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ADT options for BCR oligometastesis
Recent Auxmin and PSMA scans show that my husband has BCR oligometastesis (MRI shows nothing). It seems there are two different treatment options/opinions: 1. Lupron OR Eligard OR Firmagon OR Orgovyx for a few months and then radiation, then continue hormone therapy for 1-1.5 years 2. Lupron OR Eligard
Recent Auxmin and PSMA scans show that my husband has BCR oligometastesis (MRI shows nothing). It seems there are two different treatment options/opinions: 1. Lupron OR Eligard OR Firmagon OR Orgovyx for a few months and then radiation, then continue hormone therapy for 1-1.5 years 2. Lupron OR Eligard
TCMG
in
Advanced Prostate Cancer
2 years ago
Estradiol Clinical Trial in UK?
Since my diagnosis of hormone-resistant and metastatic, I've been researching my options, beyond SOC (my onco wants me to start enzalutamide + Leuprorolin immediately) . Having seen E2-Guy post on Estradiol, I saw that there is a clinical trial taking place in the UK, so I am interested in joining
Since my diagnosis of hormone-resistant and metastatic, I've been researching my options, beyond SOC (my onco wants me to start enzalutamide + Leuprorolin immediately) . Having seen E2-Guy post on Estradiol, I saw that there is a clinical trial taking place in the UK, so I am interested in joining
CrocodileShoes
in
Advanced Prostate Cancer
2 years ago
Losing weight with endo
Hi, I have stage for endo, I've had it for 10 years now, I've had surgery etc,. I'm currently on prostap 3 monthly injection and hrt. I'm really struggling to lose weight, my question is has anyone tried slimming pills like xls for this, and has it worked for you. Thank you in advance Lisa
Hi, I have stage for endo, I've had it for 10 years now, I've had surgery etc,. I'm currently on prostap 3 monthly injection and hrt. I'm really struggling to lose weight, my question is has anyone tried slimming pills like xls for this, and has it worked for you. Thank you in advance Lisa
mgzrrover7
in
Endometriosis UK
2 years ago
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Recurring prostate cancer individual seeking Letetium 177 before it spreads more
My recent PSMA scan evidenced recurring prostate cancer now in seminal vesticule following proton therapy in 2015. Well respected USA hospital MD said surgery & radiation out due to previous proton radiation & closeness to bladder & rectum. Other than ADT only hope would be to get Letetium 177 treatment
My recent PSMA scan evidenced recurring prostate cancer now in seminal vesticule following proton therapy in 2015. Well respected USA hospital MD said surgery & radiation out due to previous proton radiation & closeness to bladder & rectum. Other than ADT only hope would be to get Letetium 177 treatment
Willofthewisp
in
Advanced Prostate Cancer
2 years ago
Latest test results - can you help - I am barking up the wrong tree?
Good morning, this if my first post here and I was hoping that someone could help with interpreting my test results and giving some advice as to what I can do next! I had a somewhat disappointing consult with my GP this morning about my hypothyroidism. As a short history, back in early 2020 my hypothyroidism
Good morning, this if my first post here and I was hoping that someone could help with interpreting my test results and giving some advice as to what I can do next! I had a somewhat disappointing consult with my GP this morning about my hypothyroidism. As a short history, back in early 2020 my hypothyroidism
crabapple1
in
Thyroid UK
2 years ago
Depression & Anxiety Flair Up
I have had depression and anxiety most of my adult life. I am currently taking Pristiq to keep it under control. I had been doing good until the beginning of May when I got a severe toothache and since then my depression and anxiety is through the roof again. I am at a loss of what to do. I have
I have had depression and anxiety most of my adult life. I am currently taking Pristiq to keep it under control. I had been doing good until the beginning of May when I got a severe toothache and since then my depression and anxiety is through the roof again. I am at a loss of what to do. I have
Amos1993
in
Anxiety and Depression Support
2 years ago
Prostap (Lupron) Effects
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Diagnosed 11 years ago, I am T3b non-metastatic and have had one month of Bicalutamide and six months of Prostap (Lupron). Indeed my PSA has dropped dramatically and my testosterone is currently not in production mode. This is common treatment prior to IMRT. The effects have been quite severe. Apart
Jon1923
in
Advanced Prostate Cancer
2 years ago
Pain Threshold Used Against You
Just had my review appt after being on Prostap for the last year. I had intermittent bleeding while on prostap so had a few appts in the last year and it had been mentioned that I could possibly try it for another year as I had noticed an improvement in symptoms. Today I was told that’s not an option
Just had my review appt after being on Prostap for the last year. I had intermittent bleeding while on prostap so had a few appts in the last year and it had been mentioned that I could possibly try it for another year as I had noticed an improvement in symptoms. Today I was told that’s not an option
NNNurse
in
Endometriosis UK
2 years ago
Prostap update
Tomorrow will be 3 weeks on prostap, it’s been very up and down during these 3 weeks. I have lupus so my joint pain has been very bad needing to take extra meds on top of my slow release tramadol. Had nearly two weeks of not being able to do much but finally working out some kind of routine with it all
Tomorrow will be 3 weeks on prostap, it’s been very up and down during these 3 weeks. I have lupus so my joint pain has been very bad needing to take extra meds on top of my slow release tramadol. Had nearly two weeks of not being able to do much but finally working out some kind of routine with it all
Leenie0811
in
Endometriosis UK
2 years ago
interpreting my blood test results
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
Hello again I posted here about a month ago, and received really useful information about what blood tests for hypothyroidism should reveal. I have now had the results of the tests, which are quite lengthy, but do not seem to have any information on T3 and T4 levels. Please could some wise person comment
humlies
in
Thyroid UK
2 years ago
Fresh into Hyperthyroid or Grave's or...
Hi to you all, I joined few weeks ago as I was diagnosed with hyperthyroid. I have been getting a lot of information through reading questions and answers here. I am very grateful that I found this group. I would like to share my story now and ask for your valued experiences. I was a super speedy busy
Hi to you all, I joined few weeks ago as I was diagnosed with hyperthyroid. I have been getting a lot of information through reading questions and answers here. I am very grateful that I found this group. I would like to share my story now and ask for your valued experiences. I was a super speedy busy
LilyBloom
in
Thyroid UK
2 years ago
Prostap and smear test
Hello Ladies, I’m back on Prostap to help with endos pains but have a smear test in a few weeks anybody had one done while on this treatment as my downstairs has got a lot smaller im worried they won’t be able to do it? Any advice would be greatly appreciated 🌸 xx
Hello Ladies, I’m back on Prostap to help with endos pains but have a smear test in a few weeks anybody had one done while on this treatment as my downstairs has got a lot smaller im worried they won’t be able to do it? Any advice would be greatly appreciated 🌸 xx
Hidden
in
Endometriosis UK
2 years ago
Prednisone zone fog or GCA
For several months I have been reducing my prednisone by 1/2 of a mg. I am down to 4mg. 3 mg in the morning and one mg around 6pm. My head feel tight all over. I did have a very stiff neck and ear pain the last time I was at 4mg. They check my sed rate and C reactive protein… both were high. Went up
For several months I have been reducing my prednisone by 1/2 of a mg. I am down to 4mg. 3 mg in the morning and one mg around 6pm. My head feel tight all over. I did have a very stiff neck and ear pain the last time I was at 4mg. They check my sed rate and C reactive protein… both were high. Went up
Plains
in
PMRGCAuk
2 years ago
Proton Therapy verses SBRT side effect differences
Are the side-effect profiles between Proton Therapy and SBRT essentially the same? The Proton Therapy advocates say the side effect profile from Proton Therapy is significantly less than SBRT or other External Beam types of radiation, but are there any side by side comparisions to show this? Issues
Are the side-effect profiles between Proton Therapy and SBRT essentially the same? The Proton Therapy advocates say the side effect profile from Proton Therapy is significantly less than SBRT or other External Beam types of radiation, but are there any side by side comparisions to show this? Issues
Yearofthecow
in
Prostate Cancer Network
2 years ago
Local gynae app
Morning. I’m under an endo specialist and down for surgery through them. I was told the list was 12-18 months in December though so I reckon it’s still 12 months away ish. I’m on prostap while I wait. I’m waiting to hear from the bowel surgeon to tell me if I need surgery on my bowel during the surgery
Morning. I’m under an endo specialist and down for surgery through them. I was told the list was 12-18 months in December though so I reckon it’s still 12 months away ish. I’m on prostap while I wait. I’m waiting to hear from the bowel surgeon to tell me if I need surgery on my bowel during the surgery
Mustang2598
in
Endometriosis UK
2 years ago
Post-Prostap - When will my period start again?
Hello, I am 22 years old (diagnosed with endometriosis at 18). I received prostap injections from March to November 2021, as of yet (May 2022) I still haven't had a period. A gynie said in February to expect it any day, but three months later - nothing. I also have the Mirena coil (which has never stopped
Hello, I am 22 years old (diagnosed with endometriosis at 18). I received prostap injections from March to November 2021, as of yet (May 2022) I still haven't had a period. A gynie said in February to expect it any day, but three months later - nothing. I also have the Mirena coil (which has never stopped
BetyBoopa
in
Endometriosis UK
2 years ago
Hydroxychloroquine
Hello ladies. Hope you are all well and having successful fertility journeys. I am getting ready for my last ever transfer after 4 miscarriages. I have a few problems from a uterine abnormality, adenomyosis and a clotting gene mutation. The next step for me is adoption as I can’t keep going on with
Hello ladies. Hope you are all well and having successful fertility journeys. I am getting ready for my last ever transfer after 4 miscarriages. I have a few problems from a uterine abnormality, adenomyosis and a clotting gene mutation. The next step for me is adoption as I can’t keep going on with
Hallj10
in
Fertility, Miscarriage & IVF Support
2 years ago
hydroxychloroquine
Hello ladies. Hope you are all well and having successful fertility journeys. I am getting ready for my last ever transfer after 4 miscarriages. I have a few problems from a uterine abnormality, adenomyosis and a clotting gene mutation. The next step for me is adoption as I can’t keep going on with
Hello ladies. Hope you are all well and having successful fertility journeys. I am getting ready for my last ever transfer after 4 miscarriages. I have a few problems from a uterine abnormality, adenomyosis and a clotting gene mutation. The next step for me is adoption as I can’t keep going on with
Hallj10
in
Fertility Network UK
2 years ago
TSH high end, B12 deficiency, perimenopausal starting HRT soon.. what's what with all the bloods please?
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
Hi, to give the full picture I posted this on the b12 site but looking for your thoughts on the thyroid part of it please ... Prior to having covid in Dec 2020, I was physically fit and healthy. Started Sertraline in Nov 2017 for severe pmt. Gave birth in Oct 2018, was induced with hormones and given
B12-118
in
Thyroid UK
2 years ago
Investigations
Feeling really annoyed and frustrated today after my gynaecologist appointment. I have been on prostap for 3 months, hasn’t help with the pain and caused hot flashes, weakened bladder and painful joints with swelling on my feet. I was told today nothing else can be done as if that didn’t work for pain
Feeling really annoyed and frustrated today after my gynaecologist appointment. I have been on prostap for 3 months, hasn’t help with the pain and caused hot flashes, weakened bladder and painful joints with swelling on my feet. I was told today nothing else can be done as if that didn’t work for pain
pcalu
in
Endometriosis UK
2 years ago
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