Experiences with

Pulmonary fibrosis

Hi has anyone on here decided not to to take minitab with pulmonary fibrosis xx

And because I have metastases in my lungs he's worried about the treatment causing pulmonary fibrosis. He still thinks I'm a good candidate (?) but was very direct about possible SEs. He wants me to have a pulmonary function test before proceeding. Now I'm scared.

Fast forward I was hospitalised and diagnosed with pneumonia, Covid positive and Pulmonary Fibrosis. Today my GP prescribed a 7 day course of 40mg of Pred per day, plus Omeprazole. (The dry cough can be a symptom of Pulmonary Fibrosis, by the way.)

Hi all I have pulmonary fibrosis caused by hypersensitivity pneumonitis & am now on oxygen at 4l moving around I may have the opportunity to travel by car from Leicestershire to the Alps in France next March & am just trying to work out the logistics for taking/getting O2 delivered.

if anyone out there struggled coming to terms with their diagnosis of pulmonary fibrosis, and was offered no help and little explanation of what it is look up Action for Pulmonary fibrosis which is a charity and can offer you lots of information and help so you don’t feel you are alone with this devastating

Has anyone experienced lung damage (pulmonary fibrosis) from xofigo?

I have hypersensitivity pneumonitis, pulmonary fibrosis and Hypoxia.

I have CPFE (combined pulmonary fibrosis and emphysema) and have noticed that with the change in the weather my breathing has improved, however I seem to be struggling with a persistent cough and catarrh.

hi interested to hear from anyone who has IPF

I have SSc (Scleroderma)/Reynauds/Pulmonary Fibrosis/Inflamatory Arthritis. And other stuff!. 2010 diagnosis. The stuff on the web address below is hard reading, but Vitamin D is so important to help you with our conditions.

[ Bio: I’m almost 2 months post Covid / pneumonia and a CT revealing pulmonary fibrosis.

"Pulmonary fibrosis is a lung disease that occurs when lung tissue becomes damaged and scarred. This thickened, stiff tissue makes it harder for the lungs to work properly. Pulmonary fibrosis worsens over time.

my husband has had pulmonary fibrosis for about 5/6 years now, he’s coughing almost constantly, it’s really getting him & me down, is there anything he can take to ease it? Thank you.

., angina, ckd and idiopathic pulmonary fibrosis.. I work with my consultants to keep on balance. But you must ask questions about your medication.

hi everyone I have been prescribed ninintab haven't taken yet but the nurse said can't take NAC and quercetin and lots of other vitamins and alchhol and other rules, does anyone know anything about this seems like a change of lifestyle to me im supposed to use ambulatory oxegen as welwell !

my husband has pulmonary fibrosis, On no medication for it, coughs continuously especially on waking in the morning and brining up a small amount of phlegm.

Originally I was diagnosed with lung fibrosis and earlier this year I received confirmation that I have CPFE combined pulmonary fibrosis and emphysema.I suffer from shortness of breath and some everyday tasks are becoming more difficult. Even putting my socks on can leave me short of breath.

Was just wondering if it's normal with pulmonary fibrosis to get very tired and listless, I asked my consultant and he said everybody can get tired, not a very helpful answer x

The consequences were scarring of the lungs that I now know is pulmonary fibrosis and as of yet, does not have a treatment path. I participate as a stroke lived-experience person in various university studies, and maybe there are opportunities through this forum.

Hi everyone, Intersted in hearing off anyone who has this and takes the anti fibrotic drug Nintedanib