Search
Search
About
Log in
Join
Experiences with
Radical hysterectomy
Posts
Communities
7,645 public posts
Filter results
Appealing PIP decision - advice needed please
Hi - my PIP was turned down after getting 6 points and I want to appeal this decison. (I did use Citizen’s Advice for the form but didn’t find the advisor were very good if I’m being honest). I remember there was a post about 6 months ago with some helpful links but the post won’t load. I’m currently
Hi - my PIP was turned down after getting 6 points and I want to appeal this decison. (I did use Citizen’s Advice for the form but didn’t find the advisor were very good if I’m being honest). I remember there was a post about 6 months ago with some helpful links but the post won’t load. I’m currently
Wilder_ness
in
Endometriosis UK
3 years ago
Ferritin levels
Finally managed to convince my GP to test my ferritin level. The result came back at 94 and from reading posts here, I note the level should be above 100. Could someone clarify please if Ferritin is the same as Ferrograd. I have been using Pregabalin 175mg for about a year and find the effects
Finally managed to convince my GP to test my ferritin level. The result came back at 94 and from reading posts here, I note the level should be above 100. Could someone clarify please if Ferritin is the same as Ferrograd. I have been using Pregabalin 175mg for about a year and find the effects
kelirock
in
Restless Legs Syndrome
3 years ago
Chronic pelvic pain
I take hydromorpo n e neurontin and shots for pelvic pain. Nothing works. Dr signed me up for medical marijuana just waiting for the card.
I take hydromorpo n e neurontin and shots for pelvic pain. Nothing works. Dr signed me up for medical marijuana just waiting for the card.
Paris1700
in
Pain Concern
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hysterectomy, anemyosis, surgery next month, help and reassurance needed please
Im 39 and diagnosed stage 4 endometriosis plus anemyosis with endo largely spread to bowell and pouch of douglas and cysts on ovaries. A total mess!. I have been waiting for a surgery and was due for one on a waiting list in a year time. Due to latest results not being great i received a call tonight
Im 39 and diagnosed stage 4 endometriosis plus anemyosis with endo largely spread to bowell and pouch of douglas and cysts on ovaries. A total mess!. I have been waiting for a surgery and was due for one on a waiting list in a year time. Due to latest results not being great i received a call tonight
Anonymous83
in
Endometriosis UK
3 years ago
Multifollicular ovaries
Hi all! I have a follow up appointment next week to discuss the lap I had a month ago, and schedule my hysterectomy after adenomyosis was diagnosed during surgery! I had the consultant letter explaining what was found and what was done in surgery etc - on it the surgeon has put that I have multifollicular
Hi all! I have a follow up appointment next week to discuss the lap I had a month ago, and schedule my hysterectomy after adenomyosis was diagnosed during surgery! I had the consultant letter explaining what was found and what was done in surgery etc - on it the surgeon has put that I have multifollicular
EndoSuckss
in
Endometriosis UK
3 years ago
hysterectomy advice
Hi, I have had endo for 10 years, and my flares have been on and off for that time. I have tried several treatments and recently I have been considering having a hysterectomy, I wondered if anyone could share their experiences with me on having the procedure and the decision making process that led
Hi, I have had endo for 10 years, and my flares have been on and off for that time. I have tried several treatments and recently I have been considering having a hysterectomy, I wondered if anyone could share their experiences with me on having the procedure and the decision making process that led
Foodman500
in
Endometriosis UK
3 years ago
Adcal or not
Sorry I'm unable to cut and paste. A recent letter to a doctor in the newspaper asked about having taken Lansoprazole for a problem can cause bones to thin. Recently diagnosed with advanced Osteoporosis she has been prescribed AA and Adcal. The doctor suggests that calcium carbonate would be better changed
Sorry I'm unable to cut and paste. A recent letter to a doctor in the newspaper asked about having taken Lansoprazole for a problem can cause bones to thin. Recently diagnosed with advanced Osteoporosis she has been prescribed AA and Adcal. The doctor suggests that calcium carbonate would be better changed
Pinkpeony
in
Thyroid UK
3 years ago
21Aug21 ART Androgen deprivation therapy (ADT) during and after post-prostatectomy radiotherapy in patients with prostate cancer
[u]My Story:[/u] I have restarted ADT treatment, after a RP and after RT and without evidence of rising PSA (mine is undetectable). My current Urologist stressed that my cell type via the Decipher test shows a very aggressive cancer type and that my margins were 60% Gleason 4...further, that that I
[u]My Story:[/u] I have restarted ADT treatment, after a RP and after RT and without evidence of rising PSA (mine is undetectable). My current Urologist stressed that my cell type via the Decipher test shows a very aggressive cancer type and that my margins were 60% Gleason 4...further, that that I
RMontana
in
Active Surveillance - Prostate Cancer
3 years ago
hysterectomy - help advice needed
Hi everyone how are you? I hope you are all doing well. I'm here hoping someone can help me cause I feel really anxious and concerned with this matter that I've been told litt÷ to nothing about. If it's ok I'll give you first a little bit of context. It took the NHS 7 years to diagnose me with severe
Hi everyone how are you? I hope you are all doing well. I'm here hoping someone can help me cause I feel really anxious and concerned with this matter that I've been told litt÷ to nothing about. If it's ok I'll give you first a little bit of context. It took the NHS 7 years to diagnose me with severe
Vicvik
in
Endometriosis UK
3 years ago
Surgery help
I have stage 4 endo, since 2011. Lots of previous surgery and removal of cysts and endo. I now have another 7cm cyst and endo surrounding bowel. Consultant has given 2 options, 1. Remove cyst and clear endo as best he can. 2. Full hysterectomy. There is risk of damage to bowel. 1-3% for option
I have stage 4 endo, since 2011. Lots of previous surgery and removal of cysts and endo. I now have another 7cm cyst and endo surrounding bowel. Consultant has given 2 options, 1. Remove cyst and clear endo as best he can. 2. Full hysterectomy. There is risk of damage to bowel. 1-3% for option
Prettygreeneyes123
in
Endometriosis UK
3 years ago
Decapeptyl injections experiences
Hi ladies, Going in few hours for my first monthly decapeptyl injection due endometriosis, and unbearable pain, while I'm waiting for a partial hysterectomy. I know that everyone's different, and everyone reacts differently, but can you please tell me about your experience with these injections?
Hi ladies, Going in few hours for my first monthly decapeptyl injection due endometriosis, and unbearable pain, while I'm waiting for a partial hysterectomy. I know that everyone's different, and everyone reacts differently, but can you please tell me about your experience with these injections?
Illy-lory
in
Endometriosis UK
3 years ago
Update of status. BCR
Hi all, hoovering around 0.2 is ongoing for almost two years. Six years from RP. MSK nomograms are not applicable for adjuvant RT cases. Looking for more information on BCR, found something on the following link: https://www.urologytimes.com/view/defining-psa-nadir-after-definitive-therapy-in-prostate-cancer
Hi all, hoovering around 0.2 is ongoing for almost two years. Six years from RP. MSK nomograms are not applicable for adjuvant RT cases. Looking for more information on BCR, found something on the following link: https://www.urologytimes.com/view/defining-psa-nadir-after-definitive-therapy-in-prostate-cancer
MSTI
in
Advanced Prostate Cancer
3 years ago
Impending Operation
Hi all I was diagnosed with OC the middle of August & I’m now booked to go into the Royal Marsden, Fulham for this Weds 29th to have a hysterectomy & a 7cms mass removed plus some lymph nodes. I was completely shocked on hearing the diagnosis because all along I’d been told I had a fibroid so OC never
Hi all I was diagnosed with OC the middle of August & I’m now booked to go into the Royal Marsden, Fulham for this Weds 29th to have a hysterectomy & a 7cms mass removed plus some lymph nodes. I was completely shocked on hearing the diagnosis because all along I’d been told I had a fibroid so OC never
Hidden
in
My Ovacome
3 years ago
Metabolic syndrome and long-term prostate cancer outcomes after radical prostatectomy. Presented at: AUA 2021, held September 10-13, 2021
Jody A. Charnow Reference Wong JE, Erickson TR, Howard LE, et al. Metabolic syndrome and long-term prostate cancer outcomes after radical prostatectomy. Presented at: AUA 2021, held September 10-13, 2021. Poster MP32-18. In a study, metabolic syndrome after radical prostatectomy was significantly associated
Jody A. Charnow Reference Wong JE, Erickson TR, Howard LE, et al. Metabolic syndrome and long-term prostate cancer outcomes after radical prostatectomy. Presented at: AUA 2021, held September 10-13, 2021. Poster MP32-18. In a study, metabolic syndrome after radical prostatectomy was significantly associated
Graham49
in
Advanced Prostate Cancer
3 years ago
Medical marijuana in the UK
Hi everyone. Has anyone in the UK used a private doctor to obtain medical marijuana? There appear to be quite a few reputable private medical centres that will prescribe it, but at a significant cost. But Having tried pretty much every other pain relief I’m considering giving it a try and would appreciate
Hi everyone. Has anyone in the UK used a private doctor to obtain medical marijuana? There appear to be quite a few reputable private medical centres that will prescribe it, but at a significant cost. But Having tried pretty much every other pain relief I’m considering giving it a try and would appreciate
Tjba
in
Fibromyalgia Action UK
3 years ago
I had a hysterectomy 2017 they left my ovaries
5 months after my hysterectomy went and had to have adhesions removed upper stomach and left side of bowel and they drained a cyst from ride ovary 2021 I’m now in so much pain the last week in both sides more on my left kidneys are hurting so bad I’m struggling to eat drink I’m waiting for an urgent
5 months after my hysterectomy went and had to have adhesions removed upper stomach and left side of bowel and they drained a cyst from ride ovary 2021 I’m now in so much pain the last week in both sides more on my left kidneys are hurting so bad I’m struggling to eat drink I’m waiting for an urgent
Adhamilton
in
Endometriosis UK
3 years ago
Radiation
I had a hysterectomy in June removing 20cm tumor Grade 3 and other organs. This has been followed by chemotherapy, and I today finished 4th cycle out of 6 of carboplatin / taxol. CA-25 has gradually dropped to 18 from high in the 400s. Intermittent scans were vague saying images could be cancer or
I had a hysterectomy in June removing 20cm tumor Grade 3 and other organs. This has been followed by chemotherapy, and I today finished 4th cycle out of 6 of carboplatin / taxol. CA-25 has gradually dropped to 18 from high in the 400s. Intermittent scans were vague saying images could be cancer or
NYClady
in
My Ovacome
3 years ago
Aches and joint pain in the night…
Hi Lovely people, anyone experience aches and pains in the night? I had my 6th and please god final chemo in May. Diagnosed with stage 2 OC in December, full hysterectomy then 6 rounds of carbo/pax…coped well with that but now I feel like I did 8 rounds with Tyson in the night as I turn over! I am wondering
Hi Lovely people, anyone experience aches and pains in the night? I had my 6th and please god final chemo in May. Diagnosed with stage 2 OC in December, full hysterectomy then 6 rounds of carbo/pax…coped well with that but now I feel like I did 8 rounds with Tyson in the night as I turn over! I am wondering
Spongebobby
in
My Ovacome
3 years ago
ZOLENDRONIC ACID VERSUS PROLIA?
Hi Everyone 👋 Just looking for a bit of advice. I've had RA for 39 years, and have been on steroids for about 28 years now. I'm 53. As a result, it's affected my bone strength and I've had a number of Osteoporotic fractures. Initially I had Risedronate/Actonell but (like many people) was unable to
Hi Everyone 👋 Just looking for a bit of advice. I've had RA for 39 years, and have been on steroids for about 28 years now. I'm 53. As a result, it's affected my bone strength and I've had a number of Osteoporotic fractures. Initially I had Risedronate/Actonell but (like many people) was unable to
Kags1068
in
Bone Health and Osteoporosis UK
3 years ago
Really need help please, possible endometriosis, just had 6th prostap injection, but some pains returned last 6 weeks.
Hi thank you for taking time to read, I really need some help.Hi I’m 39, in October 2019 I had my Mariana coil removed after having it continuously for over 20 years between my 3 baby’s, this is when everything went down hill. I ended up in Hospital Jan 2020 with excruciating pain consistently, to say
Hi thank you for taking time to read, I really need some help.Hi I’m 39, in October 2019 I had my Mariana coil removed after having it continuously for over 20 years between my 3 baby’s, this is when everything went down hill. I ended up in Hospital Jan 2020 with excruciating pain consistently, to say
Westminster1
in
Endometriosis UK
3 years ago
1
...
70
71
72
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
3292 results
My Ovacome
818 results
Advanced Prostate Cancer
499 results
View top 10 communities
Sort by
Most Relevant
Newest