TOFACITINIB: Hi all, Just wondering if anyone is taking... - NRAS

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TOFACITINIB

14penny profile image
9 Replies

Hi all, Just wondering if anyone is taking Tofacitinib alongside Methotrexate injections and if it is a good biologic as I have been offered it and had not heard of it before just a bit scared of any bad side effects to expect as Enbrel was good but cannot take it anymore as too many infections occured with it. Thanks

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14penny profile image
14penny
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janmary profile image
janmary

I had Tofa last year - with continuing M/X injections . It seemed to work really well for joints and energy levels, but I had gastric symptoms, and my cholesterol went up rather sharply so I had to stop - that was before lockdown, so have just been on M/X since - which isn’t working as well as it once did. Difficult to get the ‘usual’ service from my usually excellent rheum dept at the moment - staff problems I suppose- and GPs are still invisible.

Hope it works well for you!

14penny profile image
14penny in reply to janmary

Thanks for your reply

jacbub103 profile image
jacbub103

I have been taking Tofacitinib on its own for 18 months now and it has worked fantastically for me , life changing x

14penny profile image
14penny in reply to jacbub103

Oh wow thats promising Thanks for reply

RheumerHasIt profile image
RheumerHasIt

I’m taking tofacitinib and Mtx, for almost a year. I was in clinical remission for the first few months, the only side effect I notice was my skin being slightly more prone to oiliness and pimples, and maybe a tiny bit more water retention.

When the winter hit this year, I would still feel little aches and stiffness when the weather got really bad. After a year, I get more stiffness from weather fluctuations even in the summer but everything is still ‘almost’ in remission. :)

14penny profile image
14penny in reply to RheumerHasIt

Thanks for reply sounds hopefull

julie1908 profile image
julie1908

Out of interest was you taking Enbrel while on methotrexate?

14penny profile image
14penny in reply to julie1908

Yes but in tablet form then, but am injecting now

julie1908 profile image
julie1908 in reply to 14penny

How do you know it was the Enbrel causing infections and not the methotrexate?

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