Ninintab

[Currygirl]

Hi has anyone on here decided not to to take minitab with pulmonary fibrosis xx

[Suzie42]

Not sure which drug you are talking about, do you mean Nintedanib? I have taken that one but am now on Pirefidone

[Currygirl in reply to Suzie42]

Yes ninintab

[Hazel-mary]

Hi I was taking Nintedanib for a month but had to change to Pirfenidone.

Are you taking nintedanib?

Hazel

[Currygirl in reply to Hazel-mary]

Got it but haven't tried it automatic

[Currygirl in reply to Currygirl]

Typo should have been yet

[Suzie42]

All I can tell you that these 2 antifibrotic drugs will keep you alive for longer than without them. I feel so lucky to have been given them as they are so expensive. Although most drugs come with side effects you just have to balance it out. I just want to keep going for as long as possible. Years ago before the drugs came out life expectancy was 3-5 years. I've been on them for 4 years and my lung function is slightly better than when first diagnosed.