Hi all
I have pulmonary fibrosis caused by hypersensitivity pneumonitis & am now on oxygen at 4l moving around
I may have the opportunity to travel by car from Leicestershire to the Alps in France next March & am just trying to work out the logistics for taking/getting O2 delivered.
Does any have experience of such a trip?
Unfortunately for a lot of people on supplemental oxygen foreign holidays are out of the question because you need to get oxygen from a foreign company and this costs a lot of money (£800+). More details can be found here:
asthmaandlung.org.uk/living...
You can also call your oxygen supplier for further guidance.
Thankyou yes they are my next call
I'm on the same oxygen prescription, I've just come back from morrocco, obviously I couldn't take oxygen ,I took my wheelchair and my son in law pushed me round hotel ad assistance at airport helped , but I don't think I'll go abroad again ,it's just taking a chance without oxygen ,and holiday insurance is so expensive !! Forgot to say I have pf as well , good luck with with the oxygen search
Hello, As JHutton had said many of us oxygen users have given up trying to travel with oxygen. It is logistically and economically very challenging.
It is tricky enough in UK never mind out of the country.
Are you using continuous flow or pulse ? If you are using pulse there is an outside chance you could manage with renting an Eclipse portable concentrator. I am on continuous flow 4-5 l/min and tried one. It didn’t really give me enough 02 and only lasted 1 and 1/2 hours before recharge.
It is really disappointing as I was so used to driving to Spain for the winter months, although 4 years later I have just about got my head around it now,
Wishing you well
Pauline
Yes it’s very hard to give up all those things we used to do. I was so active & independent before but now I need more & more help & support.
I’m finding the concentrators not as much help as my liquid oxygen flask. Also looking into getting a mobility scooter (can’t believe I’m saying that!)
Thankyou for your advice
There is no shame in using a mobility scooter, Tawny10 . I had to use one in my late 40s before I had a knee replacement op, and I was very glad to have the ability to go shopping still. I also walked my big dog using it, which caused a lot of amusement in the people we passed.
Yeah it's losing your independence, having to rely on people , and I hate the wheelchair !! I have got a mobility scooter which is a God send ,take care and good luck
Yes, I agree. Big adjustments to our thinking are needed..
I assume you have done a PR course ? If we can keep as fit as possible for as long as possible that will serve us well.
It is trust treadmill time for me in this cod weather.
Go well,
Pauline
Yes I’ve done 2 PR courses which are great but I’m struggling to keep strength in my legs which as you say is so important
Hi I know what you mean about mobility scooters😩
I recently took the plunge and bought one from EBay The cost new was £2000+
I bought it for a quarter of that
Go to a number of outlets and try them.
When you have made your decision look on line.
look for that particular model and hopefully it is in your immediate area to buy
The main problems appears to be to be battery life
So check on this before purchasing
I hope this helps
Regards
Brian
Hi Tawny, I really hope you find a way to get to The Alps. I don't get on with pulse concentrators so haven't travelled abroad since I've been on oxygen. I've travelled a lot in this country though with no issues. Mobility scooters are definitely a game changer. I'm still in my 40's but use one if we're going out for the day.
Thankyou I will certainly do everything I can to make it work. I too struggle with the concentrators so hoping I will be able to buy what I need to pick up in France
OUT WITH OXYGEN!
Oxygen Levels
"Living with Oxygen" 
Travel insurance with copd needing oxygen on flight
Travel insurance with IPF
