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8 hour flight
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
I was diagnosed with ET with jak2 about 5 years ago, my platelets aren’t bad at all only 790 at last count, so am only on mini aspirin at present. Going on 8 hour flight soon, should I take any extra precautions? A colleague told me I should be taking fragmin as such a long flight! Does anyone have any
Footballwidow66
in
MPN Voice
3 months ago
An Eventful January
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
I like to keep the NHS busy. My January itinerary as its stands, although more can be added yet. Week 1 - Respiratory Chest Consultant, following a CT Scan on 29/12 I had an appt with the Consultant a few days later. As I expected the scan showed that I had a Pleural Effusion/Pneumonia (fluid) in both
Hidden
in
British Heart Foundation
4 months ago
A simple life with Acalabrutinib?
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Hi! As an 80 year old guy living (happily) in a rural backwater, I’m 100 miles of slow unpredictable travel away from my haematologist and the associated treatment centre. I have CLL with 17p deletion. I’m soon going to start acalabrutinib medication along with prophylactics etc. Does anyone know what
Fogey
in
CLL Support
3 months ago
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Methylation DNA & thyroid
Hello everyone hope you are all well! Wondering if anyone has had the Methylation DNA test and has used it to help improve & ease there thyroid symptoms? I have had one done and still have a thyroid function test waiting to be done too.Have a few things to sort before I do the function test but in
Hello everyone hope you are all well! Wondering if anyone has had the Methylation DNA test and has used it to help improve & ease there thyroid symptoms? I have had one done and still have a thyroid function test waiting to be done too.Have a few things to sort before I do the function test but in
jacobite33
in
Thyroid UK
4 months ago
Thyroid test result query
Hi all, I had a spinal MRI test which flagged up abnormality in thyroid. My GP had me do a Thyroid function test and today I rang for the result. The receptionest said a result was recieved but my GP has ignored the result but requested further information on the sample submitted for testing. The
Hi all, I had a spinal MRI test which flagged up abnormality in thyroid. My GP had me do a Thyroid function test and today I rang for the result. The receptionest said a result was recieved but my GP has ignored the result but requested further information on the sample submitted for testing. The
BreezyGeezer
in
Thyroid UK
4 months ago
Elevated Liver Enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Hello everyone, hope you are doing well. I just recently had LFT, 3 enzymes came back a little elevated. Alt was 52, Alp was 121 and GGT at 72. Ast according to the lab was normal at 35. CBC was all good too, ANA was negative, kidney function test was normal as well. All the other protiens and enzymes
Mhalpha
in
British Liver Trust
4 months ago
Taking Rivaroxaban to prevent DVT.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
I'm on Rivarixaban 10 mg. and Pitavastatin 2 mg. I feel very ok with Rivaroxaban. I don't to check the blood. I had Acute Pulmonary Embolism 4 years ago, and have to have this NOACs lifetime after D-dimer was very high again 2 years ago. Rivaroxaban doesn't cause side effects.
Pomelokhaoyai
in
AF Association
4 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
5 months ago
1 Year Anniversary (Nov 16)
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Jayhawker
in
Kidney Dialysis
6 months ago
Coming home
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
So after 4.5 years in Nigeria and an APS diagnosis in summer 2020 I’m coming back to the U.K. In many ways I’m looking forward to it and I know my consultants - all 3 of them - will be much more comfortable with me being near better medical care (APS, warfarin and epilepsy are not a good combination
GillyA
in
Hughes Syndrome APS Forum
5 months ago
Does tibilone get better?
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Hello everyone, I've just finished a 6 month course of prostap with no add back hrt. I had a pretty rough time on prostap alone, apparently I was supposed to be prescribed hrt alongside but never was, and in order to carry on my consultant has now added in tibilone. I thought the prostap was bad but
Womble84
in
Endometriosis UK
6 months ago
Lung function test?
I (25F) was diagnosed with SS ten years ago and had a
pulmonary
function
test
yesterday. I probably had a lung function test previously, but certainly not like yesterday's. I've been feeling really nauseous since. The dizziness passed mid-afternoon, but the nausea hasn't yet.
I (25F) was diagnosed with SS ten years ago and had a
pulmonary
function
test
yesterday. I probably had a lung function test previously, but certainly not like yesterday's. I've been feeling really nauseous since. The dizziness passed mid-afternoon, but the nausea hasn't yet.
thepictrofdoryingrey
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Anticoagulation Therapy
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
Are you currently taking anticoagulants? Perhaps you are taking a Direct Oral Anticoagulant (DOAC) such as; Apixaban, Edoxaban, Dabigatran, Heparin, Rivaroxaban or even Warfarin? Have you have recently been approached or had your medication changed to an alternative? If so, have you experienced any
TracyAdmin
Partner
in
AF Association
6 months ago
Tapering going well so far with a few hiccups
An angiogram showed my heart in great shape then a
pulmonary
function
test
showed while I breath IN ok I don't breath OUT very well. Since I try to be active this is a big frustration. It's taking 5 months to get in to see a pulmonologist for what they say is COPD. but not what kind.
An angiogram showed my heart in great shape then a
pulmonary
function
test
showed while I breath IN ok I don't breath OUT very well. Since I try to be active this is a big frustration. It's taking 5 months to get in to see a pulmonologist for what they say is COPD. but not what kind.
Dydee
in
PMRGCAuk
1 year ago
stopping warfarin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Hi, I am having a lumbar steroid injection for a slipped disc. the doctor performing it wants my my inr below 1.2. I attend Barnet hospital anticoagulation clinic in London. They told me the person performing the steroid injection must make a “ bridging plan “, that may or may not involve heparin
Kev667
in
Hughes Syndrome APS Forum
7 months ago
Appt with infectious disease specialist today: New CMV game plan
I had my first appointment with an infectious disease specialist today. She reviewed all my pre and post transplant data with me. She gathered detailed information about the side effects I’ve been experiencing with Valcyte as well as what had been tried with medication dose changes etc. In addition,
I had my first appointment with an infectious disease specialist today. She reviewed all my pre and post transplant data with me. She gathered detailed information about the side effects I’ve been experiencing with Valcyte as well as what had been tried with medication dose changes etc. In addition,
Jayhawker
in
Kidney Transplant
8 months ago
Dr appt updates
Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness of breath since I had Covid last June after coming home from our trip.” This led her to have me do a 6 minute walking test - my oxygen didn’t
Saw my pulmonologist on Tues. “Why haven’t you been using your Cpap?” Me: “Sometimes I feel claustrophobic and it’s hard to breathe. I also have had shortness of breath since I had Covid last June after coming home from our trip.” This led her to have me do a 6 minute walking test - my oxygen didn’t
PWilli
in
My MSAA Community
1 year ago
heparin innohep Uk
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
hi all, I’m in the U.K. I don’t have a specialist just GP and a nurse anticoagulant clinic I visit. Are U.K. APS patients on warfarin suppose to have a heparin injections supply at home for emergencies when inr too low. The nurse said it’s a good idea since pharmacies don’t usually have in in stock
Kev667
in
Hughes Syndrome APS Forum
8 months ago
Lupron Injection Site Pain
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Hi all - curious if any of you have had this weirdness. I got my first Lupron injection Aug 17th (3mth 22.5mg i believe) - had the initial soreness at injection site on shoulder that is typical of even say a flu shot. That pain did go away in couple days but came back on the 10th day and still is
Yzinger
in
Advanced Prostate Cancer
8 months ago
need help I’m back
hi it’s Debbie is Mary stlll posting! I have APS for over 8 years that I know about! Could never be regulated on warfarin! I was put on Lovenox/Enexoparin 8 years ago! I was opening a difficult window and broke my back! Needless to say my hemotologist NEVER told me I cud get osteoporosis from Lovenox
hi it’s Debbie is Mary stlll posting! I have APS for over 8 years that I know about! Could never be regulated on warfarin! I was put on Lovenox/Enexoparin 8 years ago! I was opening a difficult window and broke my back! Needless to say my hemotologist NEVER told me I cud get osteoporosis from Lovenox
Debbweb01
in
Hughes Syndrome APS Forum
9 months ago
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