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Richter's syndrome
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MTHFR and Lupus
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
DogHospiceMom
in
LUPUS UK
4 months ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
5 months ago
Heartburn
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
Whippetmama
in
Restless Legs Syndrome
5 months ago
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Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
5 months ago
Light compression gloves
Hi everyone, does anyone have any recommendations for light compression gloves? Not the type with splint inserted. I have a swelling in my right hand (at the outer side below my wrist joint) which is very painful, am waiting to see my RA specialist but haven't received the appointment yet. I take 20mg
Hi everyone, does anyone have any recommendations for light compression gloves? Not the type with splint inserted. I have a swelling in my right hand (at the outer side below my wrist joint) which is very painful, am waiting to see my RA specialist but haven't received the appointment yet. I take 20mg
Manzana1
in
NRAS
5 months ago
Update
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
Numptybrain
in
PMRGCAuk
5 months ago
Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
6 months ago
Worrying blood test results ...
Hello, This is my first post - last week I noticed some quite dark patches under both arms. Was seen by GP in an hour ... gave me Clotrimazole Cream which has reduced the tone of my skin. GP said it was acanthosis nigricans... ,?? Sent me for bloods including LFT and various tests FBC. These came
Hello, This is my first post - last week I noticed some quite dark patches under both arms. Was seen by GP in an hour ... gave me Clotrimazole Cream which has reduced the tone of my skin. GP said it was acanthosis nigricans... ,?? Sent me for bloods including LFT and various tests FBC. These came
Apollo14lmp
in
British Liver Trust
6 months ago
GLP1-R agonist improves Parkinson disease symptoms
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
"Lixisenatide can cross the blood-brain barrier and is known to have neuroprotective properties in https://www.ccjm.org/page/mds-2023/glp1-r-agonist-parkinson#:~:text=Lixisenatide%20can%20cross%20the%20blood,%2C%20University%20Hospital%20Bordeaux%2C%20France.
Gcf51
in
Cure Parkinson's
6 months ago
Sjogrens Syndrome
Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .
Sjogrens, Raynauds, Mixed Connective Tissue Disorder….. was diagnosed maybe 20 years ago with Sjogrens. No treatment was needed other eye drops. Then I started having the dry mouth and dental issues. I currently taking 400mg daily of hydroxychloroquine. The medication has helped tremendously .
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
6 months ago
Urgent Synarel - help!
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
Hi everyone I have just had my final scan today, before ER on Monday. I take my trigger shot tomorrow- and im sure the Dr said to me to take my last Synarel/nafarelin nasal spray as usual (I have been taking it twice each nostril, 9am and 9pm) However, the paper instructions she has written down state
MollyHar
in
Fertility Network UK
6 months ago
Buprenorphine and Medicare Part D
I’ve been on Buprenorphine SL, .5 mg for the past year with excellent results. I had some issues with coverage from the Pharmacy initially, but got that cleared up. I recently retired and now have Medicare, medigap and Part D coverage. I had to go through an appeal process because of it’s off license
I’ve been on Buprenorphine SL, .5 mg for the past year with excellent results. I had some issues with coverage from the Pharmacy initially, but got that cleared up. I recently retired and now have Medicare, medigap and Part D coverage. I had to go through an appeal process because of it’s off license
teakabeagle
in
Restless Legs Syndrome
1 day ago
Tramadol regimen
I'm interested to know if there are people here who largely control their RLS with tramadol. Actually, in doing a search, I can see there are some, but I'm also interested in what their regimen is: Dosage, timing, and anything else that seems relevant. After trying nearly everything else for a few years
I'm interested to know if there are people here who largely control their RLS with tramadol. Actually, in doing a search, I can see there are some, but I'm also interested in what their regimen is: Dosage, timing, and anything else that seems relevant. After trying nearly everything else for a few years
ID158
in
Restless Legs Syndrome
2 days ago
beech band medical device
hi all, Carl Beech inventor of the Beech Band has just partnered with Parkinson’s UK regarding his wearable device the Beech Band as I work in health research I have reached out to Carl to ask about my muscle twitching and restless legs and if the device might be suitable. I am awaiting a response
hi all, Carl Beech inventor of the Beech Band has just partnered with Parkinson’s UK regarding his wearable device the Beech Band as I work in health research I have reached out to Carl to ask about my muscle twitching and restless legs and if the device might be suitable. I am awaiting a response
Zenawarrior73
in
Restless Legs Syndrome
3 days ago
Moving from Gabapentin to Buprenorphine
I have severe RLS and severe PLMD I take the following meds; Losec (omeprazole) 10mg ( for GERD ) , Losartan 100mg ( for high blood pressure) Spironolactone 50mg ( for diuretic and heart) ) Levothyroxine 75mg for thyroid and Magnesium 375mg. Plus of course I am currently on 1800 mg Gabapentin
I have severe RLS and severe PLMD I take the following meds; Losec (omeprazole) 10mg ( for GERD ) , Losartan 100mg ( for high blood pressure) Spironolactone 50mg ( for diuretic and heart) ) Levothyroxine 75mg for thyroid and Magnesium 375mg. Plus of course I am currently on 1800 mg Gabapentin
thorp
in
Restless Legs Syndrome
4 days ago
Hopelessly devoted
5 years on since chatting to a few professionals in controlling RSL and I'm still twisted as I was 5 years ago and yes still alive. Only difference to back then is I now see a neurologist every 3 months (4 visits in now) Brain scan can back all good checking block results coming up in November 2024.
5 years on since chatting to a few professionals in controlling RSL and I'm still twisted as I was 5 years ago and yes still alive. Only difference to back then is I now see a neurologist every 3 months (4 visits in now) Brain scan can back all good checking block results coming up in November 2024.
Legs1970
in
Restless Legs Syndrome
4 days ago
Rebound pain after reducing pramiprexole
I had been taking 3 tabs of .125 mg of pramiprexole for a couple of years, but I have been on dopamine agonists for about a decade (ropinerole to pramiprexole). I also take hydrocodone 10 mgs 2-3x day for both back & leg pain. Finally, I take 300-600 mg of gabapentin as needed. About reducing the
I had been taking 3 tabs of .125 mg of pramiprexole for a couple of years, but I have been on dopamine agonists for about a decade (ropinerole to pramiprexole). I also take hydrocodone 10 mgs 2-3x day for both back & leg pain. Finally, I take 300-600 mg of gabapentin as needed. About reducing the
Dustylee22
in
Restless Legs Syndrome
5 days ago
Methadone Insomnia
I am lucky to be living in Arizona and able to use Medical Marijuana and Methadone. Methadone completely controls my Restless Legs but causes insomnia. I found that taking 2mg Methadone earlier in the day at 2pm instead of before bedtime , I’m able to sleep. I also use Indica strain of marijuana
I am lucky to be living in Arizona and able to use Medical Marijuana and Methadone. Methadone completely controls my Restless Legs but causes insomnia. I found that taking 2mg Methadone earlier in the day at 2pm instead of before bedtime , I’m able to sleep. I also use Indica strain of marijuana
Wickone
in
Restless Legs Syndrome
5 days ago
Sorry, just venting.
Hi, sorry in advance. I'm just feeling the need to vent frustration. So thankyou for reading this. Please scroll past if your low on energy. It's been a while since I posted but have been following. Long story short....rls for over 10 yrs. Aware of and following guidence given here re diet, bloods,
Hi, sorry in advance. I'm just feeling the need to vent frustration. So thankyou for reading this. Please scroll past if your low on energy. It's been a while since I posted but have been following. Long story short....rls for over 10 yrs. Aware of and following guidence given here re diet, bloods,
Annty
in
Restless Legs Syndrome
9 days ago
Pramipexole
I had reduced prami very slowly from 5 x.088 down to two at night. After hols I decided to go cold turkey and stop. I take 2 tramadol x 50mg at 7oc. Quit alcahol as twas a trigger. I stay up as long as I can and about an hr before bedtime take 1mg Noctamid n sleep right thru. I don't want to become dependent
I had reduced prami very slowly from 5 x.088 down to two at night. After hols I decided to go cold turkey and stop. I take 2 tramadol x 50mg at 7oc. Quit alcahol as twas a trigger. I stay up as long as I can and about an hr before bedtime take 1mg Noctamid n sleep right thru. I don't want to become dependent
Maymount
in
Restless Legs Syndrome
9 days ago
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