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Experiences with
PUVA Therapy (Psoralen and UltraViolet A)
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Morphea treatment - PUVA or triamcinolone injections?
They have offered triamcinolone injections or
PUVA
light therapy to try and loosen the skin around my wrist. I get the impression it’s a bit of a trial and error as it’s quite a rare condition and there isn’t extensive research.
They have offered triamcinolone injections or
PUVA
light therapy to try and loosen the skin around my wrist. I get the impression it’s a bit of a trial and error as it’s quite a rare condition and there isn’t extensive research.
Katie46
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
I am now able to tolerate antibiotics again after my nerves healed
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal
Whoa182
in
Pernicious Anaemia Society
6 months ago
I figured out why I couldn't tolerate antibiotics (caused severe burning) after developing SFN from B12 Deficiency
TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them with an antihistamine (Uva Ursi and the antibiotics previously caused severe burning sensation of my skin.) Trimethoprin and Doxycycline were not having a direct toxic effect on my nerves, but were causing mast cells to further
TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them with an antihistamine (Uva Ursi and the antibiotics previously caused severe burning sensation of my skin.) Trimethoprin and Doxycycline were not having a direct toxic effect on my nerves, but were causing mast cells to further
Whoa182
in
Pernicious Anaemia Society
1 year ago
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Diagnoses psoriasis PPP.
Hi all, I've recently been diagnosed with palmar plantar pustulosis and I am waiting for
PUVA
PHOTOTHERAPY, could be waiting 3-4 months due to backlog. The skin specialist thinks it's linked to me having Rheumatoid Arthritis diagnoses 9 years ago.
Hi all, I've recently been diagnosed with palmar plantar pustulosis and I am waiting for
PUVA
PHOTOTHERAPY, could be waiting 3-4 months due to backlog. The skin specialist thinks it's linked to me having Rheumatoid Arthritis diagnoses 9 years ago.
pool0009
in
MY SKIN
4 years ago
Rheumy v Derma
Previously, I was an in-patient, I've had
PUVA
, all the drugs I can think of, all from dermatology. Thet prescribed Humira, and it worked almost instantly. My psoriasis cleared, my arthritis was as fine as it could be. Because my skin cleared, dermatology took me off.
Previously, I was an in-patient, I've had
PUVA
, all the drugs I can think of, all from dermatology. Thet prescribed Humira, and it worked almost instantly. My psoriasis cleared, my arthritis was as fine as it could be. Because my skin cleared, dermatology took me off.
roadtoad
in
NRAS
4 years ago
Palmoplantar psoriasis help
I had light therapy (
PUVA
with oral psoralen) in 2018 which did help but 10 weeks of treatment only cleared my skin for about a month which; given the time, effort and disruption to get the treatment, really wasn’t worth it. I also tried UVB treatment last year but this made no difference at all.
I had light therapy (
PUVA
with oral psoralen) in 2018 which did help but 10 weeks of treatment only cleared my skin for about a month which; given the time, effort and disruption to get the treatment, really wasn’t worth it. I also tried UVB treatment last year but this made no difference at all.
RockPrincess
in
MY SKIN
4 years ago
Palmoplantar psoriasis help
I had light therapy (
PUVA
with oral psoralen) in 2018 which did help but 10 weeks of treatment only cleared my skin for about a month which; given the time, effort and disruption to get the treatment, really wasn’t worth it. I also tried UVB treatment last year but this made no difference at all.
I had light therapy (
PUVA
with oral psoralen) in 2018 which did help but 10 weeks of treatment only cleared my skin for about a month which; given the time, effort and disruption to get the treatment, really wasn’t worth it. I also tried UVB treatment last year but this made no difference at all.
RockPrincess
in
Beyond Psoriasis
4 years ago
Allergy to the sun
Has anyone tried
PUVA
(photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes and stay away from the windows. Does anyone know any other sites that can help?
Has anyone tried
PUVA
(photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes and stay away from the windows. Does anyone know any other sites that can help?
skinnylynne
in
MY SKIN
5 years ago
Itching in hands and feet only - anyone else have this?
Went to see her this morning and she agreed that the positive effects from the
PUVA
should have lasted longer. So came away with another steriod cream and a referral back to dermatology.
Went to see her this morning and she agreed that the positive effects from the
PUVA
should have lasted longer. So came away with another steriod cream and a referral back to dermatology.
RockPrincess
in
PBC Foundation
6 years ago
PUVA Dept for urticaria treatment.
Anyone have any ideas what I might have now? It's got to be something to do with my thyroid as doesn't look like psoriasis etc. I got an appt through a text tonight saying I have to attend this clinic. Just worrying now as haven't had chat with dermatologist about results yet!! TIA x
Anyone have any ideas what I might have now? It's got to be something to do with my thyroid as doesn't look like psoriasis etc. I got an appt through a text tonight saying I have to attend this clinic. Just worrying now as haven't had chat with dermatologist about results yet!! TIA x
Lillie23
in
Thyroid UK
7 years ago
Anyone else have Morphea
I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, I've had pigmentation problems for about 3-4 years but just put it down to starting the menopause, I just happen to mention it to the Dr on a visit one day, I've had a biopsy, and have just had my first phototherapy (
PUVA
I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, I've had pigmentation problems for about 3-4 years but just put it down to starting the menopause, I just happen to mention it to the Dr on a visit one day, I've had a biopsy, and have just had my first phototherapy (
PUVA
Hidden
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Can anyone help please?
I also have psoriasis, only on the palms of my hands, and recently agreed to have
PUVA
treatment. I was given a choice of Psoralens tablets to be taken 3 hours pre treatment each visit, or 'soaks'.
I also have psoriasis, only on the palms of my hands, and recently agreed to have
PUVA
treatment. I was given a choice of Psoralens tablets to be taken 3 hours pre treatment each visit, or 'soaks'.
GranJan
in
Beyond Psoriasis
8 years ago
Can anyone help me here, please?
I also have psoriasis, only on the palms of my hands, and recently agreed to have
PUVA
treatment. I was given a choice of Psoralens tablets to be taken 3 hours pre treatment each visit, or 'soaks'.
I also have psoriasis, only on the palms of my hands, and recently agreed to have
PUVA
treatment. I was given a choice of Psoralens tablets to be taken 3 hours pre treatment each visit, or 'soaks'.
GranJan
in
AF Association
8 years ago
Itching
The only thing that helped was very large doses of
PUVA
but had to stop as after about 18 months was getting up to max lifetime dose due to skin cancer risk.
The only thing that helped was very large doses of
PUVA
but had to stop as after about 18 months was getting up to max lifetime dose due to skin cancer risk.
skodaguy
in
MPN Voice
8 years ago
A good news story
I had 48 sessions of
PUVA
with the wonderful team at Queens Hospital in Romford. This week I went back to see the Consultant and she was delighted too! I will continue to be in her care with another appointment in six months.
I had 48 sessions of
PUVA
with the wonderful team at Queens Hospital in Romford. This week I went back to see the Consultant and she was delighted too! I will continue to be in her care with another appointment in six months.
hajoed
in
MY SKIN
9 years ago
Hair loss when on Acitretan
Having
PUVA
on my feet & Acitretan at 50mcg daily, I've noticed thinning hair - on body, eyelashes , eyebrows, and scalp - to the extent there was nothing needing trimming when I went to the hairdresser for my 6 week trim. has anyone else had this?
Having
PUVA
on my feet & Acitretan at 50mcg daily, I've noticed thinning hair - on body, eyelashes , eyebrows, and scalp - to the extent there was nothing needing trimming when I went to the hairdresser for my 6 week trim. has anyone else had this?
Bluehills
in
MY SKIN
10 years ago
Anyone tried PUVA treatment?
My dermatologist has suggested I try
PUVA
treatment. Has anyone out there given it a go? I'm in two minds because (a) I suspect it won't work (b) it's time consuming and (c) the side effects of burning sound none too appealing! Is it worth it?
My dermatologist has suggested I try
PUVA
treatment. Has anyone out there given it a go? I'm in two minds because (a) I suspect it won't work (b) it's time consuming and (c) the side effects of burning sound none too appealing! Is it worth it?
annapecia
in
Alopecia UK
11 years ago
Hello, amazed to fnd a form relatng to this!
She prescribed amytripyline for three months and then decided I should try
PUVA
. So had that treatment and it helped to some extent.
She prescribed amytripyline for three months and then decided I should try
PUVA
. So had that treatment and it helped to some extent.
Cairnperson
in
Nodular Prurigo International
11 years ago
History of my psoriasis
Eventually, I was prescribed
PUVA
at Stevenage, I think I went 2-3 times a week. There was a tedious procedure to be followed prior to the treatment. The
PUVA
treatment started at one minute and built up to 20 Minutes. The longest 20 minutes in the
PUVA
.
Eventually, I was prescribed
PUVA
at Stevenage, I think I went 2-3 times a week. There was a tedious procedure to be followed prior to the treatment. The
PUVA
treatment started at one minute and built up to 20 Minutes. The longest 20 minutes in the
PUVA
.
Hidden
in
MY SKIN
11 years ago
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