41391-020-00310-3 I couldn't find anything
Seasid
in
Advanced Prostate Cancer
6 months ago
cardiologist appointment
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
Prosecco1997
in
Atrial Fibrillation Support
26 days ago
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