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Positive autoimmune trace in blood results
Hi, I'm 55, have PV, JAK2. On pegasys inteferon 90mcg every two weeks. Keep fit and well with some niggles I thought normal for a post menopausal woman. But my lovely consultant has just sent me a letter re last blood results that apparently picked up a positive autoimmune trace which she wants a rheumatology
Hi, I'm 55, have PV, JAK2. On pegasys inteferon 90mcg every two weeks. Keep fit and well with some niggles I thought normal for a post menopausal woman. But my lovely consultant has just sent me a letter re last blood results that apparently picked up a positive autoimmune trace which she wants a rheumatology
Looolooo
in
MPN Voice
3 days ago
Blurred subtitles
I use subtitles when watching TV because I have a hearing loss. Recently some subtitles have become a bit blurred. I am wondering whether anyone else with glaucoma or cataracts experiences this and whether it is a result of one of these conditions. Thank you.
I use subtitles when watching TV because I have a hearing loss. Recently some subtitles have become a bit blurred. I am wondering whether anyone else with glaucoma or cataracts experiences this and whether it is a result of one of these conditions. Thank you.
Donaloge
in
Glaucoma UK
3 days ago
Hydroxychloroquine advise please
Hi all, I haven’t posted anything for quite a few months as a lot has changed and I thought I would share. In May I was diagnosed with RA by a registrar at RA clinic and put on methotrexate, I took two injections , it made me fell so ill and as I was due to go on holiday in a few weeks decided not
Hi all, I haven’t posted anything for quite a few months as a lot has changed and I thought I would share. In May I was diagnosed with RA by a registrar at RA clinic and put on methotrexate, I took two injections , it made me fell so ill and as I was due to go on holiday in a few weeks decided not
Reflexer
in
NRAS
3 days ago
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Very Anxious
Hi everyone, I am new to this section After a routine check-up with the opthalmist, I have been urgently referred to have YAG iridotomies. My IOP 24 in the right eye and 22.7 in the left. I had been experiencing pain and discomfort in the right eye, which I put down to dry eye, which I have suffered
Hi everyone, I am new to this section After a routine check-up with the opthalmist, I have been urgently referred to have YAG iridotomies. My IOP 24 in the right eye and 22.7 in the left. I had been experiencing pain and discomfort in the right eye, which I put down to dry eye, which I have suffered
Perce74
in
Glaucoma UK
4 days ago
Biologics - when/did you move up to them?
Trying to get a measure of the stages and various meds that treat lupus, and wondering if/when anyone was moved up to biologics like Belimumab and Rituximab. I understand lupus is treated softly softly, as in mildest immune suppressants first and gradually move up the ladder, and biologics are stronger
Trying to get a measure of the stages and various meds that treat lupus, and wondering if/when anyone was moved up to biologics like Belimumab and Rituximab. I understand lupus is treated softly softly, as in mildest immune suppressants first and gradually move up the ladder, and biologics are stronger
smeackles
in
LUPUS UK
5 days ago
Follow up on the IFN types, Options
I noted in that post a thought of using a non pegylated IFN as a temporary measure as Pegasys becomes unavailable. It may not be so out-of-the-box thinking. This reference shows its use, and provides a dose schedule and relative dosing vs PEG. If you are out of viable options, (cannot access Bes or
I noted in that post a thought of using a non pegylated IFN as a temporary measure as Pegasys becomes unavailable. It may not be so out-of-the-box thinking. This reference shows its use, and provides a dose schedule and relative dosing vs PEG. If you are out of viable options, (cannot access Bes or
EPguy
in
MPN Voice
6 days ago
Interferon types, Old and New, what are the options?
In some recent threads this has come up in context of the PEG shortage and there is some confusion. For those interested here are some thoughts on MPN interferon versions. -- There are a many different types of IFNs, with various Greek letters and type classes. For MPNs only two among these many
In some recent threads this has come up in context of the PEG shortage and there is some confusion. For those interested here are some thoughts on MPN interferon versions. -- There are a many different types of IFNs, with various Greek letters and type classes. For MPNs only two among these many
EPguy
in
MPN Voice
7 days ago
Vision deterioration
Good morning all, I haven’t posted for a while which seems a good thing! I am waiting for my next check up at the hospital, my last appointment was the 16th Feb my next follow up is due in November. I now have high OP and this is controlled by Cosopt Preservstive Free drops…. this all came about
Good morning all, I haven’t posted for a while which seems a good thing! I am waiting for my next check up at the hospital, my last appointment was the 16th Feb my next follow up is due in November. I now have high OP and this is controlled by Cosopt Preservstive Free drops…. this all came about
KBIOW
in
Glaucoma UK
8 days ago
Chromogenic Factor X Blood Test
Does anyone use this blood test, instead of or in conjunction with a Protime, to monitor their level of anti-coagulation? Successful? Many thanks for your responses.
Does anyone use this blood test, instead of or in conjunction with a Protime, to monitor their level of anti-coagulation? Successful? Many thanks for your responses.
mburns1401
in
Hughes Syndrome APS Forum
10 days ago
lowered thyroxine
hi all just was wondering 3 weeks ago the doctor told me to put my thyroxine down to 150 mg the first I was on holiday where I ended up having to wear sunglasses all week due to swollen eyes then I got infected dermatitis on my hand needing antibiotics for a week as soon as I got home I ended up with
hi all just was wondering 3 weeks ago the doctor told me to put my thyroxine down to 150 mg the first I was on holiday where I ended up having to wear sunglasses all week due to swollen eyes then I got infected dermatitis on my hand needing antibiotics for a week as soon as I got home I ended up with
Baileyleigh123
in
Thyroid UK
10 days ago
GCA and what I learned today.....
First, I feel the hugs from around the world. xo I also learned that this wonderful forum is a safe place to unload my fears and experience what it was like to be 'really heard' and understood. My husband was talking to me about my upcoming visit to the rheumatologist on Monday and how I must explain
First, I feel the hugs from around the world. xo I also learned that this wonderful forum is a safe place to unload my fears and experience what it was like to be 'really heard' and understood. My husband was talking to me about my upcoming visit to the rheumatologist on Monday and how I must explain
Grammy80
in
PMRGCAuk
13 days ago
New drops- Tiopex 0.1 gel drops
Hello everyone,I've just been prescribed Tiopex 0.1 gel drops for in the mornings in addition to Brinzolomide 3 times a day and Lumigan at night. (This is to get my pressures down from 16 to ideally 12!) The leaflet says that l should use the other eye drop first, before the Tiopex. Hope this is okay
Hello everyone,I've just been prescribed Tiopex 0.1 gel drops for in the mornings in addition to Brinzolomide 3 times a day and Lumigan at night. (This is to get my pressures down from 16 to ideally 12!) The leaflet says that l should use the other eye drop first, before the Tiopex. Hope this is okay
Nanacake
in
Glaucoma UK
13 days ago
Cataract surgery post Trabeculectomy
Had a trab 6 months ago and the blurry vision never disappeared. Now they want to do cataract surgery and I am hesitant as it may fail the trab surgery that was already done successfully. Has anybody had an experience with the blurry eye after surgery or pls share your experience with cataract surgery
Had a trab 6 months ago and the blurry vision never disappeared. Now they want to do cataract surgery and I am hesitant as it may fail the trab surgery that was already done successfully. Has anybody had an experience with the blurry eye after surgery or pls share your experience with cataract surgery
Moultrey
in
Glaucoma UK
17 days ago
Cogan's syndrome
Hello! So I was diagnosed with Cogan's in Oct 23. It all started with severe ear pain after my second COVID vaccine which progressed to hearing and balance issues. This resolved after 3 weeks but I got the same symptoms again after my 3rd vaccine. Again this resolved but returned and gradually worsened
Hello! So I was diagnosed with Cogan's in Oct 23. It all started with severe ear pain after my second COVID vaccine which progressed to hearing and balance issues. This resolved after 3 weeks but I got the same symptoms again after my 3rd vaccine. Again this resolved but returned and gradually worsened
Popple18
in
Vasculitis UK
20 days ago
PV - Critical Illness insurance claim?
I was diagnosed with PV last year. I am struggling with work and feeling very anxious and realise I have a life with critical illness policy with LV but am not sure if PV is covered. It doesn't appear to be listed explicitly. LV boast that they meet the ABI guidelines for critical illness. Can anyone
I was diagnosed with PV last year. I am struggling with work and feeling very anxious and realise I have a life with critical illness policy with LV but am not sure if PV is covered. It doesn't appear to be listed explicitly. LV boast that they meet the ABI guidelines for critical illness. Can anyone
Santrix69
in
MPN Voice
21 days ago
My first Group 1 DVLA eye test
Hi, I joined this community a day ago to find out more about the test that the DVLA have asked me to take because I suffer from Glaucoma in both eyes. There is a lot of useful information here and it was good to read other people's experiences. I was very apprehensive, as so much rides on the outcome
Hi, I joined this community a day ago to find out more about the test that the DVLA have asked me to take because I suffer from Glaucoma in both eyes. There is a lot of useful information here and it was good to read other people's experiences. I was very apprehensive, as so much rides on the outcome
Medric
in
Glaucoma UK
21 days ago
cataracts
cannot get to write any posts on my tablet r because some hacker has put cncognito on my rpouter are lying on back for cataract op nd i cannot remove it so trying another computer. to answer one reader on HU site re lying on back for cataract op . I have bronch iectasis too and cough when lying
cannot get to write any posts on my tablet r because some hacker has put cncognito on my rpouter are lying on back for cataract op nd i cannot remove it so trying another computer. to answer one reader on HU site re lying on back for cataract op . I have bronch iectasis too and cough when lying
Jaybird19
in
Lung Conditions Community Forum
22 days ago
NHS waiting time
I have recently gone private due to lack of confidence in NHS eye clinic. This sadly has proved correct following an optic nerve scan showed considerable loss of vision and that I need urgent operations. The consultant asked me whether I had a scan in nhs clinic I said maybe when I had cataracts op
I have recently gone private due to lack of confidence in NHS eye clinic. This sadly has proved correct following an optic nerve scan showed considerable loss of vision and that I need urgent operations. The consultant asked me whether I had a scan in nhs clinic I said maybe when I had cataracts op
Olivertwist24
in
Glaucoma UK
22 days ago
Collagen supplement
Hi, has anyone any experience with taking a collagen supplement? I suffer from IBS C and would like to try collagen for joint pain etc, but am nervous of it making my IBS worse. Any advice gratefully received.
Hi, has anyone any experience with taking a collagen supplement? I suffer from IBS C and would like to try collagen for joint pain etc, but am nervous of it making my IBS worse. Any advice gratefully received.
Gardener
in
IBS Network
23 days ago
Eye issues and tapering to 0 pred
Hello, two questions for you. One, has anyone has a retinal macroaneurysm? I was very recently diagnosed during a routine examination and wondered if it was common among PMR patients? I have had uveitis in the past. Two, I have tapered from 40 mg to 1 mg over the past 5 years for PMR. I am wondering
Hello, two questions for you. One, has anyone has a retinal macroaneurysm? I was very recently diagnosed during a routine examination and wondered if it was common among PMR patients? I have had uveitis in the past. Two, I have tapered from 40 mg to 1 mg over the past 5 years for PMR. I am wondering
Sojourn12
in
PMRGCAuk
23 days ago
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