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Calf cramps
Hi, I hope someone can help! For the last month, I have been getting pains in my calf's (like spasming pain just before you get cramp). The pain has been getting worse and more regular, it effects me walking and is worse through the day. I was in so much pain, I went to see my doctor who stated they
Hi, I hope someone can help! For the last month, I have been getting pains in my calf's (like spasming pain just before you get cramp). The pain has been getting worse and more regular, it effects me walking and is worse through the day. I was in so much pain, I went to see my doctor who stated they
Pigeon21
in
Restless Legs Syndrome
8 years ago
G6PD?
I wonder if anyone is aware of a connection between G6PD deficiency and CLL. I have not been tested for G6PD but my kids were, and found positive. I personally have taken aspirin and quinine, and eaten fava beans. I was diagnosed with CLL 5 years ago. I am curious whether other members of this group
I wonder if anyone is aware of a connection between G6PD deficiency and CLL. I have not been tested for G6PD but my kids were, and found positive. I personally have taken aspirin and quinine, and eaten fava beans. I was diagnosed with CLL 5 years ago. I am curious whether other members of this group
Safta
in
CLL Support
8 years ago
Dread going to bed
I have had RLS for several years but managed to control it with quinine. About four years ago I began to suffer from REM sleep behaviour disorder. The RLS got much worse and I am now on 2mg of Clonazepam and 4mg of Ropinerole. Even with this level of medication most nights I pace up and down and
I have had RLS for several years but managed to control it with quinine. About four years ago I began to suffer from REM sleep behaviour disorder. The RLS got much worse and I am now on 2mg of Clonazepam and 4mg of Ropinerole. Even with this level of medication most nights I pace up and down and
Choccycface
in
Restless Legs Syndrome
8 years ago
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Professor Graham Hughes' Monthly Blog August 2016
BLOG August 2016 What a beautiful August! And what a difference a month makes! I generally regard August as early Autumn rather than summer. Not this year! For me it was good to be back at work after my illness. This month, September, is the start of the academic year, usually peaking in October,
BLOG August 2016 What a beautiful August! And what a difference a month makes! I generally regard August as early Autumn rather than summer. Not this year! For me it was good to be back at work after my illness. This month, September, is the start of the academic year, usually peaking in October,
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
Just prescribed Quinine
Hi, I have viewed some of your posts and thought I would open myself up to you. Over the past few days I have endured the worst restless leg and arm attacks in my life. I have always had it in a very mild way, and rarely, but over the past few weeks it has increased to very intense levels (no sleep in
Hi, I have viewed some of your posts and thought I would open myself up to you. Over the past few days I have endured the worst restless leg and arm attacks in my life. I have always had it in a very mild way, and rarely, but over the past few weeks it has increased to very intense levels (no sleep in
Revolution9
in
Restless Legs Syndrome
8 years ago
Better than foot wraps? I think so... :)
Hi to everyone! :) I've been following this forum for a couple of weeks because like you all, I struggle with RLS. I've recently found some ways that seem to be relieving my RLS and I want to share them. BTW, I'm 72 female. First, after reading about foot wrapping I've been doing some research about
Hi to everyone! :) I've been following this forum for a couple of weeks because like you all, I struggle with RLS. I've recently found some ways that seem to be relieving my RLS and I want to share them. BTW, I'm 72 female. First, after reading about foot wrapping I've been doing some research about
bjmartens
in
Restless Legs Syndrome
8 years ago
symptoms stage 3
what symptoms has people had with stage 3 ckd I have cramps (take quinine for them) swelling legs ankles and hands (take water tables) tiredness odd pain in kidney and protein in my urine
what symptoms has people had with stage 3 ckd I have cramps (take quinine for them) swelling legs ankles and hands (take water tables) tiredness odd pain in kidney and protein in my urine
davey7836
in
Early CKD Support
8 years ago
Magnesium replacement - is it a scam
I have severe anxiety and also for past few months painful twitching calves. Dr has checked iron and vit d,ok. Quinine no effect. I have had tips on here that I may need magnesium so I have researched on net. I fo have a lot of symptoms, legs, headaches, nausea, fatigue, etc but many people who write
I have severe anxiety and also for past few months painful twitching calves. Dr has checked iron and vit d,ok. Quinine no effect. I have had tips on here that I may need magnesium so I have researched on net. I fo have a lot of symptoms, legs, headaches, nausea, fatigue, etc but many people who write
melodious
in
Anxiety Support
8 years ago
Any ideas
into 4th month of bad anxiety spell, worst ever. New symptom twitching cramping legs every day all day. Usual headaches , palpitations, feeling like I,m dying etc. Dr gave me quinine gor poss restless legs, didn't work. Won,t give me diazepam. Palps breaking through propranlol doses. All symptoms severe
into 4th month of bad anxiety spell, worst ever. New symptom twitching cramping legs every day all day. Usual headaches , palpitations, feeling like I,m dying etc. Dr gave me quinine gor poss restless legs, didn't work. Won,t give me diazepam. Palps breaking through propranlol doses. All symptoms severe
melodious
in
Anxiety Support
8 years ago
CRAMP!!!
The answer to getting relief f rom cramp which I used to suffer from too, until a friend told me to drink half a tumbler of Tonic Water each day. I suffer most at night so I drink the tonic water circa 8pm each day and it works. I no longer have the cramp pains. Someone told me it's the quinine that
The answer to getting relief f rom cramp which I used to suffer from too, until a friend told me to drink half a tumbler of Tonic Water each day. I suffer most at night so I drink the tonic water circa 8pm each day and it works. I no longer have the cramp pains. Someone told me it's the quinine that
Hidden
in
Lung Conditions Community Forum
8 years ago
Early onset arthritis in both my hips
Hi, this is my 1st post. I've been Diabetic Type 2 for 15+ years, originally on just Metformin 500mg x2 x3 daily over the years one thing led to another and I'm now on the massive list bellow, I suffer with neuropathy in both hand and right hip. I recently went through a spell of just falling over
Hi, this is my 1st post. I've been Diabetic Type 2 for 15+ years, originally on just Metformin 500mg x2 x3 daily over the years one thing led to another and I'm now on the massive list bellow, I suffer with neuropathy in both hand and right hip. I recently went through a spell of just falling over
Adrian-Morgan
in
Cloudy with a Chance of Pain
8 years ago
Professor Graham Hughes' Monthly Blog May 2016 (thyroid is mentioned several times)
Dear all, enclosing the latest blog from Professor Hughes' who as well as being pretty forensic about unearthing Hughes Syndrome/APS - Sticky Blood - Antiphospholipid Syndrome, also does actively investigate the patient for any hint of thyroid problems and other conditions related, especially autoimmune
Dear all, enclosing the latest blog from Professor Hughes' who as well as being pretty forensic about unearthing Hughes Syndrome/APS - Sticky Blood - Antiphospholipid Syndrome, also does actively investigate the patient for any hint of thyroid problems and other conditions related, especially autoimmune
MaryF
in
Thyroid UK
8 years ago
Professor Graham Hughes' Monthly Blog May 2016
Monthly Blog May 2016 I receive daily emails regarding Hughes syndrome. This week, one example from Kazakhstan: “Dear Dr Hughes…since the number of patients with Hughes syndrome in Kazakhstan is big, some of them are just weird.” The word is spreading. In the UK a new initiative to help spread information
Monthly Blog May 2016 I receive daily emails regarding Hughes syndrome. This week, one example from Kazakhstan: “Dear Dr Hughes…since the number of patients with Hughes syndrome in Kazakhstan is big, some of them are just weird.” The word is spreading. In the UK a new initiative to help spread information
MaryF
Administrator
in
Hughes Syndrome APS Forum
8 years ago
Some Answers
Here's a short article from Johns Hopkins followed by a long conversation discussing it. http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/causes.html MR X - I tried some N-acetyl cysteine at one time to try to lower my glutamate. No change to
Here's a short article from Johns Hopkins followed by a long conversation discussing it. http://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/causes.html MR X - I tried some N-acetyl cysteine at one time to try to lower my glutamate. No change to
Hidden
in
Restless Legs Syndrome
8 years ago
SERTRALINE AND RSL
I AM ON 200MG DAILY OF SERTRALINE AND MY RSL HAS INCREASED. TRIED LAVENDER OIL RUBBED INTO LEGS AND FEET - QUININE TABLETS AND AMITRYPTILINE. THE 2 LATER WORKED FOR A WEE WHILE NOW UNFORTUNATELY THE RSL IS BACK WORSE OF ALL I HAVE STARTED TO TAKE CRAMPS IN BOTH ANKLES AND KNEES. CAN ANYONE GIVE ME ADVICE
I AM ON 200MG DAILY OF SERTRALINE AND MY RSL HAS INCREASED. TRIED LAVENDER OIL RUBBED INTO LEGS AND FEET - QUININE TABLETS AND AMITRYPTILINE. THE 2 LATER WORKED FOR A WEE WHILE NOW UNFORTUNATELY THE RSL IS BACK WORSE OF ALL I HAVE STARTED TO TAKE CRAMPS IN BOTH ANKLES AND KNEES. CAN ANYONE GIVE ME ADVICE
AMW68
in
Restless Legs Syndrome
8 years ago
rls recently joined
i have had rls for a good few years but never really tired any drugs specially just now cos i have had a mastectomy mastectomy. awaiting radiotherapy. one of the staff in hospital suggested i try drinking tonic water s it contains quinine and is supposed to help , and one else tries this? please
i have had rls for a good few years but never really tired any drugs specially just now cos i have had a mastectomy mastectomy. awaiting radiotherapy. one of the staff in hospital suggested i try drinking tonic water s it contains quinine and is supposed to help , and one else tries this? please
marjorie2
in
Restless Legs Syndrome
8 years ago
Sudden 10000% increase in severity
I've suffered RLS since my mid-teens, as I'm 45 now that's 30 years of it. With the exception of the summer of 95 when a useless psychiatrist who knew nothing shoved me on Sulpiride it's always been just about managable in severity. The day I told the idiot psychiatrist to stick his Sulpiride and I stopped
I've suffered RLS since my mid-teens, as I'm 45 now that's 30 years of it. With the exception of the summer of 95 when a useless psychiatrist who knew nothing shoved me on Sulpiride it's always been just about managable in severity. The day I told the idiot psychiatrist to stick his Sulpiride and I stopped
SickSickSickofRLS
in
Restless Legs Syndrome
8 years ago
What to do?
This is my first post. I've had rls and plmd for 35 years. They arrive in two forms. Painful and weird muscle contractions, spasms, donkey bites and jumps, all involuntary. Nerve shocks similar to electric shocks shooting along neural pathways in my legs, and sometimes occurring as needle-like pain penetrating
This is my first post. I've had rls and plmd for 35 years. They arrive in two forms. Painful and weird muscle contractions, spasms, donkey bites and jumps, all involuntary. Nerve shocks similar to electric shocks shooting along neural pathways in my legs, and sometimes occurring as needle-like pain penetrating
rkatt
in
Restless Legs Syndrome
8 years ago
Exhaustion
Hi everyone. I have had cirrhosis since March 2014 and have a UKELD of 53 with possible referral for transplant depending on results this week. My problem is simply exhaustion!. Sitting here crying and getting mad with myself for not having any energy. I am still working full time from home but am physically
Hi everyone. I have had cirrhosis since March 2014 and have a UKELD of 53 with possible referral for transplant depending on results this week. My problem is simply exhaustion!. Sitting here crying and getting mad with myself for not having any energy. I am still working full time from home but am physically
SweetJaney
in
British Liver Trust
8 years ago
What do you do to relieve your pain or take your mind off it ?
Thought it would be a good idea for anyone or everyone to share their method of pain relief and maybe some members would have good ideas to share, especially with new members. Is there anything that you helps, ease your pain in some way. Do you use pain killers, Do you use a tens Machine, Do you use
Thought it would be a good idea for anyone or everyone to share their method of pain relief and maybe some members would have good ideas to share, especially with new members. Is there anything that you helps, ease your pain in some way. Do you use pain killers, Do you use a tens Machine, Do you use
Janet28
in
Fibromyalgia Action UK
8 years ago
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