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chronic fatigue after transplant?
hi there, New to the group and new liver just under 4 months ago. Generally all is well with the bloods and new liver but experiencing severe fatigue for the last month or so. Had cortisone test and apparently was fine. Litterally want to go back to bed for the day when I wake up and doesn’t improve
hi there, New to the group and new liver just under 4 months ago. Generally all is well with the bloods and new liver but experiencing severe fatigue for the last month or so. Had cortisone test and apparently was fine. Litterally want to go back to bed for the day when I wake up and doesn’t improve
Cw25
in
British Liver Trust
2 years ago
Is it too late?
Hi Everyone, New here. Around the end of 2020 early 2021 I was diagnosed with severe fatty liver through fibroscan f3. Doc wanted to further test by making me an appointment for a liver biopsy. Well, I guess me being in denial, stubborn and fairly young (41 then). I decided to just change my diet
Hi Everyone, New here. Around the end of 2020 early 2021 I was diagnosed with severe fatty liver through fibroscan f3. Doc wanted to further test by making me an appointment for a liver biopsy. Well, I guess me being in denial, stubborn and fairly young (41 then). I decided to just change my diet
NoRainCa
in
British Liver Trust
2 years ago
Liver disease
24 yrs. ago I was diagnosed with Hep. C. 10 yrs. later a doctor told me that I had scarring on my liver which he told me was called fibrosis. a year ago I was told that I had cirrhosis. I had a fibroscan and this new doctor said she wasn't sure if I have cirrhosis or not. I have no symptoms, the blood
24 yrs. ago I was diagnosed with Hep. C. 10 yrs. later a doctor told me that I had scarring on my liver which he told me was called fibrosis. a year ago I was told that I had cirrhosis. I had a fibroscan and this new doctor said she wasn't sure if I have cirrhosis or not. I have no symptoms, the blood
Hidden
in
British Liver Trust
2 years ago
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Statins and PBC
I’m male and was diagnosed with PBC 12 years ago. I’m broadly asymptomatic but because of raised cholesterol levels (caused by PBC?) have recently been prescribed statins. I’ve read that statins shouldn’t be taken by anyone with liver disease and wonder if others have experience of this.
I’m male and was diagnosed with PBC 12 years ago. I’m broadly asymptomatic but because of raised cholesterol levels (caused by PBC?) have recently been prescribed statins. I’ve read that statins shouldn’t be taken by anyone with liver disease and wonder if others have experience of this.
CaptainB
in
PBC Foundation
2 years ago
Happy days
just had a letter re my ultrasound which states that my liver looks a little fatty and there is no sign of any scarring. All my hard workh of dieting exercising and no alcohol has paid off and my appointment in six months will be to discuss if they need to continue with future fibroscans and ultrasounds
just had a letter re my ultrasound which states that my liver looks a little fatty and there is no sign of any scarring. All my hard workh of dieting exercising and no alcohol has paid off and my appointment in six months will be to discuss if they need to continue with future fibroscans and ultrasounds
Hidden
in
British Liver Trust
2 years ago
recurring aceties
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
my son has decompensated cirrhosis and goes to a hospice once a week to get fluid drained - he has a permanent drain fitted . He is getting worried as the last three weeks they’ve drained 5. 7. Then 8 litres. Does this mean his liver is getting worse ? I’ve read that a TIPS procedure could help -
Mango5cm
in
British Liver Trust
2 years ago
With my sister in Ireland after labs came back - please help with advice…
Hello everyone, I posted previously - briefly, my sister has had cognitive decline for about two years and was diagnosed with hypothyroidism about four years ago. Her Levo has just been increased on 50 to 75 mcg. She is not on T3 or NDT. (I didn’t know about NDT until I came on this portal). She only
Hello everyone, I posted previously - briefly, my sister has had cognitive decline for about two years and was diagnosed with hypothyroidism about four years ago. Her Levo has just been increased on 50 to 75 mcg. She is not on T3 or NDT. (I didn’t know about NDT until I came on this portal). She only
Butterflycake1
in
Thyroid UK
2 years ago
Should Alcohol Get a Worse Rap?
A bit out of the usual line of comment or 1uestion. Having never been a drinker ( can't stand the taste of it) I've always been bemused at what a big role alcohol plays in society. It's seen as a key aspects of most of life's big events, as well as being important as location of a social event, as a
A bit out of the usual line of comment or 1uestion. Having never been a drinker ( can't stand the taste of it) I've always been bemused at what a big role alcohol plays in society. It's seen as a key aspects of most of life's big events, as well as being important as location of a social event, as a
Walt1010
in
British Liver Trust
2 years ago
Cirrhosis
Hello everyone. My husband has been diagnosed with cirrhosis. He was admitted into the ICU due to jaundice and liver blood tests being out of control, on August 12. He spent a week in there. He has not had a drink since then and has said he will never drink again. While in the hospital, we were
Hello everyone. My husband has been diagnosed with cirrhosis. He was admitted into the ICU due to jaundice and liver blood tests being out of control, on August 12. He spent a week in there. He has not had a drink since then and has said he will never drink again. While in the hospital, we were
Mls1973
in
British Liver Trust
2 years ago
Anxiety Advice
Hi, I've always been prone to low grade depression, but had never suffered from anxiety until i tried to come off Paroxetine (Seroxat) in 2013, having been on it for a number of years. Even though i weaned myself off slowly over 18 months the anxiety was severe and eventually i gave up, went back on
Hi, I've always been prone to low grade depression, but had never suffered from anxiety until i tried to come off Paroxetine (Seroxat) in 2013, having been on it for a number of years. Even though i weaned myself off slowly over 18 months the anxiety was severe and eventually i gave up, went back on
Judthepud
in
Anxiety Support
2 years ago
specifically about DCD livers
I should start by saying my partner has some anxiety regarding medical issues and has been quite worried since being listed recently- I had asked before about various liver types. Is there anyone here who has received a DCD liver and can let me know the experience. He is very grateful to be offered
I should start by saying my partner has some anxiety regarding medical issues and has been quite worried since being listed recently- I had asked before about various liver types. Is there anyone here who has received a DCD liver and can let me know the experience. He is very grateful to be offered
Rshc
in
British Liver Trust
2 years ago
Cirossis stage 4
my husband has very bad ascites they drained 9 litres out of him he is now full of ascites again he is very uncomfortable having a hard time breathing and sleeping I noticed he is getting more forgetful and his motor skills are declining he also has bad diarrhea and his urine is very dark his docter
my husband has very bad ascites they drained 9 litres out of him he is now full of ascites again he is very uncomfortable having a hard time breathing and sleeping I noticed he is getting more forgetful and his motor skills are declining he also has bad diarrhea and his urine is very dark his docter
Grizz11
in
British Liver Trust
2 years ago
After 15 + months on the transplant list, I've had my transplant!
Just letting the forum know of my change of status. On my second call to QE, Birmingham, there was an instantly more positive vibe about the possible transplant, and the operation took place about 12 hours after arriving at QE on 24/9/22. Surgeons very pleased with outcome. I have been in little-
Just letting the forum know of my change of status. On my second call to QE, Birmingham, there was an instantly more positive vibe about the possible transplant, and the operation took place about 12 hours after arriving at QE on 24/9/22. Surgeons very pleased with outcome. I have been in little-
taar
in
British Liver Trust
2 years ago
Liver cirrhosis
Hi all, Long story short my farther has liver cirrhosis caused by excessive alcohol which was diagnosed some years ago. Unfortunately he will not discuss it and has said in the past some bizzare stuff about it being misdiagnosed that it’s only 0.01% damaged and so on. It’s blatantly clear he has
Hi all, Long story short my farther has liver cirrhosis caused by excessive alcohol which was diagnosed some years ago. Unfortunately he will not discuss it and has said in the past some bizzare stuff about it being misdiagnosed that it’s only 0.01% damaged and so on. It’s blatantly clear he has
Hidden
in
British Liver Trust
2 years ago
Liver Transplant consent letter & liver types
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
hi, my partner has just been accepted onto the transplant list with a UKELD of 56 and blood group A (this is relevant as have been told the wait for this group is shorter). He has just had the consent form and agonised for ages over which boxes to tick in terms of what livers to accept. It seems so ungrateful
Rshc
in
British Liver Trust
2 years ago
Desserts
does any know if desserts are all right to eat with a de compensated liver i have one every night custard choc bun - sweet cakes, read something about there not that good for your the sugar levels in them don't want to waste the hard work i put in with low salt diet every night
does any know if desserts are all right to eat with a de compensated liver i have one every night custard choc bun - sweet cakes, read something about there not that good for your the sugar levels in them don't want to waste the hard work i put in with low salt diet every night
lonmallin50
in
British Liver Trust
2 years ago
high liver enzymes from blood test
hi. I recently had routine blood tests done and when I went for the results the nurse said my liver enzymes were high at 125. She asked me if I drank alcohol and I told her I have about 2 bottles of beer 4 nights a week. She said high liver enzymes are caused by too much alcohol. I was quite taken aback
hi. I recently had routine blood tests done and when I went for the results the nurse said my liver enzymes were high at 125. She asked me if I drank alcohol and I told her I have about 2 bottles of beer 4 nights a week. She said high liver enzymes are caused by too much alcohol. I was quite taken aback
Patdoyle
in
British Liver Trust
2 years ago
Trying to understand tests
I just had a positive antibody test for hep C. However, the PCR did not detect antibodies. I think this means I had hep C in the past (though I didn't know it), but don't have now. Do I still need treatment?
I just had a positive antibody test for hep C. However, the PCR did not detect antibodies. I think this means I had hep C in the past (though I didn't know it), but don't have now. Do I still need treatment?
Sky1927
in
Hepatitis C Trust
2 years ago
thanks to all who responded to Gazyva as monotherapy
A big THANK YOU to everyone who responded to my question about the gazyva as a mono therapy .. it is really helpful to learn of your experience of when you were diagnosed and whether you are deleted , or unmutated , etc. ..... when you started treatment and with what you were treated with .and how
A big THANK YOU to everyone who responded to my question about the gazyva as a mono therapy .. it is really helpful to learn of your experience of when you were diagnosed and whether you are deleted , or unmutated , etc. ..... when you started treatment and with what you were treated with .and how
craterlake
in
CLL Support
2 years ago
SPIRONOLACTONE . WHEN CAN I STOP TAKING IT?
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
I'm eager to know others experience and advice about Spironolactone. I was prescribed it 2 years ago when I had Ascites. I have never had a repeat of Ascites since that time, have undergone surgery successfully unrelated to liver issues and had no problems post General Anaesthetic. In short I have been
bcsurfer
in
British Liver Trust
2 years ago
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