I've suffered RLS since my mid-teens, as I'm 45 now that's 30 years of it. With the exception of the summer of 95 when a useless psychiatrist who knew nothing shoved me on Sulpiride it's always been just about managable in severity. The day I told the idiot psychiatrist to stick his Sulpiride and I stopped taking them the relief was almost instant, coming within just a few days!
But this past month my RLS has gone back to, and far, far, FAR exceeded even the worst of those Sulpiride nightmare nights! And this time, for no apparent reason whatsoever!
For about 18 hours a day I cannot lie, sit or even stand still for more than 60 seconds without it feeling that my knees, ankles and both forearm muscles feel like someone is pumping them up with a car-tyre inflator. Eventually it feels like every muscle and bone in both arms and legs are going rip themselves out and start dancing an extreme manic voodoo ceremony across the walls and ceiling!!!!! And no, that's NOT hyperbole. It REALLY feels like this!
Between 9am and 3pm regular as clockwork, the symptoms reduce by about 95% - thankfully I can get some sleep then, at least - but that timetable isn't exactly compatible with normal daily life is it?
Even worse, another bizarre sleep abnormality has started up this past week. Probably as further side effects of month long artillery pounding this extreme RLS has unleased.
I have started literally "passing out" whilst on my feet! My head often spins as an early warning but even so, it still takes me by suprise!
Three times this week I've faceplanted walls as I've been walking alone, suddenly just "gone to sleep" and crunch, walked straight into walls! It happens when sitting too..... I have spilled several full mugs of scalding tea all over myself from passing out whilst sitting down! I nearly went face first into the bath the other day from the same passing out. It's only a matter of time this strikes when I'm walking down the stairs. Or when I'm driving. I've taken to going up and down stairs on my hands and knees, and coming down backwards, so if I pass-out I'll fall into the stairs, not down them. And I've barred myself from behind the wheel till this gets sorted.
Even more bizarre is sometimes I get hallucinations with it, either that or these passing-outs are actually me just narcoleptically falling asleep and these are micro-dreams..... but the other day I suddenly "woke" to find myself stroking mid-air, where I was sure my dog was standing only a second or two earlier. The most bizarre was with the dog again, this time he *was* in front of me wanting a fuss, but as I was doing so, suddenly "yellow painted on bones" appeared all over him!!!!! Then I *woke* again, and they were gone, an the dog was looking at me as if to say "WTH just happen to you then?". And no, I do not do illegal halucigenics of any kind.
What I do take is:-
Co-codamol 30/500mg, have been since April 2015 for a variety of pain problems, probably totally addicted to them by now, and also totally tolerant of them..... they used to help a little, but now do NOTHING to stop RLS!
Omezaprole, these are for stopping raging heartburn and acid-reflux, and shouldn't have any involvement with this RLS AFAIK.
Sertraline, these may well affect RLS however, but I've not bothered with these for a few months now.....
Gabapentin, prescribed these myself. Naughty I know. Seen them quoted as being RLS treatments, and I researched them througourly (sorry I just cannot spell that word) first. Anyway, keep it short. They don't do jack.
Quinine. UTTERLY. BLOODY. USELESS. The best my GP, who keeps you waiting 60 minutes for appointments that never last more than five, can offer. Actually he did mention this Ropinadrine (or whatev the hell it's called) but couldn't get himself un-obscessed (again can't spell) over the fact "gambling" is a side effect.
As you can probably guess from even the overall tone of all this, I am verging on suicide inducing stress levels, sleep deprivation and depression from all this. My constant pacing in and out and up and down every room in the house, covering probably 20 miles a night, is also doing the same to the rest of the family, and the dog!
I've even put on 3 stone this past 28 days, I means what else is there, other than binging, can one do at 3am in the morning. And 4. And 5. And 6. And 7.....
The only way I can think of ending this long post is with