Hi has anyone on here decided not to to take minitab with pulmonary fibrosis xx
Ninintab: Hi has anyone on here decided... - Lung Conditions C...
Ninintab
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Currygirl
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6 Replies
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Not sure which drug you are talking about, do you mean Nintedanib? I have taken that one but am now on Pirefidone
Hi I was taking Nintedanib for a month but had to change to Pirfenidone.
Are you taking nintedanib?
Hazel
All I can tell you that these 2 antifibrotic drugs will keep you alive for longer than without them. I feel so lucky to have been given them as they are so expensive. Although most drugs come with side effects you just have to balance it out. I just want to keep going for as long as possible. Years ago before the drugs came out life expectancy was 3-5 years. I've been on them for 4 years and my lung function is slightly better than when first diagnosed.