Experiences with

Rituximab

I am on 6 monthly Rituximab Infusions, Mepacrine, Dermovate Cream, and maintenance Steroids 5 mg per day. Enjoy your Bank Holiday. X

Got home at around 20:30 after first cycle of Rituximab. Had a poor night's sleep on the ward as usual, so hoping to sleep well tonight. No major dramas during the infusion. Bit of a headache and feel like I'm on fire but generally OK. Next cycle is Tuesday next week so one down three to go.

Had my last infusion of Rituximab today. A doctor came to speak with me, apparently my cll is not responding to the infusions. They are hoping that this last dose will trigger a reaction but she is doubtful.

have received in the previous 6 months immunosuppressive therapy for a solid organ transplant ●those who are receiving or have received in the previous 3 months targeted therapy for autoimmune disease, such as JAK inhibitors or biologic immune modulators including ●B-cell targeted therapies (including rituximab

acalabrutinib - duvelisib - ibrutinib - idelalisib - pirtobrutinib - zanabrutinib rituximab - obinutuzumab - venetoclax - Learn More Managing Common Side Effects Chemoimmunotherapy Drug Types and Classes Clinical Trials

Hi I am about to complete the Flair Trial, having completed 6 years on the ibrutinib and rituximab arm in March 2024. I have decided to follow through with the Static trial where patients will be either off or on ibrutinib.

Pending the results of some further tests it’s been suggested that rituximab could be the next step. Thanks for reading. We felt like we were getting a good understanding of rheumatoid arthritis but now there’s a whole lot more to learn ☹️

I was able to be stabilised in the hospital.Taken off Ibrutinib,fed antibiotics,steroid's, oxygen and morphine for pain relief.The glands were a gradual build up,put down to just fighting an infection until I was admitted.So plan B was instigated a couple of days ago..now on to the Venetoclax and Rituximab

I've been on rituximab and Lefludomide for about ten years and all is reasonably stable. However over about five years I've developed IBS symptoms - wont repeat them here. They do limit what I can do and wonder if anyone else has suffered from them.

Morning all, I had my 1st dose of rituximab & 9 days later I am in full flare mode. In fact I haven’t fleck this bad since I was diagnosed 15 years ago 🙄 My original concern was swollen feet but this is something else.

at 46 I’m supper stressed and just looking for anyone that has any experience with Rituximab. Thanks ( I’m a little all I’ve the place in my head at the moment)

I have had a call today from my macmillan nurse and I am to have four rounds of Rituximab starting on Monday as my bloods counts are not good. CT scan also booked. Not looking forward to this but needs must. Love and strength to all.

Hi I am coming up to year 6 on the Flair trial, on the ibrutinib and rituximab arm. Ibrutinib has worked very well for me with none of the major side effects, but many irritating minor side effects.

My ANCA level was down to 0 having been >177, over the past 6 months though my ANCA level is 30 and symptoms are coming back, my rheumatologist wants to try me on Rituximab.

My treatment physician throughout the time prescribed new drug Rituximab 750mg per week for a month which shown absolute positive result and increased my blood platelets and my health became to a state of normal until July 2023.

I had my second ritibumax Infusion on 5th June. For the last three weeks my RA seems to be getting worse not better. I'm at the point where getting past 2pm in the afternoon without having to rest is almost impossible due to tiredness plus alot of pain especially in my hands, knees, ankles and shoulders

So, 6 months ago I was offered 2 infusions Abatacept or Rituximab, I went for Abatacept as the first thing they told me was the worst side effect that can happen with Rituximab.

I had these once before during a rituximab ramp up. The nurses came to my rescue , I was wrapped up tighter than the Mummy with blankets, finally a small shot of dilaudid got the job done.

Medication wise I am taking sidelifil (definitely helps with reducing Raynaud's attacks but doesn't stop my hands being cold or the CLE), hydroxy, sulfasalazine and adlimumab (in the process of switching to rituximab). I've tried topical steroids but they made my hands even more tender.

- Any tips you can give me from your rituximab experience. Thank you !!