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Different attitude this time around
I went into remission from PMR in Jan 2020 after just 13 months of PMR. I was initially devastated with the diagnosis as I was active and healthy before this. About six weeks ago following problems with my shoulders and then hands my inflammation markers were normal. Two weeks ago I felt dreadful with
I went into remission from PMR in Jan 2020 after just 13 months of PMR. I was initially devastated with the diagnosis as I was active and healthy before this. About six weeks ago following problems with my shoulders and then hands my inflammation markers were normal. Two weeks ago I felt dreadful with
Rosina1871
in
PMRGCAuk
4 years ago
Awaiting a diagnosis
Thank you for accepting my join request. I am Very sorry about the long post I was born in the early 80s and at 18months old I was diagnosed with congenital nystagmus (no family history of the condition) I have a partially sighted but again to explanation as to why as nystagmus alone does not necessarily
Thank you for accepting my join request. I am Very sorry about the long post I was born in the early 80s and at 18months old I was diagnosed with congenital nystagmus (no family history of the condition) I have a partially sighted but again to explanation as to why as nystagmus alone does not necessarily
Madona_1981
in
Ataxia UK
4 years ago
Has COVID-19 affected how your glaucoma has been treated or managed? Has it caused you anxiety?
Anglia Ruskin university are running an online survey about whether the pandemic has had an impact on the management of eye disorders for patients, and whether it has caused undue stress and anxiety. If you would like to take part, please click here: https://angliaruskin.onlinesurveys.ac.uk/eye-disease-managment-during-covid
Anglia Ruskin university are running an online survey about whether the pandemic has had an impact on the management of eye disorders for patients, and whether it has caused undue stress and anxiety. If you would like to take part, please click here: https://angliaruskin.onlinesurveys.ac.uk/eye-disease-managment-during-covid
Kelly_GlaucomaUK
Administrator
in
Glaucoma UK
4 years ago
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Injection and heat masks
I normally use a heated mask to help with my dry eyes and mild blepharitis. I had my Eyelea injection this morning and wondered if it is okay to use the heated mask tonight after having had the injection. Thanks for any help
I normally use a heated mask to help with my dry eyes and mild blepharitis. I had my Eyelea injection this morning and wondered if it is okay to use the heated mask tonight after having had the injection. Thanks for any help
Koalajane
in
Macular Society
4 years ago
STY. EYE.
this is so minor..but so annoying in the last 3 months I have had 3 styes. I assume this is prednisone stress related (stress? what on earth could be stressing us?? ) but they seem to be lasting longer and longer. now on week 2 with one higher up in the eye lid. ANYONE?? help! what to do.
this is so minor..but so annoying in the last 3 months I have had 3 styes. I assume this is prednisone stress related (stress? what on earth could be stressing us?? ) but they seem to be lasting longer and longer. now on week 2 with one higher up in the eye lid. ANYONE?? help! what to do.
yogabonnie
in
PMRGCAuk
4 years ago
TOFACITINIB
Hi all, Just wondering if anyone is taking Tofacitinib alongside Methotrexate injections and if it is a good biologic as I have been offered it and had not heard of it before just a bit scared of any bad side effects to expect as Enbrel was good but cannot take it anymore as too many infections occured
Hi all, Just wondering if anyone is taking Tofacitinib alongside Methotrexate injections and if it is a good biologic as I have been offered it and had not heard of it before just a bit scared of any bad side effects to expect as Enbrel was good but cannot take it anymore as too many infections occured
14penny
in
NRAS
4 years ago
I’m human. When you cut me, I will bleed.
This journey that life is taking me on. It’s a road i would have never traveled on if it were up to me.... but- it’s not. The world we live in now, 2020- there is so much hate. Too much. Even toward ourselves...especially towards ourselves. I had to embark on this journey once traveled before, but
This journey that life is taking me on. It’s a road i would have never traveled on if it were up to me.... but- it’s not. The world we live in now, 2020- there is so much hate. Too much. Even toward ourselves...especially towards ourselves. I had to embark on this journey once traveled before, but
Ubud2021
in
Anxiety and Depression Support
4 years ago
I’m human. When you cut me, I will bleed.
This journey that life is taking me on. It’s a road i would have never traveled on if it were up to me.... but- it’s not. The world we live in now, 2020- there is so much hate. Too much. Even toward ourselves...especially towards ourselves. I had to embark on this journey once traveled before, but
This journey that life is taking me on. It’s a road i would have never traveled on if it were up to me.... but- it’s not. The world we live in now, 2020- there is so much hate. Too much. Even toward ourselves...especially towards ourselves. I had to embark on this journey once traveled before, but
Ubud2021
in
Anxiety and Depression Support
4 years ago
Successful 1st injection
My Rebif treatment finally came and yesterday was my first injection! It was very easy. I never felt the needle or burning a sensation or flu like symptoms...All smiles... I’m praying you all are doing alright!
My Rebif treatment finally came and yesterday was my first injection! It was very easy. I never felt the needle or burning a sensation or flu like symptoms...All smiles... I’m praying you all are doing alright!
Newlyfe
in
My MSAA Community
4 years ago
Endometriosis and Pregnenolone
Hello ladies. I was wondering if anyone has experience taking Pregnenolone with endometriosis? I had a laporascopy 2 months back to remove my endo and a cyst. I feel worse now then I did pre-op; energy is super low, I have problems sleeping, extreme bloating, pelvic pain (daily) and a foggy brain
Hello ladies. I was wondering if anyone has experience taking Pregnenolone with endometriosis? I had a laporascopy 2 months back to remove my endo and a cyst. I feel worse now then I did pre-op; energy is super low, I have problems sleeping, extreme bloating, pelvic pain (daily) and a foggy brain
kfit
in
Endometriosis UK
4 years ago
Silicone bubble returns
The silicone bubble in my eye, which I received a few years ago from an Avastin injection, had been gone for many months - floated out of view. The other day I was working on something, from a standing position looking down at it, when the bubble floated back into my field of vision. I persuaded my
The silicone bubble in my eye, which I received a few years ago from an Avastin injection, had been gone for many months - floated out of view. The other day I was working on something, from a standing position looking down at it, when the bubble floated back into my field of vision. I persuaded my
Jihm
in
Macular Society
4 years ago
Painful eyes
Hello. I’ve had dry AMD diagnosed for around 9 years now, and during the last two ears have had a lot of discomfort , occasionally pain, in my left eye. I feel this especially when lying down. I,ve been seen by an ophthalmologist and GP, neither of which have been able to help. I’ve been prescribe lubricants
Hello. I’ve had dry AMD diagnosed for around 9 years now, and during the last two ears have had a lot of discomfort , occasionally pain, in my left eye. I feel this especially when lying down. I,ve been seen by an ophthalmologist and GP, neither of which have been able to help. I’ve been prescribe lubricants
Bradders53
in
Macular Society
4 years ago
Joke.
I do not normally post jokes, but I do posses a wicked sense of humour that I do not display here very often. This one was sent to me by my daughter at 5am this morning, no chance of going back to sleep again after that. ----------------------------------------------------------------------------- Do
I do not normally post jokes, but I do posses a wicked sense of humour that I do not display here very often. This one was sent to me by my daughter at 5am this morning, no chance of going back to sleep again after that. ----------------------------------------------------------------------------- Do
2greys
in
Lung Conditions Community Forum
4 years ago
which company is best for Trastuzumab injection??
Hi everyone, My mother is a breast cancer patient.Type :HER2 STRONGLY POSITIVE.Doctor adviced to give Trastuzumab injection 18 cycle.I want to which company Trastuzumab injection is best and original ?? Doctor suggested companies 1.Biceltis injection 2.canmab injection 3.hertraz injection 4.herceptin
Hi everyone, My mother is a breast cancer patient.Type :HER2 STRONGLY POSITIVE.Doctor adviced to give Trastuzumab injection 18 cycle.I want to which company Trastuzumab injection is best and original ?? Doctor suggested companies 1.Biceltis injection 2.canmab injection 3.hertraz injection 4.herceptin
Yuvaguru
in
Breast Cancer India
4 years ago
Reverse Fartleks :)
No...not trying to breathe through both ends of my body like I was on Day one, Week one :) "Fartlek, which means "speed play" in Swedish, is continuous training with interval training" (Wikipedia) I've been sidelined for a wee while because of an eye injury but got cleared just this morning to run again
No...not trying to breathe through both ends of my body like I was on Day one, Week one :) "Fartlek, which means "speed play" in Swedish, is continuous training with interval training" (Wikipedia) I've been sidelined for a wee while because of an eye injury but got cleared just this morning to run again
Irish-John
Graduate
in
Couch to 5K
4 years ago
Diabetic macular oedema and cataracts
Hi, I have DMO and currently having injections in both eyes. I went to the opticians this week and although I have mentioned cataracts at the eye clinic it has not been discussed. The optician said my cataract in my left eye had progressed a fair bit. Is it correct that it will not be operated on whilst
Hi, I have DMO and currently having injections in both eyes. I went to the opticians this week and although I have mentioned cataracts at the eye clinic it has not been discussed. The optician said my cataract in my left eye had progressed a fair bit. Is it correct that it will not be operated on whilst
Koalajane
in
Macular Society
4 years ago
Panicking - have I been taking the wrong supplements?
So I just realised I was taking Coq10 600 mg but the Ubiquinone rather than the Ubiquinol. I could kick myself for this mistake! Does this matter? I am already on Stims and I am now freaking out. Does it matter? What’s the difference?
So I just realised I was taking Coq10 600 mg but the Ubiquinone rather than the Ubiquinol. I could kick myself for this mistake! Does this matter? I am already on Stims and I am now freaking out. Does it matter? What’s the difference?
Chegotsi
in
Fertility Network UK
4 years ago
Is anyone taking Remsima by subcutaneous injection?
I am about to change from IV infusions to SC injections to avoid the hospital visit at this time of Covid 19. The dosage is 120mg every two weeks as opposed to 140mg every eight weeks. This dose is for all weights - but I'm 45kg, and it would be the same dose for someone of 75kg! I also have Methotrexate
I am about to change from IV infusions to SC injections to avoid the hospital visit at this time of Covid 19. The dosage is 120mg every two weeks as opposed to 140mg every eight weeks. This dose is for all weights - but I'm 45kg, and it would be the same dose for someone of 75kg! I also have Methotrexate
bienassis
in
NRAS
4 years ago
Anyone have dry or swollen eyes and can check this photo please/ advise on drops?
Hello, hope everyone as ok as possible. My eyes have been a bit dodgy for a while, most times the lupus has flared and I’ve been in hospital, they’ve been inflamed and red along with the rest of me. Drs have queried various things, including Sjögrens and deeper inflammation like scleritis. Husband
Hello, hope everyone as ok as possible. My eyes have been a bit dodgy for a while, most times the lupus has flared and I’ve been in hospital, they’ve been inflamed and red along with the rest of me. Drs have queried various things, including Sjögrens and deeper inflammation like scleritis. Husband
Melba1
in
LUPUS UK
4 years ago
myopic flashes
hi i’ve been myopic all my life. I’m starting to worry about flashes. I’m pretty sure i’ve had them all my life but they have been more intense. I saw an ophthalmologist and I have vitreous syneresis and peripheral cystoid degeneration which is common and benign. should I be worried? I’m 25 and my contact
hi i’ve been myopic all my life. I’m starting to worry about flashes. I’m pretty sure i’ve had them all my life but they have been more intense. I saw an ophthalmologist and I have vitreous syneresis and peripheral cystoid degeneration which is common and benign. should I be worried? I’m 25 and my contact
michellenavarn
in
Macular Society
4 years ago
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