Prostap update

[Leenie0811]

Tomorrow will be 3 weeks on prostap, it’s been very up and down during these 3 weeks. I have lupus so my joint pain has been very bad needing to take extra meds on top of my slow release tramadol. Had nearly two weeks of not being able to do much but finally working out some kind of routine with it all.

There’s been some bleeding after the first week which I thought was unusual but it didn’t last longer than 5 days so I’m hopeful that’s the last of it now and there’s no more bleeding. The temperature changes are really bad for me because of Raynaud’s I need to keep my hands and feet warm so the flushes come on more frequently but that’s a trade off for not having numbness and freezing for hours before warming up.

Flexible working has been a godsend to me as I can’t do more than one day without working from home the next. Yep I need to work from my bed or the sofa but at least it hasn’t resulted in more time off sick. I just have to be more careful with things I’m doing and balancing it with rest.

I have noticed my hair falling out a lot more than usual which is upsetting as my lupus did this for a long time and it’s been so nice to not have that since my medication has been adjusted. Trying to keep it together by being kind to my hair no heat and generally trying not to mess with it too much.

My appetite was already terrible but now it’s really gone with the sickness and generally not feeling like eating. Been trying to stay hydrated but the only thing that works right now is ice lollies or hot cuppas. My loved ones are worried but I try eat where I can even if it’s unhealthy I’m not putting too much pressure on myself with any particular eating pattern. Just eat when hungry whatever the craving is.

Everyone that posted their experience on my last post has helped so much. Made me more aware of how things might go and I hope the side effects settle over the coming weeks more than they have at the moment. If anyone is starting or just started prostap or any other medical menopause injection I hope this helps and hang in there. Here to talk if anyone needs to.

Leenie xxx

[Lindle]

When you first have the injection there is a flare of oestrogen before your ovaries shut down. There can often be bleed too and this can depend on when you start it - it should be given within the first 5 days of your cycles a after a period. This flare of excess oestrogen usually lasts up to around 3 weeks so you should expect to have a change of symptoms now.

[Leenie0811 in reply to Lindle]

Thank you so much for your information Lindle I remember chatting to you before I had surgery in 2017! I was on the depro injection so I’ve no idea where I was in my cycle but they did the injection as I was over a month after having it. Not too sure if that’s going to do anything but they said don’t take HRT until at least 4 weeks after the injection.

My nanna got breast cancer from HRT so I’m trying to hold off until I have to take it when I’ve been on the injection for 6 months. Waiting time is still around 18 months (was told 2 years in January) so it’ll be a while before I’m off this injection x

[Lindle in reply to Leenie0811]

It's only licensed for 6 months so if you do go beyond that you must consent to taking it off license and accept the unknown long term potential effects. In terms of bone loss you would probably regain it if only on it 6 months but without HRT you need to consider that too.

[Leenie0811 in reply to Lindle]

Thank you so much for the information. I think it’ll be 6 months without HRT and then go on and have the HRT for the remainder of the time I’m hopeful it won’t be much longer as I’ve asked to go on the cancellation list in a bid to be seen sooner x

[Mondaymum in reply to Lindle]

Hi there, I've had my first Prostap 3 on 1st June, and have been getting blood loss since. Could this be connected and when will it ever end? It's driving me nuts!

[Lindle in reply to Mondaymum]

Do you know what day of your cycle you started?

[Leenie0811 in reply to Mondaymum]

I had a week of bleeding when I first had my injection but my cycle was all over the place. If you have a regular cycle Lindle will be able to give you more information

[veggiegal]

I had my first injection 3 weeks ago. I was told to start HRT at the same time but I held off until a week ago. So far it hasn’t had any impact on my pain. I’m getting very nauseous, totally unmotivated, very down and feeling detached. Hoping that it will pass soon. X

[vic777]

Hi allI had my first prostap injection today, its the day before I'm due on. I was told I could take it anytime in the cycle?

I was also advised to take HRT straight away, so different advice to others on here.

I'm hoping it help with the pain. I'm waiting for surgery, was told 12 month wait initially, increased to 18 months now.

I took the 3 month prostap as thrg said it takes 2-3 months to work.

Anyone found that it was worth it?