Painful eyes

[Bradders53]

Hello. I’ve had dry AMD diagnosed for around 9 years now, and during the last two ears have had a lot of discomfort , occasionally pain, in my left eye. I feel this especially when lying down. I,ve been seen by an ophthalmologist and GP, neither of which have been able to help. I’ve been prescribe lubricants, which I use , but they don’t seem to help. My sight is worse in the other eye so there doesn’t seem to be a link there.

Does anyone else have this and if so, can they suggest anything to help.m

[Bluegreensea]

Hi Bradders53

I'm sorry to hear about your discomfort.

I was about to post with a similar question.

I have MMD in my left eye. Both eyes ache, around and behind the socket, day to day. My right eye is bloodshot often.

This has happened ever since my first injection two weeks ago.

The pain alternates from eye to eye - it's never in both eyes at the same time.

I've made myself some Manuka honey eye drops using sterile saline solution and this brings temporary comfort.

Like you, I'd really like an explanation because I worry about what might be going on behind the scenes.

Best wishes

BGS

[springcross in reply to Bluegreensea]

Hi Bluegreensea. Have you contacted your eye clinic about this? If not, you really should to be on the safe side. It sounds a bit strange to me. x

[Bluegreensea in reply to springcross]

Hi springcross

Yes, I should really. Thank you for encouraging this. I guess being newly diagnosed, I wondered if I was being hypersensitive and should wait until my next appointment to raise questions.

Bradders, I hope we both get to understand why there is this discomfort. One thing I suspect is an sinuses - perhaps the injection irritates them? However, it doesn't sound like you have injections.

I'll share back with you anyway.

Best wishes

BGS

[springcross in reply to Bluegreensea]

You could be right about the sinuses but it's best to get it checked. Good luck. x

[Bluegreensea in reply to springcross]

Thank you. 🙂

[springcross in reply to Bluegreensea]

You're very welcome. x

[springcross]

Hi Bradders53. I would go back to the GP and ask if he/she could send you for a second opinion. I have wet amd so I can't really advise you other than that. You could always ring the Macular Society helpline and ask advice from them:

0300 3030 111

Good luck. x

[Bradders53 in reply to springcross]

Thanks for all the replies. Because I have dry at least I can rule out reaction to injections. I should try the helpline really. Because I’ve been to the hospital clinic and GP I just kind of assumed it was part of 5e AMD deal and I had to put up with it, but it’s a bit wearing.

[Rosalyn-helpline Partner in reply to Bradders53]

Dear Bradders53,

Please do give us a call.

Pain is not normally associated with the macular condition.

It is worth pursuing your GP again

The Macular Society Advice and Information service is open 9am – 5pm Monday to Friday on 0300 3030 111.

Alternately, you can contact us via: [e-mail]

Kind regards,

[Bluegreensea]

Hi Bradders53

I contacted my eye clinic earlier, and they just got back.

There is no explanation for why my eyes ache and throb. They are satisfied that it's not related to the Eyelea injection.

Back to square one! Do you take any supplements at all? I am currently taking several each day, which two months ago I'd never heard about or considered.

I am now wondering if any of these trigger the ache - which feels also feels tight and dry at times:

Zeaxanthin; Meso-zeaxanthin; Lutein.

CoQ10

Bilberry tincture

Cod liver oil with Vit D

Pro-biotic

And every other day:

Hema-plex

Vit A

It's a mystery! I wish there was more research available.

Perhaps a visit to the Optician for new specs?

BGS 😉

[Bradders53]

Hi. I did take Macushield Gold but it upset my stomach, so now I just eat a large portion of broccoli, kale or similar green veg every day.

Take a lot of meds for other reasons anyway so I don’t really use supplements.

[Hidden]

I randomly get an ache around the orbit of my injected eye. It doesn't last more than an hour or so. I massage the orbit and up side of nose onto forehead where the nerve lies. Asked my clinic about it and they said not to worry but always get any pain checked out.

[Hidden]

Bradders 53

I suffer from: My left eye is "Dry" the right eye is "Wet".

The right eye I have injection every 28 days and the sight is great.

The left eye that is dry I don't have any treatment other than "OPTIVE" drops that have Dual Action Lubricating and Osmoprotective Comfort Solution . I use it three times

a day three drops in my left eye every time.

The last drops to put in is before bed time. This works for me. I don't have any discomfort

or pain or any other condition. I do keep my three time a day drops. I also use in both

my eyes the same Optive drops. The Optive drops do not have alcohol in the solution.

You can buy this "Optive " drops over the counter. but I have mine prescribed by my GP.

I have been using this product for the last ten years my dry eye has remained visually good.

I suggest you see your GP and ask for a prescription and see how you get on.

Best of Luck.

AK.

[Bradders53]

Thanks for your suggestions.

For lubrication I get carbomer gel and VitaPos on prescription and I use Systane in the daytime when I don’t want anything sticky .

I may go back to a GP ( we never see the same one twice) but I did have several scans and saw an ophthalmologist about this two years ago. The doctors are happy that there’s nothing that they call “sinister”.

I have another scan coming up soon as part of the OKKO project so that might be a good starting point.

Thanks again.

Plodding on ...

[ursaw]

Hi, I've had dry AMD for about 4 years. I do not need injections, and the conditions appears t o be stable. I could not see anything if I had to rely on my left eye, which is badly affected, but the right eye is still o.k. I too have continuous discomfort in my left eye. Not badly enough to say it is really painful. What I found that really helps are hot compresses. So I put hot compresses, made with boiled water and make up remover pads, so no danger of infections, on my eyes every morning. But you could do this anytime you feel the need.

Best wishes

[Bradders53 in reply to ursaw]

Thanks ursaw. I have tried compresses, but probably not very regularly .