Experiences with

PUVA Therapy (Psoralen and UltraViolet A)

They have offered triamcinolone injections or PUVA light therapy to try and loosen the skin around my wrist. I get the impression it’s a bit of a trial and error as it’s quite a rare condition and there isn’t extensive research.

Hello! I just want to give this update about my situation. I hope people on here find this because my situation was a nightmare and I think this can help people who are confused and not sure what to do or if they'll ever be able to tolerate antibiotics again (TL;DR: you will be able to if you can heal

TL;DR I was able to succesfully use Uva Ursi and Antibiotics by combing them with an antihistamine (Uva Ursi and the antibiotics previously caused severe burning sensation of my skin.) Trimethoprin and Doxycycline were not having a direct toxic effect on my nerves, but were causing mast cells to further

Hi all, I've recently been diagnosed with palmar plantar pustulosis and I am waiting for PUVA PHOTOTHERAPY, could be waiting 3-4 months due to backlog. The skin specialist thinks it's linked to me having Rheumatoid Arthritis diagnoses 9 years ago.

Previously, I was an in-patient, I've had PUVA, all the drugs I can think of, all from dermatology. Thet prescribed Humira, and it worked almost instantly. My psoriasis cleared, my arthritis was as fine as it could be. Because my skin cleared, dermatology took me off.

I had light therapy (PUVA with oral psoralen) in 2018 which did help but 10 weeks of treatment only cleared my skin for about a month which; given the time, effort and disruption to get the treatment, really wasn’t worth it. I also tried UVB treatment last year but this made no difference at all.

I had light therapy (PUVA with oral psoralen) in 2018 which did help but 10 weeks of treatment only cleared my skin for about a month which; given the time, effort and disruption to get the treatment, really wasn’t worth it. I also tried UVB treatment last year but this made no difference at all.

Has anyone tried PUVA (photosensitivity treatments) or low dose naltrexone? All I can do is wear many layers of clothes and stay away from the windows. Does anyone know any other sites that can help?

Went to see her this morning and she agreed that the positive effects from the PUVA should have lasted longer. So came away with another steriod cream and a referral back to dermatology.

Anyone have any ideas what I might have now? It's got to be something to do with my thyroid as doesn't look like psoriasis etc. I got an appt through a text tonight saying I have to attend this clinic. Just worrying now as haven't had chat with dermatologist about results yet!! TIA x

I was diagnosed with Morphea about 6months ago, I'm 52,, though looking back, I've had pigmentation problems for about 3-4 years but just put it down to starting the menopause, I just happen to mention it to the Dr on a visit one day, I've had a biopsy, and have just had my first phototherapy (PUVA

I also have psoriasis, only on the palms of my hands, and recently agreed to have PUVA treatment. I was given a choice of Psoralens tablets to be taken 3 hours pre treatment each visit, or 'soaks'.

I also have psoriasis, only on the palms of my hands, and recently agreed to have PUVA treatment. I was given a choice of Psoralens tablets to be taken 3 hours pre treatment each visit, or 'soaks'.

The only thing that helped was very large doses of PUVA but had to stop as after about 18 months was getting up to max lifetime dose due to skin cancer risk.

I had 48 sessions of PUVA with the wonderful team at Queens Hospital in Romford. This week I went back to see the Consultant and she was delighted too! I will continue to be in her care with another appointment in six months.

Having PUVA on my feet & Acitretan at 50mcg daily, I've noticed thinning hair - on body, eyelashes , eyebrows, and scalp - to the extent there was nothing needing trimming when I went to the hairdresser for my 6 week trim. has anyone else had this?

My dermatologist has suggested I try PUVA treatment. Has anyone out there given it a go? I'm in two minds because (a) I suspect it won't work (b) it's time consuming and (c) the side effects of burning sound none too appealing! Is it worth it?

She prescribed amytripyline for three months and then decided I should try PUVA. So had that treatment and it helped to some extent.

Eventually, I was prescribed PUVA at Stevenage, I think I went 2-3 times a week. There was a tedious procedure to be followed prior to the treatment. The PUVA treatment started at one minute and built up to 20 Minutes. The longest 20 minutes in the PUVA.