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Just Nod If You Can Hear Me
I’m hearing from several doctors and a counselor who swear there are men who have maintained size, resolved incontinence, and restored erectile function (albeit with pills, injections, prosthetics) following nerve sparing radical prostatectomy. When I ask how I can connect with just one of these men
I’m hearing from several doctors and a counselor who swear there are men who have maintained size, resolved incontinence, and restored erectile function (albeit with pills, injections, prosthetics) following nerve sparing radical prostatectomy. When I ask how I can connect with just one of these men
LakeGuy22
in
Prostate Cancer And Gay Men
6 days ago
Antiandrogen Withdrawal Syndrome After Stopping Enzalutamide in Metastatic Castration-Resistant Prostate Cancer: Two Case Reports & Review
https://www.cureus.com/articles/267994-antiandrogen-withdrawal-syndrome-after-discontinuation-of-enzalutamide-in-patients-with-metastatic-castration-resistant-prostate-cancer-a-report-of-two-clinical-cases-and-a-literature-review#!/ Abstract Metastatic prostate cancer treatment is based on
https://www.cureus.com/articles/267994-antiandrogen-withdrawal-syndrome-after-discontinuation-of-enzalutamide-in-patients-with-metastatic-castration-resistant-prostate-cancer-a-report-of-two-clinical-cases-and-a-literature-review#!/ Abstract Metastatic prostate cancer treatment is based on
God_Loves_Me
in
Advanced Prostate Cancer
18 days ago
Recent diagnosis questions & concerns, please respond to any that you can
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
Ten questions/concerns, not necessarily in priority order: Prostate Cancer was diagnosed in 57 year-old, April 2024. Currently following active surveillance recommended by MD. The patient’s mother died of cancer at age 45 and the patient’s sister (she was MD) died at 58 of cancer. The patient’s only
G6AS
in
Prostate Cancer Network
1 month ago
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Essential read & listen (watch) resources for ALL PCa patients - The 2023 Walsh Guide & Peter Attia's podcast with Dr. Ed. Schaeffer -10/23
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
cujoe
in
Fight Prostate Cancer
2 months ago
The role of PSMA PET/CT in predicting downgrading in patients with Gleason score 4+4 prostate cancer in prostate biopsy - W Jour Uro 5/21/24
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
cujoe
in
Fight Prostate Cancer
2 months ago
Blood in urine
Hi all. This is my first post here. I had a robotic radical prostatectomy three months ago. In the first few weeks after surgery, my urine was clear, but then I started showing blood on my pads during walks. This has continued ever since and I'm now at 12 weeks after surgery. These are pink spots, not
Hi all. This is my first post here. I had a robotic radical prostatectomy three months ago. In the first few weeks after surgery, my urine was clear, but then I started showing blood on my pads during walks. This has continued ever since and I'm now at 12 weeks after surgery. These are pink spots, not
LoveDrumming
in
Prostate Cancer Network
2 months ago
Walsh's Folly?
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
I posted earlier that I had to ask ChatGPt "who came up with the 'gasoline on a fire' characterization regarding the relationship of testosterone and prostate cancer" and that Chat GPT had answered -- Dr. Patrick Walsh -- (father of the radical prostatectomy.) In that post, discussion turned to Walsh's
VoxHope
in
Advanced Prostate Cancer
2 months ago
Input on Timing of Initial ADT after RP/SRT Failed
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
After surgery and salvage radiation therapy (SRT) have failed, it appears I'm headed for androgen deprivation therapy. Like many things in the world of prostate cancer, the recommendations as to when to start ADT seem to be all over the place, so I'm seeking any insights folks may have based on your
dans_journey
in
Advanced Prostate Cancer
2 months ago
THIS IS NOT GOOD over 40 Liver Lesions
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
ON PET SCAN THEY FOUND 3 stating not psma avid on MRI stating they are psma avid How bad is this ? PSA went from in a month 0.77 to 3.61 PSA al Range May 2, 2024 3.61 ng/mL 3.61ng/mL <=3.99 ng/mL <=3.99 ng/mL Apr 4, 2024 0.77 ng/mL 0.77ng/mL <=3.99 ng/mL <=3.99 ng/mL Mar 7, 2024 0.4 ng
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
Need practical advice re:RRP for 76 year-old in fair shape
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
Hi everyone, My husband, just turned 76, is having a robotic radical prostatectomy on 5/13. He is (so far) Gleason 4+3, high Decipher score., clean PSMA. We eventually chose surgery as he's also been in retention for many months due to a median lobe, he preferred that to doing a HoLep followed by radiation
AliceinW57
in
Prostate Cancer Network
3 months ago
Any proof that removing a tumor off prostate bed by radiation or surgery is better than just systemic therapy ?
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Here is my history PSA rising now 0.77 Going for pet scan tomorrow Tumour on prostate bed had Radical Prostatectomy with Lymph node removal 03/2023 Stage 4 Oligo Metastatic Prostate Cancer Original PSA 942.40 at diagnosis 06/2022 Gleason 8 / 9 ductal without large cribform gland, cT3b
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
10-year update still shows no benefit to ART vs early SRT
ART
= adjuvant radiation therapy, within 6 months after radical prostatectomy (RP)
early SRT
= salvage radiation therapy, after PSA ≥ 0.1ng/ml or 3 consecutive rises. Median was 0.2 ng/ml. Median 1 ½ years after RP. Patients risked nothing by waiting, and gained urinary and fecal continence
ART
= adjuvant radiation therapy, within 6 months after radical prostatectomy (RP)
early SRT
= salvage radiation therapy, after PSA ≥ 0.1ng/ml or 3 consecutive rises. Median was 0.2 ng/ml. Median 1 ½ years after RP. Patients risked nothing by waiting, and gained urinary and fecal continence
Tall_Allen
in
Advanced Prostate Cancer
3 months ago
Suddenly Urinary Leakage just walking around, then I have to push / strain to urinate, PSA rising, prostatectomy leakage resolved
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Can anyone give me an idea what is going on? No UTI, No Urinary Infections I was tested Suddenly having Urinary Leakage just walking around, then I have to push / strain, to urinate. I had a Radical Prostatectomy in 03/2023 leakage resolved. I didn’t have radiation as much as I was waiting
Shorehousejam
in
Advanced Prostate Cancer
3 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
3 months ago
Month 5 of ORGOVYX
After radical prostatectomy and radiation treatment, I’m now on ORGOVYX and my testosterone has decreased from 672 to 11. I’ll be coming off the medication in one month. If anyone has used ORGOVYX, do you stop cold turkey or is there a tapering off of the drug? Thank you.
After radical prostatectomy and radiation treatment, I’m now on ORGOVYX and my testosterone has decreased from 672 to 11. I’ll be coming off the medication in one month. If anyone has used ORGOVYX, do you stop cold turkey or is there a tapering off of the drug? Thank you.
BettyandBob
in
Prostate Cancer Network
3 months ago
can someone advice me on pros trap please
hi there I have been told to go on oristrao until I have my hysterectomy but they want to keep my ovaries … I am 31 and until then have been offered prostrap.. Do these have any side effects I’m so scared can someone please advise me
hi there I have been told to go on oristrao until I have my hysterectomy but they want to keep my ovaries … I am 31 and until then have been offered prostrap.. Do these have any side effects I’m so scared can someone please advise me
Sara0102
in
Endometriosis UK
22 hours ago
Advice
Hello I was just wondering if anyone had any advice about the following... Has anyone noticed a change in brain fog and memory issues after having a hysterectomy? Any help much appreciated, thank you.
Hello I was just wondering if anyone had any advice about the following... Has anyone noticed a change in brain fog and memory issues after having a hysterectomy? Any help much appreciated, thank you.
Mel06
in
Endometriosis UK
3 days ago
which way to turn?
please can I have thoughts please as I am so confused. All my thyroid issues developed after covid 2021 and my T4 & T3 had decreased bit by bit. My TSH was above 3 but within range. Since all this kicked off my moods are so up and down so very hard to cope with among racing heart, palps mornings
please can I have thoughts please as I am so confused. All my thyroid issues developed after covid 2021 and my T4 & T3 had decreased bit by bit. My TSH was above 3 but within range. Since all this kicked off my moods are so up and down so very hard to cope with among racing heart, palps mornings
FoxyTed
in
Thyroid UK
4 days ago
post surgery
Hi. 1st post here. I’m 8 days post first laparoscopy- removal of endometriomas on both ovaries, adhesions (including those sticking bowel/ovaries to abdominal wall, some on my bladder). I have very limited info post surgery other than there was a lot more than they thought there would be, my womb is
Hi. 1st post here. I’m 8 days post first laparoscopy- removal of endometriomas on both ovaries, adhesions (including those sticking bowel/ovaries to abdominal wall, some on my bladder). I have very limited info post surgery other than there was a lot more than they thought there would be, my womb is
Catlady1978
in
Endometriosis UK
5 days ago
no cure
I’m pleased to see the post telling everyone about ‘how their endometriosis was cured’ has been taken down. There is NO CURE! Even if you have all diseased tissue removed you still have the disease. Some are lucky and don’t get a reoccurrence of the diseased tissue but for most the disease comes back
I’m pleased to see the post telling everyone about ‘how their endometriosis was cured’ has been taken down. There is NO CURE! Even if you have all diseased tissue removed you still have the disease. Some are lucky and don’t get a reoccurrence of the diseased tissue but for most the disease comes back
Lily1986
in
Endometriosis UK
6 days ago
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