Search
Search
About
Log in
Join
Experiences with
Richter's syndrome
Posts
Communities
3,354 public posts
Filter results
Husband giving up!!
Hi all, my husband is on week 8 of ventilator,3 of which are on trachy. Ventilation.He has a lot of muscle wastage and can barely move atm.He is fully off sedation and was doing well but has now started refusing physio and even the doctor wanting to examine him!! He mouthed to me the other day that
Hi all, my husband is on week 8 of ventilator,3 of which are on trachy. Ventilation.He has a lot of muscle wastage and can barely move atm.He is fully off sedation and was doing well but has now started refusing physio and even the doctor wanting to examine him!! He mouthed to me the other day that
Popsicle1
in
ICUsteps
4 years ago
Lupus and episcleritis or scleritis?
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis which is inflammation of eye? If so did they resolve ok? What treatments did you get in addition to what you have already? Many thanks
Andfiona
in
LUPUS UK
4 years ago
more about sleep
I am also taking ginger root and ginkgo bilboa (these for tinnitus) so maybe that has helped along with the gaba. Anyway the restless legs is about gone after years so I will keep on taking those 3 things!
I am also taking ginger root and ginkgo bilboa (these for tinnitus) so maybe that has helped along with the gaba. Anyway the restless legs is about gone after years so I will keep on taking those 3 things!
dlr222
in
Restless Legs Syndrome
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
RLS Hot Feet / Cramps
Morning iv just joined this group I have server RLS am on Ropinirole 21mg I take through the day yes they a lot some people say I'm on a to higher but it works for me untill I try to go to sleep I have Insomnia so never sleep ( my feet are so hot all the time does anyone else have this ) I have a fan
Morning iv just joined this group I have server RLS am on Ropinirole 21mg I take through the day yes they a lot some people say I'm on a to higher but it works for me untill I try to go to sleep I have Insomnia so never sleep ( my feet are so hot all the time does anyone else have this ) I have a fan
Xhanthos
in
Restless Legs Syndrome
4 years ago
TTC: Letrozole, NAD, AMA, low AMH/DOR (no IVF), Cambridge IVF
I am interested in trying medications similar to Letrozole and/or NAD to help with my TTC journey as we have been trying for 16mo. I don't have PCOS or problems ovulating on my own but I am considered AMA (advanced maternal age) and have low AMH/DOR where egg quality could be an issue -- I would like
I am interested in trying medications similar to Letrozole and/or NAD to help with my TTC journey as we have been trying for 16mo. I don't have PCOS or problems ovulating on my own but I am considered AMA (advanced maternal age) and have low AMH/DOR where egg quality could be an issue -- I would like
_HMP
in
Fertility Network UK
4 years ago
Enlarged thytoid,?Waiting on dr apt.
This popped up a week ago.trying to get into adr is awful. Nurse said I needed a sonogram. Thyroid issues run in the family.. HELP does this go away ,
This popped up a week ago.trying to get into adr is awful. Nurse said I needed a sonogram. Thyroid issues run in the family.. HELP does this go away ,
Tabbygirl22
in
Thyroid UK
4 years ago
Does RLS ever go away? One week off patch and no issues
I was diagnosed with RLS about 2 years ago and I’ve been on 1mg Neupro since then, after trying another med that didn’t help. Recently I ran out of patches and had a struggle reaching my doctor for a new prescription and then another struggle getting a coupon for a rebate. Long story short, I haven’
I was diagnosed with RLS about 2 years ago and I’ve been on 1mg Neupro since then, after trying another med that didn’t help. Recently I ran out of patches and had a struggle reaching my doctor for a new prescription and then another struggle getting a coupon for a rebate. Long story short, I haven’
Discopage
in
Restless Legs Syndrome
4 years ago
Neupro vs Pregabalin
Tomorrow I take my last .25 tab of Ropinirole. My neurologist is switching me from Gabapentin to Pegabalin which I welcome. I had a welness visit with my GP yesterday and she has messaged me about Neupro. I do not want to go through anything like coming off Ropinirole ever again. My question is which
Tomorrow I take my last .25 tab of Ropinirole. My neurologist is switching me from Gabapentin to Pegabalin which I welcome. I had a welness visit with my GP yesterday and she has messaged me about Neupro. I do not want to go through anything like coming off Ropinirole ever again. My question is which
B534967
in
Restless Legs Syndrome
4 years ago
Fibromyalgia vs Chronic Fatigue
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Can anyone help me with identifying the differences between Fibromyalgia and Chronic Fatigue Syndrome? Are they the same thing? Can you have both? Thank You
Fizzwizz35
in
Fibromyalgia Action UK
4 years ago
Horizant Advice Please
I had my first dose last night and had a horrendous night, twitching and little sleep. How many days should I take it, before I give it up completely? I wouldn't say it was an allergic reaction, but just not the one I was hoping to get. The doctor told me to stop the Gabepentin cold turkey, which I did
I had my first dose last night and had a horrendous night, twitching and little sleep. How many days should I take it, before I give it up completely? I wouldn't say it was an allergic reaction, but just not the one I was hoping to get. The doctor told me to stop the Gabepentin cold turkey, which I did
Rwall
in
Restless Legs Syndrome
4 years ago
Antidepressants
I have been diagnosed with chronic fatigue/fibromyalgia. Can someone recommend an antidepressant that won’t affect my restless legs but will help with the chronic fatigue/pain and could you say whether this is a sedating antidepressant or an energizing antidepressant. They want to put me on amitriptyline
I have been diagnosed with chronic fatigue/fibromyalgia. Can someone recommend an antidepressant that won’t affect my restless legs but will help with the chronic fatigue/pain and could you say whether this is a sedating antidepressant or an energizing antidepressant. They want to put me on amitriptyline
Mum007
in
Restless Legs Syndrome
4 years ago
Ropinirole withdrawal experience?
I am currently 1 week into this activity dropping 0.25 MG every 2 weeks (planned) & have been getting RLS augmentation back from 13:00 until bedtime now each day. The plan is to wait for these symptoms to subside then make the next 0.25 MG drop. Any experience as to how long this first stage takes as
I am currently 1 week into this activity dropping 0.25 MG every 2 weeks (planned) & have been getting RLS augmentation back from 13:00 until bedtime now each day. The plan is to wait for these symptoms to subside then make the next 0.25 MG drop. Any experience as to how long this first stage takes as
joepublic
in
Restless Legs Syndrome
4 years ago
What does "High" mean really?
If I have antibodies flagged as "high" on a blood test which are associated with Sjogren's (Anti-SS-B), Polymyositis (Anti-Jo-1) and SLE (Ribosomal P), does that mean I have all three autoimmune diseases? I was originally confirmed with Lupus. I'm relatively new to all this & these labs were 1/7/21
If I have antibodies flagged as "high" on a blood test which are associated with Sjogren's (Anti-SS-B), Polymyositis (Anti-Jo-1) and SLE (Ribosomal P), does that mean I have all three autoimmune diseases? I was originally confirmed with Lupus. I'm relatively new to all this & these labs were 1/7/21
MotorCityGirl
in
LUPUS UK
4 years ago
Electrifying leg/foot cramps worse! Is this a sign of augmentation from Ropinirole?
Does anyone experience electrifying cramps from the hips all the way to the feet and toes? Been on one mg of Ropinirole for about 2 years. I have to "walk" during the day when sitting computer for the fippin urgency to move my legs. This worsens in the evenings so sitting down to watch a TV show is not
Does anyone experience electrifying cramps from the hips all the way to the feet and toes? Been on one mg of Ropinirole for about 2 years. I have to "walk" during the day when sitting computer for the fippin urgency to move my legs. This worsens in the evenings so sitting down to watch a TV show is not
Write4u
in
Restless Legs Syndrome
4 years ago
Can buprenophine help with rls
So, because i am an addict the oxycodone was unsuccessful, I took all the 2 weeks pills in about 4 days then bought street morphine sulphate (susbitol) to get through the rest of the 10 days, well it didn't take long to build up an 800mg a day habit, I took one 200mg tablet over the last 19 hrs I am
So, because i am an addict the oxycodone was unsuccessful, I took all the 2 weeks pills in about 4 days then bought street morphine sulphate (susbitol) to get through the rest of the 10 days, well it didn't take long to build up an 800mg a day habit, I took one 200mg tablet over the last 19 hrs I am
velosolex
in
Restless Legs Syndrome
4 years ago
Advice please: has anyone here who has implanted a euploid embryo after PGS got a positive combined screening test for Down Syndrome?
Hi all, Looking for similar experiences here, hope you ladies don’t mind. So our little euploid embryo (our last one!), which we had PGS tested last year, is now unbelievably 14 weeks! I need to pinch myself everyday - it has been an emotional roller coaster every week! Last week when we had our dating
Hi all, Looking for similar experiences here, hope you ladies don’t mind. So our little euploid embryo (our last one!), which we had PGS tested last year, is now unbelievably 14 weeks! I need to pinch myself everyday - it has been an emotional roller coaster every week! Last week when we had our dating
Bettyjoy
in
Fertility Network UK
4 years ago
Polyhydramnios at 20 weeks?
Has anyone had this? I’ve never seen someone have this so early before. It’s normally a lot later on in pregnancy! We have a referral to Fetal medicine tomorrow and I’m worried
Has anyone had this? I’ve never seen someone have this so early before. It’s normally a lot later on in pregnancy! We have a referral to Fetal medicine tomorrow and I’m worried
Starfruit1715
in
Pregnancy and Parenting Support
4 years ago
Looking for a little bit of hope
Hello everyone. I’m just looking for a little bit of hope. My first round of IVF failed, I didn’t even make it to two weeks - I miscarried at 5 days post transfer despite being maxed out on hormones. We had our remaining embryos tested and they had chromosomal abnormalities and had to be discarded. So
Hello everyone. I’m just looking for a little bit of hope. My first round of IVF failed, I didn’t even make it to two weeks - I miscarried at 5 days post transfer despite being maxed out on hormones. We had our remaining embryos tested and they had chromosomal abnormalities and had to be discarded. So
hertsicsi1
in
Fertility Network UK
4 years ago
Proferrin
Anyone heard of this ad I am searching for a iron supplements that cause the least sides. https://badgut.org/information-centre/product-reviews/proferrin-heme-iron-polypeptide/
Anyone heard of this ad I am searching for a iron supplements that cause the least sides. https://badgut.org/information-centre/product-reviews/proferrin-heme-iron-polypeptide/
WorkingProgress
in
Pernicious Anaemia Society
4 years ago
eosinophilic fasciitis
Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't sure what it is that I have - I certainly have morphea and scleroderma plus this. Can anyone add any information on this? Has caused the skin
Does anyone have experience of this condition? I've been told that it is a component in unclassified connective tissue disease - in other words, doctors aren't sure what it is that I have - I certainly have morphea and scleroderma plus this. Can anyone add any information on this? Has caused the skin
knoppia
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
1
...
53
54
55
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest