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New here—coming off ropinirole
Found this forum at 4am…you all know the drill! Diagnosed with RLS through a sleep study (performed because of insomnia and shallow sleep/frequent wakes) Jan 2020. Doc (who I am no longer seeing) prescribed 4mg of ropinirole daily, which I now know is a bonkers dose to start with. Once I figured out
Found this forum at 4am…you all know the drill! Diagnosed with RLS through a sleep study (performed because of insomnia and shallow sleep/frequent wakes) Jan 2020. Doc (who I am no longer seeing) prescribed 4mg of ropinirole daily, which I now know is a bonkers dose to start with. Once I figured out
Frustrated-RLS
in
Restless Legs Syndrome
3 years ago
Pramipexole & RLS
Hi, I have had RLS for a very long time, over 25 years I am 72 now, I worked as a printer on night shift for40 years, I am retired now I do not sleep much at night with my legs and arms on the move, I have found over the years when my RLS gets really bad, to get up and do something physical, no way can
Hi, I have had RLS for a very long time, over 25 years I am 72 now, I worked as a printer on night shift for40 years, I am retired now I do not sleep much at night with my legs and arms on the move, I have found over the years when my RLS gets really bad, to get up and do something physical, no way can
Barrylegs
in
Restless Legs Syndrome
3 years ago
Eustachian tube disfunction and Sjogren's? Anyone have this and any useful tips on dealing with it?
Hello All, wondering if you can help me? I have SLE & Sjogren's. Have had the dry eyes for several years and now in the past few months developed a dry mouth and blocked left ear & nostril. Also have tingling & numbness on the left side of the face which is being investigated - maybe trigreminal neuralgia
Hello All, wondering if you can help me? I have SLE & Sjogren's. Have had the dry eyes for several years and now in the past few months developed a dry mouth and blocked left ear & nostril. Also have tingling & numbness on the left side of the face which is being investigated - maybe trigreminal neuralgia
gemim
in
LUPUS UK
3 years ago
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Medication review
I have decided to ask my GP for a medication review after having too many nights with horrendous rls and concerns about the amount of medication I take and the suspicious that my surgery practice hands out tablets like smarties. I would appreciate any advice I could say to my GP over a telephone consultation
I have decided to ask my GP for a medication review after having too many nights with horrendous rls and concerns about the amount of medication I take and the suspicious that my surgery practice hands out tablets like smarties. I would appreciate any advice I could say to my GP over a telephone consultation
Hoochybaby
in
Restless Legs Syndrome
3 years ago
Tramadol
Would like to hear about anyone’s experience with Tramadol. I have had Zero luck with all the regular meds for rls. I just have so many side effects. I was having some luck with Tramadol and would only take if rls got real bad, but the last time it GAVE me restless legs! Not only that but it made
Would like to hear about anyone’s experience with Tramadol. I have had Zero luck with all the regular meds for rls. I just have so many side effects. I was having some luck with Tramadol and would only take if rls got real bad, but the last time it GAVE me restless legs! Not only that but it made
Nosleepatall
in
Restless Legs Syndrome
3 years ago
Why Am I Taking Butyrate?
A lot of us take a number of supplements. This thread is to make the case for Butyric Acid - Butyrate. I started taking it because some guy on another forum said Niacin and Butyrate "cured" his Parkinson's, and then later I noticed he was self diagnosed. This does not mean he was wrong. So please, anybody
A lot of us take a number of supplements. This thread is to make the case for Butyric Acid - Butyrate. I started taking it because some guy on another forum said Niacin and Butyrate "cured" his Parkinson's, and then later I noticed he was self diagnosed. This does not mean he was wrong. So please, anybody
Bolt_Upright
in
Cure Parkinson's
3 years ago
Anyone have face vibrations on lyrica
I was on 1500 mg gabapentin and just switched to 250 mg of lyrica which is 1/6 the gabapentin which worked. But now I have face vibrations and then restless legs. It don't understand why that amount of lyrica doesn't work when it is the equivalent of the 1500 mg of gabapentin that does.
I was on 1500 mg gabapentin and just switched to 250 mg of lyrica which is 1/6 the gabapentin which worked. But now I have face vibrations and then restless legs. It don't understand why that amount of lyrica doesn't work when it is the equivalent of the 1500 mg of gabapentin that does.
SueJohnson
in
Restless Legs Syndrome
3 years ago
Sensitive post- a bit hope for recurring miscarriages viability scan done ✅
Some might know me I've been here nearly 7 years! Wish I'd found the site earlier into our journey. We endeared a long 7 year struggle due to a huge delay in my endometriosis 3 surgeries and a chemical pregnancy. But happily we had our daughter Francesca in June 2019. The pregnancy was full of anxiety
Some might know me I've been here nearly 7 years! Wish I'd found the site earlier into our journey. We endeared a long 7 year struggle due to a huge delay in my endometriosis 3 surgeries and a chemical pregnancy. But happily we had our daughter Francesca in June 2019. The pregnancy was full of anxiety
Jess1981
in
Fertility Network UK
3 years ago
SIBO and Elevated Liver Enzymes
I have had gastro issues the last two months after using a proton pump inhibitor in May and was finally diagnosed with SIBO on Monday. My GI started me on Rifaximin and Neomycin last night. She did a liver function panel test before I started on the antibiotics and the AST was 52 and the ALT was 73.
I have had gastro issues the last two months after using a proton pump inhibitor in May and was finally diagnosed with SIBO on Monday. My GI started me on Rifaximin and Neomycin last night. She did a liver function panel test before I started on the antibiotics and the AST was 52 and the ALT was 73.
Pain12345
in
Pernicious Anaemia Society
3 years ago
Tips for 2ww anxiety
Hi, I'm starting progynova tomorrow ready for my first FET. I found when I did the fresh round that I got quite anxious and stressed in the 2ww. I'm sure I've read on here that people have used some mindfulness or meditation apps while going through IVF. Has anyone got any recommendations for which apps
Hi, I'm starting progynova tomorrow ready for my first FET. I found when I did the fresh round that I got quite anxious and stressed in the 2ww. I'm sure I've read on here that people have used some mindfulness or meditation apps while going through IVF. Has anyone got any recommendations for which apps
VLGX
in
Fertility Network UK
3 years ago
I'm up again. Cant sleep. Cant settle
I have RLS. Some times it affects my arms and creates a general sense of physical restlessness. I just cant settle in bed and try to sleep.I take pramipexole each evening but it doesnt always stop the physical discomfort and restlessness. I am prescribed Tramadol for pain relief. Some nights I just
I have RLS. Some times it affects my arms and creates a general sense of physical restlessness. I just cant settle in bed and try to sleep.I take pramipexole each evening but it doesnt always stop the physical discomfort and restlessness. I am prescribed Tramadol for pain relief. Some nights I just
Forgetmenotblue
in
Restless Legs Syndrome
3 years ago
Ketamine Infusion Therapy
In the next week or so I will be starting a series of ketamine infusions for treatment resistant depression 🤞. While researching the therapy I came across several articles on how ketamine infusions and oral ketamine are being used and studied for RLS relief. Theory behind it (which I would preface
In the next week or so I will be starting a series of ketamine infusions for treatment resistant depression 🤞. While researching the therapy I came across several articles on how ketamine infusions and oral ketamine are being used and studied for RLS relief. Theory behind it (which I would preface
ziggypiggy
in
Restless Legs Syndrome
3 years ago
SSRI withdrawal and RLS
I'm 63 and have been on antidepressants of one type or another for over 30 years. I started on nortryptiline, switched to paxil, effexor, celexa, and have been on lexapro (escitalopram) for nearly two decades, About seven years ago, I developed RLS. It started gradually, and has increased in frequency
I'm 63 and have been on antidepressants of one type or another for over 30 years. I started on nortryptiline, switched to paxil, effexor, celexa, and have been on lexapro (escitalopram) for nearly two decades, About seven years ago, I developed RLS. It started gradually, and has increased in frequency
BAK524
in
Restless Legs Syndrome
3 years ago
RLS COPING MECHANISMS
What I might do to calm my legs before bedtime: 1. Stretching 2. Messaging 3. Walking about 4. Drink a glass of water 5. Take a bath to relax 6. Make myself a cup of Pukka Nighttime Tea 7. DISTRACTION: Looking at old photo albums, play Bridge or Scrabble on phone, try on clothes, do my nails. 8.
What I might do to calm my legs before bedtime: 1. Stretching 2. Messaging 3. Walking about 4. Drink a glass of water 5. Take a bath to relax 6. Make myself a cup of Pukka Nighttime Tea 7. DISTRACTION: Looking at old photo albums, play Bridge or Scrabble on phone, try on clothes, do my nails. 8.
Felicity21
in
Restless Legs Syndrome
3 years ago
Should I be worried?
Hi, everyone, it’s me again! Another problem; I started to get a bloodshot eye about 3 weeks ago which hasn’t gone away. I contacted the drs surgery and they sent me to the pharmacy who sent me to the optician as an emergency. She did loads of tests and took photos, and informed me that I had a lesion
Hi, everyone, it’s me again! Another problem; I started to get a bloodshot eye about 3 weeks ago which hasn’t gone away. I contacted the drs surgery and they sent me to the pharmacy who sent me to the optician as an emergency. She did loads of tests and took photos, and informed me that I had a lesion
BPlady
in
PMRGCAuk
3 years ago
For those taking more than 1200 mg of gabapentin, I have a suggestion
I take 1500 mg at night divided into 2 doses. 5 days after increasing it to that, I got restless legs again. So I took 300 mg at 5:15, 600 mg at 7:15 and 600 mg at 9:15 and this worked !!!
I take 1500 mg at night divided into 2 doses. 5 days after increasing it to that, I got restless legs again. So I took 300 mg at 5:15, 600 mg at 7:15 and 600 mg at 9:15 and this worked !!!
SueJohnson
in
Restless Legs Syndrome
3 years ago
Side affects of Tramadol!! Lower inhibitions and decision making skills…
Hello everyone. I was wondering if anyone else experienced strange side effects from the narcotics that they’re taking I am taking tramadol and before that I took a different opiate. I have found a really weird side effect while on both! I make decisions that are terrible; or at least highly questionable
Hello everyone. I was wondering if anyone else experienced strange side effects from the narcotics that they’re taking I am taking tramadol and before that I took a different opiate. I have found a really weird side effect while on both! I make decisions that are terrible; or at least highly questionable
serengazer
in
Restless Legs Syndrome
3 years ago
Is it OK to take Ropinirole AND Gabapentin?
I've been on Ropinirole for 4 years and (touchwood) haven't had any augmentation. A week ago I was prescribed Gabapentin for an entirely unrelated condition - I've damaged a nerve in my foot. So I'm now taking both. It's been a mixed blessing so far! From about the 4th night onwards I've had the
I've been on Ropinirole for 4 years and (touchwood) haven't had any augmentation. A week ago I was prescribed Gabapentin for an entirely unrelated condition - I've damaged a nerve in my foot. So I'm now taking both. It's been a mixed blessing so far! From about the 4th night onwards I've had the
Mattly
in
Restless Legs Syndrome
3 years ago
Miralax
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Question I was asked this week Some people suffer from consolation from there medications . And of course all laxatives says no more than 7 days etc. I have a problem storing water in my bowel trued everything. Dr Glen advised I take Miralax which I bought in the USA . Ran out back in Australia
Shumbah
in
Restless Legs Syndrome
3 years ago
It's In The Family
I am retired and living back in the Cornish town of my birth. Although I have been a member of the Rls support group for many years I have just joined the forum. Rls was experienced by my paternal Grandmother, my father, one of his sisters, a cousin and now, as well as myself, my daughter is experiencing
I am retired and living back in the Cornish town of my birth. Although I have been a member of the Rls support group for many years I have just joined the forum. Rls was experienced by my paternal Grandmother, my father, one of his sisters, a cousin and now, as well as myself, my daughter is experiencing
caracalla
in
Restless Legs Syndrome
3 years ago
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