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still feeling rubbish, any ideas please?
hi lovely forum friends. I’ve now been on NDT 4 months, all but a few days. My readings from 10 Dec are TSH. 0.092. (0.27-4.2) T3. 3.8. (3.1-6.8) T4. 13.7. (12-22) after this test I decided after posting here to raise my pm dose to 45mg and I take 60mg (Erfa) early morning. I’m now taking the
hi lovely forum friends. I’ve now been on NDT 4 months, all but a few days. My readings from 10 Dec are TSH. 0.092. (0.27-4.2) T3. 3.8. (3.1-6.8) T4. 13.7. (12-22) after this test I decided after posting here to raise my pm dose to 45mg and I take 60mg (Erfa) early morning. I’m now taking the
Starseed56
in
Thyroid UK
4 months ago
Adrenal insufficiency
After 3.5 years on Prednisolone and 1 year of Toccilizumab for GCA including sight loss (late diagnosis), starting at 60mg, I got down to 2mg following a Synacthen test in June 23 which apparently proved my adrenal glands were capable of working. However I couldn’t function at all, extreme fatigue,
After 3.5 years on Prednisolone and 1 year of Toccilizumab for GCA including sight loss (late diagnosis), starting at 60mg, I got down to 2mg following a Synacthen test in June 23 which apparently proved my adrenal glands were capable of working. However I couldn’t function at all, extreme fatigue,
Forestlady
in
PMRGCAuk
4 months ago
Newly diagnosed and confused
Hello, thank you for having me. I have been diagnosed with hyperthyroidism and due to administrative errors, have had limited treatment. I am now under the care of Endocrinology but am struggling to understand my results. Please could someone shed some light on what's happening? Upon reflection,
Hello, thank you for having me. I have been diagnosed with hyperthyroidism and due to administrative errors, have had limited treatment. I am now under the care of Endocrinology but am struggling to understand my results. Please could someone shed some light on what's happening? Upon reflection,
Opposite
in
Thyroid UK
3 months ago
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To Infuse or not to Infuse
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
I figured it was time to put the 45 infusion stories I could find all together so people can make an informed decision. Simply tap on the link and within a few lines you will know whether the person gave it a thumbs up or down. If you read the replies you may find more stories. I welcome anyone who
DesertOasis
in
Restless Legs Syndrome
6 months ago
Endo results - meno or thyroid?
55 year old hypo diagnosed 20+ years ago, family history of hypo ( nan, mum and sister) . I also have vitiligo from my early 20s. I was tested for dry eyes when I was a teenager , so I think I've been hypo a long time.
Oct 23 GP bloods showed TSH 0.1, T4 18.9.
This was 12 hrs after my
55 year old hypo diagnosed 20+ years ago, family history of hypo ( nan, mum and sister) . I also have vitiligo from my early 20s. I was tested for dry eyes when I was a teenager , so I think I've been hypo a long time.
Oct 23 GP bloods showed TSH 0.1, T4 18.9.
This was 12 hrs after my
klfaz
in
Thyroid UK
3 months ago
child with dyslexia
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
My daughter has recently been diagnosed with dyslexic tendencies. She is almost 7yrs old in year 2 of primary school. I had her B12 tested last year due to recurrent mouth ulcers. I’m just concerned that while displaying the characteristics of dyslexia in reading & writing etc she does not experience
Murfie276
in
Pernicious Anaemia Society
1 month ago
New Thyroid Results - Conversion Issue?
Hi, After an emotional Thyroid rollercoaster these past couple years (post partial thyroidectomy 12/2/21 in combination with an Endo who doesn't believe in compounded medication), I finally seem to be settling into a medication and dose that works okay. I'd have to say that I'm still a bit tired and
Hi, After an emotional Thyroid rollercoaster these past couple years (post partial thyroidectomy 12/2/21 in combination with an Endo who doesn't believe in compounded medication), I finally seem to be settling into a medication and dose that works okay. I'd have to say that I'm still a bit tired and
KarmaMaya
in
Thyroid UK
3 months ago
T3 only treatment experiences please
Hello, Looking to hear from anyone that has tried t3 only treatment? It’s been suggested I try it. I have PCOS which can cause thyroid hormone resistance which maybe explains why T4 at any dose causes awful issues and my t3 doesn’t budge at all. My t4 before starting levo has always been fine &
Hello, Looking to hear from anyone that has tried t3 only treatment? It’s been suggested I try it. I have PCOS which can cause thyroid hormone resistance which maybe explains why T4 at any dose causes awful issues and my t3 doesn’t budge at all. My t4 before starting levo has always been fine &
GreenTealSeal
in
Thyroid UK
6 months ago
First test results after adding T3 - I’m confused!
Hi everyone, I’d really appreciate your help with my latest results and welcome ideas for suggested next steps. Just a reminder, I currently self-treat. In October I posted the following results (Randox) whilst on 62.5mcg of Levo (Eutirox): TSH 1.44 (0.35-5.5) FT4 18.2 (11.9-21.6) FT3 3.96 (3.1
Hi everyone, I’d really appreciate your help with my latest results and welcome ideas for suggested next steps. Just a reminder, I currently self-treat. In October I posted the following results (Randox) whilst on 62.5mcg of Levo (Eutirox): TSH 1.44 (0.35-5.5) FT4 18.2 (11.9-21.6) FT3 3.96 (3.1
J972
in
Thyroid UK
4 months ago
A graphic showing highs and lows when you take T3?
I'm sure I've seen them before, but sorry I can't find them now. I think there are some graphics showing the highs and lows/peaks and troughs of T3 when you're on T3 medication. Does anyone have one please?
I'm sure I've seen them before, but sorry I can't find them now. I think there are some graphics showing the highs and lows/peaks and troughs of T3 when you're on T3 medication. Does anyone have one please?
TaraJR
in
Thyroid UK
6 months ago
Blood Test results - help please
Hi Everyone I was diagnosed with myxoedema hypothyroidism in 1989 and have taken 150 mcg Levo ever since. I am also coeliac. My new GP has recently queried my TSH and says I have been over medicated for a long time - since 2014 my TSH has been around 0.05 and my T4 in the upper range around 18. My
Hi Everyone I was diagnosed with myxoedema hypothyroidism in 1989 and have taken 150 mcg Levo ever since. I am also coeliac. My new GP has recently queried my TSH and says I have been over medicated for a long time - since 2014 my TSH has been around 0.05 and my T4 in the upper range around 18. My
Finlandia22
in
Thyroid UK
4 months ago
Where to buy T3 please? I’m based in the UK and going to Turkey for a holiday
Hello all, Please private message me on how to get T3. I depend up it. Thank you
Hello all, Please private message me on how to get T3. I depend up it. Thank you
melodie
in
Thyroid UK
6 months ago
So confused?
Hi everyone hope your all having a good week. Not been the best week for me if I'm honest had some kind of infection either bladder or kidney so was on antibiotics for that but still getting the awful stomach pain I get the pain in my chest aswell it's strange? It hurts when I need to go to the toilet
Hi everyone hope your all having a good week. Not been the best week for me if I'm honest had some kind of infection either bladder or kidney so was on antibiotics for that but still getting the awful stomach pain I get the pain in my chest aswell it's strange? It hurts when I need to go to the toilet
Yumz199725
in
British Heart Foundation
6 months ago
Hashimotos, low TSH, normal t4, Feeling so ill
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
Brn2BWild
in
Thyroid UK
4 months ago
Another iron IV/hydro post - been in hospital last night
Hey all,I had iron infusion on Monday. During it, I had anaphylactic shock (tight chest, couldn't breathe) and was injected with 100 mg hydrocortisone (thanks to this, they were able to finish the IV). I woke up on Tuesday morning feeling incredibly warm and with a lot of energy. My vision got sharper
Hey all,I had iron infusion on Monday. During it, I had anaphylactic shock (tight chest, couldn't breathe) and was injected with 100 mg hydrocortisone (thanks to this, they were able to finish the IV). I woke up on Tuesday morning feeling incredibly warm and with a lot of energy. My vision got sharper
Incoguto
in
Thyroid UK
6 months ago
Morningside in short supply supposedly
I have rung round most chemists where I am and they say they can’t get it as it’s not in stock, I have rung morningside myself again today. They are absolutely no help what so ever and everything I said seemed like a joke to them ending each time with “apologise for that” I implied that some of us
I have rung round most chemists where I am and they say they can’t get it as it’s not in stock, I have rung morningside myself again today. They are absolutely no help what so ever and everything I said seemed like a joke to them ending each time with “apologise for that” I implied that some of us
Goldengirl01
in
Thyroid UK
6 months ago
Very suppressed tsh, on T3 10, years
HelloThese are my medichecks blood test results. Dr is trying to send me to endocrinologist because of severly suppressed TSh. Bloods done 11am. (Should of been 9am) TSh 0.007 ref 0.27 - 4.2 FreeT3 4.8 ref 4.1 - 6.8 FT4 0.5 ref 12 - 22 I'm on T3 only and my tsh is always suppressed to this level
HelloThese are my medichecks blood test results. Dr is trying to send me to endocrinologist because of severly suppressed TSh. Bloods done 11am. (Should of been 9am) TSh 0.007 ref 0.27 - 4.2 FreeT3 4.8 ref 4.1 - 6.8 FT4 0.5 ref 12 - 22 I'm on T3 only and my tsh is always suppressed to this level
Elizajoe102
in
Thyroid UK
2 months ago
Endo list
Hello 👋🏼 Please may I ask for the list that has the names of endocrinologists who have prescribed T3 to their patients in the past and are knowledgeable about T3? I need to find out if there’s someone in Royal Berkshire Hospital as I just found out that my GP referred me to them and I’ve been given
Hello 👋🏼 Please may I ask for the list that has the names of endocrinologists who have prescribed T3 to their patients in the past and are knowledgeable about T3? I need to find out if there’s someone in Royal Berkshire Hospital as I just found out that my GP referred me to them and I’ve been given
Amazon07
in
Thyroid UK
6 months ago
Recent blood results, help interpreting
Hi everyone, I haven't posted in a while, but would like my latest blood results checked with the knowledgable people on here. I've been on a treatment of 125mcg of Levothyroxine and alternating days of 5mcg and 7mcg of liothyronine. I have been feeling better on this dose, and was slightly too highly
Hi everyone, I haven't posted in a while, but would like my latest blood results checked with the knowledgable people on here. I've been on a treatment of 125mcg of Levothyroxine and alternating days of 5mcg and 7mcg of liothyronine. I have been feeling better on this dose, and was slightly too highly
thyroidqueen12
in
Thyroid UK
3 months ago
I've just got results of my T3: 4.09 (2.00 - 4.40). I feel OK so just wondering if I should leave well alone? I take 25mcg T3 and 75mcg T4.
I've just received the results of my routine T3 test: 4.09 (2.00 - 4.40). I feel OK so just wondering whether to increase a little or leave well alone ? Thanks 🙂
I've just received the results of my routine T3 test: 4.09 (2.00 - 4.40). I feel OK so just wondering whether to increase a little or leave well alone ? Thanks 🙂
infomaniac
in
Thyroid UK
6 months ago
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