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Not where I expected to be
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hello to all, After my recent dx...shock...I decided to read other posts before I shared my story. I appreciate hearing about the travelling and CTGirl1962 mentioned handling this like a chronic illness... I have been a breast cancer survivor since 2010. That year my birthday present was having a
Hoehn
in
SHARE Metastatic Breast Cancer
9 months ago
Atrioesophageal fistula (AEF)
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Heads up to those undergoing cardiac ablation for Afib…had my ablation 12/6/23. Everything went great! Been in normal rhythm ever since! No bleeding, no hematoma, no real discomfort. However I woke up to abdominal pain, pain between shoulder blades and sore throat. 3 nights post op woke up to a burning
Acheybreakeyheart
in
Atrial Fibrillation Support
7 months ago
Kidney update and possible gallstones
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
Hi everyone, it’s been a hot minute since I posted about my kidneys! A few weeks ago I found out I had leaky protein, but I saw the specialist (who was pretty thorough) and he’s not worried about it. And if he’s not worried, I’m not worried! We’re gonna review in 3 months’ time. I’m so glad it turned
MusicalFurbaby
in
LUPUS UK
5 months ago
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Update - friend with bronchogenic adenocarcinoma
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
Hello all, Thanks again for your replies to my original post as a newbie for a friend. She saw her rad/onc today and the PET results are encouraging! No cancer showed up outside the lungs. He recommends she see a thoracic surgeon for her 5 cm mass (golf-tennis ball size) to see if she is a candidate
marcyh
in
Lung Cancer Support
9 months ago
continuing the journey
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
I just had my 3rd round of Chemotherapy ( O CHOP). Doing pretty well, will see 2nd week is usually the hardest. My oncologist was very pleased with how I have responded (ei. Platelets 357 from 1st chemo 10).I also had a port put in my chest last week for easier access for infusion iOS and blood work.
FiArt12X
in
CLL Support
2 months ago
Last do embryo
hey all, I’ve posted here a few times. But we’re on the final leg and I have my last ever frozen transfer next Friday with our last embryo using donor eggs. This is cycle 8, with a twin MMC and endless tests. I showed I had high NKC and had the Alice, era which has shown I need an extra day of drugs
hey all, I’ve posted here a few times. But we’re on the final leg and I have my last ever frozen transfer next Friday with our last embryo using donor eggs. This is cycle 8, with a twin MMC and endless tests. I showed I had high NKC and had the Alice, era which has shown I need an extra day of drugs
Link1234
in
Fertility Network UK
10 months ago
looking for reassurance or advice
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will say to wait for 3 months of rising PSA before we should panic, but that’s easy for him to say… looking for reassurance as we wait for next months
Bspouse
in
Advanced Prostate Cancer
9 months ago
EMDR THERAPY
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
Good afternoon all, does anyone know of any EMDR therapy that is online only and accepts state insurance. Please leave your comments on the bottom. Thanks
kanzler1987
in
Anxiety and Depression Support
2 months ago
Sorry it has been a while with an update on Ruxolitinib
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
The last time I wrote to you all was about 2/3 years ago when I started Ruxolitinib. The first 6 to 8 months I was a different person, I felt great. I started to swim, (200 lengths in 1.5 hours) then I started to get water infections, one after the other, chest infections, ear infections and shingles
wendycu
in
MPN Voice
2 months ago
Quite the CLL journey
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
2012-2013 suspicion of CLL, enlarged lymph nodes in abdomen. Meet with oncologist, blood work does not reveal definitive diagnosis. Yearly appointments with blood work recommended 2016 enlarged lymph node removed from neck, biopsy confirmed CLL, watch and wait. 2018 escalating white blood count and
FiArt12X
in
CLL Support
2 months ago
does it ever completely go away?
I had a medical procedure that was in itself very traumatic and also reactivated a childhood trauma. I have been in CBT for 2 1/2 years and recently started EMDR. I want this all to just go away! However, as in the case of the childhood trauma, which I thought had been dealt with, I fear I will always
I had a medical procedure that was in itself very traumatic and also reactivated a childhood trauma. I have been in CBT for 2 1/2 years and recently started EMDR. I want this all to just go away! However, as in the case of the childhood trauma, which I thought had been dealt with, I fear I will always
Kalee55
in
Heal My PTSD
2 months ago
Foraminotomy
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
has anybody had a posterior endoscopic foraminotomy? In particular for bone spurs. I could be looking at this surgery once injections have been exhausted. Would be interested in hearing from people about how they found it, did it work, and crucially what was your post op experience like, pain levels,
yorkshirelad1
in
Pain Concern
7 months ago
Xmas worries?
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
Yet another one fast approaching as normal I am not full of festive cheer IBD/Diverticular Disease is my main problem just as well it's only myself and husband here 2 cater 4 thank you but that is bad enough!!! So I am just doing a chicken this year and my safe(ish) veg that I think that I will be
bungi1961
in
Bowel Disease Support
7 months ago
road to diagnosis
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
Hi everyone, I don’t know where to start… it’s been a bit of a rollercoaster so far. It all started when I started getting redness and discolouration in both feet. My GP did a blood test and referred me to my rheumatologist for further assessment. My rheumatologist felt that my feet getting red was
RA_123
in
LUPUS UK
7 months ago
Japan and stem cells treatment
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Hi there was a post last week about stem cell transplant in Japan. I thought I had saved it but obviously not! Does anyone have a link for it please?
Bluebell2022
in
Cure Parkinson's
2 months ago
First SI, the pain, ouch!
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Hello everyone, Asking for help again on my SI journey please 🙏 Yesterday I did my first IM injection into the thigh following a video by a UK GP. It hurt much less than the one I had done in the arm at a clinic 2 weeks ago (to check no allergic reaction) so I thought great, this is the way to go
Bertiepuss
in
Pernicious Anaemia Society
7 months ago
interesting Xeloda trial
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
Hi friends, I listened to a presentation summarizing reports from ASCO 2023 related to MBC, and what really interested me was that for Xeloda, a fixed dose taken one week on/one week off, produced as good results as current standard of care with fewer side effects. Also: cream form of Voltaren/diclofenac
HelenWi
in
SHARE Metastatic Breast Cancer
9 months ago
Biopsy 8-month Change - progression or sampling differences?
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
2/2023, MRI showed 1 large (2.4cm) lesion pirads 5. Gleason 6 in 8 of 12 systemic cores and 4 of 4 targeted cores. 10/2023 Repeat MRI-Biopsy: MRI showed lesion #1 same as previous. Also new lesion #2 0.8mm pirads 4-5. Biopsy with bilateral gleason 3+4 in 5 of 12 systemic cores, 1 of these gleason
adventure4me
in
Prostate Cancer Network
9 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
9 months ago
PT-112 Immunotherapy Trial
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
Hi fellow travelers, Maxone73posted this sumary of interesting developments yesterday: https://healthunlocked.com/advanced-prostate-cancer/posts/150097372/new-hopes-we-all-need-them-on-a-monday So I thought that I would raise my my hand and say “I’m on the trial!” It’s NCT02266745, and here’s the
TeleGuy
in
Advanced Prostate Cancer
9 months ago
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