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Rituximab IV
I am starting
Rituximab
IV next week and wondered if anyone in the community has had this before. Over this month I have had so much IV steroids the side effects has been terrible. This infusion takes all day, so in hospital again for 6 to 8 hours.
I am starting
Rituximab
IV next week and wondered if anyone in the community has had this before. Over this month I have had so much IV steroids the side effects has been terrible. This infusion takes all day, so in hospital again for 6 to 8 hours.
Bagpuss2021
in
NRAS
1 year ago
Tocilizumab - dizzyness and dry skin
I’m feeling very deflated as in alot of pain, and in the past 11 years have been on methotrexate plus Enbrel (stopped working after3 years)
rituximab
( had an allergic reaction on first infusion) barciniib (amazing at first but then stopped working as well especially when I wasn’t being consistent with
I’m feeling very deflated as in alot of pain, and in the past 11 years have been on methotrexate plus Enbrel (stopped working after3 years)
rituximab
( had an allergic reaction on first infusion) barciniib (amazing at first but then stopped working as well especially when I wasn’t being consistent with
Claire32
in
NRAS
11 months ago
Questions about rituximab experience
- Any tips you can give me from your
rituximab
experience. Thank you !!
- Any tips you can give me from your
rituximab
experience. Thank you !!
poppies_are_red
in
LUPUS UK
9 months ago
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WHEN YOUR CLINICAL TRIAL FAILS, WHAT DO YOU DO NEXT ?
I had these once before during a
rituximab
ramp up. The nurses came to my rescue , I was wrapped up tighter than the Mummy with blankets, finally a small shot of dilaudid got the job done.
I had these once before during a
rituximab
ramp up. The nurses came to my rescue , I was wrapped up tighter than the Mummy with blankets, finally a small shot of dilaudid got the job done.
steve5441
in
CLL Support
9 months ago
Palpitations after rituximab?
hi everyone, I am just wondering if anyone who has had
rituximab
experienced fast heart rate and palpitations after their infusions? And if so was it anything serious or how long did it take to go away? Thank you!!
hi everyone, I am just wondering if anyone who has had
rituximab
experienced fast heart rate and palpitations after their infusions? And if so was it anything serious or how long did it take to go away? Thank you!!
nada28
in
LUPUS UK
1 year ago
Life update
I’m finally doing better with the
Rituximab
infusions and I’m down to only one infusion a year! I had one small reaction the last infusion in July. My husband and I decided to put together a home gym and I’ve been back to lifting weights.
I’m finally doing better with the
Rituximab
infusions and I’m down to only one infusion a year! I had one small reaction the last infusion in July. My husband and I decided to put together a home gym and I’ve been back to lifting weights.
Jer29-11
in
My MSAA Community
10 months ago
Rituximab and Flu/Cold
Any tips on dealing with a cold while on
Rituximab
. Do the same guidelines for Covid apply? Many thanks 😊
Any tips on dealing with a cold while on
Rituximab
. Do the same guidelines for Covid apply? Many thanks 😊
ks1966
in
NRAS
1 year ago
Rituximab
Hi all, I have had lupus for over 20 years, I am currently on Hydroxychloroquine and Methotrexate and my consultant had decided to try me on two rounds of
Rituximab
in order to bring down the inflammation of my hands (my hands are going all gnarly).
Hi all, I have had lupus for over 20 years, I am currently on Hydroxychloroquine and Methotrexate and my consultant had decided to try me on two rounds of
Rituximab
in order to bring down the inflammation of my hands (my hands are going all gnarly).
cathy-
in
LUPUS UK
10 months ago
Update treatment
[/i] [i]The
rituximab
was then taken along the next time.[/i] [i]After the first time, the leucocytes dropped from 260 to 8.6. The second time to 1,9.[/i] [i]They told me this last thursday, and also that they wait, starting the third time, because i had neutropenia.
[/i] [i]The
rituximab
was then taken along the next time.[/i] [i]After the first time, the leucocytes dropped from 260 to 8.6. The second time to 1,9.[/i] [i]They told me this last thursday, and also that they wait, starting the third time, because i had neutropenia.
Renefaassen
in
CLL Support
11 months ago
lymphocytes/neutrophils
After 5 of 6 of fludarabine cyclophosphamide
rituximab
I went into semi remission and now after many hospitalizations with infection have IVIG once a month that works quite well at keeping me out of the hospital.
After 5 of 6 of fludarabine cyclophosphamide
rituximab
I went into semi remission and now after many hospitalizations with infection have IVIG once a month that works quite well at keeping me out of the hospital.
Kimsome
in
CLL Support
10 months ago
Swollen throat and rituximab?
Yesterday I had my first
rituximab
infusion, was OK last night but today started with sore throat, now it's swollen and I'm having difficulty swallowing. Only thing that helps is water. I'm really depressed and feel very tired and generally unwell.
Yesterday I had my first
rituximab
infusion, was OK last night but today started with sore throat, now it's swollen and I'm having difficulty swallowing. Only thing that helps is water. I'm really depressed and feel very tired and generally unwell.
RootsToots
in
NRAS
1 year ago
rituximab reactions
I have had 4
rituximab
infusion and each time I have had a reaction. The first time time they had to stop the infusion because I had reached the max of Benadryl and Demerol.
I have had 4
rituximab
infusion and each time I have had a reaction. The first time time they had to stop the infusion because I had reached the max of Benadryl and Demerol.
Alex830
in
CLL Support
1 year ago
Paxlovid/Rituximab
I'm on
rituximab
and have been offered Paxlovid antiviral tablets as i have covid. Is there anyone who has taken this medication and if so what was your experience of it?
I'm on
rituximab
and have been offered Paxlovid antiviral tablets as i have covid. Is there anyone who has taken this medication and if so what was your experience of it?
BernardBear
in
NRAS
1 year ago
Rituximab and working in school
I had my first infusion in January and will be on the 2yr protocol for
rituximab
. Thanks for any advice shared 🙂
I had my first infusion in January and will be on the 2yr protocol for
rituximab
. Thanks for any advice shared 🙂
Seren65
in
Vasculitis UK
1 year ago
Rituximab Infusion
Hi , I had my first
Rituximab
infusion on 10th and then again on the 24th March. I’ve had numerous types of tablets / injections but unfortunately all had failed.
Hi , I had my first
Rituximab
infusion on 10th and then again on the 24th March. I’ve had numerous types of tablets / injections but unfortunately all had failed.
jon3120
in
LUPUS UK
1 year ago
Rituximab Reaction
I guess that means no more
Rituximab
now for me 😪 My consultant is going to go some research to see what other options there are for me. Unfortunately I react really severely to prednisone in the long term and azathioprine too.
I guess that means no more
Rituximab
now for me 😪 My consultant is going to go some research to see what other options there are for me. Unfortunately I react really severely to prednisone in the long term and azathioprine too.
madonbrew
Pioneer
in
Chronic Pancreatitis Support
1 year ago
Rituximab timing of Covid2 vaccination
the RA patients, the median time from the last
rituximab
infusion was 267 days for responders, decreasing to 137 days for those with a weak response (anti-spike antibody concentration 5–69 units/mL), and 107 days for nonresponders (<5 units/mL).
the RA patients, the median time from the last
rituximab
infusion was 267 days for responders, decreasing to 137 days for those with a weak response (anti-spike antibody concentration 5–69 units/mL), and 107 days for nonresponders (<5 units/mL).
AgedCrone
in
NRAS
1 year ago
Relapse vs flare
Two years ago I reached remission with
rituximab
prednisone and now on azathioprine. I've been feeling not quite right for a little and have bloods done every 4 weeks to keep an eye on me.
Two years ago I reached remission with
rituximab
prednisone and now on azathioprine. I've been feeling not quite right for a little and have bloods done every 4 weeks to keep an eye on me.
Vqueen
in
Vasculitis UK
1 year ago
immunosuppressants and Covid vaccine
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (
rituximab
) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
I was told by my nephrologist that I should wait 3 months to get the current Covid vaccine until my immunosuppressive medication (
rituximab
) wears off because I won’t mount a good response if I get it now. Has anyone been told similar advice?
MsAmyM
in
Kidney Disease
9 months ago
Newly diagnosed GPA without renal involvement. Sorry it’s long.
If anyone cares to share positive
Rituximab
experiences that would be lovely.
If anyone cares to share positive
Rituximab
experiences that would be lovely.
SusanEleven
in
Vasculitis UK
1 year ago
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