Search
Search
About
Log in
Join
Experiences with
Prostap SR
Posts
Communities
17,516 public posts
Filter results
My scans showed spread but......
My scans showed no spread but Sept 1 my right nipple became very sensitive and a 2" diameter hardness formed around it. I applied Clio twice a day and today the hardened area is the size of a dime. The Clio I use is 5-chloro-7-iodoquinolin-8-ol). U of Maryland is the best source of cancer research that
My scans showed no spread but Sept 1 my right nipple became very sensitive and a 2" diameter hardness formed around it. I applied Clio twice a day and today the hardened area is the size of a dime. The Clio I use is 5-chloro-7-iodoquinolin-8-ol). U of Maryland is the best source of cancer research that
agnut
in
Advanced Prostate Cancer
9 months ago
How long has Olaparib worked for you?
I've been on Olaparib for 20 months and my PSA has dropped from 10 to 1.5. It has started to rise again and is now 4.2. I'm BRCA2 mutation. I'm wondering how long Olaparib has worked for other people. Thanks.
I've been on Olaparib for 20 months and my PSA has dropped from 10 to 1.5. It has started to rise again and is now 4.2. I'm BRCA2 mutation. I'm wondering how long Olaparib has worked for other people. Thanks.
davebliz
in
Advanced Prostate Cancer
7 months ago
Gleason 6, 1 Yr AS, now Gleason 3+4
Hi, I'm 65, fit, active. , 2 yrs ago noticed PSA doubled to 2.4, last yr 3.5 so had MRI and urine exosome test, "liquid biopsy". Range is 1-100, less than 15 and you are ok, o/w suggest a biopsy. Mine was 48. Oh, the 3 markers in this test are for more aggressive disease. BTW MRI only showed diffuse
Hi, I'm 65, fit, active. , 2 yrs ago noticed PSA doubled to 2.4, last yr 3.5 so had MRI and urine exosome test, "liquid biopsy". Range is 1-100, less than 15 and you are ok, o/w suggest a biopsy. Mine was 48. Oh, the 3 markers in this test are for more aggressive disease. BTW MRI only showed diffuse
Muggs1
in
Prostate Cancer Network
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
caught prostate cancer?
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
I have heard Dr. Schloz of you tube fame and one of our colleagues refer to PCA as “being caught”? Did we catch prostate cancer from a virus? I have a family history my father, his brother, my grandfather. But by far mine is the most aggressive? On my mothers side brca is present but she has had
Nowhereman9
in
Advanced Prostate Cancer
11 months ago
sarms
I have been thinking about trying ostarine for my locally advanced prostate cancer, osteoporosis and sarcopenia but I have been reading that sarms do not suppress p/c growth.
I have been thinking about trying ostarine for my locally advanced prostate cancer, osteoporosis and sarcopenia but I have been reading that sarms do not suppress p/c growth.
Radars
in
Advanced Prostate Cancer
11 months ago
clioquinol + zinc
PSA 44 started clioquinol +zinc Aug 11. Aug 30 PSA 48 with severe UTI. U of Maryland says Clio + zinc kills cancer cells. They give two cases of prostate cancer terminated. I'm trying it.
PSA 44 started clioquinol +zinc Aug 11. Aug 30 PSA 48 with severe UTI. U of Maryland says Clio + zinc kills cancer cells. They give two cases of prostate cancer terminated. I'm trying it.
agnut
in
Advanced Prostate Cancer
9 months ago
de novo metastatic prostate cancer
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
NewGame
in
Advanced Prostate Cancer
11 months ago
PSA up to 150 on Olaprib, any insight on what’s next?
Hi all, my dads history is mostly in my profile but in short he started on Zytiga a year ago. Zytiga worked well but had major side effects and lead to a switch to Erleada. Erleada failed at the time shown in the picture with the orange circle and he switched to Olaprib by the time he got the PSA results
Hi all, my dads history is mostly in my profile but in short he started on Zytiga a year ago. Zytiga worked well but had major side effects and lead to a switch to Erleada. Erleada failed at the time shown in the picture with the orange circle and he switched to Olaprib by the time he got the PSA results
StayingSTRNG
in
Advanced Prostate Cancer
9 months ago
To hell and back...
I was diagnosed with endometriosis and fibroid in my late 40s. Pain was horrendous and bleeding would make its way through my clothing. The merena coil was attempted but wouldn't stay in because of my inverted womb. Fast forward a year later I started prostap which helped hugely but is only recommended
I was diagnosed with endometriosis and fibroid in my late 40s. Pain was horrendous and bleeding would make its way through my clothing. The merena coil was attempted but wouldn't stay in because of my inverted womb. Fast forward a year later I started prostap which helped hugely but is only recommended
Andi04
in
Endometriosis UK
2 years ago
anyone suffering from frequent Nausea
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
7 yrs. + on firmagon and switched to lupron 8 months ago. Everything stable with the stage 4 PC. Can handle the hot sweats,low energy and no libido. My biggest problem is frequent nausea . Just wondering if anyone else has the same side effect and how they deal with it. I have never had any radiation
Dannyboy48
in
Advanced Prostate Cancer
11 months ago
No desire for sex,Elevated psa levels,biopsy
they say the biopsy is painful like having twelve bee stings all at once. Is that true? I am taking fenbendozole. Diabetic also on dialysis.
they say the biopsy is painful like having twelve bee stings all at once. Is that true? I am taking fenbendozole. Diabetic also on dialysis.
theclevergiver
in
Men's Health Forum (Penis Health)
7 months ago
Happy Gobble Day
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Hello, Hello, been visiting for 7 months first post…I’m a foreigner in Japan with prostate cancer … quite a journey … not that great at Japanese … which makes everything a bit more difficult .. on top of that I broke my finger 4 weeks ago so a bit difficult to type so I’ll keep this short.. appreciate
Yokohama2023
in
Advanced Prostate Cancer
7 months ago
Decision Xtandi or radiation
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
Many posts proceed this one and I am now at a crossroad. Scans since 7/21 showed uptake in either/or illiac, acetabulum and the ischium. After 2/23 scan I had 35 gys radiation to acetabulum. PSA dropped then started rising, 9/23 scan showed SUV uptake 28.4 at ischium. PSA 4.2 Local radiologist is
alperk
in
Advanced Prostate Cancer
10 months ago
PSA 6.9 six years after prostatectomy but PET/CT negative?
Weird situation here. Had a prostatectomy at Hopkins in early 2018. Organ-confined but Gleason on pathology was 4+5. For a little over two years PSA remained undetectable...and then, well, I kind of slacked off the test. Stupid and reckless on my part. After a roughly 3-year interval I recently
Weird situation here. Had a prostatectomy at Hopkins in early 2018. Organ-confined but Gleason on pathology was 4+5. For a little over two years PSA remained undetectable...and then, well, I kind of slacked off the test. Stupid and reckless on my part. After a roughly 3-year interval I recently
Nittany
in
Advanced Prostate Cancer
10 months ago
SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
10 months ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
10 months ago
When To End An ADT Holiday
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
Just had a lengthy conversation with my MD Anderson MO who agrees with my Houston Methodist MO, i.e., it’s probably better, after an ADT holiday, to allow PSA to reach 0.5 so a PSMA scan can be used to identify any metastices, then zap the met(s), then go back on ADT to put the cancer back into remission
6357axbz
in
Advanced Prostate Cancer
7 months ago
PLUVICTO
I finished 6 treatments of Pluvicto in May 2023 with negligible PSA readings. In August of 23 my PSA jumped to 2.3, my September 14 PSA is 16.8. It seems like Pluvicto is losing it's grip. I have an appointment with my oncologist on September 25. I am sure he will order a PSMA scan. I am curious as to
I finished 6 treatments of Pluvicto in May 2023 with negligible PSA readings. In August of 23 my PSA jumped to 2.3, my September 14 PSA is 16.8. It seems like Pluvicto is losing it's grip. I have an appointment with my oncologist on September 25. I am sure he will order a PSMA scan. I am curious as to
Jrb12
in
Advanced Prostate Cancer
10 months ago
Trimix with atrial fibrillation meds
I received HDR Brachy and 25 EBRT treatments 3 years ago. My PSA has been negligible since then. I was discharged from the hospital yesterday, after an arterial flutter, my first heart problem ever. I was discharged with amiodarone (Pacerone), apixaban (Eliquis), losartan (Cozaar), and metropol succinate
I received HDR Brachy and 25 EBRT treatments 3 years ago. My PSA has been negligible since then. I was discharged from the hospital yesterday, after an arterial flutter, my first heart problem ever. I was discharged with amiodarone (Pacerone), apixaban (Eliquis), losartan (Cozaar), and metropol succinate
Smallfall
in
Prostate Cancer Network
7 months ago
Xtandi and insomnia
Anybody else have severe insomnia from enzalutamide? I'm only getting ~3 hours sleep since starting. Pretty deep fatigue too. Any advice on ways to manage this?
Anybody else have severe insomnia from enzalutamide? I'm only getting ~3 hours sleep since starting. Pretty deep fatigue too. Any advice on ways to manage this?
Djangler
in
Advanced Prostate Cancer
11 months ago
1
...
95
96
97
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
12708 results
Endometriosis UK
1653 results
Prostate Cancer Network
1300 results
View top 10 communities
Sort by
Most Relevant
Newest