Just Nod If You Can Hear Me - Prostate Cancer A...

Prostate Cancer And Gay Men

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Just Nod If You Can Hear Me

LakeGuy22 profile image
5 Replies

I’m hearing from several doctors and a counselor who swear there are men who have maintained size, resolved incontinence, and restored erectile function (albeit with pills, injections, prosthetics) following nerve sparing radical prostatectomy.

When I ask how I can connect with just one of these men before having the surgery myself, they deflect with their trusty HIPAA shield that protects them from having to prove their words before experimenting on my body.

So I’m asking you. Is there anybody out there that has successfully done all of this? If so, how long did it take? Are you an active top? Is there anything else I should know that they’re not telling me?

I appreciate your responses.

Jeff

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LakeGuy22 profile image
LakeGuy22
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5 Replies
Terp2017 profile image
Terp2017

I have not any. After a radical I experienced size reduction, incontinence and erectile issues. The incontinence is mostly gone , and the erectile has work around, but size does not come back unfortunately.

Tall_Allen profile image
Tall_Allen

35% of previously-potent men having nerve-sparing RP are able to have erections sufficient for intercourse (see Table 5, below), but why risk it?

prostatecancer.news/2016/09...

IMO, gay men should never have prostatectomies:

prostatecancer.news/2021/12...

Wakeyguy63 profile image
Wakeyguy63

Hi Jeff

I'm from England, 63 yrs of age. A gay man.

I had robotic- prostectamy surgery 5th February this year following my cancer diagnosis. I'm really fit and healthy in all other areas. Non smoker. I don't take any form of medication.

Weight good. 78kg.

Its now mid July. Incontinence, is at around 90% good. Just wear z small discreet pad for a few dribbles. Been doing pelvic floor exercises, every day, 3 times a day yo help with the pee control.

On the man side, is really useless. Can't get anywhere near an erection at all. Despite taking 5mg cialis every single day since surgery. I have with a lot of perseverance, managed a dry orgasm a few times, by messaging the head of my penis. Very strong, but if course dry orgasm. Feels ok, but different from before.

Penis shrinkage, yes, yes. I was only just average size before surgery, but was ok and accepted that. Now even after using a pump I've lost a lot of size. I feel how its more a micro penis. I doubt it will return to normal unfortunately.

But my psa tests are coming back as undetectable, so that's the main thing for me. I'm for now, clear of cancer. Hope this helps..

Thanks

Neil

Leeaussie5 profile image
Leeaussie5

I had rp in 2018. I got my first post surgery erection before the catheter was removed. Yes it was a bit painful. After catheter was removed, I had no real incontinence. At first, thinking about sex resulted in a drop or two. In time I mastered that. I used cialis for a while but now get perfectly good erections without it. Orgasms feel the same as ever. I do miss producing semen. I am very thankful- cancer free and enjoying a full life.

Longlines8 profile image
Longlines8

I had nerve sparing Prostatectomy using DaVinci laproscopic. I did loose about 1 to 1.5 inches in length. I do not have incontinence. I started kegels six months prior to surgery and continue to do them. I did use cialis after to maintain circulation. It was not successful in giving me erections (he had to get really close to left nerve to get all cancer. I did get partial erections, but not really satisfactory for sex. Used injections successfully for 6 years. At beginning gave best erections ever had, but was needing to increase amount and was not always successful. Last year urologist recommended and went with an inflatable penis implant. Very happy with results.

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