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20/20! Plus Paris centre closing 😢
Hi Feel really chuffed. Went to specialist. GGT of 29, kidneys 91%, myfortic snd tacrolimus residues great. Fibroscan of 4.8. He said he gave me a 20/20. Next appointment in 3 months, 14.5 months post tx here in France. Only bad news is my tx centre is closing as they have too many in Paris area
Hi Feel really chuffed. Went to specialist. GGT of 29, kidneys 91%, myfortic snd tacrolimus residues great. Fibroscan of 4.8. He said he gave me a 20/20. Next appointment in 3 months, 14.5 months post tx here in France. Only bad news is my tx centre is closing as they have too many in Paris area
Isabelle2
in
British Liver Trust
6 years ago
Acne during pregnancy....2nd Trimester...
Hi Guys, I have had acne since I was young and medicated it since I was a teenager. Obviously when I was TTC and now that I am pregnant I have come off anything Retin A related and potentially harmful. My skin was ok in the initial stages of pregnancy - but this week (16 weeks) I have started to get
Hi Guys, I have had acne since I was young and medicated it since I was a teenager. Obviously when I was TTC and now that I am pregnant I have come off anything Retin A related and potentially harmful. My skin was ok in the initial stages of pregnancy - but this week (16 weeks) I have started to get
Hidden
in
Pregnancy and Parenting Support
6 years ago
Gfr of 10 but feeling well - is this possible ?
Hi everyone. My son is 23 and only 4 months ago we learned he had CKD and his gfr was 20. Last week we were told it is now just 10. Aside from occasional tiredness however he is feeling totally fine. No other symptoms of kidney failure at all. Is this normal ? He wants to delay dialysis as long as possible
Hi everyone. My son is 23 and only 4 months ago we learned he had CKD and his gfr was 20. Last week we were told it is now just 10. Aside from occasional tiredness however he is feeling totally fine. No other symptoms of kidney failure at all. Is this normal ? He wants to delay dialysis as long as possible
mrsm1
in
Dialysis Support
6 years ago
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Gum growth after kidney transplant
Hi, I had a kidney transplant over 2 years ago and recently my gums seem seem to be overtaking my teeth and are quite uncomfortable and bleeding. Is this down to taking prednisolone daily as a steroid?
Hi, I had a kidney transplant over 2 years ago and recently my gums seem seem to be overtaking my teeth and are quite uncomfortable and bleeding. Is this down to taking prednisolone daily as a steroid?
lsg99
in
Kidney Transplant Patient Support
6 years ago
The Supreme Court acknowledges the value of patient support groups and empowered patients.
"...changes in society, and in the provision of healthcare services, should also be borne in mind. One which is particularly relevant in the present context is that it has become far easier, and far more common, for members of the public to obtain information about symptoms, investigations, treatment
"...changes in society, and in the provision of healthcare services, should also be borne in mind. One which is particularly relevant in the present context is that it has become far easier, and far more common, for members of the public to obtain information about symptoms, investigations, treatment
holyshedballs
in
Thyroid UK
6 years ago
Kidney Transplant 35 yrs Dec 2018
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
I’ve been taking Aza my whole transplant life. I currently have a 15cm cyst on my liver. Does anyone know what I may be facing at this stage of my journey? Any stories or advice anyone could share, words of encouragement if any would be delightful.
Andysue
in
British Liver Trust
6 years ago
IgA Nephropathy and transplant outcomes
Hi All, I my mother has been diagnosed with Kidney failure and is undergoing dialysis. Her Kidney failure was due to IgA Nephropathy, which was diagnosed 20 years ago, and has recently resulted in kidney failure. While considering transplant as an option, I would like to understand what outcomes can
Hi All, I my mother has been diagnosed with Kidney failure and is undergoing dialysis. Her Kidney failure was due to IgA Nephropathy, which was diagnosed 20 years ago, and has recently resulted in kidney failure. While considering transplant as an option, I would like to understand what outcomes can
Ashkutty
in
Dialysis Support
6 years ago
DPP4 inhibitors such as Galvus met increases risk of heart failure!
Galvus met, till date claimed as a safe drug has become very popular due to its effectiveness. It is also known as a Gliptin or DPP4 inhibitors. From latest clinical trials , it is seen to have increased risk of heart failure as published in a very recent article in AHA journals of Feb 2018 issue
Galvus met, till date claimed as a safe drug has become very popular due to its effectiveness. It is also known as a Gliptin or DPP4 inhibitors. From latest clinical trials , it is seen to have increased risk of heart failure as published in a very recent article in AHA journals of Feb 2018 issue
namaha
Administrator
in
Diabetes India
6 years ago
Advice on blood results anyone?
Hi All. Thank you for letting me join. I'm not actually diagnosed with lupus yet. I have so many medical mysteries that have been going on for so long I that it will be a relief to know what exactly is going on. I've just picked up some latest blood results. Make sense to anyone? ANA Positive. Nucleolar
Hi All. Thank you for letting me join. I'm not actually diagnosed with lupus yet. I have so many medical mysteries that have been going on for so long I that it will be a relief to know what exactly is going on. I've just picked up some latest blood results. Make sense to anyone? ANA Positive. Nucleolar
missmolly55
in
LUPUS UK
6 years ago
Treatment going ahead for antibody mediated rejection!!
So lady’s and gents, some may remember my post a few weeks ago about being treated with a form of dialysis for antibody mediated rejection, the docs decided to send me home and watch how I go with my tacrolimus levels being high, this has caused a bit of damage to my kidneys and my bloods are much worse
So lady’s and gents, some may remember my post a few weeks ago about being treated with a form of dialysis for antibody mediated rejection, the docs decided to send me home and watch how I go with my tacrolimus levels being high, this has caused a bit of damage to my kidneys and my bloods are much worse
littleleah86
in
British Liver Trust
6 years ago
Switching to another insulin
Can anyone tell actrapid and humulin r similar type of insulins and if some one has to switch from actrapid to humumlin r will ir affec
Can anyone tell actrapid and humulin r similar type of insulins and if some one has to switch from actrapid to humumlin r will ir affec
Nav07
in
Diabetes India
6 years ago
Update on Oxycodone
Hello all my restless friends. I said I would let you know how I fared with starting oxycodone. I have now been taking 5 mg. Longtec (oxycodone) for two weeks. This tablet is slow release over 12 hours. For the first few days I played about with the time of taking and have now settled on 8.00 p.m
Hello all my restless friends. I said I would let you know how I fared with starting oxycodone. I have now been taking 5 mg. Longtec (oxycodone) for two weeks. This tablet is slow release over 12 hours. For the first few days I played about with the time of taking and have now settled on 8.00 p.m
Jelbea
in
Restless Legs Syndrome
6 years ago
the Journey of the KidneyBoy209
Hi, been here silent this whole time getting blood sucked and pumped and watching the screens (Simpsons in Clinic, Computer at home)(and ohh phone everywhere else ryt? ) And now im Transplanted and got this energy that keeps on getting stronger and stronger with each like, im just out trying to get the
Hi, been here silent this whole time getting blood sucked and pumped and watching the screens (Simpsons in Clinic, Computer at home)(and ohh phone everywhere else ryt? ) And now im Transplanted and got this energy that keeps on getting stronger and stronger with each like, im just out trying to get the
KidneyBoy209
in
Kidney Transplant Patient Support
6 years ago
Trying to become pregnant and CKD
Hello! I am in my 30s and was recently diagnosed with CKD3 caused by IgA nephropathy. I would like to become pregnant in the next year. Does anyone have experience they can share with fertility and CKD? Is it possible to become pregnant? What should I be considering? Thanks in advance!
Hello! I am in my 30s and was recently diagnosed with CKD3 caused by IgA nephropathy. I would like to become pregnant in the next year. Does anyone have experience they can share with fertility and CKD? Is it possible to become pregnant? What should I be considering? Thanks in advance!
twolittlebeans
in
Early CKD Support
6 years ago
Dual organ transplant better than one?
we've heard that, since he is diabetic, he might get a kidney transplant sooner if he gets on the list for both a pancreas and a kidney transplant. Is that true? Has anyone experienced that?
we've heard that, since he is diabetic, he might get a kidney transplant sooner if he gets on the list for both a pancreas and a kidney transplant. Is that true? Has anyone experienced that?
pdbetterhalf
in
Kidney Dialysis
6 years ago
First follow up test.
Just got my first lab results back after being diagnosed with ckd. My first gfr was 62 but was told i'am stage 3. Maybe because i'am diabetic with heart disease. Just thought any thing above 60 was stage 2. Anyway doctor said he wants me to get blood work every month now. Ive been pretty strict this
Just got my first lab results back after being diagnosed with ckd. My first gfr was 62 but was told i'am stage 3. Maybe because i'am diabetic with heart disease. Just thought any thing above 60 was stage 2. Anyway doctor said he wants me to get blood work every month now. Ive been pretty strict this
captainlsu
in
Early CKD Support
6 years ago
Annoying Cystic Acne
I have had cystic acne since the birth of my daughter, almost 10 years ago. I'm not sure if it has something to do with hormones or not. I get this type of acne mostly on my face.. and when I get it cleaned and all the infection out, it leaves a "sac-like" area of where the cystic acne is. These places
I have had cystic acne since the birth of my daughter, almost 10 years ago. I'm not sure if it has something to do with hormones or not. I get this type of acne mostly on my face.. and when I get it cleaned and all the infection out, it leaves a "sac-like" area of where the cystic acne is. These places
kaylastewart
in
MY SKIN
6 years ago
Too much protein??!!
I'm 7 months post from kidney transplant, and my nurse they need to redo creatinine and GFR, and that I might have to cut back on protein. Have anyone ever heard that before? Told me if I was going to eat meat with every meal, I should cut back to 3oz, and consider the other foods with protein, like
I'm 7 months post from kidney transplant, and my nurse they need to redo creatinine and GFR, and that I might have to cut back on protein. Have anyone ever heard that before? Told me if I was going to eat meat with every meal, I should cut back to 3oz, and consider the other foods with protein, like
TamekaS
in
Kidney Transplant Patient Support
6 years ago
Here to help
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Here to answer questions you might have about home dialysis and kidney transplantation. I was on dialysis for. A year and recently received a kidney transplant.
Mirna67
in
Kidney Dialysis
6 years ago
Puffy eyes?
Hello everyone. I have been diagnosed with IGA nephropathy (CKD3) earlier this year. I have been retaining a lot of fluid and in particular, have very puffy eyes (worse in the morning but puffy throughout the day). I have tried cooling eye masks, cold tea bags, ice, puffy eye cream. All with no improvement
Hello everyone. I have been diagnosed with IGA nephropathy (CKD3) earlier this year. I have been retaining a lot of fluid and in particular, have very puffy eyes (worse in the morning but puffy throughout the day). I have tried cooling eye masks, cold tea bags, ice, puffy eye cream. All with no improvement
twolittlebeans
in
Early CKD Support
6 years ago
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